When God Redeemed My Worst Christmas Ever and Used It for Good

When God Redeemed My Worst Christmas Ever and Used It for Good

When God Redeemed My Worst Christmas Ever and Used It for Good

 When God redeemed my worst Christmas ever by using it for good, it came as a big surprise. Most likely because 1982 was the year of my worst Christmas ever, and the using it for good part didn’t come along until December of 2024.

42 years is a long time, which explains my surprise.

When Christmas of 1982 rolled around, our medically fragile baby was 7 months old. He’d already been through major surgeries, airplane rides, hospital stays, tube feedings, and who knows how many doctors’ appointments. Had I not been too sleep deprived to muster a single creative thought, I could have penned the lyrics for “The Twelve Days of a Medically-Fragile Kid’s Christmas.”

All we wanted for Christmas that year was to stay home.

So we did. It wasn’t the first time my husband hadn’t gone home for Christmas, but it was the first for me. Thanks to dear friends in the town where we lived, it wasn’t as bad as it could have been. Those friends—he was our pastor, his wife was our son’s back-up babysitter, and their 2 older kids were my students—invited us to Christmas dinner. Their extended families were there, too, and our baby was the center of attention all day.

Even so, Christmas 1982 was my worst Christmas ever.

That changed this past November when one of their sons texted us. Having visited his parents during the summer, we were aware of our former pastor’s dementia and increasing care needs. We’d told his kids to call us if they needed extra help. In his text, the son asked if we could come and stay with his parents for the final week of his mom’s recovery from surgery.

To read the rest of When God Redeemed My Worst Christmas Ever and Used It for Good, please visit Key Ministry’s blog for special needs parents.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.

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Does God Speak Dutch?

Does God Speak Dutch?

Does God Speak Dutch?

Does God Speak Dutch? is an unusual way to begin a Different Dream post during the Christmas season. I encourage you to read on and let guest blogger Steve Harris explain the connection. It’s a good one you won’t want to miss!

This December Andy Williams will remind us often that Christmas is the “most wonderful” and “happ-happiest season of the year!” It’s easy to see why. Festive lights, frosted cookies, family parties, presents under a tree. Favorite movies are part of the fun too. One I enjoy is Miracle on 34th Street. It was released in 1947 and re-made in 1994.

My favorite scene is when the little girl, a Dutch war orphan, wants to see Santa at Macy’s. “She doesn’t speak English,” explains her adopted mom, “but was sure you could talk with her.” Santa pauses, smiles, then tenderly lifts the child onto his lap. The two begin to visit and sing—in Dutch. Her guardian tears up. I dare you to watch Miracle on 34th street Dutch girl scene without getting a little weepy yourself.

Double-dog dare you.

It’s a sweet picture of a remarkable spiritual truth for parents of children who are disabled and have special needs. When I was a new dad of a baby born with spina bifida, someone gave me a short story to read. The title was Welcome to Holland written by Emily Perl Kingsley. She was one of the first writers on Sesame Street and the mom of a son with Down Syndrome. In my 44 years of parenting two sons with disabilities, it remains the most powerful, honest, and helpful perspective I’ve ever read for parents like us.

Get ready for Kleenex Number 2.

Here’s a short summary of Kingsley’s amazing analogy. Joyfully anticipating the birth of a child is like planning a dream vacation to Italy. Your plane lands and the attendant announces, “Welcome to Holland!”

“Holland? That’s not right. We’re supposed to be in Italy.” The surprise, shock—and yes, the sadness—of that new reality will be part of us forever. But then come new realities and adjustments, and the life-saving truth that there are also wonderful—can we even say glorious?—things about Holland.

The Miracle on 34th street Dutch girl scene and Welcome to Holland revealed a truth for me that crystallized into questions that go way beyond fuzzy, greeting card sentimentality.

Did God arrive with us in Holland?
Is He here now?
Does He know how all of this feels?
Most importantly, does God speak Dutch?

I believe He does.

He is with us on every step of our parenting journey. He speaks our language. He knows how we feel. He knows the words we need to strengthen and encourage us, though I may not always hear them. I’ve learned that sadness can create spiritual deafness. But God continues to speak, in words accessible through His Word, in a language I need to listen to, learn, and understand. It is a language of presence and purpose.

It is a language of love.

Dad and Mom, may His words be clear to you this season and all through the new year. Merry Christmas to you and your family!

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Windmill Image by piccolomondo from Pixabay
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Steve Harris—www.steveharrisauthor.com—recently published “Dads Like Us: A Survival Guide for Fathers Raising a Child with Disabilities.” He lives with his wife, Sue, in Lanesboro, Minnesota. Reach him at steveharrisDLU@gmail.com.

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This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m Grateful for Grief

This Thanksgiving I’m grateful for grief. That statement is going to make family members scratch their heads when we celebrate the holiday together and I announce that this Thanksgiving I’m grateful for grief. Chances are, those words are making you, as a family caregiver well acquainted with grief, scratch your head as well.

Five years ago, grief wouldn’t have topped my thankfulness list. Not because I lacked experience with grief…

…starting as a child in a home where caring for an ill father was our family’s chief concern,

…then as young parent caring for a medically fragile baby,

…and finally, as one of three adult children managing our mother’s care as her health failed.

During those days of constant caregiving, grief was my frequent companion. I had little time or energy to address it. Only now, with both my parents released from long suffering and our son an independent adult, have I been able to reflect upon my grief. What I have discovered in the process is yielding a cornucopia of blessings that explain why this Thanksgiving, I’m grateful for grief. I’d like to share just 3 of them with you.

  1. My dad lived with multiple sclerosis for 38 years. For 24 of them he lived in the home where my siblings and I were raised. When his needs grew too much for Mom to handle, he resided in a long-term care facility for 14 years. Every day he lost something to his terrible disease. Dad could have complained about what he could no longer do. Instead, he joked about his fumbling fingers. He grinned wide at visitors and caregivers when he couldn’t remember their names.

To read the rest of This Thanksgiving I’m grateful for Grief, visit the Hope Anew website.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.

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Enjoying the Holidays with a Food Allergy

Enjoying the Holidays with a Food Allergy

Enjoying the Holidays with a Food Allergy

Enjoying the holidays with a food allergy sounds like an oxymoron, doesn’t it? After all, eating together is an integral component of the holiday season. I looked forward to making our traditional holiday foods until I was diagnosed with a dairy allergy in 2012. What was to enjoy about the holidays when the foods associated with it were off limits to me? I experienced a sense of separation from my family members as they enjoyed foods that were now off limits to me.

That holiday season was not enjoyable. At all.

My New Year’s resolution was to learn to make dairy-free versions of my holiday favorites so I could once again enjoy holiday baking and eating. In subsequent years, my commitment to the cause ramped up when we embarked on a multigenerational living adventure with our daughter’s family. She also has a dairy allergy, our son-in-law is lactose intolerant, and two of my grandchildren were dairy, gluten, and soy intolerant when they were young. Until they outgrew their food allergies, we were one of “those families” that made enjoying the holidays with a food allergy difficult for us and our hosts.

Slowly my daughter and I developed several strategies to make attending and eating at holiday gatherings not only doable, but also enjoyable. Here are some of our favorites.

  1. Gather recipes. Compile allergy-free recipes all year long so you’ll have plenty of options to consider when the holidays roll around. A kid favorite at our house is Rice Krispie treats. They’re naturally gluten free. To make them dairy free, we use a butter substitute instead of butter. Many of my dairy-free recipes (which taste as good as their traditional counterparts) are housed at my website jolenephilo.com. Type “dairy-free” or “gluten-free” in the search bar to find our family favorites. Or do an internet search with those terms to get ideas from all over the world.

To read the rest of How to Enjoy the Holidays with a Food Allergy, visit Key MInistry’s blog for parents raising kids with disabilities and special needs.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.

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Special Needs Mom, How Are You Doing this Mother’s Day?

Special Needs Mom, How Are You Doing this Mother’s Day?

Special Needs Mom, How Are You Doing this Mother’s Day?

Special needs mom, how are you doing this Mother’s Day?

Has anyone asked you that question before? Has anyone acknowledged that your feelings may not match what cards and commercials make them out to be? Have you had the courage to acknowledge, even to yourself, the swirl of emotions that surround you as the second Sunday in May approaches?

Joy.
Loss.
Love.
Grief.
Wonder.
Fear.
Gratitude.
Guilt.

I felt all those emotions as Mother’s Day and our son’s first birthday arrived within weeks of one another in 1983. I was a wreck that May—exhausted, worried, depleted, and unable to think straight. Though our son is now an independent adult, those early emotions tend to resurface each May. As our son got older, I became wiser about how to acknowledge my feelings and celebrate being a mom without letting difficult emotions rule the day. I hope these 5 lessons help you do the same.

Lesson #1: Enjoy your Child

Your child is a wonder, perhaps not the wonder you expected, but wonderful all the same. Take a moment to enjoy who your child is—or who she was if she’s no longer physically present. What about her makes you laugh? How does she surprise you? Why is your world better because of her? What has she taught you about love? Let your answers increase your joy in the wonderful aspects of her life and lighten your heart.

Lesson #2: Make Room for Grief

The joy your child brings is real and so is your grief. This Mother’s Day weekend make room to acknowledge this emotion for what it is—the loss of many dreams. Dreams of what parenting would be like. Dreams of how your child’s development would progress. Dreams of celebrating milestones. Write your thoughts down. Tell God how much your heart hurts. Admit how hard your grief is to bear. God knows a thing or two about loss and heartache. Let him hold you as you grieve.

Click to read the rest of Special Needs Mom, How Are You Doing this Mother’s Day? on the Hope Anew website.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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My Favorite Vacation Planning Tips for Special Needs Families

My Favorite Vacation Planning Tips for Special Needs Families

My Favorite Vacation Planning Tips for Special Needs Families

My favorite vacation planning tips for special needs families were put to good use this past January and February. Our original idea was a 3-generation trip to Disney World over spring break. Due to some health issues we weren’t sure would be resolved beforehand and because we wanted maximum enjoyment and may good memories for the grandkids, one of whom lives with autism, anxiety, and ADHD, we decided to vacay closer to home. These 10 planning tips helped us make spring break the happiest place on earth for everyone in our family.

Tip #1

Less is more. Choosing a destination that was a drivable distance meant less money spent on travel and more to spend on fun attractions, as well as more time enjoying them. Less travel time also meant less cranky kids when we arrived at our destination.

Tip #2

Research, research, research. This allowed us to find lodging that best met our family members’ needs and our budget. It also helped us compile a list of kid- and disability-friendly attractions in different possible destinations so we could make the best choice for our family. You can do the same for your family so everyone can participate fully.

Tip #3

Book a rental home instead of a hotel. Rental homes tend to provide family gathering spaces and quiet areas where kids with sensory issues can recharge and avoid meltdowns. Food can be refrigerated and/or prepared for those with special dietary needs. Laundry facilities are often available—a godsend for kids with special toileting needs. Rental homes are often cheaper than hotels, too. A favorite feature in our rental was a clean and airy basement where the kids could go to roughhouse and be as noisy as their hearts desired.

To find the rest of my favorite vacation planning tips for special needs families, visit the Key Ministry Website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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