TapSpeak Creates Apps for Kids with Special Needs

TapSpeak Creates Apps for Kids with Special Needs

TapSpeak Creates Apps for Kids with Special Needs

Non-verbal kids with special needs want to communicate, and their parents want to find ways to communicate with them. Today, you will meet Ted and Audrey Conley, parents of a son with special needs and owners of TapSpeak, a company that creates communication apps for non-verbal kids. Audrey recently stopped by for a DifferentDream.com interview, and here’s what she had to say.

Describe Your Family’s Special Needs Journey

This is the second marriage for both of us. We both came into it with great respect and willingness to have a God-honoring marriage and family. 5 years later we were blessed with a daughter and 15 months late a son, Pierce, with spastic quadriplegic cerebral palsy and cortical vision impairment. We were bombarded with hospital visits and therapy sessions. Seventeen months after Pierce was born, Ted’s company downsized, and he lost his job. We were pretty scared and worried but prayed hard for God’s direction.

How Did TapSpeak Get Started?

When Pierce was about 18 months old, he still was not uttering any words. We requested a speech therapist. My husband clearly remembers the day the speech therapist came. She had a big box. In it were a lot of large red buttons, boxes, and switches. She wanted him to use them to communicate. Ted, having years of development experience and being well versed in the latest technology, was appalled.

“This is the latest technology out there for our kids?” he asked. The iPhone/iPod touch was out and the iPad was on its way to the market within months. Ted, still unemployed, researched the market and taught himself how to do programing on iOS devices. Then he created a communication app that would help Pierce. Even after he started making apps, we still weren’t convinced we should go into business for ourselves. But, God kept closing the doors on more job interviews, and the apps were selling.

What Kind of Reception Are Your Products Receiving?

One of the first inspirational stories we received was from a mother in Australia and that her almost 16-year-old daughter was nonverbal. They purchased one of our apps, and she began one word communication. The mom wrote to thank us for giving her daughter a “voice” for her 16th birthday!

Another touching story was from a single mother in Canada. Here is what she shared on Facebook a few months back:

Good morning, my name is Dale Van Hal and I am the mother to John-Paul. JP was born with Angelman Syndrome. I want to say THANK YOU to TapSpeak for TapSpeak Choice. Thank you TapSpeak for giving my son a voice. The ability to tell someone you need to go to the washroom is not a big issue for most of you. For JP this is something that the doctors said he would never have the cognitive ability to do. This morning as we got to school, I set his iPad up on his desk easel; He immediately opened the app TapSpeak Choice and pressed “go to bathroom.” Okay, so we went to the bathroom and he “did his business.” I’m ready to throw a party and jumping up and down and crying at the same time because HE SPOKE, I LISTENED and he got to do what so many of you take for granted.

What Hopes and Dreams Do You Have for Impacting the Special Needs Community?

My husband has a God-given desire to put out the best and most appropriate product using the latest technology available for these kids and families. Also, we are active member in our local church; the special needs ministry was started about 2 years ago and is growing. I am looking to take a leadership role and help get a chapter of a non-profit that helps not only support the children with special needs kids but also their families. This would be a community outreach to minister to these families. We certainly, as a family, want to show the love of Christ to those around us where ever we are.

What Part Does Faith Play in Your Business and Family Life?

God opened the door for us to start this business and continues to open doors and direct our path. It hasn’t been easy. We used our retirement savings to start the business. Ted worked for the first 2 years 10-14 hour days, 7 days a week to produce apps to sell. We are in Year 3 and have been able to pay all our bills and moved into a handicapped-accessible house with office space in our basement. Still, Ted puts in more than 40 hours a week, and we live frugally. We go to church every Sunday and worship together. We also pray weekly for our customers and families. We understand the journey they are taking. We are living it, too, with God front and center.

What Advice Do You Have for Parents about How to Be Effective Advocates?

Take your child with you everywhere you can. I know that this requires extra energy and an extra hand. The world needs to see these kids at the local grocery store, museum, and church! Yes, people stare and ask questions, but you can educate the world and in some cases, you even open up a mind that had prejudices they never realized they had.

Having been given the gift of a child with special needs, we see life differently. Small victories in the world’s eyes are monumental to us. I think much of God’s comfort can come from other parents like us. We understand each other, have the same fears and joys; ups and downs and we strive daily to give our kids what they need. 

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A Sweet Special Needs Victory

A Sweet Special Needs Victory

A Sweet Special Needs Victory

A special needs victory is worth celebrating, and guest blogger Rachel Cordeiro is here to celebrate her daughter’s recent step toward independence.

Victories Are Sweet

Our church has canisters of individually packaged mints at the welcome center located in the lobby. Because of their melt-in-your-mouth consistency, these mints seem to be more of a sweet treat rather than a breath freshener.

All it took was one mint for Cami’s sweet tooth to discover their deliciousness! Soon, it became part of our Sunday morning routine for her to eat one in between Sunday School and Jr. Church.

Sweet Motivation

After a few weeks of this, it was apparent that these sweet mints were highly motivating for Cami—sometimes the sole reason she’d walk into Jr. Church without any resistance at all.  I wondered if her affinity for these mints could motivate her any further?

I decided to give it a try. “Cami, today you need to reach up into the container on the counter and get out your own mint, okay?” I said.

“And then I can eat one?” she asked without missing a beat.

“Yes—after you open it by yourself.”

We walked slowly toward the welcome center, the pile of mints towering high above the bowl which held them.

Sweet Surprise

To my surprise, Cami led the way right over to the counter. Confidently, she reached up to grab a mint from the bowl, proceeded to the garbage can, and fumbled with the wrapper.

She struggled to pull at the corners of the tiny package, growing agitated at the work it required for her fingers.  The entire process involved every ounce of her determination and strength.

Before I could jump in to her rescue, she was already sticking the puffy peppermint into her mouth.

Sweet Special Needs Victory

The longer she chewed the candy, the bigger her smile grew. My heart was filled with pride over the difficult task she’d just accomplished.  I smiled too.
Because watching her achieve victories tastes sweeter than any peppermint I’ve chewed.

After finishing her treat, she rested her hand in mine, allowing me to lead her down the hallway to Jr. Church.

Share Your Child’s Sweet  Special Needs Victory

Thanks, Rachel, for that sweet story. We are celebrating with you and Cami! Readers, if your child has recently achieved a sweet victory, leave a comment so we can celebrate with your family, too.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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7 Sleep Tips for Kids with Special Needs

7 Sleep Tips for Kids with Special Needs

7 Sleep Tips for Kids with Special Needs

Sleep is a precious commodity to new parents. It’s doubly precious to parents raising kids with special needs, kids who often have sleep issues. Katy Bird, a favorite special needs blogger mom at Bird on the Street, is on a mission to get more sleep. That’s not an easy task for a mom who’s oldest son Charlie, lives with cerebral palsy. She’s also the mom to twin boys, Louis and August (who needs a gluten-free diet), and baby Rex. The twins and Rex are under 3 years old.

7 Special Needs Sleep Tips

As you can imagine, Katy doesn’t get enough sleep. But, she’s been implementing some simple strategies to add order and security to her daily life. The latest is increasing the amount of sleep for everyone in the family, starting with her son with special needs. Here are 7 tips she recommends:

  1. Consider a melatonin supplement. After consulting the doctor, of course.
  2. Limit sleep medications.
  3. Try a weighted blanket.
  4. Look for sensory stumbling blocks.
  5. Get rigid in your routine.
  6. Dim lights in the house thirty minutes before bed.
  7. Eliminate any spaces between a child’s tight muscles and the bed.

Your Sleep Tips?

Does your child with special needs have sleep issues? What kind? What strategies have you discovered to improve your child’s (and your) sleep? What are some areas where you and your child still need help? Leave a comment to share your frustrations, your breakthroughs, and your advice and to encourage other parents dealing with similar challenges. Thanks!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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5 Ways to Set Realistic Goals for Kids with Special Needs

5 Ways to Set Realistic Goals for Kids with Special Needs

5 Ways to Set Realistic Goals for Kids with Special Needs

Goal setting can be a balancing act for parents of kids with special needs and educators who work with them. How do we set goals that challenge our children to reach their full potential and be realistic at the same time? Eliana Tardio offers excellent advice in a post at www.Mamiverse.com.

What Tardio Knows about Setting Realistic Goals

Eliana Tardio is the mom of two children with Down Syndrome. She currently works for the Florida State Program of Early Intervention as a Family Resource Specialist. She frequently blogs about advocating for and parenting children with special needs at Mamiverse.

5 Ways to Set Realistic Goals

Tardio offers these five tips about setting realistic goals:

  1. Remember that the most important part of school for your child is learning life skills that will help him thrive and be as independent as possible.
  2. Take small steps instead of setting big goals.
  3. Think of every experience is a learning opportunity.
  4. Be realistic about the things you can change or improve through therapies or additional services.
  5. Work closely with all the people involved in your child’s education.

She ends the article with this reminder to parents: “Celebrate those small things that others may let pass by unnoticed. And remember, your most important goal…is to find happiness in his everyday achievements and let him know that he is loved and appreciated.”

Good advice, don’t you think? Check out the entire post at Five Ways Parents of Children with Special Needs Can Set Realistic Goals. While you’re at the site, click on Tardio’s name to get a complete listing of her posts so you can read more of her sound advice.

How Do You Set Realistic Goals?

What helps you and the teachers who work with your child set realistic goals? Leave a comment about the strategies that work for you. Thanks!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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How to Talk to Kids About Their Hidden Disabilities

How to Talk to Kids About Their Hidden Disabilities

How to Talk to Kids About Their Hidden Disabilities

Invisible special needs. Hidden disabilities. Call them what you will, but at some point, parents of kids with special needs not immediately visible to others, should talk to their children. Mary Mazzoni addresses the issue at her blog, Life After IEPs.

Talking with Kids about Hidden Disabilities

Mazzoni asks some thought-provoking questions early in the article: “Do we try to ‘shield’ our kids from the words that describe their struggle with reading, or their difficulty with behavioral self regulation, or their challenges interacting with others? When and how do we talk to our kids about their disability when it is not physically apparent?”

Provide Context

First of all, Mazzoni says we should provide context by helping kids:

  • identify their specific strengths and challenges
  • develop strategies to accommodate their challenges
  • discover their passions and goals
  • understand that they can attain their goals despite their challenges

More Hidden Disabilities Tips

Mazzoni offers these tips near the end of the article:

  • When explaining the label, avoid passing on negative or positive emotions since kids pick up on spoken and unspoken signals. Mazzoni reassures parents by saying, “Often, among those feelings was a sense of relief—knowing that the challenges they face have a name—that they could learn more about the disability—and that there are others who face similar challenges.”
  • Watch the videos created by Dr. Stephen Shore. Shore lives with Asperger’s Syndrome and has helped hundreds of youth, families, and adults on their journey with autism.

What Do You Think?

What do you think of Mazzoni’s advice and the resources she recommends? Have you thought about how you’ll approach a special needs discussion with your child when the time comes? Or have you already had that conversation? How did it go? Leave a comment to share your wisdom with the rest of us!

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Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page

 

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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Hair Cut Tips for a Child with Special Needs

Hair Cut Tips for a Child with Special Needs

Hair Cut Tips for a Child with Special Needs

Haircuts can be a challenging event for kids with special needs and sensory issues. Guest blogger Becky Halberg is here with an ingenious solution to this hairy problem.

Hair Cut Tips for a Child with Special Needs

Do you have a child or know a child with sensory issues? Then you likely know the frustration that can come when it’s time for a haircut. The fear associated with scissors, the buzzing of the clippers that seem to hurt or are too loud for the ears, the touching of the head and ears—all of these factors (and more) can make the seemingly simple act of getting a haircut seem like more of an act of torture.

We have struck out so many times when taking our guy to get a haircut. For a time, I would just buzz it down to almost nothingness just to get it off his head quickly. As he got older, he disliked that option more and more. We had tried many different places where we could just drop in, without an appointment, in hopes that if we happened into the shop during a good moment, he might actually do okay with getting the cut.  He did not.

Talking Up Haircuts

In a little town nearby, there are a large number of barber shops. One of the shops is right beside a little ice cream place where we sometimes stop for a cool treat on a hot day. When we would get ice cream, we’d point it out and “talk up” the idea of getting a haircut.

One day we decided to try this barber for our son with sensory issues after many times of talking it up. This particular barber shop is a family-run business, and so the day we ventured in, our son got Grandpa Barber when it was time for his haircut. What happened next may be one of the most interesting things I’ve seen. You know when you take a child to get their haircut, they often get a lollipop when they are finished? Well, Grandpa Barber had his own unique twist on this whole ritual.

Haircut Secret Weapon

Picasso climbed up in the chair and seemed squirmy. Grandpa Barber tried asking him to sit still a couple times, with little success. Right beside his barber chair is the container with all the lollipops. Grandpa Barber reached over and pulled one out. He took the wrapper off and offered it to my son, who willingly took it—WHILE he was getting his hair cut. He kept it in his mouth, sucked on it, and kept his mouth closed. This worked for a few minutes, and then he started to get squirmy again.  I started to worry, thinking what a great idea that had been, and feeling sorry that my son was being antsy.

Grandpa Barber wasn’t bothered in the least, though. He grabbed a second lollipop out of the container, unwrapped it, and offered it to my son. I was amazed!  My son was thrilled with the prospect of another lollipop and gladly nodded his approval. Grandpa Barber gently took Lollipop #1, threw it away, and gave Picasso Lollipop #2 which he happily kept in his mouth—keeping his mouth shut, and preventing hair from getting in his mouth.

Meanwhile, Grandpa Barber was snipping hair as fast as he could, while Picasso was on cloud nine, having had TWO lollipops now! Things were going well for a few minutes, till my guy started squirming again. Sigh. But to a seasoned barber, like Grandpa Barber, this was just another opportunity to pause, give my guy a minute to stretch, AND to give him Lollipop #3, trading it for Lollipop #2 which had served its purpose of 5 minutes of distraction while he’d cut some hair.

Haircut Amazement

Me? I was sitting in one of the chairs watching all of this in amazement! WHO KNEW that there was a trick like this that maybe, just maybe, would keep my son IN THE SEAT long enough to get a haircut?! With the successful consumption of Lollipop #3, the haircut was finished.

As if that wasn’t enough, Picasso went home with 3 lollipops from Grandpa Barber for “being such a good boy.” Six lollipops for one successful haircut—worth every penny we paid that day!

Haircut Success Tips

Do you have a sensory kiddo getting a haircut?  This trick with the lollipops would be a great thing to try.

  • Arm yourself with several lollipops or favorite hard candy of your choice.
  • Explain what you’re going to do to the person giving the haircut. Don’t let them talk you out of it by saying, “Oh, they’ll get one at the end.” Haircuts can be hard enough without added frustration from someone who doesn’t know your child.
  • A good rule of thumb. A new lollipop every time the child starts to get fidgety—and a different flavor than what was last in their mouth.  For our guy, this was one every 5 minutes.
  • 1 more lollipop—or 3, if you’re feeling generous like Grandpa Barber—for when the haircut is done.

Why This Works

Kids suck on the lollipop with their mouth closed most of the time.  They try to keep the lollipop in their mouth, which prevents the stickiness from getting all over the child.  The person cutting the hair can wipe away stray pieces that fall on/near the face to prevent them getting stuck on the lollipop.  It’s enough of a diversion that it seems to help with some of the anxiety and stress that usually goes along with a haircut. Hopefully this will help someone else!  Special thanks to Grandpa Barber at the Ambler Barber Shop, Ambler, PA.

Your Haircut Tips

Please leave a comment with your tips for a successful haircut.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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