9 Ways to Start the School Year Well

9 Ways to Start the School Year Well

9 Ways to Start the School Year Well

School will soon begin around the country. During my 25 years as a teacher, the parents who used some or all of these 9 tips helped their kids with special needs start the school year on a positive note.

Tip #1: Stick to the School Supply List

Purchase exactly what’s on the school supply list and nothing more. Glitzy, fancy versions of items on the list often create distractions in the classroom. Plus they tend to be more expensive, and who needs that? Filling the school supply list costs enough already.

Tip #2: Start the School Schedule 1–2 Weeks Ahead of Time

Implement school bedtimes, wake up times, breakfast time, and lunch time at least 1–2 weeks before school starts so kids are ready for the school routine. As bodies adapt to set meal times, they are better able to adjust to the school bathroom break schedule.

Tip #3: Develop a Positive Mindset about School

Kids base their attitudes about school and teachers on what they observe in their parents, so you need to develop a positive mindset. Try out these statements to stay positive about school and teachers:

Educators are people, just like you. You are more alike than different from one another.
Most teachers are in education because they care about kids. If they were in it for the money, they would have chosen a different career path.

Even if my school years were negative, my child’s can be positive. In other words, don’t let your bad memories color your child’s life.

Tip #4: Cultivate a Spirit of Cooperation, Not of Confrontation

While parents of kids with special needs must advocate for their children, advocacy works best when parents and educators cooperate. Therefore, start the new year with cooperation. Treat teachers and administrators as members of your child’s team  and see what happens. If they cooperate by following your child’s IEP and suggesting appropriate goals during revisions, do a happy dance. If not, move toward confrontation slowly and calmly. You really can catch more flies with honey than with vinegar.

Tip #5: Take Your Child to Visit a New School Ahead of Time

Call the school secretary (Who, BTW, along with the custodian, knows more about what’s happening at school than the administrator or anyone else) to schedule a visit. The secretary will know when the school is open, what door to enter, and whether or not the floor wax is dry.

Tip #6: Call the Teacher Ahead of Time for a Visit with Your Child
 A casual drop in visit to meet the teacher before school starts may seem like a good idea, but the weeks before school starts are often filled with faculty meetings and trainings. Teachers who have children in day care need advance warning to make arrangement with their providers. So call the teacher ahead of time to be sure the meeting is a go.

Tip #7: Practice Meeting the Teacher

Once the meeting with the teacher is set up, do some role play with your child. Explain how you will introduce him to the teacher and how the child should respond. If your child is verbal, practice small talk about summer vacation and asking the teacher about hers. If your child has a communication device, practice using it. This will facilitate interaction between your child and the teacher before the noisy and crowded first day of school.

Tip #8: Set Up a Communication Method

Some parents can address this during the teacher visit described above if the child can wait calmly across the room. (Bring something for your child to do while you quietly talk to the teacher.) Otherwise, offer to send an email, to arrange a time for a call, or to set up a second visit to discuss a way to communicate regarding your child. This is essential if your child is non-verbal or is verbal, but not a reliable messenger.

Tip #9: Make Reasonable Requests

Your child’s teacher is responsible for the education and well-being of every child in the class, and each child deserves an equal portion of her time, energy, and attention. Therefore, if you are requesting something beyond what’s in your child’s IEP or 504 plan, be sure your request is reasonable. If your child needs more support than his or her present placement and IEP provides, ask for a meeting with the educational team about increased services. The team, not the teacher, has the power to authorize changes in services and placements.

Our kids with special needs deserve a positive start to the the school year. Hopefully, these 9 ideas will help you partner with the school system to make it happen!

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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A Unique Back to School Perspective

A Unique Back to School Perspective

A Unique Back to School Perspective

Janae Copeland is an educator and parent of 2 daughters with special needs. As she and her husband, a school administrator, and their children prepare to begin a new school year.

A Unique Back to School Perspective

I’m an elementary music teacher in the school my youngest two children attend. My husband is also a teacher and now serves as a middle school assistant principal. He also has the unique perspective of having been a student with an IEP throughout his public-school career. Our oldest daughter, who has had a 504 plan since 3rd grade, is now an 11th grader, and our youngest daughter has an IEP. Here are truths we have learned from our unique back to school perspective.

#1: The IEP Process Is Daunting for Everyone at the Table

Before I was a parent, I participated in many IEP meetings as a teacher. It was hard understand some of the decisions and strategies discussed for students. I wanted the best for my students and if my idea of “best” didn’t match the stated outcomes, I experienced internal frustration. Fast forward and my husband and I were headed into our youngest daughter’s initial IEP placement meeting when she turned 3. We’d both been around the table before as educators, but I hadn’t anticipated the difficulty, anxiety, and emotional drain of the process as parents. I wasn’t sure we were being heard or understood. I worried about over-reacting and was concerned that the services suggested weren’t going to be enough. I was on the verge of tears and utterly exhausted. I felt immediate empathy for the parents who had been around the IEP table with me in the past, many of whom faced much deeper challenges than we could imagine,

Through this experience, I learned the IEP process is hard for the parents, for teachers, for the specialists and for the administrators. Each person comes with their own perspective and piece of the puzzle. The pieces don’t always fit easily. Some get thrown to the side, though they are pivotal to the image being created. It takes time, effort and patience to figure out the picture. If everyone at the table maintains an open mind and listens to each perspective, the pieces will come together. It will still be hard, it will still take time, and the outcomes may not match what everyone wants. But if the focus remains on the child, all turn out well.

#2: Teachers and Staff Want What’s Best for Your Child

As parents, it’s easy to walk into every school meeting feeling like you are your child’s defender in a great battle. While you are our child’s best advocate, I can assure you that the other people in the room are advocating for your child, too. You know your kid best, but educators also know your child in a different way. They see a side of your child that only an educator who spends hours every day with them can. As a teacher in my child’s school I knowing how much her teachers are invested in her success. I see first hand how they relate to my child and other students in the classroom each day. If every person involved in the child’s education approaches meetings with a mindset of mutual trust and shared goals, conversations can not only be pleasant, but also extremely productive and beneficial. 

#3: Every Child Is a Special Needs Child

As cliché as it sounds, I have found this to be true year after year. There are measurable, legal difference in students considered to special needs and neuro-typical students. But, there are as many variations in these categories as there are students in each classroom. Even neuro-typical students have needs teachers have to address. Needs range from anxiety to traumas, from effects of poverty to social challenges, from parental absence to behavioral challenges. I make this point as a reminder that teachers work constantly to meet everyone’s needs. They should be given grace and support as they work to make sure your child, and every child, is successful. 

As we head into the 2018-19 school year, I hope these thoughts will shape your back to school perspective. My prayer is that all special needs children and the teachers blessed to work them will have a successful and fulfilling school year!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

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Janae Copeland is a wife and mother of 3 daughters. She lives in Jacksonville, NC where she is a K-5 music educator. She became a Different Dream mom when her oldest daughter, Jayda, was born in 2002 with hydrocephalus and cerebral palsy. Nine years later, her daughter Clark was born with EA/TEF and right microtia/atresia. Janae is grateful to have been entrusted with the care all 3 of her special daughters and seeks out opportunities to help other young mothers who may need support as they begin these same journeys with their own blessings from God.

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5 Fave Books for the Special Needs Community

5 Fave Books for the Special Needs Community

5 Fave Books for the Special Needs Community

August days are dwindling fast, but there are enough left for one last summer read. In case you’re looking for a book worthy of the last lazy, hazy days of summer, here are my top 5 books for the special needs community.

A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny by Amy Julia Becker. Penny, the author’s first child, was born with Down Syndrome. In A Good and Perfect Gift, Becker describes how she and her husband came to accept their daughter’s diagnosis and wholly embrace who God created her to be. Becker writes beautifully, and she tells the story with warmth and transparency.

 A Story Unfinished: 99 Days with Eliot by Matt Mooney. Before Eliot Money was born, he was diagnosed with Trisomy 18, a condition generally incompatible with life. His parents, Matt and Ginny Mooney, determined to count every day with Eliot a gift. Eliot lived 99 days, and in A Story Unfinished, Matt tells of God’s goodness and redemption even during the dark days he and Ginny experienced. This book comes with a tissue warning.

In Dancing With Max, Emily Colson how she and her son Max, who lives with autism, learned to do life together. She exposes both the joys and challenges of raising her son with special needs with transparency and humor. A masterful storyteller, Colson will make you laugh and cry and long to experience the delight of dancing with Max.

Unbroken Faith: Spiritual Recovery for the Special Needs Parent and it’s author Diane Dokko Kim were featured in a series of Different Dream posts last spring. In Unbroken Faith, Kim describes how her son Jeremy’s autism diagnosis weakened her faith and how she learned to lean on God’s strength instead of her own.

