2012’s Top Special Needs Posts

2012’s Top Special Needs Posts

2012’s Top Special Needs Posts

Happy New Year to you and welcome to the grand finale of our countdown of the top special needs posts of 2012 here at Different Dream. The top post of the year was about tax deductions and credits for families with kids who have special needs. What an appropriate post with tax season around the corner.

Posts #2–10:

In just a second, we’ll look at those tax deductions and credits. But first, here are some of the other top special needs posts in the list:

Post #1: 5 Special Needs Tax Deductions and Credits

The three tax deductions of interest to parents of kids with special needs are:

  1. Medical and Therapy Expenses
  2. Specialized Food
  3. Legal Expenses

The two special needs tax credits are:

  1. Child and Dependent Care Credit
  2. Earned Income Credit

To get the skinny on these five money savers, check out the year’s top post at 5 Special Needs Tax Deductions and Credits.

What’s Your Story?

Has your family claimed these deductions and credits on your income tax before? Do you have any advice for people claiming them for the first time? How do you keep track of receipts throughout the year for medical and therapy expenses, specialized food, and legal expenses that can be claimed for deductions? Your experience is valuable, so leave a comment

Also, if there are topics you would like to see covered at Different Dream in 2013, please leave your suggestions in the comment box because this blog is here to serve you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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5 Special Needs Tax Deductions and Credits

5 Special Needs Tax Deductions and Credits

5 Special Needs Tax Deductions and Credits

Tax time is coming, and families of kids with special needs may qualify for certain tax deductions and credits. A post from one of my favorite blogs, Friendship Circle, listed 5 tax deductions and credits you’ll want to research before meeting with your accountant.

3 Special Needs Tax Deductions

  • Medical and Therapy Expenses: This includes things like tutoring, aides, exercise programs, transportation to and from special schools or therapy, and equipment.
  • Specialized Food: Food costs for diets for kids with allergies to gluten, casein, dairy, or nuts may be deductible if the diet is medically recommended.
  • Legal Expenses

For a complete list of the receipts you’ll want to put in the shoebox of papers you take to your accountant, visit Friendship Circle and read the 5 Tax Deductions and Credits for Special Needs Families.

2 Special Needs Tax Credits

  • Child and Dependent Care Credit: Again, this credit is explained in detail at 5 Tax Deductions and Credits for Special Needs Families. Remember, the credit is available for kids under the age of 13, but the age limit does not apply to older children with special needs.
  • Earned Income Credit: Again, the age limit associated to this tax credit does not apply for adult children with special needs.

Your Special Needs Tax Time Tips

I’m the first to admit my understanding of the tax code is pretty fuzzy. My husband, who organizes our tax documents, would heartily agree. But he would also be the first to say how much easier his job is because of the tax time tip I’m sharing with you: get a small case with pockets for each month and diligently file any receipts that might qualify. Doing so makes tax time less dreadful for me, and the file looks much classier than our old shoe box.

Now, what tax time tips make your trip to the accountant easier? Leave a comment!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Top 100 Special Needs Resources on the Web

Top 100 Special Needs Resources on the Web

Top 100 Special Needs Resources on the Web

The top 100 special needs resources on the web list was released recently by the folks at PhD in Special Education Online. And surprise, surprise…Different Dream made the cut! The news made me mighty thankful this Thanksgiving, that’s for sure! Almost as thankful as I was on my birthday when this website was named as one of the 40 best blogs for special needs parents.

The Top 100: Website Categories

The sites are divided into the following categories:

  • Special Education
  • Down Syndrome
  • Autism Spectrum
  • Batten Disease
  • Parenting
  • Miscellaneous

Different Dream appears as #64 the parenting column, along with some of my fave special needs parenting sites like Fighting Monsters with Rubber Swords, Love That Max, Hopeful Parents, and Support for Special Needs.

The Top 100 Other Favorites

Personal favorites listed elsewhere are:

Here are a few of the sites I’m eager to explore the next time I’m not busy lounging around the house eating bonbons:

  • The Life that Chose Me The title says a lot about the perspective of special education teacher who blogs there.
  • Life Is Simple. It’s Just Not Easy That title nails life as the parent of a child with special needs, in this case Down syndrome.
  • Try Defying Gravity Yup, I’m a sucker for catchy titles.
  • Taste Life. My son had an esophageal anomaly so this site about eosinophilic esophagitis, a condition that makes a child allergic to all food, is of interest to me.

