Are You Too Tired to Heal?

Are You Too Tired to Heal?

Are You Too Tired to Heal?

Do special needs care giving demands leave you exhausted? Are you numb with grief? Guest blogger Rebekah Benimoff knows how you feel—too tired to heal, too tired to hope.

To Tired to Heal

Sometimes it feels as if I am too tired to heal. I just want to get away for a bit, to have a much-needed respite from the madness. When life is spinning out of control, it’s hard to work through the losses that have come before. Often there seem to be many stops and starts along the way. Sometimes the best case scenario is simply staying connected to the One who carries me through. Survival is important, yes, but connection is imperative.

A Cloak of Weariness

Weariness settles over me, like a cloak of dust, penetrating into the inner recesses of my being. When bent low by burdens, I wonder if the weariness will cling to me for life. I want to shrug out from under the careworn mantle, but I know that this time, the only way to find release is through rest.

Fatigue is a part of the healing process. There comes a time when our bodies simply need rest. When dealing with multiple life changes all piling up at once, sorting through seems complicated. I often liken the process to searching through a bowl of tangled spaghetti strands with sauce poured over, obscuring what lies under the surface. I’ve learned to ask, “Why am I feeling what I am feeling?” and “What, exactly am I really feeling?” Most of the time anger is a mask, hiding more vulnerable feelings beneath. I feel more in control when I am angry than when I feel lost or abandoned. Anger is easier to admit to, for who wants to admit to being broken? Yet “broken” is often a better descriptor of where I am, and what exactly I am feeling.

 Loss Mingled with Hope

My story is one of loss mingled with hope. In my mind’s eye, I travel back to that moment when my world first stopped. When my son’s life, and mine, changed forever. One word, meant to diagnose, alters everything. I did not grieve the first diagnosis for a very long time. I made it my mission to defeat the disease. To conquer the diabetes. To control the boy’s blood sugar. To control everything. Nothing was gonna hurt my baby again. Or me.

Three years later, when my husband was deployed to Iraq (for the second time), I was at the end of my rope. I signed up for an inner healing study, and the work began. Slowly, the layers were removed until we came to that tender place—the wound… the diagnosis that changed everything I do daily. It was during this time that God drew my heart to a familiar story in a fresh way.  I read how Abraham and Isaac journeyed up a sacred mountain to make a sacrifice that would break body and soul. Isaac carried the wood, and Abraham carried HOPE. He tells the servants,  “We will go up the mountain and we will return.”

My First Step Toward Healing

And then I felt the urging to place my own beloved son on the altar before Jehovah-Jireh, my provider.  I envisioned laying my precious child on the altar before a loving father God, and in my mind’s eye, he took my son and cradled him. Surrender was my first step towards healing. And still is. In those times when one diagnosis (or several at once) are causing upheaval in my daily life, it’s time to search out that well worn path to the altar. When I release my hold on the illusion of control, I am set free. Set free to find hope, set free to do the good work of healing. Through prayer, introspection, good counsel, and times of rest, I move forward to that place of greater wholeness. Sometimes it is hard work. But, at the end of the day I find that healing is worth the work, and rest is the vehicle that allows the work of healing to carry on.

What about You?

Do you feel too tired to heal today? Or have you taken that first step on your journey toward healing? Leave a comment about your journey, and I will pray for you.

photo credit: www.freedigitalphotos.net

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

By

Rebekah Benimoff is the wife of a husband with PTSD and the mother of two young men, both of whom grew up with medical and special needs. She blogs at In the Chaos…. and In the Calm (justmemama.blogspot.com).

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Impatient People…Like Me

Impatient People…Like Me

Gap in the Clouds

This past Wednesday was not a good day.

First, I was supposed to meet a friend for coffee in the morning and because I’d written the time down wrong, got there a half hour late. Being an impatient person, I hate to keep others waiting.

But that wasn’t the worst of it.

After working on a blog post for over almost two hours, it refused to come together the way I wanted. Impatient people like me don’t have time to waste spend almost two hours on a single blog post.

But that wasn’t the worst of it.

The google chat audio feature was malfunctioning on my computer, so I missed an online meeting in the afternoon. Impatient people have no patience with technical glitches.

But that wasn’t the worst of it.

A publisher rejected a piece I wrote for a devo Bible being compiled by a friend. Not only that, the publisher wanted extensive citations (including book page numbers) for a half-dozen quotes for other pieces I’d written. Impatient people don’t enjoy skimming long books to find page numbers.

But that wasn’t the worst of it.

Hiram spent all afternoon trying to file our income tax with Turbo Tax. He’s usually pretty patient, but after several hours of online chats with Turbo Tax experts and two phone calls, he was a little cranky. Impatient people like me think we’re the only ones with a right to be cranky.

But that wasn’t the worst of it.

The cold Hiram’s been fighting for two weeks came back with a vengeance that night. He ran a temperature again and coughed all night. Which didn’t sit well with a woman who needs plenty of sleep in order to be patient.

But that wasn’t the worst of it.

The worst of it was this. I woke up Thursday morning and realized impatient people like me spend all their time looking at gray skies. We are so focused on the gloom, we don’t even see the gap in the clouds and the sun streaming through.

Impatient people like me forget they have
friends to visit,
blogs to write,
a computer that functions flawlessly 99.9% of the time,
writing projects to complete,
income tax refunds to file,
and a husband whose job provides sick leave and excellent health insurance.

Yes, that’s the worst of it.

Dear Father, forgive me for not slowing down to look for the gap in the clouds. Forgive me for focusing on the gloomy clouds and missing the joy of the Son. Please teach me to be patient…as quickly as possible. Amen.

Safe Harbor for Special Needs Parents

Safe Harbor for Special Needs Parents

Safe Harbor for Special Needs Parents

Safe harbor can be a hard place to find for parents raising kids with special needs. In the poem below, guest blogger Stephanie Ballard describes her search for safety and her gratitude for what she learned along the way.

In Need of Safe Harbor

I sat on a hill looking out at the endless blue waves on a recent trip to Lake Michigan. I wondered where the water met its end. “I cannot remember the last time I had quiet time to myself to simply think,” I told my friend while rubbing my hands over the silky white sand. I feel at peace here, watching the waves roll in with a steady assurance. Life has changed since my son Braeden was born with multiple health issues. Sometimes I am so tired that I wonder where I will continue to get strength for the battles that lie ahead. I can only hope that my source of comfort and hope is as endless as the water that helped to ease my fears and uncertainties that day. Either way…I am forever changed since he came into my life. I am also surprisingly grateful.

Safe Harbor

What happened to that woman,
Carefree and naïve?
Who said good things will always come,
To those that just believe.
Her quiet…calm assurance,
Left no room for defeat,
With faith that was unwavering,
Endless and complete.
Providence had given her,
The strength to face a trial,
She faced each day with courage,
Taking time to stop and smile.

And then the storm clouds hovered,
The thunder rolled her way,
Adversity had found her,
The billowing clouds turned to grey.
A few brief words would bring the news,
No one should have to hear,
Something was wrong with her child,
Can there be a greater fear?

The lightning flashed,
The storm grew strong,
The walls began to shake,
“Oh Lord,” she said, “this storm’s too strong;
I believe my heart might break.”
The rain poured down on window sills,
Branches swayed like a sailor at sea,
The woman held her child close,
Saying, “Please do not take him from me.”
Some wondered if her faith was weak,
While some said, “keep believing.”
But people don’t always have answers,
And some words aren’t worth receiving.
And then she heard a whisper,
As the whipping winds seemed to demand,
The faith that she barely clutched onto,
This was NOT the life she had planned!
“My child I know of your heartache,
For this storm has been fierce and demanding,
You wonder if you have any strength left at all,
But do you not see…you’re still standing?
I didn’t expect your unwavering strength,
For I know that you don’t understand,
I just ask for an arm held high;
Please reach out for my hand!”
People will say many things,
(As people are so prone)
But any storm you face in life,
“You’ll never face alone”.

What happened to that woman?
Who stood against the storm?
While wind, and rain, raged harsh and long,
Against her fragile form,
What happened to that woman?
With little left to give?
God opened up her heart one day,
And taught her how to live.

~Stephanie Ballard

What’s Your Safe Harbor?

Have you found your way to safe harbor? Are you still looking? Leave a comment about your search.

If you enjoyed Steph’s poem, you might like some of her other guest posts: Teachers in Room 16, Thank You! and How I’d Like to Write Your Story.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

By

Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

2012’s Top Special Needs Posts Countdown, #4

2012’s Top Special Needs Posts Countdown, #4

2012’s Top Special Needs Posts Countdown, #4

Our 2012 countdown of top special needs posts is more than halfway complete. Today’s post, #4 on the list, comes from guest blogger, Stephanie Ballard. My, oh my, DifferentDream readers love to hear from parents of kids from special needs!

In just a minute, we’ll take a closer look at Steph’s post. But first, here are a few of the top special needs posts so far:

 

Post #4: A Medically Fragile Child’s Perfect Ending

Steph’s post is once again a poem, this time about how she wishes she could write a perfect ending for her son Braeden, who is medically fragile. In the introduction to the poem, she says this: No one could have prepared me for life with a medically fragile child. It is a day by day learning lesson full of challenges and triumphs, but my son is my greatest teacher.

No wonder this post was popular with readers! Our children with special needs are our greatest teachers. At the same time, we long to write a perfect ending for our kids, free of pain and hardship. You can read Steph’s poem, How I’d Like to Write Your Story, at A Medically Fragile Child’s Perfect Ending. Be forewarned, Steph’s poem comes with a tissue warning.

What Do You Think?

What ending would you write for your child’s story if you could? What are your hopes and dreams for your child?

In another vein, what do you think of the countdown posts so far? Are they what you predicted or a total surprise? What are your favorite 2012 posts at jolenephilo.com/?

Do you like what you see at jolenephilo.com/? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

2012’s Top Special Needs Posts Countdown, #4

A Medically Fragile Child’s Perfect Ending

A Medically Fragile Child’s Perfect Ending

I’d like to introduce you to Stephanie Ballard, a new Different Dream guest blogger. You may recall meeting her in September, when she shared the poem she wrote for her son’s teacher. Reader response to that post led to an invitation to guest blog on a regular basis. Today, she describes how she longs to write the perfect ending to her medically fragile son’s story.

How I’d Like to Write Your Story

I can hear the gentle patter of his footsteps scurrying across the carpet as he dashes into my bedroom in the early morning hours. “Good morning mama,” he whispers while climbing into the bed beside me.

“I’m awake,” I answer sleepily, as he wraps his tiny fingers into my hair. “Guess who loves you?” he asks.

I find myself smiling from under the covers. This has become our ritual-a game that belongs only to us. I relish these morning moments…as I am able to connect with my son without all of the interruptions and worries that I know we will face as the day wears on.

No one could have prepared me for life with a medically fragile child. It is a day by day learning lesson full of challenges and triumphs, but my son is my greatest teacher. “Hmm”…I say in response to his question. “Does Braeden love me?”

He giggles in response, and nods his head up and down emphatically.

“Guess who I love?” I ask in response, as I tumble out from under my warm comforter.

He silently taps his finger under his chin, as if in thought mode and then says, “Coffee?” I laugh out loud, knowing that life is full of uncertainties…but I am thankful for this moment in time.

Your Story

If I could write your story son…
(Oh how I wish I could)
I’d pen for you a journey
That held nothing but good.

Wouldn’t it be perfect
If that job belonged to me?
I think I’d change a thing or two
While writing your story.

I’d write of lasting happiness
The storms would stay at bay
I’d write your story carefully
I’d have so much to say.

You’d know not of a hospital
or days in ICU
You’d only know of simple things
Like other children do.

The sun would rise…Yes everyday
and shine to make you smile
You’d never know a day of pain
You’d never face a trial.

You’d dance to music all your own
While watching Sesame Street
I’d tuck you into bed each night
and life would be complete.

I’d write of picnics in the park
and winters in the snow
I’d write of laughter, joy and love
I’d sit and watch you grow.

I’d proofread till my eyes grew tired
Each line and paragraph
and let my pen fall to the floor
Then stop to hear you laugh.

And never would I question
What sick children must face
Never would I have a need
To ask God for his grace.

If I could write your journey son
Perhaps I’d not convey
The message that HE longs to share
“We must live for today.”

Your story has been written
Each stroke penned with great care
He knows each thought I have of you
He’s numbered every hair.

No, I can’t write your story
Although I wish I could
I must heed what he says to me
“All things work for the good.”

If I could write the life you’d live
I’d fail…don’t you see?
I’ll leave it in much better hands
He’ll write it perfectly.

What Perfect Ending Would You Write for Your Child?

Oh my, I know just how Stephanie feels? I so often wanted to rewrite my son’s story when he was medically fragile. It took a long time for me to leave the pen in God’s hand. How about you? What have you been learning from your child lately? Leave a comment. Read more about Stephanie and her medically fragile son’s heart condition at her blog, With a Hopeful Heart.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts