This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m grateful for grief. That statement is going to make family members scratch their heads when we celebrate the holiday together and I announce that this Thanksgiving I’m grateful for grief. Chances are, those words are making you, as a family caregiver well acquainted with grief, scratch your head as well.

Five years ago, grief wouldn’t have topped my thankfulness list. Not because I lacked experience with grief…

…starting as a child in a home where caring for an ill father was our family’s chief concern,

…then as young parent caring for a medically fragile baby,

…and finally, as one of three adult children managing our mother’s care as her health failed.

During those days of constant caregiving, grief was my frequent companion. I had little time or energy to address it. Only now, with both my parents released from long suffering and our son an independent adult, have I been able to reflect upon my grief. What I have discovered in the process is yielding a cornucopia of blessings that explain why this Thanksgiving, I’m grateful for grief. I’d like to share just 3 of them with you.

  1. My dad lived with multiple sclerosis for 38 years. For 24 of them he lived in the home where my siblings and I were raised. When his needs grew too much for Mom to handle, he resided in a long-term care facility for 14 years. Every day he lost something to his terrible disease. Dad could have complained about what he could no longer do. Instead, he joked about his fumbling fingers. He grinned wide at visitors and caregivers when he couldn’t remember their names.

To read the rest of This Thanksgiving I’m grateful for Grief, visit the Hope Anew website.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.

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Why Did God Make Me this Way?

Why Did God Make Me this Way?

Why Did God Make Me this Way?

“Why did God make me this way?” It’s a question our children with disabilities and special needs are bound to ask us. Guest blogger Steve Siler knew the question was coming and thought about what he would say. Read on to find out what he said and to listen to a song he wrote to express his thoughts.

“Why did God make me this way?”

I knew the question would eventually come and I’d prayed about how I would answer it. When my seven-year-old son with Spina Bifida finally asked me that question one evening as I was helping him in the bathroom I gave him the only answer I could think of that was not a lie.

“I don’t know son.”

Of course, I could’ve gone into some theological rationalization and told him all about how God was going to use his infirmity to bless others; how truthfully, in fact, he already had—as hundreds prayed for Henry for the weeks and months leading up to his birth and through the four years of surgeries that had followed.

Somehow, though, I didn’t think that would bring him much comfort.

So I decided to sit with him in the question. I decided not to minimize his pain. I decided not to explain away his disease by making it some part of a gigantic cosmic puzzle that God was working.

I’ve come to believe that we who call ourselves Christians are too quick to come up with explanations at times like these. I’ve come to believe that we do not place enough value in the ministry of presence: Our own or God’s.

To read the rest of Why Did God Make Me This Way?, visit Steve’s website, Music for the Soul.

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Steve Siler is founder and director of Music for the Soul a multi-award-winning not-for-profit ministry using songs and stories to bring the healing and hope of Jesus to people in deep pain. Siler is a Dove Award winning songwriter, music producer, author, and speaker. He is co-host of the Music for the Soul Podcast: Where Music, Hope, and Healing Come Together! He and his wife Meredith have two children and three grandchildren.

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The Physical Manifestations of Grief in Caregivers

The Physical Manifestations of Grief in Caregivers

The Physical Manifestations of Grief in Caregivers

The physical manifestations of grief in caregivers are unexpected and pervasive. That, in a nutshell, is what God has been teaching me since the death of my mother on June 23, 2023.

Mom’s suffering was great during her final 2 years on this earth. My siblings and I had no desire to prolong her life through medical intervention. We rejoiced when her suffering ended. Her funeral was a celebration, a sharing of memories, a gathering of extended family who loved her and supported us. We wept, we hugged, we said our goodbyes, and my siblings moved on with their lives.

I tried to do the same. A few weeks after Mom’s death, my husband and I packed our new camper and headed west for a much-needed vacation. On the second day, we turned around due to truck trouble and prayed as it limped all 500 miles to our home.

Soon after our return I started limping due to foot pain. The foot pain moved into my leg and then into my hip. During this time my uncle, who was like a second father to me, died. In mid-October, physical pain landed me in bed. From there I limped to the doctor’s office, was diagnosed with a pinched nerve, given a cortisone shot, and started physical therapy.

In an attempt to spare you the details, here’s a pared down timeline of life from then until now:

November and December 2023: Physical therapy, physical therapy, and more physical therapy.

December 2023: Pinched nerve better, bursitis causes by pinched nerve exercises worse.

January 2024: Physical therapy relieves bursitis, but pain from iliotibial band (IT band) increases.

To read the rest of The Physical Manifestations of Grief in Caregivers, visit the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Experiencing Post-Traumatic Growth while Raising a Child with Disabilities

Experiencing Post-Traumatic Growth while Raising a Child with Disabilities

Experiencing Post-Traumatic Growth while Raising a Child with Disabilities

Experiencing post-traumatic growth (PTG) while raising a child with disabilities may not be on your radar screen when you’re drowning in the stress associated with caregiving. The only growth that concerned me during our son’s medically fragile years was increasing his strength as he fought for his life. Paying attention to the stress I was experiencing while he struggled, and possible growth coming from it, never crossed my mind.

Now, as I reflect on the hot mess I was in 1982 after our son’s birth, I barely recognize the young and very stressed person I was then. The credit for my present lack of hot messiness goes to post-traumatic growth.

By now you may be asking yourself, “What is post traumatic growth, how do I sign up for the class, and how do I know it’s happening in me?”

Let’s start with the first question.

In a research study conducted by Taylor Elam and Kanako Taku, they define PTG as “the positive psychological changes as a result of a struggle with a major life crisis or traumatic event.” The crisis or event is the kind that rocks a person to the core and forces a re-evaluation of beliefs about the world. That sounds a lot like what many parents experience after a child’s diagnosis, doesn’t it?

Now, on to the second question.

The bad news is that I don’t know of classes about PTG. But according to Richard Tedeschi, who has worked extensively with traumatized veterans, you can facilitate and encourage your own growth in 5 powerful ways.

To learn more about experiencing post-traumatic growth while raising a child with disabilities, go to this link at the Key Ministry blog for special needs parents.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Mending Broken Hearts

Mending Broken Hearts

Mending Broken Hearts

Mending broken hearts is all too familiar to guest blogger Kelly Denham. She and her husband’s hearts are still mending after a medical mistake left their son TJ irrevocably injured and later resulted in the decision she wrote about in today’s post.

On February 26, 2018, my husband and I stood in TJ’s hospital room and watched as nurses removed our 21-year-old son’s life support. As you can imagine, it had been an agonizing decision. Parents are supposed to protect their children and keep them from harm. We were choosing to remove the very thing our son needed to live.

TJ’s injury was caused by a medical mistake. We had spent five years in and out of hospitals and rehab centers, and we had seen too much. We had learned that we couldn’t always trust medical staff. If you followed TJ’s Caring Bridge or read his story in my book, Trapped Within, you know that God, in His goodness, provided a trustworthy Christian doctor, Dr. P, the last few days of TJ’s life to gently guide and walk with us through that hard decision. 

But what many of you don’t know is that after TJ’s death, guilt and doubt began to creep in. Questions like, “Would his condition have improved if we had waited longer?” began to gnaw at my husband and me.

In the spring of the following year, our adopted grandson Aiden had chosen to play soccer. Watching him play sports is one of the joys of my life. On this Saturday morning, I arrived at the field ready to be his cheering squad. As I sat on the sidelines waiting for the game to begin, I looked up and was surprised to see Dr. P walking toward me. His son was on Aiden’s team!

Dr. P sat down beside me. We exchanged pleasantries and visited for a while. Unable to control myself any longer, I quickly blurted out the question I had been wrestling with for a year. “Did we make the right decision, Dr. P? He was going to die, right? I mean, even if we had kept him on life support, he still would’ve died?”

“Yes,” he answered. “He was going to die. You made the right decision.”

I sighed deeply. It felt like a weight had been lifted off my shoulders. Dr. P’s reassurance was exactly what I needed to hear to begin moving forward and enjoy life again.

Some may believe that Aiden and Dr. P’s son being on the same team was just a coincidence. That’s not what I believe. On the contrary, I believe the meeting was a divine appointment orchestrated by God to mend a mother’s broken heart and save her from being crushed in spirit.

What about you? Are you experiencing affliction? The Lord doesn’t promise to prevent His children from suffering. He doesn’t promise to remove affliction while in the midst of it. He doesn’t even promise to prevent the very worst outcome.

What God does promise us though is that He will answer us when we call on Him. He will be with us in trouble, and He will deliver us and honor us.

We are secure in the Lord’s arms, so call upon the Lord, dear weary one. He’s in the business of mending broken hearts. His presence will give you the strength to endure any affliction.

“The Lord is close to the brokenhearted

and saves those who are crushed in spirit.”

Psalm 34:18

“He will call on me, and I will answer him;

I will be with him in trouble.

I will deliver him and honor him.”

Psalm 91:15

 

In loving memory of TJ Denham

July 16, 1996 – February 27, 2018

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Kelly Denham lived through unspeakable tragedy by learning to hold fast to God’s promises and find comfort in His unfailing love. She is an author, speaker, and advocate for the voiceless. Kelly has four daughters, one son, and thirteen grandchildren. She lives in Atlanta, Georgia with her husband and their adopted grandson. She also directs the special needs ministry at First Baptist Atlanta.

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I Didn’t Want to Learn Hard Caregiving Lessons, but Now I’m Grateful

I Didn’t Want to Learn Hard Caregiving Lessons, but Now I’m Grateful

I Didn’t Want to Learn Hard Caregiving Lessons, but Now I’m Grateful

I didn’t want to learn hard caregiving lessons in 2023. Mainly because I’m a big fan of easy. Hard? Not so much. Yet here I am waiting for 2023 to end—believe me, I’m ready to put it behind me—and at the same time embracing the hard lessons I’m about to share with you as precious gifts.

My entire life, literally since I was two years old, has revolved around caregiving. Therefore I assumed I was prepared for the challenges our family faced after my mother was diagnosed with dementia in 2008. That assumption proved correct until January of 2023 when Mom entered hospice care. Over the six months leading to her departure from this earth, advocating for her was all encompassing. I didn’t want, nor did I have time to learn hard caregiving lessons. With each passing day I became more grateful for how they drew and are still drawing me closer to God. And so, I want to share them with you.

  1. The why of caregiver grief is the same, though the who and what may be different. All grief is a response to loss. Young parents grieve the loss of children gone too soon or the losses related to their child’s disability. Growing children grieve what they don’t experience because their parents live with disabilities or because their parents were lost to disease. Adult children grieve as their elderly parents lose their independence, personality, and function. The universality of loss among caregivers can make us more empathetic toward all caregivers.

To read the rest of I Didn’t Want to Learn Hard Caregiving Lessons, visit the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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