Eunice: The Kennedy Who Changed the World is a new book about Eunice Kennedy Shriver, the woman known best as the founder of Special Olympics. Biographer Eileen McNamara explains the origins of Shriver’s passion for children with intellectual disabilities and how she was the driving force behind the Maternal and Child Health and Mental Retardation Planning Amendment to the Social Security Act, the last piece of legislation signed by John F. Kennedy before his death.

There you have it…my 5 fave books for the special needs community. If you want to give your favorite special needs-related book a shout out, leave a comment in the box below.

 

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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September Comes, and School Does Too

September Comes, and School Does Too

September Comes, and School Does Too

I don’t want to think about it, but September is coming. And when September comes, our children go back to school. As a parent, I heave a sigh of relief but at the same time, I also take in a breath of panic.

Change.
Change is impending.
Here comes homework, early mornings, routines, activities, and packing lunches. 

If your child’s schedule has lightened up on therapies and academics, saying good-bye to summer will be difficult. This transition is not only hard on our children, but also on parents. So, let’s discuss a few ways to make this transition easier for everyone!

Set it Back

As Mother Nature begins to work to set her lovely summer sun earlier and earlier at the end of August, begin to settle in your babies (big or small) just a few minutes earlier each night into their bedtime routine. I like to start with 5 minutes and keep working back every 2-3 days. That is, if everyone in your house is settling down into bed by 10, I recommend getting to bed at 9:55, then 9:50, 9:45 and so on. That way, the transition to an earlier bedtime doesn’t feel so drastic.

You may also want to bring down the blinds and dim the lights to create the ambiance of the night time when body movements become slower and eye lids become heavier. You may also want to eat dinner earlier, as summer meal times tend to become later and later!

Request a Meeting

 Instead of waiting for your child’s teacher to figure out your child’s academic, emotional, social and behavioral profile, provide the background. Set up a time to met within the first 2-3 weeks of the school year. This will ease your anxiety about a new teacher, new classroom or new classmates. It also takes the guess work as your child’s teacher gets to know your child. 

At the meeting review your child’s IEP and give the teacher an overview of what is easy and difficult for your child. This will make your child’s IEP more about the person than a  profile. The meeting can ease your child’s teacher’s anxiety as well. Teachers are supposed to be familiar with their students’ IEPs, but the teacher is just one person. She can’t possibly memorize the contents of your child’s IEP.

Ease Into the School Year

I tend jump into the school year by making big changes quickly in an effort to gain control over this much dreaded time of the year. Instead, continue to take walks in the evening and enjoy the sunshine. Avoid getting into after school activities and therapies right away. Rather, schedule new activities and therapies for the end of September. Or start with a lesser frequency, perhaps one time per week instead of two. Set up tutoring for the beginning of October.

Transitioning into a new school year is difficult for all. Let’s acknowledge that and take the steps to make the new year easier and happier!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

 

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Embracing My Daughter’s Special Needs Sweet Sixteen

Embracing My Daughter’s Special Needs Sweet Sixteen

Embracing My Daughter’s Special Needs Sweet Sixteen

When her daughter Abbey turned sixteen, Kimberly Drew learned to look at the milestone birthday in a new way. She’s here to explain what her new perspective revealed. 

Embracing My Daughter’s Special Needs Sweet Sixteen

We are in a new phase of life with Abbey. I can hardly believe she’s 16. She started high school last fall. I was already a junior at age 16 and head over heels in love. I remember youth group, movie nights, getting my driver’s license, and going to junior prom. A short year later I remember seeing my junior prom date with a new girlfriend who was wearing my dress. She looked better in it and with him than I did. Like most teenage girls, I pretended it didn’t bother me and then cried myself to sleep for weeks. I can laugh about it now, but teenage heartbreak is no joke!

Abbey went to a prom this year, too.  Tim Tebow puts on a wonderful prom event for people with special needs called Night to Shine.  We shopped for a dress and did her hair, nails, and makeup. She had the time of her life. Guess who still cried herself to sleep? Yep, it was me.

Never once did it occur to my teenage mind that I would one day be taking care of two disabled daughters. One by birth, one by choice, and neither by chance. I just didn’t write this into my story. It’s very, very difficult to make peace with at times.

This afternoon Abbey’s diaper leaked all over the floor. She walked through it and left urine footprints all over the kitchen. I had the biggest internal sigh, not upset with her. Just disappointed that I had to deal with it. My husband Ryan and I cleaned it and her up, and the day moved on. But when I’m trying to go to sleep, I get upset that these things still bother me even though I know I’m not the only parent who wrestles with letting go of what normal looks like.

When I get weepy over the loss of that normal, I try very hard to reign in my thoughts. I know it’s okay to mourn the loss. I just can’t stay in that place. A little perspective always helps to pull me out. So instead of thinking about my sweet 16, I’m going to tell you about Abbey’s.

  • She smiles….all the time.
  • She NEVER cries herself to sleep.
  • She loves everyone, and they all love her back.
  • Every night she makes me tuck in (and kiss) her doll, and then she goes to sleep in peace.
  • She does not feel the sting of an unkind word.
  • She does not want things she cannot have or feel jealous.
  • She will never embarrass herself with poor choices or social media.
  • She is the purest form of kindness.
  • Abbey has joy that doesn’t get tainted by life’s worries.

I would go on, but I’m already over my word count! Yes, my sweet 16 was pretty sweet, but I’m pretty sure that Abbey’s is the sweetest 16 of all.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have three amazing kids on earth (Abigail, Jayden, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

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9 Tips for Surviving a Tornado in a Wheelchair

9 Tips for Surviving a Tornado in a Wheelchair

9 Tips for Surviving a Tornado in a Wheelchair

Tornado season scared me to death when I was a kid. First, because of the scene in The Wizard of Oz when the tornado bears down on Dorothy as she pounds on the door of the storm cellar to no avail. Young as I was, I realized that though Dorothy might have survived a twister in movie world Kansas, in the real world she would have been toast. Second, because of what occurred whenever the tornado sirens sounded in our town. Mom would call her brother-in-law who lived about 8 blocks away. He would drive over, help Mom get Dad and his wheelchair into the basement, and then go back to his house to wait out the storm with his family. Young as I was, I realized that if a tornado had touched down between our house and his, the grown ups I loved most in the world would also have been toast.

With tornado season in full swing where I live, I wanted to learn how tornado preparedness, especially for people in wheelchairs, has advanced over the years. Research showed that some improvements, though perhaps not enough, have been made. Based on what I learned, here are 9 tips–some old and some new–for surviving a tornado in a wheelchair.

  1. Create a plan. Before tornado season, decide what to do if a tornado hits. What do you need to have in place before tornado season? Where will you go if a tornado warning sounds? Do you need someone to assist you, and if so, who will that be? Practice the plan with all the members of the family. If some of your family members are children or the person in the wheelchair is a child, make the practice into a game to prevent fears from arising.
  2. Develop a support network. Enlist the support of family members, friends, and neighbors willing to take the person in a wheelchair to a safe place.
  3. Register your family. Let the local fire department, emergency management, team and volunteer centers know your family includes someone in a wheelchair.
  4. Post emergency medical information on the refrigerator. This should include including a list of the equipment the family member in the wheelchair needs, medication dosages, and emergency contact numbers.
  5. Put together an emergency kit. The kit could consist of batteries (including an extra wheelchair battery), medications, emergency medical information, water, food supplies for special dietary needs, a manual wheelchair for back up, gloves for operating it, and a weather radio.
  6. Call the power company. This is essential if your family member’s wheelchair is battery-operated or if other equipment depends on power, such as oxygen tanks or a ventilator. Some power companies maintain maps and lists of locations of customers who are power-dependent in case of an emergency, They also offer advice about setting up alternate power sources in case of an emergency.
  7. Identify or build a safe room. A safe room is the best place for surviving a tornado in a wheelchair because it’s easier to access than a basement. Families building new homes should consider including a safe room. Those in existing homes should consider retrofitting an existing space as a safe room. The next best option is to designate an interior room or closet without windows as a safe space.
  8. Keep a pillow or mattress handy. A pillow can be placed lightly over a small child in a wheelchair to protect against flying glass or heavy debris. A mattress can serve the same purpose in a safe room or large closet and other family members can crawl under it, too.
  9. Clear a path. Keep the pathway to the safe room clear of furniture and other obstacles so it can be reached quickly and easily.

Disaster planning guides for people with a wide variety of special needs and disabilities can be accessed through the article Tornadoes and People with Disabilities located at the Disabled World website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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