Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Hello, friend! It’s so nice to see you here at Different Dream. You’re just in time to  to check out the latest post in our ongoing question and answer series about special needs parenting stress, trauma, and PTSD. Here’s a quick recap of what’s been covered so far.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs. Post number five offered excellent advice from Dr. Matheis about tools or coping mechanisms to use when anxiety build or when something triggers memories of traumatic events.

Today’s question deals with an issue most parents of children with special needs wonder about at some time or another: What is an easy way to explain secondary PTSD to family and friends who think that it’s something that only people in the military suffer from? Here’s what Matheis suggests.

PTSD is not solely a condition for our soldiers and veterans. Trauma does not necessarily only involve war. This is a hard concept to explain to someone who does not understand the stress of raising a child with special needs. Remember that you are not obligated to convince others, so please don’t feel the burden of explaining with great detail or become discouraged if another person doesn’t fully get your experience. No one knows until they’re in that stressful and traumatized place.

If someone expresses that PTSD does not affect parents of children with special needs, but only those who are ‘truly’ traumatized, kindly explain that PTSD comes from an especially traumatizing experience that an individual has had. Due to the fact that we are all different and have different tolerances, what one person experiences as highly stressful, another person may experience at a medium level. PTSD also involves chronic stress, distress, and fear of the environment and how it may impact your child, your family, or you as the parent. The triggers often come unannounced and leave you feeling helpless.

The next step is to politely end the conversation and excuse yourself. Please don’t feel the need to share all of your experiences in an effort to ‘validate’ your diagnosis. This may actually cause re-traumatization in which you will now be left with a flood of emotions that you may not be able to manage by yourself.

I am going to take a moment to validate you now – you are working hard to take care of yourself and your family. Know that others will not always understand. They may sympathize, but they can’t empathize. You are doing great and you will be okay!

Your Questions about How to Explain Secondary PTSD

Do you have questions about what Dr. Matheis said? Or have you come up with a way to explain secondary PTSD that you’d be willing to share with us? If so, you’re invited to share questions and ideas in the comment box. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Thanks for stopping by Different Dream to check out our question and answer series about special needs parenting stress, trauma, and PTSD. It continues to move full steam ahead in 2016. Here’s a quick recap of what’s been covered so far.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs.

In this post, Matheis answers some very practical questions submitted by the mom of a child with significant special needs. What are some tools or coping mechanisms when I feel anxiety building? What should I do when I find myself remembering the traumatic events that led to my PTSD? As you will see, Dr. Matheis answers these practical questions with some equally practical advice.

You may find your anxiety is being triggered by the day’s events, or what you still need to accomplish before the day’s end for yourself, your child, your job, or all three. That anxiety experience is real, and it sometimes triggers a more intense anxiety response when something isn’t going as you planned. And let’s face it, there are a lot of variables that can go out of whack at any given time!

First and foremost, embrace how you are feeling even if there is no real identifiable source for your anxiety. When feeling distressed, acknowledge your feelings and don’t try to deny, distract, or run away from them. Today’s trigger may have been a sudden flashback, a scent, a sight, or a feeling. It’s okay.

Secondly, allow yourself to leave the situation you are in and take a break. Do not force yourself to stay or handle a situation your tolerance and resources are at a minimum. Find a quiet place, make a cup of tea and allow your body to process your emotions and come back down from the roller coaster ride you just took.

Thirdly, keep a journal with you, or find a phone app that you can use to write down your thoughts and feelings in that moment. Answer these questions honestly as you write:  What is it that you are feeling? Why do you think you are feeling this way? Have you felt this way before? When did you feel like this before? What are you thinking of? The answers to any of these questions will give you insight into how the current situation is resulting in flashbacks and the experience of anxiety.

Bottom line, do not try to run away or hide from the anxiety you are feeling or the memories. Feed your body and mind the message that, ‘It’s okay to feel like this,” and “You will get through this.”

Your Questions about Parenting Trauma and PTSD

Do you have questions about the coping mechanisms Dr. Matheis outlined above? Or do you have other questions about parenting trauma, stress, and PTSD? If so, you’re invited to leave them in the comment box for Dr. Liz.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

The Different Dream’s series about special needs parenting stress, trauma, and PTSD is back in 2016 after a few weeks off for the holidays.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two questions: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? Today, child psychologist Liz Matheis takes a look at another question submitted by the stressed-out parent of a child with special needs. Does the state of hypervigilance that special needs parents experience lead to PTSD or is it a symptom? Read on to find out why the answer to the question isn’t a simple one.

People who experience anxiety tend to be exceptionally aware of their environment. They are familiar with where they are in space and time in relation to others. Some are always aware of the location of the closest exit. This extra aware state of mind is referred to as hypervigilance. It also kicks in when people with anxiety enter into a new or unfamiliar environments and are not familiar with the floor plan. They consider it a potential threat or harm. It is exhausting to live with the constant need to scan the environment and look for potential dangers.

Parents of children with special needs scan the environment for potential dangers or triggers for their kids. They are looking for new or unfamiliar environments that serve as potential triggers for a child with anxiety or a sensory processing disorder. Parents know that just entering a friend’s home or going to a birthday party are loud, scary, and smelly enough to trigger meltdowns or aggression.

At times, it is okay to be hypervigilant, especially when entering a novel situation, like a new job. Hypervigilance allows people to stay aware long enough to process the office culture, norms, worth ethic, and relationships. Eventually non-hypervigilant people let their guard down and function as they should. However, for someone who is anxious or under excessive stress, continual hypervigilance results in increased physical and psychological arousal that becomes physically exhausting over time. Constant hypervigilance leads to sweating, increased heart rate, shallow or rapid breathing, and an inability to ‘let go.’ This can result in a inability to sleep, engage in conversations, and maintain relationships.

Over time, this pattern of constant hypervigilance can become a bigger part of PTSD, especially if the parent feels traumatized by her/his child’s special needs and journey. In the early phases, hypervigilance is simply a sign of anxiety. But over time, a person who has been severely or repeatedly traumatized is likely to experience other symptoms of PTSD, also.

So the answer to the question Is hypervigilance a cause or symptom of PTSD? the answer is yes. Hypervigilance can cause PTSD if it continues over a long period of time. But it can be also be a symptom of PTSD, too.

Your Questions about Parenting Trauma and PTSD

Do you have questions about parenting trauma, stress, and PTSD? If so, you’re invited to leave them in the comment box for Dr. Liz. Who knows? Her answer may appear in one of the posts in this series.  

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Top Nine Special Needs Posts of 2015

Top Nine Special Needs Posts of 2015

Top Nine Special Needs Posts of 2015

With 2015 swiftly drawing to a close, New Year’s Eve is a good time to take a look at DifferentDream.com’s top nine special needs posts of 2015. A look through this list gives a good idea of what’s been speaking to and bothering parents of kids with special needs in the past 12 months.

9.  This top nine list begins with a post about friendship, a subject near and dear to Different Dream readers. In this post guest blogger Deborah Arrona describes the 10 kinds of friends crucial to parents of kids with special needs.

8. Sitting in the #8 spot is Sheri Dacon’s post about her decision to call her condition what it was—PTSD caused by parenting a child with special needs—and calling parents with PTSD to stand with and support one another.

7.  This story about why childhood PTSD is often misdiagnosed as ADHD made a big splash when it went live in November of 2015. Many thanks to guest blogger Ruth Stieff for so clearly explaining the reasons behind this mistake.

6.  Readers loved Rachel Olstad’s post about how she combats the adrenal fatigue associated with her PTSD.

5.  We all know the tax man cometh. Perhaps that is why this post about 6 tax deductions for special needs families made the top half of this year’s top ten list.

4.  Kimberly Drew’s lovely post about what parents of kids with special needs want to hear again and again touched many readers last spring. Don’t we all want to hear these things?

3.  The response to Liz Matheis’ post about stress and PTSD in parents of kids with special needs was astounding. Obviously, many parents deal with these issues on a daily basis.

2. The response to the #3 post led to a series about stress and PTSD in parents of kids with special needs. Barb Dittrich’s straight-talking post about 8 truths about PTSD in parents resonated with readers and made it the #2 post of the year.

1.  And finally, in the #1 spot is Stephanie Ballard’s Mother’s Day poem for moms of kids with special needs. Her words seem to go straight to the heart of readers. Thank you, Stephanie, for honoring moms raising kids with special needs.

What Makes Your List of Top Ten Special Needs Posts for 2015?

Is your favorite Different Dream story missing from this top ten list of special needs posts? If so, give your fave a shout out in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Can Parenting Trauma Lead to PTSD? Pt. 3

Can Parenting Trauma Lead to PTSD? Pt. 3

Can Parenting Trauma Lead to PTSD? Pt. 3

Welcome to the third post in Different Dream’s series about special needs parenting stress, trauma, and PTSD. The first post introduced the series, while the second explained the difference between trauma and PTSD. Today, child psychologist Liz Matheis is back, this time with her answer to this question from the mom of a child who has PTSD: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD?

The answer to your question, “Can the stress of raising a child with PTSD result in a parent with PTSD?” is a resounding “Yes.” You, as a parent, are entering into the parenting scene with your own areas of strength and weakness. Sometimes they match up with your child’s needs, but sadly, sometimes they don’t. This can lead to feelings of helplessness and lack of control, which can be traumatizing and distressing. Let’s face it, when we become parents, there is no introductory period, trial period, or returns allowed. So even though we believed that parenthood should carry on in a particular way, it often does not. Then we have to grieve that loss of the family I hoped for or the parent I promised to be.

Parenting trauma can occur after any event or behavior that a parent finds overwhelming. For example: receiving a shocking diagnosis, being beaten by your child, feeling like you are the only person who can care for your child, having your child terminated from a preschool or private school program. There is no right or wrong way of becoming traumatized. Some people have a high tolerance for life’s surprise events, others are taken down right from the start, while others can take and take and take, but then become worn down.

Some examples of situations and events that can lead to parent PTSD are on-going stresses such as marital conflict, frequent hospitalizations for your child, frequent trips to the ER, having a child who was in the NICU or PICU, aggressive behavior issues (e.g., head banging, biting, punching, pinching, spitting). Other situations include difficulties in finding the right physician or therapist to provide the support your child needs (sensory-wise, medication, overall health) or difficulty in finding a school for your child where staff uses a humane approach to handle him.

Parent PTSD can also be activated when distressing experiences in raising your child that are being triggered by trauma you may have experienced as a child, adolescent or young adult. That is, pre-existing trauma that is re-triggered by the stress of parenting a child with special needs. Pre-existing traumas could include child abuse, emotional abuse, neglect, significant hospitalization or illness, rape, or even childbirth.

Although the symptoms of PTSD are often the same for parents and child, the triggers can be different. Your child with PTSD may have nightmares, flashbacks, numbness, and avoidance behaviors triggered by certain odors, scents, places, or faces. For parents the PTSD flashbacks and nightmares can spring from inability to control or manage the child’s aggressive behavior, nightmares, and other extreme emotions that accompany their fears. The stress of parenting a child with PTSD also means that both you and your child are regularly in fight mode for different reasons. So, you both may be sleep deprived yet hypervigilant, watching for triggers or potential dangers.

Your Questions about Parenting Trauma and PTSD

Do you have questions about parenting trauma, stress, and PTSD? If so, you’re invited to leave them in the comment box for Dr. Liz. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

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The Dividing Line Between Trauma and PTSD, Pt. 2

The Dividing Line Between Trauma and PTSD, Pt. 2

The Dividing Line Between Trauma and PTSD, Pt. 2

This post is the second in a new series about special needs parenting stress, trauma, and PTSD. The first post introduced the series, and child psychologist Liz Matheis briefly explained how the stress experienced by parents of kids with PTSD and other special needs can result secondary PTSD. Today, Dr. Matheis is back to answer this question sent by a Different Dream reader who is the mom of a son with autism: Where is the dividing line between trauma and PTSD? Here is her reply:

On a daily basis, we experience stress. Stress is that feeling of “Oh my gosh, I’m going to be late!” or “I’m never going to get this done on time!” We all know that feeling in varying degrees. On some days, a car accident or our child breaking a bone takes that daily stress to a new high. But overall, we cope, perhaps with a glass of wine, a bubble bath, or an early bedtime. The next day, we get up and do it again. By then, we are no longer reminiscing about yesterday’s stressors–unless you are continuing to handle the stress of yesterday–and you are able to focus on the next major task or event of your life, positive or negative. That is your good old experience of stress. You feel overwhelmed in the moment, you are done with it, and you move on.

So, when does good, old stress become Post Traumatic Stress Disorder (PTSD)? PTSD is related to a traumatic event (such as a shooting, abuse) either directly or through indirect experience (such as social workers who work with children who are sexually or physically abused). The experience of stress or thoughts about it remain relatively constant, taking very little break if any at all. This kind of stress impacts a person’s ability to make decisions, focus, and complete daily tasks. The individual suffering from PTSD can be agitated, hypervigilant, or even angry. Their stress also impacts appetite (stress eating or no/low appetite), sleep, interpersonal relationships, and ability to manage daily tasks like grocery shopping or managing bills.

The deciding factor of when stress has become chronic and pervasive is when you it impacts overall functioning. It’s that line between, “This really stinks, but I’ll get through it,” and “I can’t breathe, I’m not going to make it, and I don’t want to do this anymore.”

Parents of children with special needs who have been traumatized by their journey in gaining a diagnosis, seeking treatment, participating in treatment, and managing daily behaviors and struggles can develop PTSD.  When parents feels stuck, hopeless, helpless, and burned out their stress has developed into PTSD, and it’s time to seek help through a psychologist, support group, or psychiatrist.

Your Questions about the Dividing Line Between Trauma and PTSD

Does Liz’s information bring to mind new questions about special needs parenting stress, trauma, or PTSD? If so, you’re invited to leave them in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

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