A Gift of Grace: Paying It Forward

A Gift of Grace: Paying It Forward

A Gift of Grace: Paying It Forward

Guest blogger and storyteller Scott Newport is here with the story of a gift of grace and paying it forward to honor the memory of Grace Akers, a child with special needs who recently died. You may want to grab a tissue…just in case.

A Gift of Grace: Paying It Forward

“Hey Officer, can I ask you a question?”

The day I asked that question I woke up at 4:30 in the morning and there was a magnificent sliver of a moon just outside my bedroom window. As I stepped onto our front porch, the moon stared at me as she rose above the treetops. I took a second look, hoping she might give me a nod.

It was a clear April morning here in Michigan and it was so reminding me of new life. Chirping wrens were popping like an ensemble of happy flutes. Their tune, floating like bouncing butterflies from the neighbors outstretched willow tree, made it seem like the day would surely be okay.

At ten o’clock my iPhone sent me a reminder. I had almost forgotten I had a conference call at eleven o’clock with a few people around the country who had experience working with children who have genetic conditions. I told my co-workers I had to fly and I hurried home to use the phone alongside my computer.

When I finally connected with the Region 4 Genetics Collaborative conference call, the facilitator Kristen spoke up. “Did someone else just join us?”

I replied, “Hey guys, it’s Scott from Michigan.”

I became part of the collaborative a few years back because my son Evan had a genetic condition called Noonan Syndrome. My boy lived seven happy years. He never spoke a word but his zest for life was unmistakable and his smile was like a song. Participating with this advocacy group helps me give back.

During our conference call, the group was informed that Grace, the sixteen-year-old daughter of Jennifer, one of our members had died. Jennifer works with Family Voices of Indiana and has a gift for helping other families. The first thing on the agenda was a request being passed on by Jennifer and her husband.

“Grace’s parents would love it if you would pay it forward with a Gift of Grace,” we were told. Even though I don’t know the family personally, I know their pain and had to hold back tears for the rest of the meeting.

After the conference call, I drove my white Ford work van to McDonald’s to get a Diet Coke. After I paid my $1.06, I asked the guy at the drive-through window, “How much does the police officer behind me owe?”

“It’s ah…….. $6.47.”

While the cashier stood there with a funny look on his face, I said, “Could you tell the cop I really appreciate his community service?” This was the first time I had ever paid for someone behind me in a drive-through lane. I was obviously an amateur.

As I pulled away from the restaurant I peered through my side door mirror. I was a bit puzzled by how long the cruiser stayed at the pay window—that is, until that evening when I told my daughter about the gift of grace, and what I had done at McDonald’s.

She giggled and said, “Dad, that’s how it’s supposed to work. You see, when you pay it forward at a drive-through, it’s common for that person to then pay for the car behind them.”

“You mean he was using his own money for someone else’s meal? That’s like paying it forward, right Chelsea?” I said.

“Yea Dad, that’s the hope.”

“Wow, I can’t wait to tell Grace’s family their daughters’ life has even made an impact up here in Michigan.

Before I end, I guess I should tell you the question I asked the officer I referred to at the beginning of this story but I won’t. I will tell you that when I walked up to his patrol car behind mine, he immediately reached down to his side. I guess it was for his gun or maybe a taser.

Reflecting back now, that moment reminded me how folks didn’t often know how to react to my son Evan because of his short stature and widely-spaced teeth. When out in the community, strangers would often step back and protect themselves by avoiding our family. They just didn’t know what to say. Having a child with a genetic condition brings many challenges, including isolation. I would guess that maybe Grace’s parents had similar experiences.

I hope now that that cop may have a different view of a stranger just walking up to him in the midst of a drive-through line. I know it may be kind of a stretch but maybe, just maybe, the gift of grace was working then too.

gift of Grace Susan Akers Grace Susan Akers (May 6, 1998 to April 12, 2015)

Passing Along the Gift of Grace

In memory of Grace Susan Akers, I encourage you to pay a gift of grace forward sometime this week.

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Scott Newport is a carpenter who has a vision for unwanted, damaged wood. His finds are treasures to his soul. Each discovery he makes unfolds into a beautiful piece of furniture for which he finds a home, usually with a child or caregiver of a child with special needs. He writes about the life lessons he learns from his 3 children, especially from Evan who died in November of 2009 after 7 years of joyful life. To access all of Scott’s guest posts, click on the magnifying glass at the top of the page and type “Scott Newport” in the search box.

Author Jolene Philo

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May Again: Memories of the Good, the Bad, and the Lovely

May Again: Memories of the Good, the Bad, and the Lovely

May Again: Memories of the Good, the Bad, and the Lovely

It’s May again, my favorite month. Filled with birthdays, spring flowers blooming, cornfields awash in new life, turning the countryside in our state a most delicious green.

May is also my least favorite month. Filled with wrenching separations, fading lilac blossoms and tulip petals blowing in the wind, not to be seen for 12 more long months.

May, for me, is a tangled mess of memories.
Some of them very good.
Some of them very, very bad.
Some of them lovely enough to take my breath away.

The good…

The good memories are so very good.

May 11, my father’s birthday, was a day of celebration and rejoicing at our house. Dad acted like a kid on every birthday, demanding the biggest piece of cake and an extra scoop of ice cream. Oohing and aahing over the same presents we gave him every year–Aqua Velva aftershave and Kentucky Club pipe tobacco–as if they were the most marvelous gifts in the world. Dad had a way of making his children feel very, very good.

Our son, our firstborn child, came into this world on May 23, 1982. I can still close my eyes and see his tiny perfection the first time I held him. A head full of dark hair, a head round as a pumpkin, wide-set eyes, a long upper lip just like my father’s, his rosebud mouth, and his daddy’s jawline and chin. I can see my husband’s smiling face and feel the joy we shared was good. So very good.

To read the rest of this post, visit the Not Alone blog at specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Special Needs Parenting: Why the Small Things Matter

Special Needs Parenting: Why the Small Things Matter

Special Needs Parenting: Why the Small Things Matter

When guest blogger Maggi Gale’s daughter was born with esophageal atresia, she wanted God to answer her big questions, but he showed her the value of small things instead.

Special Needs Parenting: Why the Small Things Matter

Perhaps we all crave doing something extraordinary, something big.

Looking after my toddler with EA/TEF as she was too vulnerable to go to pre-school didn’t seem very extraordinary. We lived in Africa, with its aching needs on display all around, but instead of doing something big, something for Africa, here I was feeding my toddler. All day long.

Her swallowing was so problematic that she had to be fed every meal with a teaspoon so slowly that one meal merged into another.

“No empty calories make every calorie count!” the nurse had said. My challenge was to get enough good nutrition into my daughter so that she would be able to fight infections. I’ve never been very interested in food, but at that time I became obsessed with her diet as a path the better health. As I researched nutrition, I became convinced that cooked, pureed food wasn’t building her up enough. Even though it was more difficult to swallow, she needed raw fruit and vegetables to get out of the vicious cycle of sickness, antibiotics, lack of appetite and more sickness.

Chop, chop, grind, grind, make it finer, make it finer – small things. Small enough to get past that scar tissue on her esophagus without causing her to vomit.

There are many people who can do big things,but very few who will do the small things.Mother Teresa

Why me, God?

No answer.

Why not heal her?

Wait.

Eventually I learned to leave the big questions, the ones I didn’t have answers for, and just try to be faithful in what God seemed to be asking of me.

The small things.

Derek Prince said this:

The small things are just as great as the great things.

I believe he was right.

In late May of 2015,  my daughter with EA/TEF turns 12. I’m thankful to say that she eats normally, provided she chews well and swallows slowly. She’s tall for her age, has great sense of humor and an inner strength I believe borne out of her struggles. She’s in the school swim squad and her health is generally very good. But I still keep a close eye on her diet. Old habits die hard!

God is faithful, so I encourage to put the lesson I learned into practice: keep obeying Him in the small things and leave the big ones to Him.

How Do the Small Things Matter to You?

Has God been teaching you the importance of small things? Leave a comment in the box below.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Maggi is a wife and mother of two daughters. She is a primary school teacher, having worked in Africa for 14 years before moving to the Middle East. Her passions are her animals and art. Her youngest daughter was born with tracheoesophageal fistula (TEF). This birth condition was to be the start of an arduous journey, impacting the whole family for several years. Through writing, she hopes to turn her experiences into encouragement for others on similar paths.

Author Jolene Philo

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When the Storm of Special Needs Parenting Hits

When the Storm of Special Needs Parenting Hits

When the Storm of Special Needs Parenting Hits

Guest blogger Stephanie Ballard and her son haven’t been sleeping through the night time thunder storms that are part of spring in the Midwest. Instead she used the dark hours to write a poem about weathering the storms that can accompany special needs parenting.

The Storm

Outside the rain was pouring
The lightning flashed with fury
Then something woke me from my sleep
A shadow…still quite blurry.
A hand reached out to wake me
And I was not prepared.

Then I heard the softest whisper–saying,
“Mommy I am scared.
It’s dark in my room, Mommy,
and the lightening…it goes boom.
I don’t want to be alone, Mommy,
and so I left my room.
I got so scared all by myself
not knowing what to do.
I guess that I was hoping
That I could sleep with you.”

And so I moved on over,
pulling blankets in a heap
And said, “Come lay beside me.”
Then I whispered, “Go to sleep.”

The storm…continued noisily
as nature must endure.
My child…he slept quietly,
peaceful and secure.

I found myself awake now,
his feet nudged in my side,
just listening intently
as the storm raged on outside.

I have faced my share of storms:
hardships, lessons, trials.
They remind me to appreciate
The laughter, love and smiles.

What would God do, if I came
to find him in the night?
And said, “Lord, I am so afraid
that things won’t be all right.
The storm has overtaken me
And all the plans I’ve made…
Lord, can I come sit with you?
I’m lonely and afraid.”

In my mind I see Him
Beckoning me near,
whispering, “Be patient,
wait for the clouds to clear.
Don’t be afraid to face your storm
or linger in the rain
for even though you may get wet
courage comes from pain.”

As we sat and talked awhile,
the skies began to clear.
The storm had dissipated,
there was nothing left to fear.

The sun came out behind the clouds,
the promise of a perfect day.
I couldn’t even see a sign
of clouds that were once gray.

I said, “The storm is over, Lord,
and look at that sunshine.
I made it through…I am still here
and things will be just fine.”

Then morning came
with quite a hug…and many kisses too,
“Hey, Mom if I get scared again
can I still come find you?”
“Of course you can,” I said to him,
suddenly enlightened.
“Mommy’s always here for you
Even when you’re most frightened.”

God must feel the same way, too.
He might even say,
“Come find Me when you are afraid.
Come kneel down to pray.”

How wonderful it is, I thought,
that this could be my norm,
that God could take my hand Himself
and lead me through the storm.

How Do You Survive the Storm of Special Needs Parenting?

What sustains you when the storm of parenting a child with special needs hits? Leave your thoughts in the comment box below.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

Author Jolene Philo

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Every Child Welcome: Cooking Up Special Needs Inclusion

Every Child Welcome: Cooking Up Special Needs Inclusion

Every Child Welcome: Cooking Up Special Needs Inclusion

Katie Wetherbee and I first met at a special needs ministry conference around 2010. She made a beeline to my book table and introduced herself. I attended Katie’s workshop and loved what she had to say. Before the end of the conference, we exchanged email addresses.

We quickly became good friends.

Maybe because we had a lot in common. We were both the parents of kids with special needs. We were both former public school teachers. We both had special education backgrounds. We shared a similar philosophy about inclusive education. We discovered that we had used many of the same strategies to create inclusive classrooms for our students. We also decided that if God had every granted us the opportunity to teach together, we would have been an administrator’s nightmare.

We also both loved to cook.

So we should have known, when we cooked up the idea to co-author a manual to equip children’s ministry volunteers to make every child welcome in their programs, that one of us would suggest using a dinner party theme to make the book hang together.

That someone was Katie. She’s the creative one.

After all, she explained (and I nodded my head enthusiastically), “Everybody eats. And chances are, church volunteers like Sunday school teachers and mid-week church club leaders and others who work with kids know a little bit about cooking and dinner parties.”

So the dinner party theme made sense to us.

But just because it made sense to us, it might not make sense to you. At least, not yet. So in the spirit of inclusion and with my teaching-to-different-learning-styles hat firmly in place, here’s a peek at Every Child Welcome‘s table of contents:

To read the rest of this post and to see just what Jolene and Katie look like, go to the Not Alone website at www.specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

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Home Is Not Where We Think It Is

Home Is Not Where We Think It Is

Home Is Not Where We Think It Is

Guest blogger Kimberly Drew is slowly getting settled into the new home she and her family moved into a few weeks ago. Today she reflects upon the hominess of her new house and looks forward to when she goes to her true home for eternity.

Home Is Not Where We Think It Is

The last four months, our family has been displaced while waiting for a short sale to go through with our new home. We put an offer on this house almost seven months ago, sold our home, and were living with relatives and out of suitcases until March. It’s been a whirlwind for sure! During this time, I haven’t spent much time thinking, blogging, or writing about life because I’ve been too busy trying to survive it.

But now I’m finally sitting in my new kitchen surrounded by boxes and the smell of fresh paint. Still, I can’t help but be reminded that this new home is not my true home. My husband just got called to meet a family friend at the hospital whose wife has suffered a massive heart attack. It’s shocking when our loved ones get hurt, or are sick, and we don’t know if they will recover.

We feel this pain even more acutely when our own children lie on the sterile white beds on wheels. They are pushed toward a door that we don’t want them to enter…and there are no guarantees that they will come back out. I recall with vivid and painful clarity my daughter being resuscitated. It’s not something I want to remember, and very few people can understand what that felt like. Or what it still feels like to give our daughter the care she requires as a lifelong result of those moments.

Many parents of children with special needs often find themselves on the pediatric floor in their not-so-favorite hospital far too frequently.
We make appointments,
we go to follow ups,
we call the therapist at school,
we check in with the nurse,
and we talk to our insurance company to get things squared away.
We even go to great lengths to grow tiny babies in incubators
and to teach their organs how to function.
Why do we do this?

We do it because life is so very precious!

We are in essence, setting up our homes.
Each medical hurdle is a box unpacked,
every medical moment is a picture hung.
We do our very best to make this house a home.
There is absolutely nothing wrong with that.
It is completely natural.
I just wonder sometimes, if we forget that this world is just a temporary home.

The Bible says it’s like a vapor that appears for a little while and then is gone. As a dear pastor friend said at our wedding, “We are not in the land of the living going to the land of the dying, we are in the land of the dying, going to the land of the living.”

I hope friend, that you can find great comfort in that. This world is not your home, it’s not our children’s home…it’s just a temporary tent. We want to make it beautiful, and we should. But I pray we never loose sight of the hope of a perfect eternity. If you don’t know what you believe about death, heaven, and how God fits into all of that, I invite you to visit the website www.juststopandthink.com to learn more. Or if you have questions, leave them in the comment box, and I’ll answer them the best I can.

In the meantime, I will keep unpacking…both physically and metaphorically!

Where Do You Believe Home Is?

Do you consider this world to be your home or are you waiting to go to your true home? How do you share your beliefs to your children? Leave a comment if you like.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

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