Emotions Are Information: A New Way to View and Interpret Big Feelings

Emotions Are Information: A New Way to View and Interpret Big Feelings

Emotions Are Information: A New Way to View and Interpret Big Feelings

Emotions are information.

I was astounded when Margaret Vasquez, the therapist conducting a virtual workshop for parents about trauma-proofing kids, made that statement. Ever since her August workshop, I’ve been chewing on what she said. Thinking about the impact those three words have changed the way I now perceive my big feelings. About how those words could do the same for other parents raising kids with disabilities.

So bear with me as I attempt to unpack what Margaret meant when she said, ā€œEmotions are informationā€ and explain what that means for us as we parent kids with disabilities and special needs.

Margaret explained that emotions aren’t who we are. Rather, they are similar to physical sensations. When we feel something hot, cold, sharp, or painful, our bodies are alerting us to approach with caution something in our environment. When we feel emotions—big and small—our mind is alerting us to something internal that deserves our attention.

Her explanation was a revelation to a midwesterner like me. I grew up in a culture uncomfortable with displays of emotion—not only negative ones, but positive ones like joy, delight, and happiness.

As children, my siblings and I were not allowed to acknowledge the grief we felt as multiple sclerosis ravaged our Dad’s body and mind. As the young mom to a son who endured numerous surgeries and invasive medical procedures, I thought being a good mother to my child meant stuffing down the fear and grief, the anger and guilt I felt in order to concentrate on meeting his emotional and physical needs.

Yet here was Margaret saying that my emotions—and yours—were information designed to show us a better way to respond to them. By recognizing what our fear, anger, guilt, grief, shame, and a sense of abandonment are telling us, we can respond in healthy rather than unhealthy ways.

To read the rest of Emotions are Information, click here to visit the Key Ministry blog for parents.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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The Physical Manifestations of Grief in Caregivers

The Physical Manifestations of Grief in Caregivers

The Physical Manifestations of Grief in Caregivers

The physical manifestations of grief in caregivers are unexpected and pervasive. That, in a nutshell, is what God has been teaching me since the death of my mother on JuneĀ 23,Ā 2023.

Mom’s suffering was great during her final 2 years on this earth. My siblings and I had no desire to prolong her life through medical intervention. We rejoiced when her suffering ended. Her funeral was a celebration, a sharing of memories, a gathering of extended family who loved her and supported us. We wept, we hugged, we said our goodbyes, and my siblings moved on with their lives.

I tried to do the same. A few weeks after Mom’s death, my husband and I packed our new camper and headed west for a much-needed vacation. On the second day, we turned around due to truck trouble and prayed as it limped all 500 miles to our home.

Soon after our return I started limping due to foot pain. The foot pain moved into my leg and then into my hip. During this time my uncle, who was like a second father to me, died. In mid-October, physical pain landed me in bed. From there I limped to the doctor’s office, was diagnosed with a pinched nerve, given a cortisone shot, and started physical therapy.

In an attempt to spare you the details, here’s a pared down timeline of life from then until now:

November and December 2023: Physical therapy, physical therapy, and more physical therapy.

December 2023: Pinched nerve better, bursitis causes by pinched nerve exercises worse.

January 2024: Physical therapy relieves bursitis, but pain from iliotibial band (IT band) increases.

To read the rest of The Physical Manifestations of Grief in Caregivers, visit the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country.Ā Sharing Love Abundantly with Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon.Ā See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Caring for our Bodies to Meet the Needs of Those We Love

Caring for our Bodies to Meet the Needs of Those We Love

Caring for our Bodies to Meet the Needs of Those We Love

Caring for our bodies to meet the needs of those we love is a good thing to do. In this post, guest blogger Heather Braucher tells about her long journey to improved health for the benefit of her family members, which includes two boys with special needs.

A memory becomes a core memory because we never forget how we felt.

Aashna Jain

A couple weeks ago, a core memory was made in me while the fitness company I work for filmed me leading a workout for the first time.

The reason the event was so significant was that prior to finding this program I had endured a 10+ years of debilitating chronic back and neck pain that took away my job as a strength coach, impaired my ability to hold and nurse my children when they were young, and required significant time and resources to treat.

I feel like I have been given a second chance at life and am living out these verses in JoelĀ 2:25-32:

So I will restore to you the years that the swarming locust has eaten.

I now GET to help others who are looking for similar support, wisdom, and relief.

My journey did not happen overnight. It started when I decided to not give up on asking God to help me care for my body well. Some days that looked like asking for pain relief, other days it was asking for direction on who to ask for help.

At first those prayers were just for me. Then the position of my heart changed. I prayed that my body would be a blessing to my spouse and that my endurance and testimony would glorify God. When I had children, I prayed for my body’s ability to care for my children well, sustain them, hold them and be there for them.

The call to care well for my body in order to meet the needs of those I love was a powerful one on my life. In 1Ā PeterĀ 4:10, God asks us to be good stewards of the gifts that he gives us. Our bodies are one of those gifts.

The definition of stewardship is ā€œthe careful and responsible management of something entrusted to one’s care.ā€ We are quick to identify those things as the jobs we have, our homes, resources, and finances. We know that the precious children and family members he entrusts into our care requires our faithful stewardship too.

Often as a caregiver, we are exhausted and giving our all to manage the needs of those given to us. There is little left over to use to care for ourselves. But I tell you this:

YOU are worth caring for. Your health will overflow into the lives you are caring for. And if you don’t, who will?

Sometimes our pain and suffering is a gift. Mine turned out to be the tool that God is using now to help others. It is also the tool that helps me to understand, embrace, and nurture my children with special needs.

I started this article with Aashna Jains’ quote about core memories. There is power in remembering what it felt like to suffer. Those memories help me live out 2Ā CorinthiansĀ 1:4 which says, ā€œHe comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.ā€

My passion is shared with many of you who have suffered, endured, been restored, and blessed to serve others. My hope and prayer is to provide other caregivers with the hope and possibility to care for themselves well so they can serve well, so that the lives of those they serve and their own CAN BE abundantly blessed.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Heather Braucher is a member of the ā€œBraucher Bunchā€ aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

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How to Connect with Other Special Needs Parents

How to Connect with Other Special Needs Parents

How to Connect with Other Special Needs Parents

As a special needs parent, feeling alone is par for the course. Breaking through life’s busyness to build relationships can be hard. Today, guest blogger Kristin Faith Evans provides suggestions and resources for special needs parents so that you can find the support you need.

Our compassionate God “comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from Godā€ (2Ā CorinthiansĀ 1:3-4,Ā NIV).

Caring for a child with a chronic illness or disability often isolates special needs parents. Yet, social support is a critical factor in helping disability parents thrive. Sometimes it takes energy, courage, and creativity, but there are many ways that special needs parents can connect.

Barriers to Connection

Possibly two of the biggest hurdles to spending time with other special needs parents are the constant caregiving demands and maybe even the medical fragility of your child. You may feel exhausted just thinking about lining up caregiving, planning for your child’s needs, or packing up all their gear to go somewhere. These can be difficult barriers to overcome. But it’s not impossible.

You might also wonder, ā€œWhat’s the point? No one can understand what I’m going through.ā€ I felt this way when my medically complex daughter, Bethany Grace, was little. Every caregiving parent has their own unique story. However, though your experiences may not be exactly the same, there are other parents who can relate to what you’re going through and empathize with you.

Benefits of Support:

Social isolation can increase mental health symptoms, strain relationships, and impede adapting, but special needs parents who do find social support:

Become more resilient

Lower their stress levels

Improve their mental health

Strengthen their relationships

Cope and adapt better

Find new perspective

Support Groups

If you aren’t already, I encourage you to attend a support group. Ideally, you could attend in person, but sometimes that’s just not feasible, or there may not be a group in your area. If this is the case, there are also live online groups. By attending a support group, you can:

Feel understood and encouraged

Receive grief support

Process faith questions and struggles

Learn tips and discover resources

Help encourage other parents

Build new friendships

These are some possible places to find a support group in your area:

  • Churches with disability ministries (find a church at Key Ministry)
  • Local children’s hospitals
  • Pediatric therapy centers
  • Local Facebook groups
  • Your child’s syndrome organization regional chapter

Other ways to connect:

  • Strike up a conversation during your child’s therapy session
  • Meet other parents at your child’s school
  • Enroll your child in Special Olympics to talk on the sidelines
  • Go to a special needs family camp or retreat

I hope that you’re able to connect with other special needs parents in more meaningful ways.

What’s one way you find support from other parents? Please share your idea in the comments.

Blessings,

Kristin

 

Additional Resources:

Parent to Parent USA

Rising Above Ministries

Walk Right In Ministries

Joni & Friends

Wonderfully Made Family Camp

Especially for Dads (since there are fewer resources):

The Special Fathers Network

The Dad’s Fire Circle

Dads on Special Assignment (DOSA)

Dad to Dad FB Group

Special Needs and Disabilities Life of Dad FB Group

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Kristin lives with her husband, Todd, and their two children in the Nashville, TN area. She is an author, speaker, mental health counselor, and a mom of two children with rare genetic disorders and complex needs. Her greatest passion is teaming up with her husband to empower other parents of children with disabilities, mental health disorders, and medical complications. She hopes that you may find encouragement and support on their websiteĀ www.DisabilityParenting.com.

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Flying Near the Sun as a Special Needs Parent

Flying Near the Sun as a Special Needs Parent

Flying Near the Sun as a Special Needs Parent

Flying near the sun as special needs parents? What is guest blogger Lisa Pelissier talking about? In this post, she brings in a little C.S. Lewis, a little Greek mythology, and a little of her own fiction to explain how she deals with a phenomenon that is all too common for parents raising kids with disabilities and special needs.

ā€œStill the thermometer rose. The walls of the ship were too hot to touch. It was obvious that a crisis was approaching. In the next few hours it must kill them or get less.

It got less.ā€

From Out of the Silent Planet by C. S. Lewis

The passage from C. S. Lewis’ Out of the Silent Planet resonates with me as a special needs mom. Although the main character Ransom’s voyage through space was way outside the boundaries of my experience, I repeatedly live through the same kind of stress. Things happen. Then more things. And more things. I’m putting out fires left and right until I stop caring whether I burn up or not. Like Ransom and the others, I am flying near the sun as a special needs parent in a desperate attempt to journey successfully through this life.

As special needs parents, this is our story much of the time. There are too many things to deal with, too many problems to field, too many medical appointments, too much medicine to track, too much angst to soothe, too much sorrow to mop up with our already soggy souls. It’s easy to become overwhelmed, frustrated, and hopeless.

How do I, to mix my metaphors, keep my wings from melting in the sun? How do you emerge from the trials and still have something left to give? Here are some things that help me.

  1. I know this world is not my home. The eighty-three years I plan to spend here in this life (don’t laugh—I’m a planner) are just a speck of dust compared to the eternity of the next world. With that perspective, the trials of this world look more trivial and less all-encompassing. RomansĀ 8:18 says, ā€œFor I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us.ā€ Good things are yet to come.
  2. I count my blessings. There are many. I have a lot for which to be thankful. My trials and burdens are great, but looking back over the course of my life, I can see God’s hand faithfully leading me through the darkest places, especially during those times I felt farthest from Him. It helps me remember that though I may not experience the felt presence of God now, He is with me and providing for me.
  3. I work to see what magnificent miracles my children are. They are all delicious human beings. I like being with them. They make me laugh. They are smart and funny. I like the dark, dry humor of my youngest, even if it is born out of depression and anxiety. There’s more to them than what the world might tot up on a checklist of ā€œways to know your children turned out okay.ā€
  4. I take breaks and escape to another world. This will look different for everyone, but for me, I write fiction. I leave this world altogether and immerse myself in the trials of the characters who inhabit Gannoir, the inverted star where my angsty characters fight for what is right (and sometimes go off the rails). They’re so real to me now that I feel like I know them, and despite their difficulties being 100Ā percent my fault, I don’t have to feel guilty. Not everyone will find pleasure in torturing fictional characters, but escaping is vital when stress levels get too high.
  5. I lean on my friends. I have a few who are in the trenches with me, and a good number more who don’t completely understand, but who are always ready to sympathize and offer a listening ear and a helping hand.

I hope that these strategies and my journey are a blessing to you. If you have other methods for coping when you’re flying near the sun as a special needs parent, please post in the comments.

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Lisa Pelissier lives in Oregon where she is a homeschooling mother of four (three with disabilities) and author ofĀ four middle-grade fiction novelsĀ as well as aĀ YA fantasy novel. Lisa ownsĀ SneakerBlossom Books, offering Christian, classical homeschool Study Guides and curriculum. She blogs atĀ Eleventh Willow, offering encouragement for Christians parenting the mentally ill. She also works as a freelance copy editor, an artist, and a substitute teacher. In her spare time Lisa enjoys playing the piano and fretting about things over which she has no control.Ā 

Author Jolene Philo

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We Are FOR Parents and Children

We Are FOR Parents and Children

We Are FOR Parents and Children

We are for parents and children with special needs and disabilities here at Different Dream. Therefore, I am delighted to introduce you to new guest blogger Heather Braucher. Today she begins her five part I Am FOR You series. In it she’ll share her thoughts about how God demonstrates how He is FOR every member of your special needs family and how we can show others that we are with them too.

The room was pitch black, minus the dull glow from the star stickers on the ceiling. The sound of pouring rain from the white noise app was at max volume, but it still couldn’t drown out Garrett’s tapping and Jackson’s clicking as they waited for sleep to wash over them. Every tap and click made my body tense. At this point, I was convinced that my boys would never fall asleep and this day would never end.

This was a typical bedtime experience so my brain did know the boys would inevitably fall asleep. But fatigue—be it emotional, physical or mental—did not care what my brain should know to be true. Fatigue doesn’t care how much I actually love my sweet boys and their cuddles. Fatigue pays no mind to the fact that once they fall asleep, my heart will leap a little as I peek at their peaceful faces. No.

Fatigue only wants to hijack the brain with feelings of desperation. So as I stare at the stars on the ceiling and try to remain perfectly still, my fatigue-hijacked mind struggles to keep hope that the bit of solitude I am desperately clinging for is within reach.

But then, it happens. Stillness and slow breathing. They are asleep! I made it! The day’s requests and whines have ceased. No more sibling arguments and sensory overload for mommy. And if I can keep my eyes open, I can enjoy a couple hours to myself. But as I move on to this long-awaited part of my day, like clockwork, instead of resting in my solitude my brain starts to reflect and condemn! I ask myself questions.

  • Why does it take them so long to fall asleep?
  • Will they ever grow out of this?
  • Why do they even want to cuddle with me?
  • Was I even nice to be around? I wish I didn’t get so impatient!

And then I pray, “Lord, help them not remember me like this, exhausted, irritable, and quick-tempered.”

I remember early on a veteran mom told me, “You are going to make mistakes as a parent. It is impossible not to. But thank God we can ask for HIS mercy to wash our mistakes away and HIS grace to fill in the gap.” She encouraged me to bring self-condemnation to the Lord when it came.

So every night, I bring it all to the Lord.

And you know what happens? Instead of receiving a “Yup, you’re right Heather. You could’ve done so much better,” I feel a calm in my spirit and an affirmation that flawed as I am, I have a God who sees me, knows my heart for my family, and knows my desire to love well.

The Lord helps me see that at the end of those long arduous bedtime routines, when that silence finally comes—after all the those repetitive clicks and taps—HE reminds me that no matter how much fatigue will try to hold me captive, I am FOR my children! And the same for you too mama. WE are FOR our children!

When you are weary and your lens is muddied by fatigue, remember in your heart of hearts, that fatigue can often be a side effect of great love poured out. And don’t worry, the well will never run dry!

In this next installment of this series I look forward to sharing how I work to communicate to my children that I am FOR them.

Part 1: We are FOR Parents and Children
Part 2: Mothers are FOR their Children with Disabilities and Special Needs
Part 3: Caregiving Spouses are FOR Each Other
Part 4: Caregiving Moms are FOR Other Caregiving Moms
Part 5: Jesus is FOR Caregiving Parents

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter andĀ signing up for the daily RSS feed delivered to your email.

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Heather Braucher is a member of the ā€œBraucher Bunchā€ aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

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