What Does the ABLE Act of 2014 Do?

What Does the ABLE Act of 2014 Do?

What Does the ABLE Act of 2014 Do?

The ABLE Act of 2014 received a great deal of fanfare when it passed in December. But what, many parents of kids with special needs are wondering, does it actually do? How can it stretch savings for our kids with disabilities? And who can we consult to find answers to our questions as time goes on? Because I’m not a special needs attorney or financial expert, I won’t attempt to answer those questions. Instead, I’ll point you to resources that provide better answers than I can.

What Does the ABLE Act of 2014 Do?

To find answers, reading a government summary of the ABLE Act of 2014 is a good place to start. But, if that little peek doesn’t answer all your questions–which it’s not meant to do–here are a few articles written since the bill passed. They do an excellent job of clarifying the vocabulary and highlighting the main points of what the bill does.

 

Who to Consult about the ABLE Act of 2014?

While articles are a good place to begin research about the ABLE Act, they aren’t the place to end it. Before making any decisions, parents should consult a financial planner or investment professional who has extra training in special needs matter or a special needs trust attorney. You can begin the search at Special Needs Alliance. This non-profit organization offers a broad variety of special needs financial articles and has a state by state special needs attorney locator.

What Have You Learned about the ABLE Act of 2014?

Perhaps you’ve already begun researching the ABLE Act and can point readers to more resources. Please feel free to share what you know in the comment box. We’ve all got a lot to learn.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Do You Need to Get Your Joy Back?

Do You Need to Get Your Joy Back?

Do You Need to Get Your Joy Back?

Are you raising a child with special needs? Perhaps struggling a little—or a lot—as your child’s needs mount and your energy and spirits flag? Then Laurie Wallin’s new book, Get Your Joy Back: Banishing Resentment and Reclaiming Confidence in Your Special Needs Family is for you. And so is the book give away contest you’ll learn more about in just a few minutes.

Meet the Author of Get Your Joy Back

Laurie WallinLaurie writes from experience as a mother of four daughters, two of them adopted out of foster care and with significant mental health and behavioral special needs. She’s been a staunch advocate for her daughters with doctors, mental health care practitioners, educators, and at church for more than a decade. But somewhere along the way, the demands of special needs parenting stripped away her joy. Get Your Joy Back is the story of how Laurie lost her joy and found it again.

How You Can Get Your Joy Back

But Get Your Joy Back is more than Laurie’s story. It’s also a book about how you can get your joy back as the parent of a child with special needs. Laurie gently guides readers through a tour of the people who can drain parents of joy—starting with themselves and moving on to their children, spouses, extended families, professionals, the church, the community and even God. She gently encourages parents to forgive those joy drainers (Not that God needs our forgiveness, as Laurie makes perfectly clear. But we need to come to grips with the hard things He allows into our lives and the lives of our children.) and then to regain joy through practical steps and examples from her own life and the lives of other parents. The book is easy to read, not too long (because the author knows parents of kids with special needs don’t have much spare time), and packed with the perfect balance of empathy and motivation to change.

Learn More About Laurie and Get Your Joy Back

To get to know Laurie a little better, take a peek at the trailer for the book. You’ll find a downloadable excerpt of Get Your Joy Back here.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Love, Marriage, and Special Needs

Love, Marriage, and Special Needs

Love, Marriage, and Special Needs

Tomorrow is Valentine’s Day, a holiday devoted to the symbols of love…chocolates and flowers and diamonds. Maggi Gale goes beyond symbols to the very heart of love in this guest post in her look at how to love when you and your spouse respond differently to a child’s  special needs.

Love is patient, love is kind.
It does not envy, it does not boast, it is not proud…

Beautiful poetry for Valentines Day? Yes, but much more, too. It’s a demanding definition of practical love.

But how can anyone live this way
in the home,
in marriage,
with the extra stress of special needs parenting thrown in on top?

A few general differences in dealing with stress between men and women are worth taking into account. Of course we are all unique, and we don’t always fall into neat categories, but as Psychology Today points out, under stress men and women tend to react differently. Men tend to operate in the fight or flight mode, whilst women normally tend and befriend.

Marriage and Special Needs Stress Responses

I don’t know how true this for other people, but it was certainly true for us when we first heard the news that our daughter was EA/TEF. For my husband, fight took the form of frenetic activity. He was arranging this and organizing that, as if he was fighting the very very diagnosis itself. And his flight was … walking. This same man, who has had a lifelong dislike of walking anywhere, suddenly couldn’t keep still. He walked everywhere, until his trousers began to hang off him, as he processed the stress and shock of preceding weeks.

Meanwhile, I was left, of course, holding the baby. Just as well tend and befriend kicked in for me.

It does not envy, it does not boast, it keeps no record of wrongs…

Psychology Today goes on to state that the classic, contrasting responses may boil down to a single gene. Men have the SRY gene on their chromosome causes this fight or flight response. Women, on the other hand, don’t have this gene. The physiological changes happening in us women under stress involve several hormones: estrogen, oxytocin and endorphins. Together, these hormones alleviate pain, motivate us to befriend and make us feel good about social interactions. Just as well, in my case, because that’s just what I needed after our daughter’s special needs diagnosis.

Marriage and Special Needs on Valentine’s Day

Valentine’s Day is a great day for reflecting on love–real love–and how we can live in it. One important lesson for me has been to understand that my husband and I are different. We process many things differently, including the stress of bringing up a child with special needs.

This calls for generosity,
in giving each other a lot of space;
this calls for true love.
Maybe not the red roses and box of chocolates type of love,
but something deeper,
more demanding, yes,
but also more enduring.

…And now these three remain: faith, hope and love. But the greatest of these is love.

This Valentine’s Day, as parents of kids with special needs, let’s try to give each other the space we need to be different. Let’s put that love into practice today and all year long.

And when all else fails, remind yourself that the differences between you and your spouse are all in the genes.

What Do You Think?

What do you think of Maggi’s explanation of the differences between the responses of husbands and wives to a special needs diagnosis? What are your thoughts about love, marriage and special needs parenting? You’re invited to share them in the comment box. Happy Valentine’s Day!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Maggi is a wife and mother of two daughters. She is a primary school teacher, having worked in Africa for 14 years before moving to the Middle East. Her passions are her animals and art. Her youngest daughter was born with tracheoesophageal fistula (TEF). This birth condition was to be the start of an arduous journey, impacting the whole family for several years. Through writing, she hopes to turn her experiences into encouragement for others on similar paths.

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4 Indoor Activities for Kids with Special Needs

4 Indoor Activities for Kids with Special Needs

4 Indoor Activities for Kids with Special Needs

Photo courtesy of David Goehring via Flickr, Creative Commons

February. The month of love, presidential trivia, and cabin fever. With kids on a sugar high. Throw in some bad weather, and parents are searching for activities to help their kids pass the time. Today, guest blogger Anna Rodriguiz is here with some weekend fun ideas.

4 Indoor Activities for Kids with Special Needs

Although children with special needs require accommodations, their weekend activities need not be any less fun than those of their peers. For parents planning a memorable weekend for kids with special needs, a lot of great options and ideas abound.

Indoor Activity #1: Blocks, Boxes, and Board Games

To fuel the creative juices of kids, toys such as Lego building blocks can be utilized. Reuse the big boxes in your home and let the kids construct them into little forts and hideouts, making them cozy with blankets and pillows. Even better, parents can also opt to play with board games, especially if you want the whole family to be involved or present during playtime.

Indoor Activity #2: Touch and Guess Games

Another great indoor activity is the touch-and-guess game. Collect pairs of things–such as two crayons and a couple of same-sized plastic bottles–and hide one of each in a bag. Then place the others in front of the child. Ask your child to then match the visible items with those in the bag simply by touching the items without looking. This helps kids learn to identify objects through their sense of touch.

Indoor Activity #3: Cook Something Up

Fun shouldn’t be limited to games alone. Families can also experience bonding by cooking together. Kids can look forward to a tasty treat while learning essential skills such as following directions, measuring, and the development of fine motor skills.

Indoor Activity #4: Read Together

Visit your local library to find appropriate books and let your children immerse themselves in the intriguing world only books can provide. They will be entertained while growing their curiosity. You can also visit the website of the USA Toy Library Association to see if your town has a toy library. Many houses adaptive toys specially made for children with special needs.

What’s Your Go To Indoor Activity?

What’s your go to indoor activity with your kids with special needs? Tell us about it in the comment box. Thanks!

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Anna Rodriguez is the author of HomeyGuide.com. She writes about family, business and health. Follow her @annrodriguez021

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3 Great IEP and 504 Plan Resources for Parents

3 Great IEP and 504 Plan Resources for Parents

3 Great IEP and 504 Plan Resources for Parents

 Photo Credit: Salvatore Vuono at www.freedigitalphotos.net

Talking about annual reviews of IEPs and 504 plans on Groundhog’s Day may seem a bit early. But then again, if you’ve attended enough annual reviews to need a truck to haul the paperwork, you know it’s none too soon to begin. To help you get moving, here are 3 great posts filled with resources and advice offered by IEP and 504 experts.

 IEP and 504 Plan Resource 1

A good starting place is with Tim Villegas’ article, The Most Important Thing Parents Need to Understand about Special Education. Villegas, who’s worked in the special education field for over 10 years, stresses the importance of creating and maintaining good communication with the educators and administrators involved in your child’s schooling. And if you scroll to the bottom of the page, you’ll find a link to his other articles.

IEP and 504 Plan Resource 2

Once you’ve absorbed the wisdom Villegas offers, hop on over to a post written by the mom of a child who receives special education services. In I Hate/Heart Meetings, Aiden’s mom identifies six reasons why her son’s latest annual review meeting was a good one. Take a minute to compare and contrast what she says to what Villegas had to say. Take any similarities you find to heart. Then use the things parents and educators agree about to make your child’s annual review the best meeting it can be.

IEP and 504 Plan Resource 3

Finally, if you’re confused about whether your child should have an IEP or 504 Plan, the editors of the Understood website have created a thorough and excellent infographic called The Difference Between IEPs and 504 Plans. Look it over thoroughly and click on the links to your heart’s delight. If you have a good relationship with your child’s teachers and school administrators, you might want to pass the article on to them.

Your Bonus IEP and 504 Plan Resource

No list of IEP and 504 plan resource list is complete without one final addition to it. If anything you’ve read so far or heard at meetings confuses you (and it would be amazing if you’ve not been confused), stop by the Wrightslaw website. Is overflows with articles and advice about special education law. You can even submit questions if you like.

Your Favorite IEP and 504 Plan Resources?

Did your favorite IEP and 504 plan resources make the list? If not leave links to them in the comment box. Now, stop reading and hire your truck!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Teen Journal Challenge: Giving Back to Kids with Special Needs

Teen Journal Challenge: Giving Back to Kids with Special Needs

Teen Journal Challenge: Giving Back to Kids with Special Needs

Madison Sanders is today’s featured blogger. She’s a young woman who’s experienced several hospitalizations in her life. She’s here to explain how she’s paying it forward to hospitalized kids through her Teen Journal challenge. Read on to find out more about it and how you can help.

Teen Journal Challenge

I am sure you are wondering what is the teen journal challenge? The teen journal challenge is an ongoing project that I started in June 2014 to collect journals for teenagers in the hospital.

To date, I have donated 335 journals and 160 lip balms with the help of generous companies and friends. You can read more the most recent donation here.

It was always a dream of mine to give back to the hospitals where I have been a patient. I even wrote about it in a blog post called 21 Wishes, but kind of put it on the back burner.

That all changed in June of 2014. I was preparing for another foot surgery, and I thought to myself, “Now is as good a time as any to give back, and maybe I can get others involved, too!” I wanted to focus on helping others instead of the constant pain I was in. I posted a status on my blog’s Facebook page, and it took off from there!

The first donation was so well received that I gave back to Children’s Healthcare of Atlanta twice. Now, I am preparing to take a donation to Greenville Memorial Hospital. This is the hospital that my brother and I were born. Having me spend three and half months in the NICU was stressful for my family. Years ago, I had thought about giving back to the NICU, but now I am more focused on teenagers. Why teenagers, you ask? Teenagers are often forgotten about when it comes to gifts and donations, and it’s my mission to change that.

I won a journal playing bingo from my hospital bed while recovering from a pretty major back surgery as a teen. Writing has always been a form of creative expression for me, so journals were an obvious choice. As I have told many companies recently, I chose journals because I want to provide them with the materials to spark their creativity and expand their horizons beyond the hospital walls. Dreams start as thoughts in our heads, then go to words on a page, and eventually become reality.

If you would like to help me, please email me at writing4612@yahoo.com. You can send a check, gift card, or buy journals and ship them to me. If you choose to buy journals, do not get composition notebooks. They can be any size or material. Just remember, they’re for teenagers.

Together, we can all make a difference!

Questions about Teen Journals for Madison?

Has Madison inspired you to help her cause? Remember you can email her at writing4612@yahoo.com to find out how to make a donation. If you have questions for Madison or suggestions, leave them in the comment box. Madison will get back to you!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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I am a twenty-five-year old from Georgia. I have cerebral palsy, but it does not define me. I enjoy spending time with my two young nephews, Mason and Bryson. I have been blogging since 2008. You can read more about how I overcome challenges, my faith in God, and silly stories at Making my Mark.

I am also a contributor to The Celebration, which is a blog made up of several members of my church, Gateway Believers Fellowship

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