Your Top 100?

But enough about what caught my eye at the Top 100 Special Needs Resources on the Web. Which of your favorites made the list? Which ones are going check out when the bonbon box is empty? What favorites are missing that deserve recognition? Leave your ideas in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Parenting Lessons in Letting Go

Parenting Lessons in Letting Go

Parenting Lessons in Letting Go

Parenting lessons don’t end when our kids become adults. Guest blogger Kathy Guzzo is here to share some parenting lessons she’s learned since her children, one of whom has special medical needs, reached adulthood.

Parenting Lessons in Letting Go

Years ago when we began our journey as parents, our goals included nurturing and guiding our children on the path where each step would bring them closer to becoming independent and responsible adults. We learned early that this desire would definitely be easier said than done, yet through all the tantrums of toddlers trials of four teenagers at once, and many mistakes made by us, we feel our children all in their mid twenties to early thirties, have become even more than we expected.

Parenting Lesson #1: The Good and Bad of Raising Responsible Children

Raising responsible children is great, right? Yes and no. Yes, because they have become hard workers, striving to improve the world around them and loving and loyal to friends and family. However, the downside of raising children that become self-sufficient responsible adults is that as parents, we have to step back and let them live their lives. No, because I had to let go of knowing all that’s going on in their lives and release total control. I had to accept the fact that they didn’t need me in the same capacity any longer. I thought watching them from the sidelines would be easy as they learned from their mistakes as they pursued their dreams, and it was—until it came to our daughter’s health issues.

Parenting Lesson #2: Need vs. Want

Although she is 28 years old, I’ve really struggled the past few years with not knowing everything that’s going on regarding her health issues. Of course, it doesn’t help that she lives alone and 500 miles away. Since the day she was diagnosed with lupus and Epstein Barr Replication over ten years ago, I’ve convinced myself that I need to know when she’s too tired to get up, not able to eat, has had to increase her medications, is getting IVs for dehydration, or when she just feels blah. After all, how can I help her if I don’t know what’s going on with her health? The answer is simple—I can’t.

I’m learning to accept the fact that I not only can’t help her, but at this point in her life she doesn’t need my help, and that’s hard to swallow. I have to acknowledge the reality that through all her struggles with illnesses, she has become what her dad and I had hoped—a well-rounded, responsible adult able to care for herself and make good decisions.

Another thing God in His graciousness is teaching me is that sometimes what I perceive at needs are really just wants, and that is so true in this situation. I don’t really need to be involved in her life—I want to.  She’s my daughter, so part of me feels I have a right to know how she is. Yet she’s an extremely capable adult, so I’m forced to step back and relinquish that desire. A few years ago, I was forced to deal with this same issue as my son left for his first deployment while in the Marines, and it was just as hard.

Parenting Lesson #3: Relinquishing Control

The only feasible solution is to allow God to help me let go, and the only way I can do that is to trust that He is more than able to care for her when I can’t. He blessed me with the opportunity to raise four amazing children, and although we dedicated each of them to Him at a young age, I now need to relinquish total control of their lives over to Him.

When Andrea was younger she used to say, “Do your best and let God do the rest.” and that’s where I’m at now. As a parent I did all I could to protect, love, and nurture our children, and now I have to let go and let God take over. It’s not an easy process and it probably won’t ever be unless I continually ask for His help in learning my role on the sidelines. I have to allow Him to be the coach now, and become the cheerleader on the sidelines. Regardless of what happens during the game of life my children, especially Andrea, are playing, I will trust God to be with them each step of the way.

What Parenting Lessons Have You Been Learning

Thanks, Kathy, for sharing your parenting lessons. How about you? What lessons have you learned lately? Leave a comment.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Kathy Guzzo and her husband live in Northern Illinois and have 4 adult children. One of her daughters was diagnosed with lupus and Epstein Barr Replication as a young adult. Another began struggling with depression and OCD in her mid-twenties. She understands the need for her daughters to be able to make their own decisions regarding their health, but the nurturer in her sometimes has a hard time letting go. She desires to direct others to the peace and hope that God has abundantly available for them.

Author Jolene Philo

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Siblings of Kids with Special Needs: Do Their Lives Change?

Siblings of Kids with Special Needs: Do Their Lives Change?

Siblings of Kids with Special Needs: Do Their Lives Change?

Siblings of kids with special needs often face their own set of challenges. But when the needs of their brothers or sisters are urgent and possibly life-threatening, these siblings sometimes suppress their own needs, feel guilty, or become resentful.

Sibling Confession: Ranit Mishori

Dr. Ranit Mishori, a family practitioner here in Washington and member of the faculty at Georgetown University School of Medicine, penned a Washington Post article about her struggles as the sibling of a brother with severe autism. She very honestly wrote about locking her brother in his bedroom so her date who was picking her up wouldn’t see him. She listed several challenges siblings face:

  • Missing out on typical family outings
  • Being embarrassed to bring friends home
  • Being the focus or cause of tantrums and outbursts
  • Being expected to grow up quickly and be responsible
  • Feeling second in importance to parents, because their time and energy is focused on the child with special needs

The article is quite extensive and informative and worth checking it out at Autism can have large effects, good and bad, on a disabled child’s siblings.

Siblings with Special Needs Conversation: Talk of the Nation

The article must have piqued the interest of the talk show planners at National Public Radio. Dr. Mishori was a guest of Neal Conan, host of Talk of the Nation, during the September 25, 2012 broadcast called Siblings with Special Needs Change Childhood. Several guests called in to share their experiences and emotions as the siblings of children with special needs. About halfway through the show, guest Don Meyer, the founder of Sibshops, joined the conversation. Sibshops is a national organization that trains volunteers to run local workshops that support siblings with kids with special needs.

The conversation covered more ground than can be summarized here, so you might want to listen to the story or read the transcript of Siblings with Special Needs Change Childhood at NPR.

Sibling Challenges: What Are You Dealing With?

What kinds of challenges are the siblings of kids with special needs facing at your house? How are you dealing with them? What kind of help do you need? What resources have you found useful? Leave a comment so we can work together to meet the needs of all our children.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

 

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Sleep Problems and Special Education Needs

Sleep Problems and Special Education Needs

Sleep Problems and Special Education Needs

Sleep problems in preschoolers may increase the likelihood of a child needing special education services later in life. That’s the finding of a study published in the September 2012 issue of Pediatrics.

Sleep Problems? What Kind of Sleep Problems?

I admit my first thought upon hearing the news was similar to my response to the study that showed regular school attendance increases kids’ learning. It took a study to prove that? Somebody could have saved a lot of money by asking teachers about the correlation between attendance and learning.

But a closer reading of the sleep problem study revealed a more complex issue. At first glance, I erroneously believed the sleep problem was kids getting too little sleep. Going to bed too late. Interrupted sleep. Stuff like that. But I was wrong. This study looked at problems like sleep apnea and snoring in infants, toddlers, and preschoolers.

Sleep Problem and the Special Education Correlation

The study, authored by Karen Bonuck, a professor at Albert Einstein College of Medicine’s Department of Family and Social Medicine, in New York City “found that kids who suffered from problems like sleep apnea and snoring in their infant, toddler and preschool years were more likely to need special education services for conditions such as speech and behavioral problems a few years later.”

The study found an association between the two factors, but it did not prove cause and effect. An article in U.S. News and World report says, “The higher risk of disabilities could be a statistical fluke, or something else besides sleep problems may explain it.” However, the article goes on to say, “Research has shown that sleep deprivation disrupts the making of memories in the brain.”

Now that’s alarming! Because, as the article states, “Sleep is not just ‘rest’ where the body needs to restore energy. The brain is active 24/7, and we now know that not only important aspects of learning and memory happen during sleep, but emotion regulation is also dependent on sleep. “No wonder pediatricians are being advised to screen for early sleep problems and address them.

Sleep Problems at Your House

What do you think of the study? Do the results surprise you? Do your young children have sleep problems or did they when they were younger? How did you deal with them? What did your pediatrician advise? Leave a comment about your reactions to this study and how the findings could impact your child.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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