Determining Where to Start as Your Child with Special Needs Nears Adulthood

Determining Where to Start as Your Child with Special Needs Nears Adulthood

Determining Where to Start as Your Child with Special Needs Nears Adulthood

Determining Where to Start as Your Child with Special Needs Nears Adulthood

Determining where to start as your child with special needs nears adulthood is no easy task. There are legal matters to address such as special needs trusts and guardianship, advocacy strategies to pass on to kids, and many more. The list is full of important things to address. Because your child’s eighteenth birthday is not yet imminent, they may be ignored.

You know what I’m talking about, right?

I’d like to give you a hand in determining where to start as your child with special needs nears adulthood. So today I’m sharing three—count ’em—just three ideas. Whether your child is five or fifteen or somewhere in-between, completing these three steps can help you jumpstart the process.

#1: Obtain Hard Copies of Your Child’s Medical Records

Electronic medical records are a great invention. They can also be very hard to access when hospitals and clinics update their computer systems. Who knows what will be in place when your child reaches adulthood? It’s wise to obtain paper copies by contacting the practices of the doctors and therapists who treat your child. They can tell you how their process works and what costs may be involved. Most likely you will be sent an electronic file to download and print out. If your child’s medical history is complex and ongoing, you may want to request records every year or two to update your paper files.

#2: Write Down Your Memories of Your Child’s Medical History

To read the rest of Determining Where to Start as Your Child with Special Needs Nears Adulthood, visit the Hope Anew blog

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Jolene Philo is the author of theĀ Different DreamĀ series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of theĀ Different Dream website.Ā Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents RaisingĀ Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, andĀ at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities and will be released in June of 2022.

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Five Read Aloud Tips for Families

Five Read Aloud Tips for Families

Five Read Aloud Tips for Families

Five read aloud tips for families is a post near and dear to my heart. As a parent, a grandparent, and a teacher I have observed the power of reading aloud to kids for more than forty years. Today I’m sharing five of my favorite read aloud strategies with you.

Between jet lag and back spasms, both the result of my first post-pandemic airplane trip, I didn’t feel well the other night. Even so, I was loathe to forego reading aloud to our grandkids, ages 3 and 6.

Reading aloud to these sweet children is one of the great delights of living in a multigenerational household. I knew that sitting beside them on the couch could make my back worse. Then again due to my travels I hadn’t read to them for over a week.

The solution was surprisingly simple–they climbed into my bed, books in hand, and we had read aloud time there. It was a rousing success, in great part because of these five read aloud tips employed by many parents.

  1. Cuddle up. Reading aloud is an opportunity to share snuggles. Children will want to be close to you so they can look at the pictures. Put them on your lap if they’re small. Drape an arm around their shoulders if they’re bigger. Not only will they benefit from physical touch, they will feel the vibrations of your voice as they listen. Such tactile experiences help children feel secure and loved.
  2. Use expression. Do more than read the story. Read it with expression. Vary the speed of your reading to match what’s happening in the story. Raise and lower your volume to create suspense or drama. Use different voices for different characters. Laugh, cry, whisper, and shout when the characters do. Doing so makes the story come alive, and it provides a model for your children about how they can read aloud expressively, too.

To read the rest of Five Read Aloud Tips for Families, visit Key Ministry’s blog for special needs parents.

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Jolene Philo is the author of theĀ Different DreamĀ series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of theĀ Different Dream website.Ā Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents RaisingĀ Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, andĀ at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities and will be released in June of 2022.

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Speaking Healthy Physical Touch to Kids with Special Needs

Speaking Healthy Physical Touch to Kids with Special Needs

Speaking Healthy Physical Touch to Kids with Special Needs

Speaking healthy physical touch to kids with special needs deserves its own post in this series for three reasons. First, this subject comes with a caution. Physical touch is not always loving in our broken world. As parents of vulnerable children, we must directly teach them the difference between good and bad touch. We must also protect them by inviting only trusted people into our kids’ worlds, watch over them diligently, and keep the doors open at all times.

The second reason is that many children with disabilities and special needs deal with sensory processing disorder (SPD). SPD falls into 2 categories.

  1. Sensory seekers are under-sensitive to sensory input and look for more stimulation. A sensory seeking child doesn’t want just a hug. He wants a bear hug.
  2. Sensory avoiders experience sensory input intensely. They avoid loud noises, strange textures, bright lights, unusual flavors and more.

The third reason is that speaking physical touch to our kids with disabilities has a broader scope that you might think. The book, Sharing Love Abundantly in Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Kids with Disabilities upon which this series is based, provides a plethora of surprising ways of speaking healthy physical touch to kids. Here are a few favorites:

  • Putting hands on a child’s shoulders during conversation to help her focus on what’s important and ignore distractions.
  • A foot or hand rub.
  • High fives, fist bumps, and handshakes.
  • Hold hands when praying before meals and at bedtime.
  • A basket of fidget toys to use during homework or church services.
  • Gifts like a fuzzy slippers, chew toys, and clothes without tags.
  • Holding a child close after administering discipline.

More ideas for speaking healthy physical touch to kids with disabilities and special needs and stories about the caregiving families who use them can be found in chapter 6 of Sharing Love Abundantly in Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Kids with Disabilities.

Stop by in June for the next post in the series. It’s about how to use the love languages with typical siblings in caregiving families.

Other articles in this series:

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Jolene Philo is the author of theĀ Different DreamĀ series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of theĀ Different Dream website.Ā Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents RaisingĀ Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, andĀ at Amazon.

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5 Caregiver Support Team Essential Ingredients

5 Caregiver Support Team Essential Ingredients

5 Caregiver Support Team Essential Ingredients

Ā Photo Credit: Stoonn at www.freedigitalphotos.net

What does a caregiver support team have to do with mountain climber Don Bennett? More than you might think according to Mike Woods at Special Needs Ministry. The support team put together by Don Bennett, who lost a leg in a boating accident, made it possible for him to climb Mt. Rainier in 1982. After completing the feat, he said the most important lesson he learned was this. You can’t do it on your own.

5 Essential Ingredients for a Caregiver Support Team

Neither can parents of kids with special needs. That’s why they need a caregiver support team with these 5 essential ingredients:

  1. Family and friends to provide emotional support and help get things done.
  2. A general practitioner (GP) who understands your care-receiver’s specific special needs and is genuinely compassionate about your loved one’s condition.
  3. Training and support from a variety of resource organizations that provide educational materials, listings of support groups, caregiver resources, and more.
  4. A welcoming community of faith that provides support in a number of areas and shows God’s unconditional love to all people.
  5. Online support communitiesĀ like Not Alone at SpecialNeedsParenting.net and A Different Dream for My Child’s Facebook page.

You can read more about Don Bennett climbing Mt. Rainier and more of Mike’s thoughts about the importance of a Caregiver Support Team at Five Ingredients You Need for a Great Support Team.

What Essential Caregiver Support Team Ingredients Do You Recommend?

Now that you’ve heard the ingredients Mike considers essential for a caregiver support team, which ones are most important to you? Would you add something to his list? Leave a comment in the box below or give a shout out to the people who are on your caregiver support team.Ā  Or add a link to other supportive special needs online communities you’ve discovered. The more support the better!

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Jolene Philo is the author of theĀ Different DreamĀ series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of theĀ Different Dream website.Ā Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents RaisingĀ Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, andĀ at Amazon.

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Work Training and Placement for Young Adults with Autism

Work Training and Placement for Young Adults with Autism

Work Training and Placement for Young Adults with Autism

Employment and kids with special needs. Is there a way for the two entities to come together? That’s a question parents ask frequently as their kids with special needs get closer to adulthood. A report that aired April 22, 2013 on National Public Radio provides information about work training for those raising children on the autism spectrum.

Autism and the nonPareil Institute

The nonPareil Institute was founded by Gary Moore, the father of Andrew, who is on the autism spectrum. According to the NPR story, “Gary Moore wants to make the transition into the workforce easier for young adults on the autism spectrum.” That’s why he and his partner Dan Selic founded the institute, which is “a combination training program and software company for young adults on the autism spectrum.”

Moore says “he used to stay up at night worrying about what would happen to Andrew after graduation.” Out of that concern, the nonPareil Institute was born. “Although [Andrew] can’t tie his shoes or buckle his belt or do a lot of things independently, he can do technology,” Moore says. “He’s a digital native.”

Autism Hasn’t Stopped these Young Adults

NPR reporter Lauren Silverman also interviewed Amelia Schabel, one of the over 100 students going through work training at the company and highlights some of the two dozen company employees who land somewhere on the autism spectrum. To read or listen to the story, go to Young Adults With Autism Can Thrive In High-Tech Jobs. This is the kind of article that will give you hope or perhaps spur you on to think of ways to make the workplace more open to young adults with special needs.

Other Work Training/Employment Opportunties

Do you know of other training or employment opportunities for young adults with special needs? If so, leave a comment with a description of the organization and a link to it’s website. Your information may provide hope and direction for parents and their kids. Thanks!

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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Time Management Tips from Special Needs Moms, Pt. 2

Time Management Tips from Special Needs Moms, Pt. 2

Time Management Tips from Special Needs Moms, Pt. 2

Time management for parents of kids with special needs is the subject of this two- part DifferentDream.com series. Yesterday, guest blogger Kimberly Drew revealed her favorite time management tips. Today another guest blogger, Rachel Cordeiro, gives details about what helps her use time more effectively and parent her daughter Cami, who is visually impaired and deals with developmental delays due to premature birth.

Time Management Tip #1: Prepare in Advance

Rachel advises parents to prepare as much as possible in advance: lunches & clothes down to shoes, socks & hair bows. She says:

I’ve learned that when I don’t prepare outfits, lunches, etc. the night before, that automatically guarantees the next morning we won’t hear our alarm (and I’m only partly kidding)! I’ve discovered that preparing the night before has also allowed my daughter to be a part of the process.Ā  It’s a lot less stressful for me to ask her what she’d like to wear, allowing plenty of time for her unhurried decisions then to add more stress to a busy morning!

Time Management Tip #2: Keep School Things in the Same Place

Rachel says it helps to keep all school gear in a consistent, easy-to-grab place. Here’s how her family does it:

We keep my daughter’s cane and backpack in the same spot so that we’re not searching for it in the morning.Ā  This also helps her to master independent skills because she knows where to put them (and then retrieve them) every day.

Time Management Tip #3: Meal Planning

Rachel plans meals ahead of time so she knows what’s for supper, even when chaos reigns in the house. She uses an online meal-planning service called 5 Dinners 1 Hour to make the job easier. She likes it for these reasons:

  • It offers easy-to-follow recipes that you can assemble in an hour or less!
  • Meals can be assembled on one day and keep them in refrigerator.
  • Each week’s menu is complete with meals and list of ingredients.
  • Gluten-Free menu options are offered.
  • The cost is $15 for 3 months or $60 for a year.

To learn more about it, go to www.5dinners1hour.com.

Your Time Management Tips?

Now that Rachel and Kimberly have shared their tips, it’s your turn. Please leave them in the comment box so we can all make more time in our days. Thanks!

Time Management Tips from Special Needs Moms, Part One

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