Be Encouraged, Special Needs Parent. God has a Word for You.

Be Encouraged, Special Needs Parent. God has a Word for You.

Be Encouraged, Special Needs Parent. God has a Word for You.

Be encouraged, special needs parent! Guest blogger and special needs parent Sandy Ramsey-Trayvick is here again. In this post she shares words God has used to encourage her as she cares for her son with special needs.

Over the past few months, I’ve spoken with a number of special needs moms who’ve been struggling a lot lately—some feeling overwhelmed and questioning whether they have what it takes to parent their child, others feeling unsure as they walk with their child through a challenging transition, some wondering where God is in their suffering, and many feeling misunderstood and alone in their special needs journey.

As I listen to their stories, I often find myself searching for the exact right words to say to restore their hope and ease their suffering. But I realize that my words alone don’t possess that kind of power. I know that the only words that can consistently give us the strength and hope we need to navigate this journey come from the mouth of God. His words alone provide the promises, comfort, and practical wisdom that can empower us to keep moving forward and enable us to experience joy in the process.

I thought I’d share some of the scriptures that have become my go-tos as I navigate my special needs life. Be encouraged special needs parents, for God wrote them for you also.

“But He said to me, ‘My grace is sufficient for you, for My power is made perfect in weakness.'”—2 Corinthians 12:9 NIV

This verse has been a lifeline for me during the toughest parts of my journey. It came to life for me early on when I hit a wall emotionally trying to do everything on my own. When I admitted to the Lord that I had reached my limit, I actually felt His grace as He strengthened me. I realize now that God never expected me to walk this journey in my own strength. So now I ask for His grace.

“Trust in the LORD with all your heart and lean not on your own understanding; in all your ways submit to Him, and He will make your paths straight.”—Proverbs 3:5-6 NIV

This has become my life verse. I realize that there’s so much I don’t know when it comes to making decisions for my child with special needs. And often, I don’t know what I don’t know. So I seek the Lord—Who is the Knower of all things—and trust Him to lead me along the best pathway forward. He knows my son better than I ever could, and He knows the plans He has for my son’s life.

“And we know that in all things God works for the good of those who love Him, who have been called according to His purpose.”—Romans 8:28 NIV

This verse reminds me that God is faithful, and that He is ALWAYS for me, my son, and my family. Even when things are going sideways, or we’re facing setbacks or challenges, I’m reminded that God is still working. For. Our. Good. So I trust Him and wait for—look for—the good.

“Bear one another’s burdens, and so fulfill the law of Christ.”—Galatians 6:2 ESV

To be honest, it wasn’t until recently that I realized the importance of having a special needs community. I had done without one for most of my special needs life. It was during COVID that the Lord urged me to not isolate myself. So I sought ways to connect with other special needs moms online and it has been life changing for me. To be able to join with other moms who get it, and who can offer support, encouragement, and empathy has become an essential part of my life. I hope you will also be encouraged, special needs parents, as God speaks to you through his words and other special needs parents.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

By

Sandy and her husband are parents to three young adult children. Their son was diagnosed with multiple disabilities 21 years ago after a devastating illness as a toddler. Following her son’s diagnosis, Sandy quit her job to become his full-time caregiver and advocate.

Sandy is currently a Certified Professional Coach. Her focus is to come alongside other special needs parents, helping them to recognize choices that will enable them to reclaim freedom, renew purpose, and reactivate joy.

You can learn more about Sandy, her work and her blog at www.UNDisabledLIVES.org. You can also reach her at Sandy@UNDisabledLIVES.org.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

It’s Going to Be a Different Kind of Mother’s Day

It’s Going to Be a Different Kind of Mother’s Day

It’s Going to Be a Different Kind of Mother’s Day

It’s going to be a different kind of Mother’s Day for you this year.

God whispered those words to me as I waddled into the doctor’s office in early May of 1982. Never mind that my husband and I wouldn’t see our first child until May 23. My husband and I had felt our baby’s kicks for months. God’s whisper assured me that I was already a mother.

What I didn’t realize when God spoke to me was that He was preparing me for what only He knew was coming. Our baby would be born with a serious birth condition. It would make every Mother’s Day for several more years very different from what I expected.

Some would be spent in the hospital with our medically fragile baby.

Some would be spent debating whether or not we should rush him to the hospital.

Some would be spent rejoicing that our miracle baby had become a healthy adult.

All would be spent realizing that had our boy been born in a different day and age, we would have had him with us for only a few days.

As the second Sunday in May approaches this year, I hear God whispering to me once again.

It’s going to be a different kind of Mother’s Day for you this year, Jolene.

This time, God’s not referring to our son. He’s doing well. This time God is talking about my mother.

To read the rest of It’s Going to Be a Different Kind of Mother’s Day, visit the Hope Anew website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image by Jill Wellington from Pixabay 

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

I Am the Best Mom in The World

I Am the Best Mom in The World

I Am the Best Mom in The World

“I am the best mom in the world,” asserts guest blogger Valeria Conshafter. In today’s post she explains why she’s the best mom in the world for her daughter who was born with a life-threatening birth condition. As Mother’s Day approaches, Valeria wants you to repeat after her, “I am the best mom in the world,” too.

I’ve been called crazy.
I’ve been called weird.
I’ve been called over the top.
I’ve been called overly committed.
I’ve been called paranoid. Strict. Obsessed.
Occasionally, I have even been called amazing, but not in a praiseworthy way.

Being a mom who makes her daughter’s health and nutrition a priority is not as beautiful as it sounds.

You pay a price for everything you do as a mom.
If you are too relaxed, you are a slacker of a parent.
If you are too strict, you’re a control freak.
If you are in between, you need to make up your mind already.

Enough is enough, y’all.

Parenting is hard. Period.

Parenting a special needs child is hard. No question!

I don’t care if you have one or five children.
I don’t care if they are healthy or not.

Parenting is a pretty tough job.

It comes with lots of rewards and joys, of course.
It may be the best job you will ever have.
All differences aside, we all know parenting is simply hard.

However, in taking on your task as the parent of your child, I believe you are doing the best you can.

I am doing the best I can.

To be quite honest, I think I am doing a pretty good job. It’s a job I love and am proud of, as a matter of fact. On top of that, I am pretty busy with this mom job, whether I am cooking, cleaning, playing with her, researching nutrition, or taking a nap.

I have learned the hard way that whatever I do or how I run my mom business, it is up to me, and it is okay. I am busy being a mom and have no time to pay attention to the names I’m being called. Not anymore!

What others think is not up to me. In fact, it has nothing to do with me!

Here is what does matter:

  • When I get the best doctors’ report ever about how much healthier my child is and her specialist decreases her medication intake and supplements.
  • When I realize a full year has gone by without major sickness or hospital stays. Praise God!
  • When I compare notes from this year’s journal to past ones where all I wrote about was sorrow and fear.

Then I see how all the work I am doing at my mom job matters. I tell myself, “Good job, Valeria!”

There is nothing better than that!

I’ve lost friends.
I’ve made new great ones.
I’ve been criticized.
I’ve been left out. Uninvited. Excluded. Not mentioned. Looked down upon.
I’ve been labeled, judged, tagged.
I’ve been called so many things that could have destroyed my efforts to being a good mom.

But they didn’t.

Why? Because I understand that I have received the biggest call ever!
I’ve been called by God by my own name, to be my special daughter’s mother.
He trusted me to care for her and nurture her.

Me!

In His eyes, I am the best mom in the world for her.

It hasn’t been easy.
It has not been always great.
But that’s what I was called to do.
For that reason I will continue to do the best job I can.
You will too.

Call yourself whatever you want, but I hope you call yourself the best mom in the world.

She is clothed in strength & dignity, and she laughs without fear of the future.
Proverbs 31:25

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

 

By

Valeria Conshafter is native of Brazil. She has a background in Counseling Psychology and currently works for a women’s organization providing emotional and spiritual support to women all over the country. She loves writing, cooking, and praying for her family and friends. Valeria lives in Houston, Texas, with her husband, Todd, their 15-year-old daughter, Sofia, and their two Standard Poodles, Chocolate and Oreo. You can reach Valeria on Facebook, on Instagram, and on Twitter.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

When Your Special Needs Mess Is Your Message

When Your Special Needs Mess Is Your Message

When Your Special Needs Mess Is Your Message

When your special needs mess is your message, telling others about it can be, um, intimidating. Even so, guest blogger Heather Braucher found a good reason to share her family’s messy story anyway. Maybe she’ll convince you to do the same.

There are people in my life whom I watch in awe. In awe of their strength, resilience, and endurance to keep going in the midst of long suffering.

I have wondered how they keep it all together and remain positive despite the turmoil or pain around them. I would secretly think, I would be an absolute mess on the ground in the fetal position if I were in their shoes. How are they still standing?

Not too long ago, I believed that certain things in life were a luxury afforded to or deserved by those with enough margin, enough order, or enough strength. Things like a consistent exercise routine, working outside the home, or even pursuing one’s passions or interests.

I assumed that when life’s demands were too overwhelming and too chaotic, it was selfish and impractical to consider anything beyond managing the chaos and surviving.

I get that life brings us through seasons of busyness, seasons of healing, seasons of thriving, and seasons of making ends meet. In all honesty, our season of surviving felt never ending.

One day I thought to myself, What if this season is never ending? What if I am waiting for a season that will never come?

I felt compelled to start doing the things I needed to do to take care of my own personal physical and mental health. If I waited any longer, I would be waiting forever.

Suddenly, I found myself becoming a person who, in the face of trial, was still standing.

I was no longer on the floor in the fetal position when heartache and grief struck. Now I was on the receiving end of the comments I used to give to others. How are you still standing? How do you do it?

I share this not to gloat, but to remind others and myself to stop waiting until we are all put together to move forward or even help others.

This week chaos struck again. The all-too-familiar whispers began.

  • Who are you to think you could work outside the home?
  • Who are you to share words of hope with others when your life continues to be at the mercy of your children’s extra needs?
  • Who are you to encourage others when the behavioral issues of your children require constant monitoring and intervention?
  • Who are you to think you have a message to share when all anyone can see is the mess?

I reflected on my heroes of the faith whom I observed with awe. I remembered the thing that amazed me and inspired me the most.

Their struggle was not over, yet they were still willing to fight for hope.

They kept moving forward in faith, trusting that God is sovereign over their lives and that the Author and Perfecter of their faith wasn’t done writing their story.

When your special needs mess is your message, remember that you are not disqualified from receiving hope or giving it to others. You might be inspiring someone just as you are and exactly where you are without even knowing it.

And we know that in all things God works for the good of those who love him,
who have been called according to his purpose.
Romans 8:28

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image by Pexels from Pixabay 

By

Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

A Caregiver’s Hope Can Be Found in Unexpected Places

A Caregiver’s Hope Can Be Found in Unexpected Places

A Caregiver’s Hope Can Be Found in Unexpected Places

A caregiver’s hope can be found in unexpected places. Guest blogger Heather Braucher and her husband recently discovered that hope through the words of Joni Eareckson Tada. Heather describes how hope has changed their perspective of their caregiving journey.

A caregiver’s hope can be found in unexpected places.

My husband was not looking for it. Even more, I’m not sure he knew how much he needed it. Because let’s be honest, hope can actually feel scary.

Sometimes it feels safer to accept the daily struggle and battle that is your reality. When you taste a sliver of possibility that life could be different, or things might be getting easier, when the all-too-familiar reminder that your circumstances have not changed and your situation is here for the long-haul returns, you regret feeling that small piece of hope.

For parents of children with special needs or medical needs and for caregivers, the temptation to live in a place of sober acceptance of your life’s realities is strong. In fact, it can become our only comfort.

Joni Eareckson Tada said it perfectly in John Piper’s book Suffering and the Sovereignty of God. She wrote, “I did not want to let go of the sick, strange comfort of my own misery.”

This from a woman who, at the age of 17, had a diving accident that left her paralyzed from the neck down and confined to a wheelchair. She has been a quadriplegic for 40 years now and if anyone knows the battle that exists between finding hope in the midst of the daily struggle, it is her. You can find more of her story at Joni & Friends.

My husband came across Joni’s story and a perspective on suffering and hope that he had never heard before in Piper’s book. Joni referenced Luke 12:48: “When someone has been given much, much will be required in return; and when someone has been entrusted with much, even more will be required.”

My husband said, “Typically I view this verse through materialistic means—finances, time, talents—they are not for our own benefit but for the blessing of others. The verse left me feeling personally condemned or like I am just simply not doing enough. When honestly, I’m just trying to make it another day managing the special needs around me. But when Joni spoke about this verse the way she did, I felt encouragement instead of condemnation for the first time. I felt freedom to serve others. I felt hope.”

Joni said, “The way I see it, I’ve been given so much, I must pass on the blessing. We simply must, must pass on the hope to others.”

Here is a woman who has suffered greatly, and she is claiming to have been given much.

Our first reaction to her statement is “What? How?” How did she get to this place? This place of seeing suffering as a gift? And a gift that keeps on giving?

My husband and I have three children ages 11, 9, and 7. We have been managing the special needs of our youngest two for over 5 years now. Every year has looked different. For a while it felt like every year brought a new diagnosis. Caring for them well has required a lot of self-sacrifice and heartache. While we have so much to be grateful for, we fight daily the belief that life will always be hard and full of grief.

Through Joni, we saw that a caregiver’s hope can be found in unexpected places. She speaks to our very souls when she says, “For me, suffering is still that jackhammer breaking apart my rocks of resistance every day. It’s still the chisel that God is using to chip away at my self-sufficiency, and my self-motivation, and my self-consumption. Suffering is still that sheepdog snapping and barking at my heels, driving me down the road to Calvary where otherwise I do not want to go. My human nature, my flesh, does not want to endure hardship like a good soldier (2 Timothy 2:3) or follow Christ’s example (1 Peter 2:21) or welcome trial as friend. No, my flesh does not want to rejoice in suffering (Romans 5:3) or be holy as he is holy (1 Peter 1:15). But it is at Calvary, at the cross, where I meet suffering on God’s terms.”

She said, “It is when your soul has been blasted bare, when you feel raw and undone, that you can be better bonded to the Savior. And then you not only meet suffering on God’s terms, but you meet joy on God’s terms.”

Through the life, suffering, and ministry of another, my husband and I are encouraged to view our lives filled with caring for children with special needs through the lens of hope, purpose, and possibility.

My husband now sees the possibility for life to be more than simply making it through each day. He believes that there is a blessing here that we have been given because of joy that comes from the Lord (Romans 15:13) and can come through suffering. We both believe that we are blessed to be a blessing, and we now see that a caregiver’s hope can come from unexpected places.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image by Joe from Pixabay 

By

Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Off the Beaten Path

Off the Beaten Path

Off the Beaten Path

Guest blogger Lisa Pelissier relates her struggles with her children’s differences and wonders why it is so hard to accept life just as it is.

I’m an experienced mom. I’ve been one for twenty-two years. I’m also experienced at parenting children with invisible disabilities. I’ve been that for twenty-two years as well. But most of the time I’m still floundering, wondering what to do, how to cope, and how to help my children move forward.

Mental illness and autism are similar in that they both remove a person from the expected path of life—high school, college, job, marriage, babies—and into something completely different. And they do this behind the scenes. To look at my children, it’s not apparent why they are struggling. They look fine.

But sometimes they just can’t do the thing.

Every time we come to a roadblock, a place where one of my children balks at progressing, I feel panicked. I don’t know what to do. I don’t know how to help. Do I let them play video games around the clock because it helps them feel better? Do I force them to go outside and play, knowing that they’ll come back in 20 minutes with a severe headache because it was more than they could do? Do I seek answers in medication? Therapy? Prayer? Special diets? Vitamins?

The truth is, there are not always answers. Whatever solution I come up with is not going to be the right one because I can’t fix this. I can’t. I can’t make my kids not be autistic. I can’t make them not be depressed. I can’t make them free from anxiety. I can’t make them think clearly when their minds just can’t do it.

Can medication help? Of course. Can therapy help? Certainly. And so can prayer, special diets, vitamins, and a host of other solutions that people apply to make things better. All of those things have been helpful.

So why do I still feel frantic every time one of my children goes off the rails?

1) Because I long for them to “do the thing”—I want their lives to follow that expected pattern. I want them to grow up and happily leave home for jobs and families of their own. I don’t want them to be on this alternate path where everything is strange and unknown to me.

2) Because I think I need to fix everything—Taking care of my children is my job. When there are things I can’t fix, I’ve obviously failed.

3) Because I hate to see them hurting—Mental illness is more than just a nontraditional path through life. It’s a nontraditional path through a bed of nails while drowning in an acid sea. Embracing their differences is hard to do when those differences are torture for my kids.

So what can I do? How can I approach my children’s disabilities without losing my mind?

I can respond to each of the above points in turn. Stop expecting them to “do the thing.” Stop trying to fix everything. Love them in the midst of their pain instead of panicking about it. But the bottom line is that I need to trust God. He is the One who allowed these disabilities and illnesses to beset my children, just as he allowed Paul a thorn in the flesh and allowed Job to lose his livelihood and family. He is their Creator, and He has a right to do with us all as He pleases. He is also our Redeemer, the lover of our souls, and our Father who gave His only Son to buy us back from Hell.

Shouldn’t that be enough?

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Mael BALLAND on Unsplash

By

Lisa Pelissier lives in Oregon where she is a homeschooling mother of four (three with disabilities) and author of four middle-grade fiction novels as well as a YA fantasy novel. Lisa owns SneakerBlossom Books, offering Christian, classical homeschool Study Guides and curriculum. She blogs at Eleventh Willow, offering encouragement for Christians parenting the mentally ill. She also works as a freelance copy editor, an artist, and a substitute teacher. In her spare time Lisa enjoys playing the piano and fretting about things over which she has no control. 

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts