An Unexpected Christmas Gift

An Unexpected Christmas Gift

An Unexpected Christmas Gift

An unexpected Christmas gift was given to guest blogger Sandy Ramsey-Trayvick and her family more than 2 decades ago. Today she shares her reaction to the gift shortly after it was given and how she views it now.

My son Myles got sick on December 10, 1999. My family had attended a Christmas party four days before. I have memories and pictures from that party of my son giggling with excitement as he raced back and forth across the room, practicing his newly developing walking skills. He was healthy and happy. Our family was excited and looking forward to enjoying the holiday season. But our little boy suddenly became very ill. Instead of planning for Christmas, my husband and I found ourselves in the emergency room receiving the news that our 13-month-old had contracted strep pneumococcal meningitis and was in a coma.

I remember sitting next to his hospital bed in the pediatric intensive care unit signing the photo Christmas cards that featured my three little ones all dressed up in their holiday best. Sending photo cards of my kids to family and friends had become one of my holiday traditions. This particular year, as I signed each card, I prayed for God to awaken my baby boy in time for Christmas. I pleaded with the Lord but His answer was no. The Christmas of 1999 was the saddest I’ve experienced.

I asked the Lord for just one gift and didn’t receive it.

There have been a lot of Christmases since then and, thankfully, my son has been awake and at home for all of them. Through that long illness and the special needs journey that has followed, the Lord has blessed our family with gifts I hadn’t thought to ask for as I sat in that hospital room all those years ago.

God began revealing His first gift to us shortly after Myles was hospitalized.

Prior to that long hospital stay, my husband and I held inaccurate ideas about God and His ways. In the midst of some of our most difficult circumstances with Myles, God gave us the gift of truly getting to know Him. We experienced Him as Teacher, Comforter, Protector, Advocate, and Waymaker. Prior to that hospital experience, we had heard about God and His ways, but He gave us the gift of knowing and seeing Him for ourselves. In the almost 25 years since my son’s initial illness, we’ve continued to know God more intimately as we’ve walked with Him through both joyful and painful experiences.

Through this special needs journey, the Lord has also given me the gift of knowing my true identity.

Becoming a special needs mom challenged all the ways I saw myself. My old chosen identity had been tied primarily to my performance and accomplishments—but it didn’t fit with my new life as a special needs mom. As I struggled for a sense of significance in this role, the Lord walked me through His Word to teach me who He says I am. He taught me that my significance—my worth and value—have always been in Christ. I didn’t need to choose an identity because He had already chosen one for me, one that would remain unchanged by new roles or unforeseen circumstances.

As I reflect back over the past two decades and more, I’m relishing an unexpected Christmas gift of remembrance—the ability to look back and recall all that God has done in and through my family’s special needs life. He has continued to give.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Igor Omilaev on Unsplash

By

Sandy and her husband are parents to three young adult children. Their son was diagnosed with multiple disabilities 24 years ago after a devastating illness as a toddler. Following her son’s diagnosis, Sandy quit her job to become his full-time caregiver and advocate.

Sandy is currently a Certified Professional Coach. Her focus is to empower special needs parents who are feeling weary by helping them to renew their hope and strength and reactivate their joy.

You can learn more about Sandy and her work at www.UNDisabledLIVES.org. You can also reach her at Sandy@UNDisabledLIVES.org.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Practicing Gratitude in Hard Seasons

Practicing Gratitude in Hard Seasons

Practicing Gratitude in Hard Seasons

Practicing gratitude in hard seasons can be, well, hard.

That less-than-astounding conclusion seems obvious, but I don’t think about such things when life is good. Only when challenges slap me upside the head do I return to practicing gratitude in hard seasons.

Such has been the case this November, a month that catches me by surprise every single year.

One minute the trees are a blaze of color as I get ready for Halloween trick-or-treaters. The next minute the trees are bare, and I’m scrambling to put together a grocery list for our Thanksgiving feast.

