Caregiving May Be Preparing You for Your Ikigai

Caregiving May Be Preparing You for Your Ikigai

Caregiving May Be Preparing You for Your Ikigai

Caregiving may be preparing you for your ‘ikigai’ says guest blogger Mark Arnold. It was for him. Today he explains what ikigai is and how it led him to the calling and work he’s engaged in now.

I heard a new word the other day—‘ikgai’. It describes a way of life that I have found myself living for several years. The word is a Japanese concept that means your ‘reason for being’. ‘Iki’ means ‘life’, and ‘gai’ describes ‘value’ or ‘worth’.

Your ikigai is your life purpose or bliss. It’s what brings you joy and inspires you to get out of bed every day. It is at the center of what you love, what you are good at, and what the world needs.

Another way to describe ‘ikigai’ is ‘calling.’

A few years ago, I had two work roles. One was as Chief Operating Officer for a national children’s and youth organization. The other was a part-time, add-on position that grew into almost a full-time role: heading up the special needs work for the same organization.

The first was an essential role that I performed quite well. That was what got me excitedly out of bed every morning. Performing both of them nearly broke me. In the end, the call to the role that was growing its reach and feeding my soul became irresistible. I put down my operations role to focus full time on the special needs work.

It was my calling. My ikigai.

It was the hard, but right decision to make. As a Christian, I experienced God’s guidance as I made the choice. I have seen the fruit of my decision grow over the last few years.

What is your calling? Your ikigai?

Have you found it?
Are you following it?
Do you know what it is, but it hasn’t all come together yet?
Or do you not yet know your calling?

I encourage you to take time to think through what your calling might be. If, like me, you have a faith, pray about it.

This template can help you think about it.

Finding your ikigai—your calling

Write down what you love, what you are good at, what the world needs, and what you could be paid or rewarded for. Notice where these things overlap. This exercise can reveal your passion, your profession, your vocation, and your mission. Together these four things will help you discover your ikigai. Your calling.

When I look at this, I see the answers and how God has been preparing me for many years to follow my calling now. Maybe you are still being prepared. Pray that you will be shown a glimpse of what the exciting future that God has planned for you will look like if you follow it.

It could be that present-day caregiving may be preparing you for your ikigai.

Whether you are reading this as a professional who works with children, youth, or families, a church leader, a special needs parent and/or caregiver, finding your ikigai and operating within your calling is important.

I don’t think of my job as ‘work’ anymore. I think of it as what I’m ‘meant’ to do. It’s what gets me out of bed in the morning. If someone gave me a million dollars, I would still do what I do.

I can’t not do it. It’s my calling. My ikigai.

What’s yours?

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

Author Jolene Philo

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When Your Special Needs Mess Is Your Message

When Your Special Needs Mess Is Your Message

When Your Special Needs Mess Is Your Message

When your special needs mess is your message, telling others about it can be, um, intimidating. Even so, guest blogger Heather Braucher found a good reason to share her family’s messy story anyway. Maybe she’ll convince you to do the same.

There are people in my life whom I watch in awe. In awe of their strength, resilience, and endurance to keep going in the midst of long suffering.

I have wondered how they keep it all together and remain positive despite the turmoil or pain around them. I would secretly think, I would be an absolute mess on the ground in the fetal position if I were in their shoes. How are they still standing?

Not too long ago, I believed that certain things in life were a luxury afforded to or deserved by those with enough margin, enough order, or enough strength. Things like a consistent exercise routine, working outside the home, or even pursuing one’s passions or interests.

I assumed that when life’s demands were too overwhelming and too chaotic, it was selfish and impractical to consider anything beyond managing the chaos and surviving.

I get that life brings us through seasons of busyness, seasons of healing, seasons of thriving, and seasons of making ends meet. In all honesty, our season of surviving felt never ending.

One day I thought to myself, What if this season is never ending? What if I am waiting for a season that will never come?

I felt compelled to start doing the things I needed to do to take care of my own personal physical and mental health. If I waited any longer, I would be waiting forever.

Suddenly, I found myself becoming a person who, in the face of trial, was still standing.

I was no longer on the floor in the fetal position when heartache and grief struck. Now I was on the receiving end of the comments I used to give to others. How are you still standing? How do you do it?

I share this not to gloat, but to remind others and myself to stop waiting until we are all put together to move forward or even help others.

This week chaos struck again. The all-too-familiar whispers began.

  • Who are you to think you could work outside the home?
  • Who are you to share words of hope with others when your life continues to be at the mercy of your children’s extra needs?
  • Who are you to encourage others when the behavioral issues of your children require constant monitoring and intervention?
  • Who are you to think you have a message to share when all anyone can see is the mess?

I reflected on my heroes of the faith whom I observed with awe. I remembered the thing that amazed me and inspired me the most.

Their struggle was not over, yet they were still willing to fight for hope.

They kept moving forward in faith, trusting that God is sovereign over their lives and that the Author and Perfecter of their faith wasn’t done writing their story.

When your special needs mess is your message, remember that you are not disqualified from receiving hope or giving it to others. You might be inspiring someone just as you are and exactly where you are without even knowing it.

And we know that in all things God works for the good of those who love him,
who have been called according to his purpose.
Romans 8:28

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Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

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Flying Near the Sun as a Special Needs Parent

Flying Near the Sun as a Special Needs Parent

Flying Near the Sun as a Special Needs Parent

Flying near the sun as special needs parents? What is guest blogger Lisa Pelissier talking about? In this post, she brings in a little C.S. Lewis, a little Greek mythology, and a little of her own fiction to explain how she deals with a phenomenon that is all too common for parents raising kids with disabilities and special needs.

“Still the thermometer rose. The walls of the ship were too hot to touch. It was obvious that a crisis was approaching. In the next few hours it must kill them or get less.

It got less.”

From Out of the Silent Planet by C. S. Lewis

The passage from C. S. Lewis’ Out of the Silent Planet resonates with me as a special needs mom. Although the main character Ransom’s voyage through space was way outside the boundaries of my experience, I repeatedly live through the same kind of stress. Things happen. Then more things. And more things. I’m putting out fires left and right until I stop caring whether I burn up or not. Like Ransom and the others, I am flying near the sun as a special needs parent in a desperate attempt to journey successfully through this life.

As special needs parents, this is our story much of the time. There are too many things to deal with, too many problems to field, too many medical appointments, too much medicine to track, too much angst to soothe, too much sorrow to mop up with our already soggy souls. It’s easy to become overwhelmed, frustrated, and hopeless.

How do I, to mix my metaphors, keep my wings from melting in the sun? How do you emerge from the trials and still have something left to give? Here are some things that help me.

  1. I know this world is not my home. The eighty-three years I plan to spend here in this life (don’t laugh—I’m a planner) are just a speck of dust compared to the eternity of the next world. With that perspective, the trials of this world look more trivial and less all-encompassing. Romans 8:18 says, “For I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us.” Good things are yet to come.
  2. I count my blessings. There are many. I have a lot for which to be thankful. My trials and burdens are great, but looking back over the course of my life, I can see God’s hand faithfully leading me through the darkest places, especially during those times I felt farthest from Him. It helps me remember that though I may not experience the felt presence of God now, He is with me and providing for me.
  3. I work to see what magnificent miracles my children are. They are all delicious human beings. I like being with them. They make me laugh. They are smart and funny. I like the dark, dry humor of my youngest, even if it is born out of depression and anxiety. There’s more to them than what the world might tot up on a checklist of “ways to know your children turned out okay.”
  4. I take breaks and escape to another world. This will look different for everyone, but for me, I write fiction. I leave this world altogether and immerse myself in the trials of the characters who inhabit Gannoir, the inverted star where my angsty characters fight for what is right (and sometimes go off the rails). They’re so real to me now that I feel like I know them, and despite their difficulties being 100 percent my fault, I don’t have to feel guilty. Not everyone will find pleasure in torturing fictional characters, but escaping is vital when stress levels get too high.
  5. I lean on my friends. I have a few who are in the trenches with me, and a good number more who don’t completely understand, but who are always ready to sympathize and offer a listening ear and a helping hand.

I hope that these strategies and my journey are a blessing to you. If you have other methods for coping when you’re flying near the sun as a special needs parent, please post in the comments.

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Lisa Pelissier lives in Oregon where she is a homeschooling mother of four (three with disabilities) and author of four middle-grade fiction novels as well as a YA fantasy novel. Lisa owns SneakerBlossom Books, offering Christian, classical homeschool Study Guides and curriculum. She blogs at Eleventh Willow, offering encouragement for Christians parenting the mentally ill. She also works as a freelance copy editor, an artist, and a substitute teacher. In her spare time Lisa enjoys playing the piano and fretting about things over which she has no control. 

Author Jolene Philo

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Empowering Kids with Disabilities, Part 2: The Need for Love and Belonging

Empowering Kids with Disabilities, Part 2: The Need for Love and Belonging

Empowering Kids with Disabilities, Part 2: The Need for Love and Belonging

Empowering kids with disabilities is essential for their present and future well-being. Unfortunately, as I mentioned in the first post in this series, empowering our kids is rarely our first priority as parents when our medically fragile kids are fighting for their lives, and our kids with a host of other conditions are failing to meet milestones or struggling at school.

Even so, we need to make empowering kids with disabilities a priority. But how?

As a parent and a teacher, I have found the 5 basic needs of all humans as described by William Glasser to be a useful framework for empowering kids.

In the first post in this series, I stated that according to Glasser the five basic needs of all humans are survival, love and belonging, power, fun, and freedom. The rest of that post examined our physical need to survive, which encompasses sleep, food, water, comfort, and warmth.

The four other basic needs are psychological rather than physical. Let’s take a look at love and belonging, the first and strongest of those needs. Love and belonging is all about our innate desire to form relationships, to make social connections, to give and receive affection, and to feel like we’re part of the group.

Side note: Jesus knew about this basic human need long before William Glasser. Jesus created us to love him and belong to him. This is one way we are created in the image of God who is and has ever been in relationship as Father, Son, and Holy Spirit.

Click here to read the rest of Empowering Kids with Disabilities, Part Two: The Need for Love and Belonging at Key Ministry.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

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A Caregiver’s Hope Can Be Found in Unexpected Places

A Caregiver’s Hope Can Be Found in Unexpected Places

A Caregiver’s Hope Can Be Found in Unexpected Places

A caregiver’s hope can be found in unexpected places. Guest blogger Heather Braucher and her husband recently discovered that hope through the words of Joni Eareckson Tada. Heather describes how hope has changed their perspective of their caregiving journey.

A caregiver’s hope can be found in unexpected places.

My husband was not looking for it. Even more, I’m not sure he knew how much he needed it. Because let’s be honest, hope can actually feel scary.

Sometimes it feels safer to accept the daily struggle and battle that is your reality. When you taste a sliver of possibility that life could be different, or things might be getting easier, when the all-too-familiar reminder that your circumstances have not changed and your situation is here for the long-haul returns, you regret feeling that small piece of hope.

For parents of children with special needs or medical needs and for caregivers, the temptation to live in a place of sober acceptance of your life’s realities is strong. In fact, it can become our only comfort.

Joni Eareckson Tada said it perfectly in John Piper’s book Suffering and the Sovereignty of God. She wrote, “I did not want to let go of the sick, strange comfort of my own misery.”

This from a woman who, at the age of 17, had a diving accident that left her paralyzed from the neck down and confined to a wheelchair. She has been a quadriplegic for 40 years now and if anyone knows the battle that exists between finding hope in the midst of the daily struggle, it is her. You can find more of her story at Joni & Friends.

My husband came across Joni’s story and a perspective on suffering and hope that he had never heard before in Piper’s book. Joni referenced Luke 12:48: “When someone has been given much, much will be required in return; and when someone has been entrusted with much, even more will be required.”

My husband said, “Typically I view this verse through materialistic means—finances, time, talents—they are not for our own benefit but for the blessing of others. The verse left me feeling personally condemned or like I am just simply not doing enough. When honestly, I’m just trying to make it another day managing the special needs around me. But when Joni spoke about this verse the way she did, I felt encouragement instead of condemnation for the first time. I felt freedom to serve others. I felt hope.”

Joni said, “The way I see it, I’ve been given so much, I must pass on the blessing. We simply must, must pass on the hope to others.”

Here is a woman who has suffered greatly, and she is claiming to have been given much.

Our first reaction to her statement is “What? How?” How did she get to this place? This place of seeing suffering as a gift? And a gift that keeps on giving?

My husband and I have three children ages 11, 9, and 7. We have been managing the special needs of our youngest two for over 5 years now. Every year has looked different. For a while it felt like every year brought a new diagnosis. Caring for them well has required a lot of self-sacrifice and heartache. While we have so much to be grateful for, we fight daily the belief that life will always be hard and full of grief.

Through Joni, we saw that a caregiver’s hope can be found in unexpected places. She speaks to our very souls when she says, “For me, suffering is still that jackhammer breaking apart my rocks of resistance every day. It’s still the chisel that God is using to chip away at my self-sufficiency, and my self-motivation, and my self-consumption. Suffering is still that sheepdog snapping and barking at my heels, driving me down the road to Calvary where otherwise I do not want to go. My human nature, my flesh, does not want to endure hardship like a good soldier (2 Timothy 2:3) or follow Christ’s example (1 Peter 2:21) or welcome trial as friend. No, my flesh does not want to rejoice in suffering (Romans 5:3) or be holy as he is holy (1 Peter 1:15). But it is at Calvary, at the cross, where I meet suffering on God’s terms.”

She said, “It is when your soul has been blasted bare, when you feel raw and undone, that you can be better bonded to the Savior. And then you not only meet suffering on God’s terms, but you meet joy on God’s terms.”

Through the life, suffering, and ministry of another, my husband and I are encouraged to view our lives filled with caring for children with special needs through the lens of hope, purpose, and possibility.

My husband now sees the possibility for life to be more than simply making it through each day. He believes that there is a blessing here that we have been given because of joy that comes from the Lord (Romans 15:13) and can come through suffering. We both believe that we are blessed to be a blessing, and we now see that a caregiver’s hope can come from unexpected places.

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Heather Braucher is a member of the “Braucher Bunch” aka her energetic family of 5. The bunch includes her husband and their three children, all of whom are dominant and extroverted and are going to change the world (if she can keep them alive!) She has always held a passion for writing, but motherhood has given her a reason to share her experiences, heartaches, and victories with others. In her writing you will hear stories of hope as well as grief, as her family has navigated life in ministry in the US and overseas, all while discovering that 2 of her children have special needs. Her desire is to provide others with connection, understanding, encouragement and laughter, all washed with the love of Christ.

Author Jolene Philo

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I Press On

I Press On

I Press On

I press on is all a special needs parent can do sometimes. Guest blogger Kelly Simpson returns to talk about what she’s learned about pressing on while raising a child with special needs. She ends with some great ideas to help you press on during hard times, too.

During my husband’s deployment, our newborn was in the Neonatal Intensive Care Unit (NICU) for 19 days. That stay was short compared to other families, but long enough and overwhelming for a first-time mother who was also walking through her husband’s first deployment. Our son’s first year was also long and hard—nine plus surgeries and procedures. I pushed through this season while working full time. Sulking and rolling around in my circumstances would have been easy to do, but it would not have been a healthy choice.

With each surgery or procedure, I had faith that it was going to get better. It had to get better.

It was going to be okay. We were going to be okay.

Eventually I ran dry on my own determination and drive. I could only be sustained from endurance given to me through Christ Jesus, so with His help, I pressed on.

Seasons of life take me high and leave me low. Jesus has to be my cornerstone—He is who I have to build my life on. 2 Peter 2:6 it says, “I lay a stone in Zion, a chosen and precious cornerstone, and the one who trusts in him will never be put to shame.” My walk in life must bring God glory—the surgeries, the tears, the mess, the mountains, and the valleys. I am his and chosen. He will walk with me each step of the way on my journey. He is with me, and he will be with you too.

But I press on to make it my own, because Christ Jesus has made me his own.
Philippians 3:12.

Doesn’t the Lord know His plan for me? Doesn’t he know every hair on my head? Hasn’t he stood before time and seen every second of my life? Because he is God, there’s not a place where I’ll go that he has not already stood.

So I press on.

Rolling around in self-pity, asking why, and running conversations over and over in my mind only leaves me dry. I have to go past that. When worry, fear, and doubt are heavy in my mind, I lift it up and I press on! I ask for His presence and strength, then I press on! It’s not the easiest to do, but each time it gets a little easier.

I’m writing this article from a valley and that is no surprise to God. I know when I am in my deepest pain, at my darkest point, my brokenness can be used when I surrender it to Him.

I want to leave you with encouragement and steps so that you can press on!

I press on toward the goal for the prize of the upward call of God in Christ Jesus.
Philippians 3:14

5 Steps for Pressing On:

  1. Prepare to move on. It’s natural to question and to be upset, confused, and hurt. Accept and realize you cannot stay in that place.
  2. Completely give your situation over to God. If you find your mind wandering, give it back to Him again, and again.
  3. Surround yourself with people who will encourage you and point you back to Christ.
  4. Try one or more of the following ideas. Listen to uplifting music, read and hold on to God’s promises and His word, read a book about a helpful topic, journal.
  5. Keep going in your life. Take each day as it comes. Take steps forward. Times get hard, but life does not stop, and neither can you.

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Kelly has lived her whole life in Kentucky. She and her husband, Jeremy, have an almost-four-year-old son, who, born during a deployment, was diagnosed with tracheoesophageal fistula (EA/TEF). She has always felt a calling to serve others and is living the dream as an Army wife, middle school teacher, and now, as an encourager to those who are living a dream different than they had planned.

Author Jolene Philo

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