100 Ways for Special Needs Moms to Practice Self-Care

100 Ways for Special Needs Moms to Practice Self-Care

100 Ways for Special Needs Moms to Practice Self-Care

Special needs moms work 24/7 caring for their kids. But, in a post at Mobility Resources, Dr. Darla Clayton makes a case for moms to make time to practice self-care. She puts it this way: It’s important to remember in all that care we are providing to others, that sometimes we need to take care of ourselves too. Just like the flight attendant reminds you every time you fly, you need to put on your own oxygen mask before you can assist others.

100 Ways for Moms to Practice Self-Care

Clayton (she’s a clinical psychologist and mom of a son with special needs) then suggests 100 ways for moms to practice self-care. Here are 20 of her suggestions:

    1. Go for a walk.
    2. Nap. (Either when your kiddo naps, or whenever you can steal a few minutes!)
    3. Put on makeup and do your hair. Make yourself feel beautiful.
    4. Listen to an audiobook in the car. (You can use the OverDrive App to download audiobooks to your smart phone from the library for free!)
    5. Sneak in and hold your little one while they sleep.
    6. Snuggle with your kids.
    7. Skip cooking and order a pizza.
    8. Call your best friend.
    9. Reminisce with loved ones.
    10. Say yes to fast food (every now and then).
    11. Say no to over scheduling yourself.
    12. Sing.
    13. Dance around the house to your favorite music.
    14. Rent a movie.
    15. Chocolate. Enough said.
    16. DVR your favorite show and watch it all by yourself.
    17. Hug someone you love.
    18. Relax and be silly (roll down a hill, go on a slip and slide).
    19. Laugh, hard and loud.
    20. Show the kids a movie you loved at their age.

Some of those are pretty simple and most are pretty inexpensive or free. That’s cool, isn’t it?

What Would You Add to the Self-Care List?

Was your favorite way to pamper yourself on the list? If not, leave it in the comment box. We might want to try it, too.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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Special Needs & Middle School: 6 Sanity Savers for Parents

Special Needs & Middle School: 6 Sanity Savers for Parents

Special Needs & Middle School: 6 Sanity Savers for Parents

Special needs kids transitioning to middle school face some unique challenges. So do their parents. One of those challenges is staying sane when parents send their adolescents into the great, big middle-school world.

6 Sanity Savers for Parents from Katy Dran

Kate Dran is an autism advocate and parent of 2 sons, one with autism, one developing typically. She’s also the founder of Adaptive Solutions Analysis, LLC. In an article for Special-Ism, she offers 6 sanity saving tips for parents sending their kids with special needs to middle school. Here’s what she suggests to ease the transition for both parent and child:

  1. Realize you can’t protect him from every difficult social situation anymore. Trust that the relationship you built when your child was young is strong. And remind your child that you’re available to talk whenever he comes to you.
  2. Don’t freak him out with memories of your middle school experience. Instead, keep things positive without sugar-coating the hard stuff.
  3. Communicate openly and positively with school personnel. Make sure they know that you’re there to help them.
  4. Give your child room to learn. Even from his mistakes. Remember, he’ll be an adult in just a few years and needs to start learning independence  now.
  5. Trust him. So your child will learn to trust himself.
  6. Don’t Panic. You made it through middle school, and your child will, too.

What Sanity Savers for Parents Do You Recommend?

So how about you? How did you stay sane when your child with special needs entered middle school? What did you worry about and how did you rein in those worries? What worked and what didn’t? Leave your suggestions in the comment box.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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3 Special Needs Parenting Burdens and How to Lay Them Down

3 Special Needs Parenting Burdens and How to Lay Them Down

3 Special Needs Parenting Burdens and How to Lay Them Down

Spiritual burdens often weigh upon parents of kids with special needs. Guest blogger Kimberly Drew is well-acquainted with those burdens. Today she shares promises from Scripture that help her lay down her burdens and walk an easier road.

Special Needs Parenting Burdens and How to lay Them Down

I have found in these early years of Abbey’s life, that I am too easily swayed by today’s medical crisis or tomorrow’s potential problem. While there is a certain level of compounded stress that comes with her care, I am assured in Scripture that I have everything I need in Christ to travel an emotionally lighter road.

The Burden of Despair

For instance, when I’m tempted to despair, I’m reminded in 1 Corinthians 10:13, “No temptation has overtaken you that is not common to man. God is faithful, and he will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.”

The Burden of Busyness

I sometimes use the demands of her care as an excuse to drift away from God. I’m too busy to do a Bible study, too exhausted to pray, too overwhelmed to invest in my spiritual life. But the reality is, those things are what keep me grounded and emotionally balanced. When I neglect this part of my life my soul withers. But there’s joy and peace that come when I plant myself next to His streams! When we strive to live righteously, we are like this man in Psalm 1:3, “He is like a tree planted by streams of water that yields its fruit in its season, and its leaf does not wither. In all that he does, he prospers.” I’m a completely different person in Christ than I would be left to myself.

The Burden of Insignificance

The biggest discouragement comes when I start thinking that somehow the things going on in my life don’t matter to God. That couldn’t be farther from the truth! “Are not five sparrows sold for two pennies? And not one of them is forgotten before God. Why, even the hairs of your head are all numbered. Fear not; you are of more value than many sparrows.”  (Luke 12:6-7)

The little things matter to God. Every doctor’s appointment, every phone call, every feeding session, the diaper changes and baths…the sadness from watching her peers and wondering what she might have been like…He knows every tear. He knows the sleepless nights too! Psalm 56:8 assures us, “You have kept count of my tossings;  put my tears in your bottle. Are they not in your book?”

Fewer Burdens=Easier Road

I pray all the time that I can use these lessons to travel this road of raising a child with special needs a little lighter. To cast off my heavy burdens to the One who can exchange them for something better. I love the Message translation of Matthew 11:28-30. “Are you tired? Worn out? Burned out on religion? Come to me. Get away with me and you’ll recover your life. I’ll show you how to take a real rest. Walk with me and work with me—watch how I do it. Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you. Keep company with me and you’ll learn to live freely and lightly.”

What Burdens You?

What special needs burdens are you carrying? What promises from Scriptures make it easier to bear them? Leave a comment so others can see their burdens are common to all of us.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s desire to write. In addition to being a stay-at-home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

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Service Activities for Kids with Special Needs: 6 Tips

Service Activities for Kids with Special Needs: 6 Tips

Service Activities for Kids with Special Needs: 6 Tips

Service activities are an effective way to help kids develop character, and kids with special needs are no exception. In a post at Life After IEPs, Mary Mazzoni presents a compelling case for encouraging our kids to participate in service at home and in the community.

Service Activities Impact Quality of Life

Here are a few of the reasons Mazzoni feels service can enhance quality of life. Service helps kids:

  • experience themselves as needed by others
  • discover their passions and their gifts
  • meaningfully practice communication and interpersonal skills
  • gain employment skills and practical life skills
  • develop relationships with people who share their interests
  • stretch their concept of what they can do
  • practice responsibility

Service Activities at Home and in the Community

The article provides several ideas and links to encourage service at home. It them moves on to these 6 tips for successful service in the community.

  1. Start with your child’s interests. Help define interests by having your child reflect on these questions: What do I enjoy doing? What environments do I prefer? What causes are important to me? What do I want to learn more about?
  2. Explore opportunities in your community. Start the research by checking with your local United Way. Engage your child in the process, too.
  3. Visit first, start small. Visit a few of the potential opportunities with your child. Then start small with a one-day experience.
  4. Before making ongoing service commitment. This includes asking for a written job description, discussing needed accommodations, requesting supervision and support, and arranging for your child to work with another volunteer. 
  5. Practical tips. Mazzoni suggests developing a realistic schedule and a checklist of routine tasks, along with several other practical tips.
  6. Support your child when the experience ends.

Your Child’s Service Experience

Has your child participated in service at home or in the community? Was it positive or negative? What did you do to make it a success? Leave a comment about your experience below?

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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Special Needs Tackled on Call the Midwife

Special Needs Tackled on Call the Midwife

Special Needs Tackled on Call the Midwife

Special needs story lines are becoming more common in television shows and in books. This summer, I stumbled upon two grand examples, both of which provided a glimpse of how society’s attitudes toward special needs have changed in the last 100 years.

Special Needs on Call the Midwife

The BBC series Call the Midwife is set in the impoverished East Side of London during the 1950s. (It’s considered a “historical period drama,” which makes me uncomfortable having been born in 1956.) The second season aired in the United States this spring. In Season 2, Episode 4, a midwife delivered a baby with spina bifida. The episode is worth watching for several reasons. First, it dealt realistically with the new mother’s depression after hearing her baby’s diagnosis. Second, it illustrates how the parents grappled with the common thinking of the time, which was to institutionalize children with special needs. Third, it gives a look at how far medical treatment of kids with special needs has come. So far, only Season 1 of Call the Midwives is available on DVD. It’s also available on Netflix, and I highly recommend it.

Jewell

Special Needs in Jewel by Brett Lott

My second special needs find was the book Jewel written by Brett Lott in the 1990s. The book begins with the birth of Jewel’s 6th child, Brenda Kay, in the 1940s. Brenda Kay is diagnosed with Down syndrome a few months after her birth. The story, told from Jewel’s viewpoint, chronicles her advocacy on behalf of her daughter over several decades. The reader experiences the changes made on behalf of children with special needs during those decades. The book is beautifully written and grapples with spiritual issues along with practical ones. I finished the book, profoundly grateful for parents who blazed the special needs trail and made life much better for our kids with special needs.

Your Special Needs Novel, TV, and Movie Recommendations?

Now, those are my special needs recs. But how about you? What novels, TV shows, or movies have you run across lately that dealt with special needs? Leave your recs in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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7 Ways to Befriend Parents of Kids with Special Needs

7 Ways to Befriend Parents of Kids with Special Needs

7 Ways to Befriend Parents of Kids with Special Needs

Parenting kids with special needs is hard, isolating work. For those parents, supportive friends are worth their weight in gold. Gary Shulman, who has worked with special needs families for 24 years, is here with simple ways friends can make a real difference.

7 Ways to Befriend Parents of Kids with Special Needs

Who doesn’t want their child to have friends…to be popular, well liked, respected, invited to parties and play dates? Now put your feet into the shoes of a parent caring for a child with a disability. That neighbor, that friend, that community member has all the same wishes and dreams for their child whose daily challenges often make socialization and friendship difficult and scary. How can you support your neighbor who has a child in need of friends? Just remember the simple things you were probably taught by your parents and your best teachers:

Be Polite

Be polite and offer a warm and friendly hand. Chances are it will be grabbed with grateful delight.

Learn Appropriate Terminology

Sticks and stones can break my bones but words can devastate me. If you have a question about your neighbor’s child with a disability pertaining to that disability, it is kind and respectful to not use the disability to define who that child is. Children are not their disabilities. A disability is part of who a child is but so is a love of music, enjoying swimming, loving to be hugged, laughing at funny faces, and much, much more.

Avoid Stereotyping

Try to avoid stereotyping based upon preconceived notions pertaining to characters traits that have been attached to certain disabilities. Always look for the abilities, skills, interests, talents, and passions first.

Example: Oh, I see you have a Downs child. They are so cute and loving all the time.

Yikes! Always acknowledge the individual child first. You wouldn’t want your child to be referred to as “Look at that red-haired kid. Red-heads are always so freckled and temperamental!” Of course not.

Better: Hello, I am your neighbor Mrs. Jones. I have a little boy also. How old is your son? What’s his name. What does he enjoy? My son also loves to play in the water! I have a small rubber pool, how about setting up a play date? Pardon me for asking, but I notice that your son has Down Syndrome. May I ask you a few questions so I can learn a bit about how that affects him. I appreciate your educating me about this. I would love my son and yours to become friends. It seems that they have a lot in common.

Be a Good Friend

A good friend listens, is compassionate, offers information that helps, understands that there will be good and bad days, doesn’t constantly judge and asks how to offer help when it is needed.

Try to Understand

Understand that the life of caring for a child with a disability can be very exhausting. Think of how exhausting it is raising your child without special needs. Offering respite in the form of a play date will be so appreciated.

Be a Second Ear

Your neighbor will have to go to so many appointments pertaining to meeting the needs of her child with a disability. Ask if she would like you to accompany her. It can be very helpful to have a second objective ear to listen to what is being said. Depending on the nature of what is being discussed, you may or may not be able to listen to everything, but just being there can be so comforting.

Do Some Research

If you have the time, do some research about programs and services for your friend if she is too overwhelmed to do it herself. Always ask first. Sometimes parents don’t want to be bombarded with information until they ask for it or are ready for it.

Bottom line: A friend is a friend is a friend. You will find more in common with your neighbor who has a child with a disability than differences. Compassion, understanding, laughter, sharing time, and support are all the ingredients for establishing a warm and caring relationship with your neighbor who has a child with special needs. It’s the right thing to do and all benefit.

How Have Friends Supported You?

Do you have friends who’ve supported you? Give them a shout out in the comment box by telling what they did. Then be very brave send the link to this page to your friends who want to support you but don’t know where to start.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Gary Shulman, MS. Ed. was the Program Director of Social Services, Training Coordinator and Special Camp Fair Coordinator for Resources for Children with Special Needs, Inc. for over 24 years. He recently transitioned from that position to the role of consultant/trainer on a private basis. Gary’s passion is bringing relief to families of children with disabilities as well as to the professionals who support them. His workshops are informational and inspirational. Through an interactive format, participants are taken on a journey of discovery. They learn about programs and services that make life easier when caring for a child with a disability and are motivated to think about their needs, wants, wishes and dreams and to move to realize them.

Author Jolene Philo

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