10 Ways to Advocate at a Difficult IEP Meeting

10 Ways to Advocate at a Difficult IEP Meeting

10 Ways to Advocate at a Difficult IEP Meeting

Welcome to DifferentDream.com, a website for parents of kids with special needs. Today’s post is the third in a series based on wisdom shared at last spring’s Accessibility Summit. One of the workshops at the Summit, Advocacy: Critical Conversations with Collaborative Outcomes, featured a blue ribbon panel of educators and parents: Ann Hines, principal at Rosa Lee Carter Elementary School; Barbara Tresness from the CHAT Collective; Linda Starnes, Parent Advocate; and Brendon Wolfe, principal of the S. John Davis Career Center. They offered the inside scoop on what parents can do before and during an IEP meeting or annual review that could be difficult–when it’s likely the educators and parents may not agree on what accommodations to make for a child. Here are their top ten suggestions for advocating during a difficult IEP meeting:

  1. Before the meeting, alert the school team about requests you’ll be making. This gives the educators time to research the request so they are prepared to ask and answer questions.
  2. Pray before the meeting. Pray with your child. Pray with your spouse. Pray for wisdom, for compassion, and for courage to advocate for the best possible accommodations allowed for your child under the law.
  3. Come prepared to give a parent report about your child’s progress outside of school. This gives the educators a more well-rounded picture of your child and reminds them that life for kids consists of much more than school.
  4. Schedule time during the IEP meeting for your child to speak. Once again, this helps educators, especially those who don’t work directly with your child, to see kids as more than paperwork, and your child’s presence shows how he or she interacts with those at the meeting who do work directly with your child. It also is a good way for your child to learn self-advocacy skills.
  5. Be willing to compromise when you can. Hopefully, that will encourage others to do the same. At the same time, don’t feel pressured to sign the IEP at the meeting. Instead, schedule another meeting in a week or so, and take the IEP home to think about and to discuss with your spouse.
  6. If a meeting becomes contentious, ask for a ten minute break. Sometimes, a short break will diffuse emotions so all sides can return to the table ready to look for solutions.
  7. If the ten minute break doesn’t do the trick, ask for the meeting to be stopped. Reschedule the meeting for a later date.
  8. Or agree to a short term IEP. One that field tests a strategy for a month or two. Then reconvene to formulate a long term IEP based on the strategy’s success or failure.
  9. Pay attention to your body language. Avoid looking at your watch or the clock, crossing arms, leaning back, or using “you” statements. Instead lean forward, make eye contact, smile, and do all you can to show you’re engaged in the process and that your child’s good is the most important thing.
  10. File a grievance if necessary. If you can’t come to agreement, engage a professional advocate who can help you navigate the grievance process. The Wrightslaw website is a good place to learn more about professional special eduction advocates.

 

What Do You Do Before an IEP Meeting?

Have you been involved in a difficult IEP meeting in the past? How did you prepare beforehand and what did you do during the meeting so your child received the best possible services? The Different Dream Team would love to hear about your experiences in the comment box. Thanks!

Part One: 7 Ways to Advocate Before an IEP Meeting
Part Two: 4 Special Needs Obstacles to Avoid at School
Part Three: 10 Ways to Advocate at a Difficult IEP Meeting
Part Four: 3 Strategies for Good Communication after an IEP Meeting

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Moving from Us versus Them to We

Moving from Us versus Them to We

Moving from Us versus Them to We

For 25 years, I dreaded August. Not because of my anxieties as a parent. But because of my anxieties as a teacher whose inclusive fourth grade classroom contained a high percentage of special need and at risk students.

What made me anxious?

Getting the classroom in order.
New procedures that ate away at preparation and teaching time.
Meeting students.
Meeting parents.
Not having the resources to meet expectations of parents and administrators.
Not meeting the needs of my students.

One additional item created more anxiety than anything else on the list.

Mama Bears. Or Papa Bears. Also known as Mama Tigers. Or Papa Tigers.

They were the parents who climbed the stairs to my classroom on the first day of school with a chip on their shoulders so wide their kids walked a few steps behind them. Their kids looked embarrassed. And scared. And anxious. Just like me. With one difference. I understood they’d become Mama and Papa Bears for a reason.

They were fighting for their children’s futures.

By the time their kids reached fourth grade, they’d been fighting for a long time. They’d been to countless conferences where teachers were bearers of bad news:

Your child’s behavior isn’t age-appropriate.
Your child isn’t reading at grade level.
Your child doesn’t get along with others.
Your child doesn’t listen.
Your child is falling behind.
Your child needs a different placement.

By the time their kids were in fourth grade, after innumerable negative experiences, they perceived their relationships with teachers as us versus them.

But the kids need parents who can move from us versus them to we.

To read the rest of this post, visit the Not Alone website at www.specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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4 Special Needs Obstacles to Avoid at School

4 Special Needs Obstacles to Avoid at School

4 Special Needs Obstacles to Avoid at School

With the school year drawing closer–and perhaps even underway in some parts of the country–Different Dream’s series designed to help parents become the best advocates they can be continues. The series is based on the content of a workshop held during the Access Summit last spring, Advocacy: Critical Conversations with Collaborative Outcomes. The workshop featured a blue ribbon panel of educators and parents: Ann Hines, principal at Rosa Lee Carter Elementary School; Barbara Tresness from the CHAT Collective; Linda Starnes, Parent Advocate; and Brendon Wolfe, principal of the S. John Davis Career Center. They shared many tips to help parents become effective IEP meeting advocate. Here’s what they had to say about how to avoid special needs obstacles before the school year begins.

Special Needs Obstacle #1: Unprepared Teachers

To avoid this obstacle, parents should ask administrators to put their child in a classroom with a teacher who welcomes kids with special needs. If the child uses communication devices or special technology, parents should also be proactive about training teachers and para-professionals about how to use it.

Special Needs Obstacle #2: Lack of Communication

To avoid lack of communication between parents and educators, parents should provide a communication journal. This is especially important for children who are non-verbal or have limited communication skills. The journal can go back and forth with specific information that assists parents and educators in working as a team.

Special Needs Obstacle #3: Ignorance about Advances in Assistive Technology

Educators can’t keep current about the constant advances in assistive technology devices. If a new device becomes available, parents should bring it in and show it to administrators. Explain how it helps the child and why it’s needed. This gives educators a chance to research and become familiar with what’s out there and with what might become part of a child’s IEP.

Special Needs Obstacle #4: Adversarial Relationships

Adversarial relationships between parents and educators can be a powerful obstacle. These relationships can spring from parental fear and anxiety, but can usually be traced back to a lack of communication. Both parents and educators need to do all they can to work as a team and only bring in professional advocates after all other avenues have been exhausted.

What Special Needs Obstacles Would You Add to the List?

What do you think of these 4 special needs obstacles? What would you add to the list? How have you overcome them in the past? Leave a comment.

Part One: 7 Ways to Advocate Before an IEP Meeting
Part Two: 4 Special Needs Obstacles to Avoid at School
Part Three: 10 Ways to Advocate at a Difficult IEP Meeting
Part Four: 3 Strategies for Good Communication after an IEP Meeting

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Resources for Special Needs Grandparents

Resources for Special Needs Grandparents

Resources for Special Needs Grandparents

Thank you for stopping by for the last post in our series about special needs grandparents. In this wrap-up, you’ll find links to more posts and resources of interest to special needs grandparents.

Links to Articles for Special Needs Grandparents

To start things out, here are links to online articles about and for special needs grandparents.

 

Links to Books for Special Needs Grandparents

While books for special needs grandparents can’t be found in great abundance, here are 2 that have been previously featured at Different Dream. By clicking on the links, you’ll go to the original reviews of both books and find links to Amazon where they can be purchased.

 

Your Thoughts

Do you believe more books about and for special needs grandparents are needed? If so, what would you like to see covered in such a book? Also, if you are interested in being interviewed for a book about special needs grandparenting, please leave a comment in the box below. Thanks so much for following this series about grandparenting kids with special needs.

Part One: Different Dream’s Special Needs Grandparenting Series Begins
Part Two: Special Needs Grandparenting 101
Part Three: Special Needs Grandparenting–The First Word Is Never the Last Word
Part Four: The Special Needs Grandparenting Tug of War
Part Five: Special Needs Grandparents Are Part of the Village
Part Six: What’s It Like to Be a Special Needs Grandparent?
Part Seven: Special Needs Grandparenting from a Man’s POV
Part Eight: Resources for Special Needs Grandparents

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for both in the upper right column on this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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7 Ways to Advocate Before an IEP Meeting

7 Ways to Advocate Before an IEP Meeting

7 Ways to Advocate Before an IEP Meeting

August. The month when parents of kids with special needs begin advocating. Why? Because they want their children to start the school year with every possible advantage to maximize their progress. This series, based on wisdom shared at last spring’s Accessibility Summit, is designed to help parents become the best advocates they can be. One of the workshops, Advocacy: Critical Conversations with Collaborative Outcomes, featured a blue ribbon panel of educators and parents: Ann Hines, principal at Rosa Lee Carter Elementary School; Barbara Tresness from the CHAT Collective; Linda Starnes, Parent Advocate; and Brendon Wolfe, principal of the S. John Davis Career Center. They shared many tips to help parents become effective IEP meeting advocate. Let’s start with 7 ways to advocate before an IEP meeting.

Have a pre-IEP meeting with the IEP case manager. The IEP case manager is usually the teacher who works most closely with your child. Meet with that person ahead of time to discuss the what and why of your hopes and dreams for the meeting. That way you and the teacher won’t come to the table with widely different goals.

Meet with the school staff before the IEP meeting. Arrange to meet with the educators who work directly with your child. Perhaps the special education teacher, the general education classroom teacher where your child is mainstreamed, and the para-professional. Bring a picture or video of your child interacting at home and a report about out-of-school accomplishments so they get a well-rounded picture of your child.

Talk by phone before the meeting. Ask for a copy of the draft IEP to be discussed at the meeting so you can look it over and be prepared to discuss it knowledgeably.

Ask for more time, if needed. Parents of children with complex or multiple diagnoses or who are medically fragile may need more than the normally allotted time. Call ahead so a longer block can be scheduled.

Study the IEP law. Be sure you know what the law says the school must do, what the school can do, and what it can’t do so your requests are within the law. Wrights Law is a good place to start your education.

Bring data. Ask the teachers for copies of the data they are mandated to collect. Study it ahead of time, make notes, jot down questions, and bring it all to the table.

Remind yourself often that decisions are made based on data. As parents, we get emotional because the discussion is about our kids. We may be tempted to make emotional decisions. But the school is mandated by law to make decisions based on data.

How Do You Advocate Before an IEP Meeting?

What do you do before an IEP meeting to be a better advocate? Would you share your wisdom in the comment box so other parents can become effective advocates, too? Thanks! And come back next week when the experts will share their secrets for avoiding obstacles during the IEP process.

Part One: 7 Ways to Advocate Before an IEP Meeting
Part Two: 4 Special Needs Obstacles to Avoid at School
Part Three: 10 Ways to Advocate at a Difficult IEP Meeting
Part Four: 3 Strategies for Good Communication after an IEP Meeting

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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From a Special Needs Grandpa

From a Special Needs Grandpa

From a Special Needs Grandpa

Welcome to Different Dream’s continuing series about grandparenting children with special needs. Last week, you heard from Brielle Stull’s grandmother. In this post, you’ll hear the perspective of a special needs grandpa who happens to be Brielle’s grandparent, too.

From a Special Needs Grandpa

The Special Needs Grandpa is There from the Start

I was there when my daughter was born, when she rode her first bike, when she finished college, when she walked down the aisle, and when she had her first baby.

I remember her calling me to announce she was pregnant again and that she also had chicken pox.

I told her she should have an abortion. Why would she risk her health and the baby not being healthy like their first daughter?

I was angry when she and her husband decided to continue the pregnancy. And I worried. A lot.

I celebrated with the other grandparents when Brielle was born healthy. We expected her to look different or act different. She looked perfect. I was so relieved.

I got angry when we found out months later that she really wasn’t healthy. Brielle had cerebral palsy.

And I became a special needs grandpa.

A Special Needs Grandpa Can’t Fix Things

My daughter didn’t listen to me when she was pregnant. But, I learned to listen to her after Brielle was born.

I watched and asked questions. I watched at therapy when we went along. I listened as my daughter’s husband told us what the doctors told them.

I watched my daughter. I watched her struggle being a good mother to Brielle. This wasn’t the life I wanted for any of them. It was painful for a long time.

And I thought there was nothing I could do.

A Special Needs Grandpa Can Help

At first, I was afraid I would do something wrong. There were different ways to hold her, prop her up, play with her, bathe her, and put her to bed.

But, I learned what I could do.

I fed Brielle and sang to her. I could always make her laugh.

I set the table, cut the roast, and washed the dishes.

Mostly, I was just there to listen to my daughter. I was her sounding board.

A Special Needs Grandpa Can Celebrate

Having a special needs grandchild is a sad thing. I am sad for my daughter, her husband, their oldest daughter, and for Brielle. Their lives could have been so different.

I worry about all of them.

But I love watching how Brielle has made such great strides. Even more so, I love her joy.

She has amazing joy. That is when I learn something from Brielle. Have more joy.

Advice from a Special Needs Grandpa

Everyone’s situation is different. So, my only advice is this:

  • Figure out what you can do and do it.
  • Make sure you have a relationship with your special needs grandchild, whatever that means to them.

Here’s what worked for me:

  • I went to therapy sessions so I could understand about my granddaughter as well as what my daughter went through.
  • I went to activities like Special Olympics and Miracle League baseball to be my granddaughter’s biggest cheerleader even though I hate sports and going was inconvenient.
  • I figured out what I could do to help my granddaughter.
  • I did what I can to ease my daughter’s burdens.
  • I built a relationship with my granddaughter on her terms.
  • I will continue to be a positive influence on my granddaughter’s life in whatever way I can.

Give a Shout Out to the Special Needs Grandpa in Your Child’s Life

Thank you, Joe, for sharing your experience so honestly. Now’s your chance to give the special need grandpa (or grandma) in your life a shout out in the comment box.

Part 1: Different Dream’s Special Needs Grandparenting Series Begins
Part 2: Special Needs Grandparenting 101
Part 3: Special Needs Grandparenting–The First Word Is Never the Last Word
Part 4: The Special Needs Grandparenting Tug of War
Part 5: Special Needs Grandparents Are Part of the Village
Part 6: What’s It Like to Be a Special Needs Grandparent?
Part 7: From a Special Needs Grandpa

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Joe Zaccaria has a PhD from Columbia University and taught Educational Psychology at the University of Illinois until he retired in 1992. He was also a consultant and published eight books. He currently lives with his wife in the Atlanta area close to his daughter, Kerith Stull, and her family including his special needs granddaughter, Brielle.

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