Long-Term Benefits of Cuddling Preemie Babies

Long-Term Benefits of Cuddling Preemie Babies

Long-Term Benefits of Cuddling Preemie Babies

 Photo Credit: David Castillo Dominici at www.freedigitalphotos.net

A new study proves that cuddling preemie babies produces long-term benefits. The study falls into the category of “things parents already know,” as did the study that proved caregivers raising kids with special needs experience stress featured on Different Dream not too long ago.

Long-Term Study about Cuddling Preemie Babies

An article on the Time website describes the study Ruth Feldman began in 1996, before the benefits of kangaroo care (KC) in NICU were well understood. According to the article,

Feldman assembled two sample groups of 73 preemie babies each at two different Israeli hospitals. One group got standard treatment, which meant no KC; at the other, the mothers would hold their preemies for one hour per day for 14 days…Then they followed all the babies, examining them when they were 3, 6, 12 and 24 months old, and again when they were 5 and 10 years old.

Benefits of Cuddling Preemie Babies

Feldman and her team discovered several ways the KC group outperformed the other group:

  • As babies, their sleep patterns were more organized or predictable.
  • The babies had steadier respiration and heart rates.
  • As babies, they were better able to direct their gaze and actions toward a goal.
  • The above benefits were in evidence a decade later.
  • As 10-year-olds, those who had gotten KC were better at stress management.

Other Interesting Tidbits

Two other tidbits from the study deserve mention. First, Feldman hopes to follow her sample group at least until they turn 17. Then she wants to scan their brains to see if lasting effects of the cuddling can still be detected. Second, it only took 14 total hours of KC over 14 days–to produce lasting and profound effects. To learn why Feldman thinks a little cuddling accomplishes so much, check out the entire article, How Cuddling Saves Tiny Babies. Finally, though the subjects of the study were preemies, every baby needs to be cuddled, too.

Did You Cuddle Your Preemie?

Was your baby in NICU? Were you encouraged to cuddle your baby? Leave a comment about how you think affected your little one. I’ll start. KC wasn’t on the radar screen when our newborn was in NICU in 1982. But instinctively, my husband spent hours and hours beside the isolette rubbing our son’s tiny cheek. Into his teen years, whenever our boy was stressed, he would say, “Mom, Dad, would you rub my cheek?”

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Inclusive Education: A Guide for Parents

Inclusive Education: A Guide for Parents

Inclusive Education: A Guide for Parents

Two months remain in this school year, so it’s time to start thinking about the best placement for kids with special needs. Guest blogger Katie Barkley of the CLC Network (now All Belong) serves up some inclusion food for thought in today’s post. Even if you don’t live in the vicinity of the CLC Network schools, her advice may give you some ideas to pursue where you do live.

Inclusive Education: A Guide for Parents

Corey, the youngest of six, wanted to attend Sussex Christian School just like his older siblings, despite being non-verbal and having significant communication impairments. When he entered the school two years ago, his language exploded, his confidence grew, and his friendliness became a blessing to others. The community at Sussex Christian became more complete because Corey was a member—just like his classmates—of that school.

Our friend Kathy had difficulty finding an inclusive learning environment for her son in California. She wanted her son, who has high-functioning autism, to be educated with his neuro-typical peers in a general education setting. Acting on faith, Kathy and her husband moved to Michigan so their son could attend Zeeland Christian School – a place where he would be welcomed, supported, and included.

I rejoice when I hear stories like these: students that grow, classes that are transformed, friends that are blessed, schools that are more complete because students at all levels of ability are included. It’s a beautiful picture of the Kingdom of God.

Parents, is your son or daughter experiencing this type of community at school? If not, there are some steps you can take to encourage your school administration to pursue inclusive education and become a place where each student is academically, socially, and spiritually supported so the Kingdom can be more complete.

How to Talk to Your School about Inclusive Education

  • Watch a movie. Take your administrator or key teacher out to lunch or coffee and share Including Isaac, a short video of how one Christian school included a student with significant needs. (If you’d like a DVD of this video to show your administrator, please contact us.)
  • Share a book. Give them a copy of Barbara J. Newman’s Any Questions? or Nuts and Bolts of Inclusive Education. Any Questions? provides an overview of inclusive education and addresses many questions parents and schools have asked us over the years. Nuts and Bolts gives a comprehensive look into the steps a school can take to welcome a student with higher levels of need.
  • Talk about mission. What is the mission statement of your school? How does this relate back to the education you want for all of your children, regardless of their level of ability? Talk about this with your administrator or key teacher.
  • It’s all about community. Inclusive education is a portrait of the Body of Believers addressed in 1 Corinthians 12, where each member is contributing their strengths to benefit the entire body. A community is not complete when essential members are missing. Inclusive education is for the benefit of the entire school, and not just students with significant needs.
  • Phone a friend. We can help you imagine the possibilities and work with you and your school to create an environment that provides your son or daughter with learning and social opportunities alongside their neurotypical peers. Contact us at 616.245.8388 or visit our website.
  • Take a tour. Sometimes it’s helpful to see how other schools are “doing inclusion”. We invite interested parents and administrators to tour CLC Network partner schools of various sizes and backgrounds to help them imagine what inclusion can look like.

At CLC Network, we want your child to receive a quality education in an environment where they thrive. Our staff of teacher consultants and psychologists want to equip and support parents and schools to educate all of God’s children. Fighting for your child to be included doesn’t need to be a struggle – let us help.

One parent told us after sending her son to a CLC Network partner school that she doesn’t have to advocate for him anymore because the teachers and administrators also want what’s best for him. What a blessing! Isn’t this the way it should be? If there are ways that we can be of service, please contact us at 616.245.8388 or visit our website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Katie Barkley is the marketing communications manager at CLC Network, where she curates and writes about inclusion on the blog, Making Us Whole. She is inspired by stories that share the beauty of inclusive communities.

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Coping with a Newborn and Siblings with Special Needs

Coping with a Newborn and Siblings with Special Needs

Coping with a Newborn and Siblings with Special Needs

Photo Credit: http://flic.kr/p/9mnWH8

Okay readers, it’s time to give new guest blogger Sarah Gray a hearty hey-ho Different Dream welcome. She’s the latest blogger to join the Different Dream family, and she’s here to talk about how to cope with a newborn and a child with special needs.

Coping with a Newborn and Child with Special Needs

Learning how to cope when baby number two comes along can be a stressful time in a parent’s life, especially when you’re already caring for a child with special needs. Whether your child has a learning disability or physical impairment, you may find your days already filled to the brink. Although the addition of newborn can be a truly joyous occasion, juggling life with your new baby can be trying.

Organization

Keeping a household organized can allow busy parents to keep up with the many duties that come with raising children. Be sure to divide the duties up fairly if you have the resources, so one person doesn’t become overwhelmed. By maintaining a set schedule of important items such as medical appointments, play dates, and school events, you can keep your children on task and allow your household to run smoothly.

Multi-Purpose Gadgets

Time is of the essence when it comes to taking care of your family. Finding the right gear that serves a number of purposes can save steps and space. The hottest products on the market are equipped to handle numerous jobs, such as an Ingenuity Washable Playard with dream center. The Ingenuity Washable Playard with dream center has a zipper in bassinet and allows for quick folding when you need to leave in a pinch. Also, newer strollers have become more efficient time savers by combining folding and unfolding into fewer steps. This becomes very beneficial in a crowded parking lot when you’re trying to get your kids safely strapped into the stroller.

Engage Others to Get Involved

Trying to balance too many things at once can lead to parental burnout, especially when you’re trying to give each child the attention that they deserve. To help offset stress, you can engage the help of family, friends, neighbors, and church groups. This will allow you one-on-one time to bond by doing activities that are geared for each child. Tackling the many household duties that come with the job of parenting is also beneficial if you have the help of others. It’s also a great way for your children to bond and spend time with other members of their extended family.

Time Management

Taking special care of both of your children will take a great deal of work. However, managing your time wisely with essential tools from your smartphone can aid in the process. If your child needs medication at a specific time, you’ll find cellphone apps that will allow you to stay on a specific schedule, such as MedCoach. It also allows you to keep track of their prescriptions so you don’t accidentally over-medicate. The smartphone applications can also be beneficial for your new bundle of joy when it comes to monitoring feedings and diaper changings. Input important reminders into your phone to clear up space in your head.

Take A Moment for Yourself

In order to maintain your own health and wellness, you’ll find it an important part of parenting to take personal time for yourself. Whether you go out for dinner as a couple, take a class at the gym, or spend an afternoon getting pampered, the time away will be refreshing and give you a new perspective. The addition of a new sibling is a wonderful time in a parent’s life. Juggling a new baby while caring for a special needs child can be done successfully with a little hard work, organization, and the right infant equipment.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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A Guide for Parents of Kids Having Surgery

A Guide for Parents of Kids Having Surgery

A Guide for Parents of Kids Having Surgery

Parents of kids who have had surgery understand helplessness. When our children are rolled away on gurneys and disappear behind the swinging doors, we are helpless. Though we may not want to admit it—and even though our hearts are consumed with our children’s well-being—we really, really need someone to hold our hands until our babies return to us.

Who Will Hold Your Hand When Your Child Has Surgery?

I felt that way every time our son had surgery. The memory of that feeling was the impetus behind the writing of A Different Dream for My Child and Different Dream Parenting. It’s why an entire section of each book is devoted to equipping parents so they can cope with childhood hospitalizations. And when a recent internet search turned up a downloadable resource written by Dr. Kathryn D. Anderson in cooperation with the American College of Surgeons, I was delighted. After reading the title, Who Will Hold My Hand? A Guide for Parents Whose Child Needs an Operation, it was obvious the author understands how helpless parents feel when their child has surgery.

What’s In Who Will Hold My Hand?

The downloadable booklet is divided into four sections:

  • Part 1: Let’s Walk Through the Day of the Operation—What happens before and after the operation, what kind of operation will my child have, who are all these people, and what are the diagnostic imaging tests?
  • Part 2: Please Listen to Us—Are we the only parents who feel this way, and how can I be part of my child’s care?
  • Part 3: Childhood Medical Problems that May Need an Operation—Lumps and bumps, abdominal conditions, chest conditions, newborn conditions, and tumors
  • Part 4: More Information—An appendix of questions to ask the doctor, a resources appendix, and a glossary

 

Sounds pretty good, doesn’t it? Links to the table of contents and the downloadable booklet can be found at the American College of Surgeons website.

Who Held Your Hand?

Do you have a child who had surgery or invasive medical tests? Who was there to hold your hand? Leave a shout out about who helped you in the comment box. And hold another parent’s hand by passing this resource on to families of children who need an operation.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

Photo credit: www.freedigitalphotos.net

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities and will be released in June of 2022.

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The Importance of What Kids with Special Needs Hear

The Importance of What Kids with Special Needs Hear

The Importance of What Kids with Special Needs Hear

Today guest blogger Becky Hallberg relates a recent development at her house. She knows that unless she contains the problem, miscommunication will run rampant. Here’s her account of how she’s learned about how to monitor what her children hear and help them process it accurately.

The Importance of What They Hear

Our three children all take piano lessons and each week our home is filled with hours of music. On the days when everyone has time to practice as they should, we have about five hours of music. Their piano teacher instructs them to read the music, to learn the notes, to play the classics in the manner that the composers wrote them, and their music sounds wonderful! Our oldest and youngest don’t stray far from the written notes. They are learning to follow the instructions, to read what’s written, to play some beautiful music. And then, there’s our middle guy—the one who will always do things a little differently, and I’m learning to appreciate that as he continues to grow and show his independence.

Our middle son is filled with zest for life, humor, a quick wit, sincerity, a love for doing things in the way that seems right to him, and a little something that most call Asperger Syndrome. He plays the piano as his brother and sister do, but he adds a little flair that’s all his own. He plays as he is taught, learning the classics, the theory, some beautiful technique, yet he brings a lot more of himself to the music. Just recently, he’s shown another dynamic that we hadn’t seen before.  He has started to play songs by ear. He doesn’t just start on a note and then work the music out from there, he starts on the right note—whatever note the written music started on.

Even more recently, this playing by ear has started spilling over into other parts of his life. He now hears and processes more of what we say around him. He reacts based on what he hears, sometimes without asking us for any input or clarification of what he heard. I like that because he is showing that he can think through some of these things on his own and respond in appropriate ways. But it’s driving home that we need to be careful of what we say around him, and even more diligent in monitoring what he hears in general—from games to TV, friends and even family.

He may hear us say, “…baseball game,” at the end of a sentence and think that we plan to take him to a game. He’ll start to ask what to pack, when we’re going, and who is playing. Unfortunately, he may not realize that the beginning of the sentence was, “No, I don’t want to watch the baseball game.” He heard one part and started reacting to it, in a manner that wasn’t bad, but ended up causing some stress for him when we had to say, “No, we aren’t going.”

Or he may hear us say, “We aren’t going to church,” and then he goes running off to tell his brother and sister that we aren’t going to church on Sunday, and maybe never again. Well, that isn’t at all what we were talking about. We were talking about not going because we didn’t need to be at that particular meeting. But he reacted based on what he heard. And he did hear correctly.

Of course we can’t control what particular part of a sentence or conversation that he hears. But the greater point here is that if he hears something inappropriate, he is likely to go and repeat that to someone. He may share a bad word that he heard in a video game—yup, that’s happened, and it’s been highly frustrating and embarrassing—or he may ask someone what a particular word means from a book he reads, or repeat the word. (That’s why I dislike how the Peanuts comic strips use the word “stupid” so much.)

Our kids hear so much more than we think they do, and my son tends to run with it, whether he knows what he’s saying or not. I’ve been challenged to really guard what he’s hearing, as that’s his current new method of processing information—both in an attempt to make sure he is having good conversations with others, but also because these are the things we want him to know.

Finally, brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things. What you have learned and received and heard and seen in me—practice these things, and the God of peace will be with you.

Philippians 4:8–9 are the verses I often go to, as I try to monitor things for all three of our children, but especially now, for what our middle son hears. Let’s keep this high standard with our kids, a standard of excellence with a promise of the peace of God!

What’s Your Latest Challenge?

What’s the new challenge at your house lately? What are you learning about how to handle it? Leave a comment so we can be ready, too!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

Photo Credit: Stuart Miles at www.freedigitalphotos.net

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Author Jolene Philo

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Positive Discipline for Kids with Special Needs

Positive Discipline for Kids with Special Needs

Positive Discipline for Kids with Special Needs

How to discipline a child with special needs who’s lived with more pain and endured more medical treatment than most adults? That’s the question guest blogger Sylvia Phillips answers in today’s guest post. She offers great advice that could benefit parents raising kids who have special needs and those who don’t.

Positive Discipline for Kids with Special Needs

When parents have a child who has been at death’s door many times over, been to hell and back more than a few times with brain cancer torture, treatments, and suffered with up to fifty seizures a day for twelve years… those parents don’t waste a lot of precious time disciplining that child. Their only desire is to take away their child’s pain and suffering. It becomes their one and only mission to make that child feel as comfortable as possible. The only thing they want for that child in all the world is for her to get well, feel loved, be safe, and be happy.

If you have been blessed with a special needs or medically fragile child as we have, you might find, as we did, that your precious, special, little child has become a precious, special, little tyrant with much to learn about behaving properly, cooperating, and obeying the rules. It may become painfully obvious that your special child needs discipline.

You may be at a loss as how to discipline your child, as my husband and I were, when Bethany began feeling better and life got (sort of) back to normal. We had no clue how to parent our little tyrant! We still struggle to this day with how to handle her frequent bouts of aggression and violence.

Common Discipline Methods

Perhaps some of you grew up with the kind of discipline that involved spankings, shaming, time outs, getting grounded, and/or other forms of negative punishment. This is how my husband and I were raised and how we disciplined our own children as well–until it became obvious that this old fashioned method of discipline was kind of cruel and did not work very well. It certainly did not work with Bethany. It only served to exacerbate her anger and make her even more uncooperative and violent. Thus began my search for a gentler, more peaceful, less humiliating way to discipline my kids- special or other wise to behave better!  I found that method through Positive Discipline by Jane Nelsen.

Positive discipline is a non-violent, non-punitive, and respectful way of teaching children how to behave. All children need to feel as if they belong and are important. Their feelings need to be validated. Children should be treated respectfully without shaming them for their bad behavior. They should be taught that they are capable of self control and responding appropriately, responsibly, and with flexibility to life’s experiences. It is the parents’ job to give the child the tools and teach them to effectively accomplish this goal (Nelsen et al. p.65).

Positive Discipline Tools

Below are a few tools that parents can use to help their child behave in a more acceptable manner:

  • Show your child empathy, understanding and validate their feelings. Example: “I know that you are mad and maybe a little sad that we have to stop playing with trucks and go  shopping.  What can I do to help you feel better? How about we make a play date to continue our game together when we get home?”
  • Use supervised distraction and redirection. Example:  Your child wants to rip up big brothers drawings. Redirect him to another activity. Offer him his own paper and crayons to draw on, get out the coloring books, or offer to play a board game with your child.
  • Teach better ways of responding to certain situations. Social stories are great tools for teaching proper behavior. I just made a photo book for teaching Bethany what she can do other than hitting, kicking, and pulling hair when she gets mad. In it are  photos of her doing what she should be doing instead. Also included in the story are photos of other children hitting, kicking, and pulling hair with the universal red circle NO symbol and the word NO printed in big red letters on the page.
  • To avoid surprises and conflicts throughout your day you might try using photo schedules of your child performing  his mandatory activities for the day. Include places you may need to go and the times your child needs to get ready and be in the car.

 

Positive Time Out

Lastly, when all else fails, I like the concept of  positive time out.  It’s similar to the time out you are familiar with but without the punitive negative feelings normally attached. Positive time out is a pleasant area where a child can retreat when life becomes overwhelming and it’s hard to cope. It can be as intricate as a designated corner of the living room, perhaps curtained off and furnished with a comfy bean bag chair, a soft blanket, and a calming fragrance such as lavender, or as simple as the living room couch with a puffy soft pillow and a fleecy blanket. Positive time out should be an enjoyable, safe place where your child can go until better able to cope. All children will do better when they feel better! In punitive time out the child feels threatened and resentful. The only thing this type of time out will accomplish is your child stewing about how mean and unfair you are and how they might exact  revenge upon you. (Nelsen et al. p. 49-50)

I realize that many times helpful hints like these are much easier talked about than implemented. I’ll also admit that my husband and I are still learning how to apply all these crazy ideas. We often fail and revert back to using our old, less-than-stellar methods of discipline. I can’t promise that these hints are the perfect solution to all your child’s behavior problems, but I can promise you this…You’ll be glad that you are no longer reacting to your child’s misbehaviors in anger and violence. You’ll also be happy that you are no longer making your child feel ashamed, embarrassed, and humiliated.

What’s Your Experience?

Have you used positive discipline methods with your child? What worked? What didn’t? What other positive discipline techniques do you recommend? Leave a comment.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

Photo Credit: Grant Cochrane at www.freedigitalphotos.net

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