This year the surprise was particularly jarring because of the hard season I’ve already alluded to. Word came in early October that my uncle—who supported my father throughout his struggle with multiple sclerosis and was a constant presence in my childhood—had entered hospice care. A few weeks later, he was gone. I was in bed with a pinched nerve when the news of his death arrived. The realization that I couldn’t attend his funeral and honor his life crushed my soul.

I was about to tumble into a pit of depression—a condition that has rarely reared its ugly head in my life—when God brought to mind a practice my husband and I first used decades ago while caring for our son with special needs. More recently, it proved useful while caring for my mother during her final years of life.

It’s an easy practice yet powerful, though it requires intentionality to reap its full benefits. So what exactly have I been doing to keep from tumbling into that nasty pit?

To read the rest of Practicing Gratitude in Hard Seasons follow this link to Key Ministry’s blog for parents.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Kelly Sikkema on Unsplash

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Therapy is Not a Child’s Love Language.

Therapy is Not a Child’s Love Language.

Therapy is Not a Child’s Love Language.

Therapy is not a child’s love language. Guest blogger Heather Braucher discovered this during a therapy-intense season in the lives of her sons with special needs. In today’s post, she describes how a more laid-back season helped her identify the love languages of all her children

When we returned to the US from living overseas, we were in a state of great need. We needed rest and respite. We needed time to process all that had taken place and time to figure out what to do next. With new and significant medical diagnoses driving our return to the US, I made it my main priority to identify the special needs of my children and leave no stone unturned to meet them.

However, the pandemic began simultaneous to the launching of my mama-bear efforts. Therapies became virtual only. The shutdown directly impacted my ability to meet the needs of my boys and I took it personally.

I felt like my attempts to love them well were being threatened.

This only fueled the fire within me. When things started to open back up and return to “normal,” I went full speed ahead. I felt called to a season of provision and sacrifice. That season was necessary and it was fulfilled.

But it took everything I had to do so.

Hours in the car, driving to doctor’s appointments, therapy sessions, and private school. Endless hours on the computer filing reimbursements and claims to insurance companies. Applying for scholarships and grants. My mind was consumed by these concerns even when we weren’t at an appointment or a therapy session.

My desire to “love my boys well” by meeting their needs kept me going even when those sacrifices and efforts took a great toll on us all. In hindsight, I believe it was absolutely worth it, but I also feel like I missed out on other aspects of our mother and child relationships.

It became important for me to allow our lives to consist of seasons.

This is something I am still embracing. I am learning that there is a time and place for seasons, for allowing finite statements that are less permanent and for providing room for everyone to change and grow.

I sensed a change in seasons when summer came, and we slowed down on therapy sessions due to conflicting travel schedules and the therapists being out of town. Though that was the justification, I battled the thought that I was not loving my boys well without regular therapy sessions.

The difference between love and therapy got blurry. Until I saw what my kids had learned in therapies showing up in daily life.

Growth
Development
Flexibility
Reasoning
Connection

They were generalizing social skills and tools they had learned without any prompts from a therapist. Their previous interventions, communication, and medicinal support were providing stability.

These moments provided me with the assurance that I, as their mama, had answered the call. My children were learning, growing, and maturing. The efforts were not in vain.

These moments also assured me that the current time I was spending with them was just as valuable as therapy. This unexpected season of rest from intensive medical care allowed for spending more time getting to know them beyond their special conditions. It felt like we were in the first years of my sons’ lives again, discovering their unique personalities with every interaction.

In the foreword of Sharing Love Abundantly in Special Needs Families by Gary Chapman and Jolene Philo, Jolene said, “I spent years learning about my son’s disabilities, but knowledge about his conditions was not the language of love.”

I resonated so much with that statement, because in this new season I was learning the love language of my special needs children. I was identifying what makes them feel whole and connected when it comes to their relationship and interactions with us. And I was learning that therapy is not a child’s love language.

In Sharing Love Abundantly in Special Needs Families, Philo shares that “Children with special needs require frequent assurance of their parent’s unconditional love to keep their tanks full.”

Chapman continues with, “When children feel loved and their love tanks are full, they will be more receptive to parental guidance in all areas of life.”

I am so grateful for this renewed awareness and opportunity to focus on making deposits into their love tanks. Why? Because, before diagnosis, a special needs parent’s life is filled with concern and worry. They have a gut feeling that something is off. Their child has needs that they cannot meet. They are observing, comparing, researching, and desperately waiting for the greatly anticipated opportunity to get in with the doctor or specialist.

If you had told me four years ago that I would be living in a post-diagnosis and post-intervention season, I would not have believed you. This season does not mean that all is fixed and all is solved when it comes to caring for our sons with special needs. It has allowed my mind to continue studying my children, just in a different way.

I am learning their love languages and how to meet them. Coincidentally, I have three children and all three of them have Words of Affirmation as their main love language*. That’s a lot of love that I missed out on while focusing on their tangible needs only.

I do not share that out of guilt or condemnation. On the contrary—I am excited to pour love out on them in this specific way in this season and beyond!

You do not have to wait for a season to identify and meet your special needs child’s love language. In Sharing Love Abundantly, Chapman and Philo teach us how to discover and speak our children’s love languages wherever they are in their developmental journey!

*The Five Love Languages are Words of Affirmation, Physical Touch, Quality Time, Acts of Service, and Receiving Gifts. You can identify your love language and the love language of those in your life here.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

By

Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Every Season Has Its Challenges and Joys

Every Season Has Its Challenges and Joys

Every Season Has Its Challenges and Joys

Every season has its challenges and joys.

God has been injecting that truth into my heart with particular intensity this week.

I wish he would stop.

He began this exercise in my character development with a pain in my left side and lower back. It was a familiar issue that usually clears up after 1 or 2 visits to the chiropractor. This time, the pain has gotten worse.

I’ve been hobbling around the house like an old person, counting the hours until my doctor’s appointment tomorrow. Then I remembered that I am getting older.

Now, I’m fine with the perks of this season of life. Being old enough to retire and pursue my own interests. Paying 80 bucks for a lifetime pass that gets us into national parks for free. Having coffee with friends when I want.

But age-related hip pain? I am not fine with that, and I let God know loud and clear. At which point he injected a dose of truth into my dissatisfied heart.

Every season has its challenges and joys.

I tested the truth by taking a trip down memory lane.

The first stop was the birth of our son. This was a season of joy, followed by a special needs diagnosis, and interspersed with challenges inherent to his condition. These continued throughout his early childhood.

Through them all God brought just the right specialists, new medicines he could tolerate appeared on the market, and friends gathered round to bear us up.

To read the rest of Every Season Has Its Challenges and Joys, visit the Hope Anew website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email

 

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

We are Not Enough for our Kids with Disabilities

We are Not Enough for our Kids with Disabilities

We are Not Enough for our Kids with Disabilities

We are not enough for our kids with disabilities. As parents, we know this to be true. Though we do our best, we are not enough. Guest blogger Heather Braucher points us to the encouragement we need and to the one who is enough.

“You’re such a good mama.”

When a fellow mom said this to me, I told her that her verbal encouragement felt like a drink of water that upon swallowing made me realize just how thirsty I was. Just how “dehydrated” I was.

Why was I dehydrated? Well, I have three kids—11, 10 and 7. My 11-year-old is sister to 2 brothers with special needs. We are very aware that her experience in this dynamic is not to be ignored. She is, as some would describe:

  • The sibling
  • The sib expert
  • The other one
  • The neurotypical one

In my mind, she is the one that I can’t do enough for. I have to battle this thought daily. I have to remind myself of the ways that I attend to her needs and show her love, simply because the effort placed toward the boys is more obvious.

We have spent countless hours supporting and advocating for our boys’ needs, as well as constant time mediating their social interactions that often go awry. A significant amount of attention is given to them as a result of their extra needs and I do not regret this. It is often out of necessity, whether we are trying to support them, help them regulate or attend to a task, or even diffuse a meltdown.

In order to ensure some sort of balance, we have promised ourselves never to lose sight of our daughter and the family as a whole. The truth is, no matter how much you do, as a parent and as a parent of kiddos with more needs, it is a daily battle to believe you are doing enough.

But an even greater truth that we have come to embrace is this:

We are not enough.

I cling to this reality.

I am not enough, and I shouldn’t be.

For my kids, my spouse, and my friends, I shouldn’t be enough. I shouldn’t be their all in all. Because there is only one who is enough.

Jesus

My hope and strength have to be in him alone. He equips me to be a source of love and provision for my children, but I am not their everything.

He is.

Just like my kids and my spouse and my job and my friends and my things are not my everything. None of these will ever be enough for me either. Because we were not created that way. We were created to need and worship our Creator because HE is sufficient.

He is enough.

I am so grateful for those who breathe life into others, with simple words of encouragement like “You are such a good mama.” I will continue to drink deeply of this holy water. And then I will respond.

He is such a good God, and he is enough.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Jametlene Reskp on Unsplash

By

Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Why Did this Happen to My Child?

Why Did this Happen to My Child?

Why Did this Happen to My Child?

“Why did this happen to my child?” is one of the first questions that comes to mind when hard things happen to our kids. Guest blogger Kelly Simpson explains what she has learned from posing that question as the parent of a child with a serious medical condition.

Cancer, a prognosis, a different doctor, a tragic accident, another surgery, a job loss, another round of chemo, another week spent at a specialized clinic, lost hope, feeling as though you will never see the end of this terrible season you are in right now, longing for a “normal life” or “normal child.” These are all are “no good” things.  In fact, I’m sure no one would ever freely choose hardship.

But there is hope, peace, and joy in all circumstances. God withholds no good thing from His people. We ask why did I or my child, friend, or family member receive this diagnosis? Why did this happen to my child, to me, to other people I love? All are good questions, and the Lord does not shoo us from seeking His heart and ways.

1 Peter 5:7 says, “Cast all your anxieties on him, because he cares for you.” I like the word “cast.” It makes me feel free to ask God about all the things I have on my mind or weigh heavy on my heart, give him my concerns, and honestly ask Him all my why questions.

He wants me to come to the foot of the cross and lay down my burdens. I also can’t help but think that He wants me to realize His ways are not my ways. “For my thoughts are not your thoughts, neither are your ways my ways.” Isaiah 55:8-9

What I think is good and what the Lord thinks is good can be very different things. When He gives, it is good. This “thing” may not be what I want or think I need, but that does not stop it from being or becoming something good from God.

It may not be what I want, BUT it can still be good. It can be good, even when things do not go my way.

I need to cling to Psalm 84:11 which says, “The Lord is our protector… He withholds no good thing from those who do what is right.”

When I have a relationship with the Lord and live for Him, it doesn’t matter what will come my way. I can expect His goodness because He will not withhold it from me!

He has planned for good to come from my season and circumstances.

    • Goodness will come from my child’s health condition. My peace and my child’s is found with God.
    • Goodness will come from my singleness—I am ministering and serving with my spare time.
    • Goodness will come from my anxiety—I have learned to hand all my worries over to Him.
    • Goodness will come from a job loss—The Lord will provide a way to make ends meet.
    • Goodness will come from not being chosen—The Lord has a divine plan for my life.
    • Goodness will come from the many doctor visits—Jesus is my ultimate healer.

These are the truths I remember when I ask God, “Why did this happen to my child, to me, or to those I dearly love?”

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Nick Fewings on Unsplash

By

Kelly has lived her whole life in Kentucky. She and her husband, Jeremy, have an almost-four-year-old son, who, born during a deployment, was diagnosed with tracheoesophageal fistula (EA/TEF). She has always felt a calling to serve others and is living the dream as an Army wife, middle school teacher, and now, as an encourager to those who are living a dream different than they had planned.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts