PTSD, Stress and Moving On as Special Needs Parents, Pt 8

PTSD, Stress and Moving On as Special Needs Parents, Pt 8

PTSD, Stress and Moving On as Special Needs Parents, Pt 8

The Different Dream series about PTSD, stress, and special needs parenting is ready to address a conundrum common to many parents. Simultaneously dealing with stress and moving on as special needs parents and as children growing up with special needs.

Before taking a look at child psychologist Dr. Matheis’ answer to the question, here’s a run down of what the series has covered so far:

With those topics under her belt, Dr. Liz is more than prepared for this week’s question: How can I allow my child to move on without trauma, but remain aware of the physical issue is part of her DNA and continues to influence her life?

The good news is that even though your child (and maybe you) have been traumatized, you will both heal enough to move on. You won’t ever forget your experiences, but you don’t want to keep them vividly alive either. Rather, you and your child want learn to incorporate your experiences into your lives, and use them as a way to understand other people’s struggles and sensitivities.

You can have a conversation with your child about strengths and weaknesses. Identify the strengths, what makes your child unique, first. List your child’s trauma as strengths as badges of courage and bravery.

Although your child’s physical issues will be dealt with often and may be considered weaknesses, remind your child that all of us have special needs of some sort. Some of us are nearsighted, some of us have nut allergies, some of us have food allergies. The list goes on. The important thing for you and your child to remember is that though each person has an ailment (physical or emotional) of some sort, those ailments do not define us as people. They are part of us, but not all of us.

A helpful exercise to help your child visualize this truth, write the physical ailment on a piece of paper. Have your child fold it as small as possible and then hold it in his hand. Next, have a conversation about how a physical condition is a part of a person, a small or big part that won’t be forgotten, but there is much more to a person. This visual can be helpful if you and your child sometimes feel the physical issue is bigger than everything.

Your experiences also give you and your child incredible perspectives. Never again will your child smirk at or avoid children with visible disabilities. You will both become more embracing and accepting–a wonderful gift to give to another person. Giving is a great way to heal. It will build strength, compassion, and perspective. You and your child will understand that a person can have a disability but still be artistic, competitive, passionate, and just plain old AWESOME!

How Do You Handle Stress and Moving on as Special Needs Parents?

Have you been able to handle stress and moving on as special needs parents? How do you help your children with special needs do the same? Leave a comment so we can learn from you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Finding Balance in Special Needs Parenting and Stress, Pt. 7

Finding Balance in Special Needs Parenting and Stress, Pt. 7

Finding Balance in Special Needs Parenting and Stress, Pt. 7

Thanks for stopping by Different Dream for another post in our series about special needs parenting stress, trauma, and PTSD. Today we’re discussing the importance of finding balance in special needs parenting and the stress that often accompanies it.

Here’s a quick recap of what’s been covered so far. 

The first post introduced the series, while the second post explained the difference between trauma and PTSD. The third post answered two questions: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs. Post number five offered excellent advice from Dr. Matheis about tools or coping mechanisms to use when anxiety build or when something triggers memories of traumatic events. The sixth post in the series asked for an easy way to explain secondary PTSD to friends and family who think it only happens to soldiers.

Dr. Liz tackles a series of questions every parent of a child with special needs has asked at one time or another: How can I find balance in while raising a special needs child? It’s as if the special needs issues are screaming constantly but others are whispering at the same time. How can I deal with the whispers so I’m not just focused on the screaming special needs issues?

Finding balance in your life is a journey and a pursuit as your needs and your child’s needs change over time. However, with special needs children, their needs precede yours almost constantly. Children are unique in their strengths and weaknesses. It’s very easy to stay focused on the need, the one that’s screaming out all the time. But ask yourself, “What are some of my child’s strengths? Where can I challenge my child so that he does not think that ‘he can’t?’ How do I respect my child’s special needs while still holding her to standards?”

Maintaining respect is hard no matter what kind of mother you are! Our natural instinct is to protect our children, and keep them happy and pain-free. We anticipate our children’s needs and act before they even arises. (How many of you pack a snack or Bandaids ahead of time?) We anticipate our children’s needs and plan ahead so that when the need arises, our kids are not too uncomfortable for too long.

However, part of our job is to allow our children to struggle a bit so they can build a sense of self-efficacy–a sense of “I can even though I thought I couldn’t.” To do this, assign your child a chore at home. Even though you know it may be difficult, don’t hesitate to assign the chore. Don’t take it back. Allow your children to surprise you or themselves. Let them have a victorious and amazing “I did it!” moment.

To further answer your question, try this exercise. On a piece of paper, write down what the screaming need(s) are. Next, write down the whispers. Then, think of ways to use your child’s strengths to build up the whispers to give your child and yourself the experience of success and self esteem.

How Do You Find Balance in Special Needs Parenting and Stress?

Do you have something to add to what Dr. Liz said about how to find balance in special needs parenting and stress? Share your thoughts in the comment box. We’d love to hear from you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

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Address Your Stress

Address Your Stress

Address Your Stress

I was twenty-five years old when I became a mom, and my world changed forever. Like all new parents, I suddenly realized the needs of our small bundle of sweetness would rule my heart and my days for years to come. Unlike most new parents, my husband and I soon had to surrender our son to the cadre of surgeons, doctors, and nurses in a distant city who could save his life. Before we could kiss him good-bye, he was on his way.

Our baby lived.

His recovery spanned five years, seven surgeries, dozens of tests and procedures, numerous bouts of bronchitis, and countless sleepless nights. He’s thirty-three now. He’s been on his own for years. The needs of our small bundle of sweetness who entered our lives in 1982 rule my days no longer.

But for many years the traumatic memories of his early days did.

When those memories returned, the stress turned me into one hot mess. Weepy. Sad. Irritable. Overly emotional. Until about a year ago when my very wise big sister, who happens to be a mental health therapist, suggested I see a counselor who could help me process the traumatic memories associated with our son’s early years. For about two months, I visited an Eye Movement Desensitization and Reprocessing (EMDR) therapist once a week for hourly visits.

The treatment changed my world again.

The therapy didn’t make me forget our son’s early struggles or my own. But I can now think about them without reliving them. Without being sucked into a vortex of emotions that turn me into a hot mess. Instead, I can distance myself from the events surrounding his birth and treatment enough to think clearly and rationally about them. Best of all, I can now turn my thoughts to the needs of the parents of kids with special needs who are stuck in their own trauma.

Perhaps you are one of them.

To read the rest of this post, visit Not Alone at www.specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Hello, friend! It’s so nice to see you here at Different Dream. You’re just in time to  to check out the latest post in our ongoing question and answer series about special needs parenting stress, trauma, and PTSD. Here’s a quick recap of what’s been covered so far.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs. Post number five offered excellent advice from Dr. Matheis about tools or coping mechanisms to use when anxiety build or when something triggers memories of traumatic events.

Today’s question deals with an issue most parents of children with special needs wonder about at some time or another: What is an easy way to explain secondary PTSD to family and friends who think that it’s something that only people in the military suffer from? Here’s what Matheis suggests.

PTSD is not solely a condition for our soldiers and veterans. Trauma does not necessarily only involve war. This is a hard concept to explain to someone who does not understand the stress of raising a child with special needs. Remember that you are not obligated to convince others, so please don’t feel the burden of explaining with great detail or become discouraged if another person doesn’t fully get your experience. No one knows until they’re in that stressful and traumatized place.

If someone expresses that PTSD does not affect parents of children with special needs, but only those who are ‘truly’ traumatized, kindly explain that PTSD comes from an especially traumatizing experience that an individual has had. Due to the fact that we are all different and have different tolerances, what one person experiences as highly stressful, another person may experience at a medium level. PTSD also involves chronic stress, distress, and fear of the environment and how it may impact your child, your family, or you as the parent. The triggers often come unannounced and leave you feeling helpless.

The next step is to politely end the conversation and excuse yourself. Please don’t feel the need to share all of your experiences in an effort to ‘validate’ your diagnosis. This may actually cause re-traumatization in which you will now be left with a flood of emotions that you may not be able to manage by yourself.

I am going to take a moment to validate you now – you are working hard to take care of yourself and your family. Know that others will not always understand. They may sympathize, but they can’t empathize. You are doing great and you will be okay!

Your Questions about How to Explain Secondary PTSD

Do you have questions about what Dr. Matheis said? Or have you come up with a way to explain secondary PTSD that you’d be willing to share with us? If so, you’re invited to share questions and ideas in the comment box. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

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Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Coping Mechanisms for Traumatized Parents of Kids with Special Needs, Pt. 5

Thanks for stopping by Different Dream to check out our question and answer series about special needs parenting stress, trauma, and PTSD. It continues to move full steam ahead in 2016. Here’s a quick recap of what’s been covered so far.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs.

In this post, Matheis answers some very practical questions submitted by the mom of a child with significant special needs. What are some tools or coping mechanisms when I feel anxiety building? What should I do when I find myself remembering the traumatic events that led to my PTSD? As you will see, Dr. Matheis answers these practical questions with some equally practical advice.

You may find your anxiety is being triggered by the day’s events, or what you still need to accomplish before the day’s end for yourself, your child, your job, or all three. That anxiety experience is real, and it sometimes triggers a more intense anxiety response when something isn’t going as you planned. And let’s face it, there are a lot of variables that can go out of whack at any given time!

First and foremost, embrace how you are feeling even if there is no real identifiable source for your anxiety. When feeling distressed, acknowledge your feelings and don’t try to deny, distract, or run away from them. Today’s trigger may have been a sudden flashback, a scent, a sight, or a feeling. It’s okay.

Secondly, allow yourself to leave the situation you are in and take a break. Do not force yourself to stay or handle a situation your tolerance and resources are at a minimum. Find a quiet place, make a cup of tea and allow your body to process your emotions and come back down from the roller coaster ride you just took.

Thirdly, keep a journal with you, or find a phone app that you can use to write down your thoughts and feelings in that moment. Answer these questions honestly as you write:  What is it that you are feeling? Why do you think you are feeling this way? Have you felt this way before? When did you feel like this before? What are you thinking of? The answers to any of these questions will give you insight into how the current situation is resulting in flashbacks and the experience of anxiety.

Bottom line, do not try to run away or hide from the anxiety you are feeling or the memories. Feed your body and mind the message that, ‘It’s okay to feel like this,” and “You will get through this.”

Your Questions about Parenting Trauma and PTSD

Do you have questions about the coping mechanisms Dr. Matheis outlined above? Or do you have other questions about parenting trauma, stress, and PTSD? If so, you’re invited to leave them in the comment box for Dr. Liz.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

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Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

Is Hypervigilance a Cause or Symptom of PTSD? Pt. 4

The Different Dream’s series about special needs parenting stress, trauma, and PTSD is back in 2016 after a few weeks off for the holidays.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two questions: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? Today, child psychologist Liz Matheis takes a look at another question submitted by the stressed-out parent of a child with special needs. Does the state of hypervigilance that special needs parents experience lead to PTSD or is it a symptom? Read on to find out why the answer to the question isn’t a simple one.

People who experience anxiety tend to be exceptionally aware of their environment. They are familiar with where they are in space and time in relation to others. Some are always aware of the location of the closest exit. This extra aware state of mind is referred to as hypervigilance. It also kicks in when people with anxiety enter into a new or unfamiliar environments and are not familiar with the floor plan. They consider it a potential threat or harm. It is exhausting to live with the constant need to scan the environment and look for potential dangers.

Parents of children with special needs scan the environment for potential dangers or triggers for their kids. They are looking for new or unfamiliar environments that serve as potential triggers for a child with anxiety or a sensory processing disorder. Parents know that just entering a friend’s home or going to a birthday party are loud, scary, and smelly enough to trigger meltdowns or aggression.

At times, it is okay to be hypervigilant, especially when entering a novel situation, like a new job. Hypervigilance allows people to stay aware long enough to process the office culture, norms, worth ethic, and relationships. Eventually non-hypervigilant people let their guard down and function as they should. However, for someone who is anxious or under excessive stress, continual hypervigilance results in increased physical and psychological arousal that becomes physically exhausting over time. Constant hypervigilance leads to sweating, increased heart rate, shallow or rapid breathing, and an inability to ‘let go.’ This can result in a inability to sleep, engage in conversations, and maintain relationships.

Over time, this pattern of constant hypervigilance can become a bigger part of PTSD, especially if the parent feels traumatized by her/his child’s special needs and journey. In the early phases, hypervigilance is simply a sign of anxiety. But over time, a person who has been severely or repeatedly traumatized is likely to experience other symptoms of PTSD, also.

So the answer to the question Is hypervigilance a cause or symptom of PTSD? the answer is yes. Hypervigilance can cause PTSD if it continues over a long period of time. But it can be also be a symptom of PTSD, too.

Your Questions about Parenting Trauma and PTSD

Do you have questions about parenting trauma, stress, and PTSD? If so, you’re invited to leave them in the comment box for Dr. Liz. Who knows? Her answer may appear in one of the posts in this series.  

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

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Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

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