What Will Go Wrong Next?

by jphilo | Aug 22, 2022 | Different Dream, Encouragement, Grief, Special Needs Parenting

What Will Go Wrong Next?

What will go wrong next?

When our family gathers around the dinner table each evening this summer, that question pops up at some point in every conversation. Here’s why we keep asking it:

In June I went to the doctor with throbbing varicose veins. Tests showed that surgery to close the veins a dozen or more years ago have opened again. This happens only 10% of the time.
Our pickup truck started acting up in early July, a week before we were go on a long anticipated family vacation. In short order, the vacation morphed into a staycation.
In the middle of the staycation, my husband took our son-in-law to the ER with heart attack-like symptoms. It wasn’t a heart attack, but he was in the hospital for 3 days before a diagnosis was made.
My husband’s rib went out of place a week later. He says he’s never been in such pain.
Our air conditioning system, installed last fall, has never operated correctly. We’re on a first name basis with the repair technician. He’s here again today. He’ll probably be here tomorrow.
My husband and I have a late August trip planned in the camper we purchased in May. The license plates still haven’t come.
Last night, my husband took our son-in-law to the ER with chest pains again. Not as severe as before. The cause was quickly diagnosed.

This list shows why the summer of 2022 has risen to second place in my personal hit parade of bad summers. But no matter how bad this summer gets, it won’t overtake 1982.

To read the rest of What Will Go Wrong Next? visit the special needs parenting blog at the Key Ministry website.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

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10 Tips for a Successful Special Needs Vacation

Mark Arnold’s guest post offers 10 tips for a successful special needs vacation. He and his family tested them this summer for you to use whenever you and yours are able to get away.

So, what do we need to do to prepare our special needs children and young people for vacations overseas, in their home country, or as a staycation? These 10 tips for a successful vacation can help.

Tip #1: Allow for Processing Time

While the attraction of late vacation deals can be tempting, deciding at the last minute can be difficult. Some children and young people need processing time to prepare for a significant change, so plan as far in advance as you can.

Tip #2: List Issues Your Child May Face

Think about everything from the packing to traveling, from where you will stay and sleep to the things you will do, from the people going with you to those you might meet, from the food will eat to transportation you will take. What are the issues for your special needs child or young person? List them and think about how to reduce their impact. For example, if food’s an issue, contact the holiday provider and request a special menu. Or you take favorite food items with you.

Tip #3: Create a Social Story

A social story uses photos, symbols, and words to explain something new or complex for a child or young person with special needs. You can create one about what your child or young person needs to know, about the upcoming vacation. This gives them the tools to understand what will happen. Resources about social stories can be found at the Reachout ASC website.

Tip #4: Create a Visual Timetable

Create a daily plan. Use symbols or photos to represent each aspect of the day. Attach them using Velcro, so they can move along the timetable as the day progresses to aid understanding of what is happening now, next, and so forth. There’s a visual timetable template on the Reachout ASC website above.

Tip #5: Take Favorite Items

Take favorite toys or items your child or young person uses to feel safe and secure. Pack them in your carry-on baggage so they don’t get lost! You could also introduce a new item to take on vacation—something related to your destination. The item could be a vacation mascot and your child could have the job of looking after it.

Tip #6: Conduct a Dry Run

If you are flying and the airport you are going to isn’t far away, conduct a dry run. Most airports have special assistance for families traveling with a child or young person with special needs. It’s worth exploring what they provide. Look at where everything is. Airlines are supportive, but it’s wise ask for assistance in advance.

Tip #7: Bring Things to Do

While traveling, there will be long periods with little to do. Take activities to fill these gaps. Depending on your child’s interests, take coloring books, books to look at or read, fidget toys, Legos, a tablet to watch or listen to, or whatever helps them fill the time and relieve boredom.

Tip #8: List the Essentials

We usually remember important things like tickets, passport, money, and phones. It’s wise to also list other essentials such as medications and be sure you bring enough along. List snacks and drinks and take plenty in case you get stuck in a huge traffic jam or at the airport.

Tip #9: Involve Your Child or Young Person in Planning

If possible, seek your child or young person’s input. Ask what they’re worried about, what they want to take to feel safe, what resources help them feel in control. The more you talk about the vacation and work through any fears, the more likely the trip will be successful.

Tip #10: A Staycation is a Good Option

If the complexities of going somewhere else are too great, plan a staycation instead. You can have a wonderful time staying local and exploring what’s on offer close to home. And everyone gets to sleep in their own bed at night!

Whatever you are hoping to do for vacation, these 10 tips for a successful special needs vacation can make it less stressful and more fun.

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold