12 Positive Lessons from Raising a Child with Autism

12 Positive Lessons from Raising a Child with Autism

12 Positive Lessons from Raising a Child with Autism

12 positives about raising a child with autism? Really?

That’s what I thought when the title appeared on internet special needs group list. The link required investigation, so I gave it a click and ended up at a Brandi Shinn post. That was pretty cool because a couple months back, her list of 10 parent priorities was reviewed at DifferentDream.com, too.

12 Positive Lessons about Autism

So here’s a quick rundown of the 12 positives Brandi learned raising her child with autism.

    1. Don’t worry about tomorrow. Instead, Shinn says, enjoy today and take one day at a time.
    2. All things are possible. Brandi says her son has shown her “that with patience, endurance and hard work, all things are possible.”
    3. Everyone just needs a chance. Everyone needs someone to believe in them.
    4. God can and will use anyone who is willing. God sees potential.
    5. Not to judge. Her son, Will, doesn’t pay any attention to intelligence, social status, or your political standing. He either likes you or he doesn’t.
    6. Be honest. Say how you really feel, like her son does. Even when it would be more socially acceptable if he didn’t.
    7. Unconditional love. Brandi’s son taught her to love unconditionally.
    8. Forgiveness. Shinn says, “Having a child who is prone to these outbursts at times towards myself and others calls for a tremendous amount of forgiveness and often.”
    9. Rejoice in the small things. When milestones are reached, it is a huge time of celebration.
    10. Laughter is the best medicine. Shinn says, “…no matter how difficult a trial may seem, or how dark things may get, there is always a reason to smile, to laugh and to have joy.”
    11. Showing compassion and love. Because Will lacks social skills and lack of concern about the opinions of others, he doesn’t hesitate to show his mama love in public.
    12. Christians should not judge. Shinn states that “raising a child with autism or any special need you learn how judgmental others can be.” (She’s referring to fellow Christian believers.) She goes on to say, “Will has taught us to treat everyone with kindness, greet everyone with a smile, and to give everyone the benefit of the doubt.  When we begin to see everyone as a child of God and someone who might have their own issues to face, we will begin to judge others less and love more.”

Can You Add to the List?

Whatever your child’s special needs may be, I hope you’ve learned some positive lessons, too. If so, leave a comment to add to Brandi’s list.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

photo credit: www.freedigitalphotos.net

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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Are You Too Tired to Heal?

Are You Too Tired to Heal?

Are You Too Tired to Heal?

Do special needs care giving demands leave you exhausted? Are you numb with grief? Guest blogger Rebekah Benimoff knows how you feel—too tired to heal, too tired to hope.

To Tired to Heal

Sometimes it feels as if I am too tired to heal. I just want to get away for a bit, to have a much-needed respite from the madness. When life is spinning out of control, it’s hard to work through the losses that have come before. Often there seem to be many stops and starts along the way. Sometimes the best case scenario is simply staying connected to the One who carries me through. Survival is important, yes, but connection is imperative.

A Cloak of Weariness

Weariness settles over me, like a cloak of dust, penetrating into the inner recesses of my being. When bent low by burdens, I wonder if the weariness will cling to me for life. I want to shrug out from under the careworn mantle, but I know that this time, the only way to find release is through rest.

Fatigue is a part of the healing process. There comes a time when our bodies simply need rest. When dealing with multiple life changes all piling up at once, sorting through seems complicated. I often liken the process to searching through a bowl of tangled spaghetti strands with sauce poured over, obscuring what lies under the surface. I’ve learned to ask, “Why am I feeling what I am feeling?” and “What, exactly am I really feeling?” Most of the time anger is a mask, hiding more vulnerable feelings beneath. I feel more in control when I am angry than when I feel lost or abandoned. Anger is easier to admit to, for who wants to admit to being broken? Yet “broken” is often a better descriptor of where I am, and what exactly I am feeling.

 Loss Mingled with Hope

My story is one of loss mingled with hope. In my mind’s eye, I travel back to that moment when my world first stopped. When my son’s life, and mine, changed forever. One word, meant to diagnose, alters everything. I did not grieve the first diagnosis for a very long time. I made it my mission to defeat the disease. To conquer the diabetes. To control the boy’s blood sugar. To control everything. Nothing was gonna hurt my baby again. Or me.

Three years later, when my husband was deployed to Iraq (for the second time), I was at the end of my rope. I signed up for an inner healing study, and the work began. Slowly, the layers were removed until we came to that tender place—the wound… the diagnosis that changed everything I do daily. It was during this time that God drew my heart to a familiar story in a fresh way.  I read how Abraham and Isaac journeyed up a sacred mountain to make a sacrifice that would break body and soul. Isaac carried the wood, and Abraham carried HOPE. He tells the servants,  “We will go up the mountain and we will return.”

My First Step Toward Healing

And then I felt the urging to place my own beloved son on the altar before Jehovah-Jireh, my provider.  I envisioned laying my precious child on the altar before a loving father God, and in my mind’s eye, he took my son and cradled him. Surrender was my first step towards healing. And still is. In those times when one diagnosis (or several at once) are causing upheaval in my daily life, it’s time to search out that well worn path to the altar. When I release my hold on the illusion of control, I am set free. Set free to find hope, set free to do the good work of healing. Through prayer, introspection, good counsel, and times of rest, I move forward to that place of greater wholeness. Sometimes it is hard work. But, at the end of the day I find that healing is worth the work, and rest is the vehicle that allows the work of healing to carry on.

What about You?

Do you feel too tired to heal today? Or have you taken that first step on your journey toward healing? Leave a comment about your journey, and I will pray for you.

photo credit: www.freedigitalphotos.net

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Rebekah Benimoff is the wife of a husband with PTSD and the mother of two young men, both of whom grew up with medical and special needs. She blogs at In the Chaos…. and In the Calm (justmemama.blogspot.com).

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Birth Announcements for a Child with Special Needs

Birth Announcements for a Child with Special Needs

Birth Announcements for a Child with Special Needs

The birth of every child is a wonderful event parents long to share with others. However new parents overwhelmed by a special needs diagnosis or facing major medical decisions for their child may not know how to proceed. Should they send an announcement? How much should they tell? How long after the birth is it appropriate to send an announcement? In a post at She Knows Parenting, blogger Maureen Wallace offers answers to many of those questions.

Meet Maureen Wallace

Maureen is the mother to a boy and a girl. Her son Charlie lives with Down Syndrome. In the article, she describes how circumstances made it difficult to think about birth announcements:

By the time Charlie was strong enough to come home with us, heart monitor and all, I was in the full throes of post-partum depression and barely able to engage in conversation without crying. Birth announcements that included a heartfelt testament to our love of Charlie regardless of any challenges meant nothing to me.

Looking back, I realize my regular emails to a lengthy list of family, friends, and even some acquaintances was my way of casting a wide net into a dark and uncertain sea. I desperately hoped someone would grab the line and haul me to safety.

How Other Parents Handled Birth Announcements

Wallace interviewed several parents about how they dealt with special needs birth announcement.

  • One family sent birth announcements after their child came home from NICU at five months of age.
  • Another dad and mom chose to send an email the day after their daughter was born, explaining her diagnosis.
  • A third mom included the following short note in the birth announcement: “Molly is a very healthy baby girl who eats, sleeps, cries, and dirties diapers just like every other baby, she’s just got an extra chromosome!”
  • One couple said they chose not to mention their child’s special need because they didn’t want the diagnosis to define their child.

The article is worth a read as it assures parents that whatever they choose to do, it’s their choice. You can read the whole thing at Beyond Baby’s Birth Weight.

How Did You Handle Birth Announcements?

I can’t remember what we did about birth announcements after our son was born in May of 1982, but we did send an update with our Christmas cards. Do you remember how you handled birth announcements? If you do and would like to pass it along, leave a comment in the box.

photo credit: stock.xchng

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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13 Special Needs App Picks

13 Special Needs App Picks

13 Special Needs App Picks

Special needs apps keep springing up as fast as a field of daisies in summer. The field (of special needs apps, not daisies) is growing so fast, it’s hard to pick the ones best suited to meet your child’s needs.

TeachThought.com to the Rescue

Thankfully, TeachThought.com came to the rescue. Teach Thought—a website that features what’s new in educational thought, trends, technology, and other learning-related stuff—partnered with Teachers with Apps (TWA) to list their top special need apps picks.

The Special Needs App List

Here are some of the apps that made the list:

  1. See, Touch, Learn, Pro by Brain Parade is an app with many purposes, one of which is the ability to create lessons.
  2. With Pictello by Assistiveware, families can create and share talking photo albums and stories.
  3. Dragon Diction by Nuance Communication is a speech-to-text application.
  4. The Social Express by The Language Express, Inc. teaches users with high-functioning Aspergers to think about and manage social situations.
  5. My First ACC by Injini is an iPad app for younger children with delayed speech or severe speech disorders.
  6. Conversation Builder Teen by Mobile Education Store is the teen version of Conversation Builder.
  7. Phonics Genius by Alligator Apps is a comprehensive phonics app.
  8. SoundLiteracy by 3D Literacy, LLC helps students recognize the spellings of English phonemes.
  9. Letter School by Boreaal gives kids many ways to practice letters and numbers.
  10. Social Quest by Smarty Ears engages older elementary, middle school and high school students in castle adventures while working on speech, language, and social skills.
  11. P.O.V.–Spatial Reasoning Skills Development by Binary Labs encourages spatial reasoning skills in kids and adults.
  12. Speech With Milo by Doonan Speech Therapy includes nine speech apps to build language skills.

More Special Needs App Information

More details about each app can be found at 13 of The Best Special Needs Apps of 2012. So zip on over and check them out. And if you have recommendations for more great apps, leave them (and a link) in the comment box.

photo credit: www.freedigitalphotos.net

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Because of C. Everett Koop

Because of C. Everett Koop

Because of C. Everett Koop

My day came to a halt this past Monday morning when the radio host announced the death of Dr. C. Everett Koop at the age of 96. I nodded as the accomplishments of his life in politics were listed: Surgeon General under Ronald Reagan, evangelical Christian and early champion of the pro-life movement, promoter of AIDS education and prevention, crusader of tobacco health warnings, and defender of the rights of children with special needs.

But that story—and every other media story about this remarkable man— barely mentioned C. Everett Koop’s many accomplishments before he became Surgeon General.
They didn’t mention his long tenure as surgeon-in-chief and practicing physician at Children’s Hospital in Philadelphia from 1946 to 1981.
They didn’t mention he created the first neonatal intensive care (NICU) at CHOP in 1956.
They didn’t mention that he pioneered the field of pediatric surgery by perfecting the administration of safe doses of anesthesia to newborns, babies, and children.
They didn’t mention that the first birth anomaly surgically corrected by Koop was a tracheoesophageal fistula (TEF), now known as esophageal atresia (EA/TEF).
They didn’t mention that the baby would have died from EA/TEF without the risky surgery.
They didn’t mention that because of that original, pioneering work, our son, who was born in 1982 with EA/TEF, is alive today.
They didn’t mention the impact C. Everett Koop had on our family.

But the impact C. Everett Koop had on our family was all I could think about on Monday. It was all my husband could think about, too. He mentioned the news the minute he came in the door after work. Together we talked about how this great man’s work changed our lives in ways not noticeable to national media reports, but worthy of mention nonetheless.

To read the rest of this article, please go to the Not Alone website.

photo source: The Gospel Coalition

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Embracing the Strengths of a Child with Special Needs

Embracing the Strengths of a Child with Special Needs

Embracing the Strengths of a Child with Special Needs

Parents want to wholeheartedly embrace their children with special needs. But grief, disappointment, and a child’s unusual or off-putting behaviors can create obstacles that thwart our best efforts.

Meet Harriet Cabelly and Priscilla Gilman

Today, thanks to the efforts of Harriet Cabelly, who blogs about special needs at www.rebuildlifenow.com, you can learn from Priscilla Gilman, a mom who has learned to embrace her child with special needs. Priscilla writes regularly for publications including the Daily Beast, the New York Times, and the Huffington Post, and speaks frequently at schools, conferences, and organizations about parenting, education, and the arts. She’s also the author of The Anti-Romantic Child, her memoir of raising her son Benjamin who has special needs.

Advice about How to Embrace Your Child with Special Needs

Here’s one of nugget of Gilman’s wisdom from the interview:

I always saw all the therapies and special support not as a race to fix or cure him, not as tools in an arsenal as if I was fighting a battle against autism, but rather I saw it as ‘I want to get to know my son better, I want to understand him so I can love him better and be a better mother to him.’ And so when we would do the therapy sessions, I would try to look at them as opportunities to learn more about him and to help him. Not to help him change but to help him become more comfortable with things he loved to do. For instance sound sensitivity—helping him overcome those things so he could enjoy music and go to concerts because he loves music. Not so he can become normal, whatever that is, but so these obstacles to his engagement with things he absolutely likes, would be removed.

Good stuff, huh? Harriet’s interview with Gilman is overflowing with nuggets like the one above. So hop on over to Interview with Priscilla Gilman – Embracing the Strengths of a Special Needs Child to read the whole thing.

Your Advice

What helps you embrace your child with special needs? Leave a comment to share your advice.

photo credit: www.freedigitalphotos.net

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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