Special or Sad Holidays for Kids with Disabilities?

Special or Sad Holidays for Kids with Disabilities?

Special or Sad Holidays for Kids with Disabilities?

Special or sad? That’s the question guest blogger Brittany Miller asks as the holiday season swings into full gear. In today’s post, she answers her own question with ideas she uses to keep from letting her daughter’s special needs make her too sad at this time of year.

Special or Sad Holidays for Kids with Disabilities?

Fall is in full swing, and every holiday from Halloween to New Year’s has been displayed in stores in all their grandeur. I love it, I admit it. My hands twitch at the prospect of adding fun holiday events and parties to our calendar. I start decorating and my house looks like a cluttered, happy holiday mess exploded inside. My kids love it, I love it, and there is just a special feeling in the air. Cheesy but it is a true fact in our household. We love the holiday season. But, sometimes at the very back of all of this joy and thanksgiving is the sadness that we special needs parents tend to compartmentalize. Our Christmases are often numbered, and for our disabled children, the presents and gifts given can often make their disabilities all too apparent. You know what I am talking about.

While grateful, we often dread the slew of ridiculous amounts of clothing as well as developmentally inappropriate toys that are often given to our special needs kids. And the stuffed animals! My little Brooke has over 100. Good intentions, sure, but where do we store all of those cuddly mementos that she cannot even play with? Clearly we appreciate the generosity for the kind gestures, but giving a school age child a baby rattle has a way of putting things into a harsh light. Christmas can be hard. The reminders that things are so different, that our special needs children will never have a normal Christmas. can often let those tender feelings of sadness and loss creep up during a time that should be full of making merry memories.

Special or Sad Memories?

So what can we do? How can we experience the holidays with our families and focus on the joyous blessings we do have without letting the sadness get in the way? Honestly, we cannot make those tender moments completely disappear, as they are part of the grief cycle we go through as special needs parents. However, we can focus on the joy they bring to our lives. They are here now. We can make wonderful, tender memories that are even more precious because we know these seasons are numbered. It may seem sad to recognize or admit, still I need this reminder because it helps our family focus on cherishing our time together. Let’s be honest, our children have a way of bringing a sweet spirit to our homes every day of the year, and the holiday season their preciousness is magnified.

One of my favorite holiday memories was made last year, holiday season 2013. We took our girls to North Pole Experience in Flagstaff, Arizona. My youngest and our special sweetie, Brooke (4), was chosen by NPX to be an Honorary Elf. She is globally delayed, has Aicardi Syndrome, epilepsy and is visually impaired. She was anonymously nominated through social media by a special person who was touched by her sweet smile and story. We received this special weekend as a gift from North Pole Experience. Despite Brookie’s disabilities and her inability to walk, talk, or participate in all of the weekend activities, the joyous smile on her face when she met Santa was all we needed to know she was happy. It was a Christmas to remember.

Special or Sad Gifts?

Friends, fellow parents, our children do not need a mountain of gifts or sweets and candies, they need love. They spread that love and touch those they come in contact with in such a miraculous way. The reality is, that is a precious gift, something real and magical. This busy, oh so wonderful holiday season can be joyous, we just have to let it. Sure, times for tears may come, but please do yourself a great service and let them be happy ones. These wise little souls may not dive under the tree, looking for presents, or join in on all of the fun festivities this wonderful time of year has to offer… but those moments are not the most precious ones of the season. And we all know it.

This year, this time of year make a promise to yourself to be together, be happy, be joyful, be present, and try not to be sad. (And maybe give your well meaning friends and family a few appropriate gift ideas for your special sweetie, lest you be overloaded with rattles and stuffed bears.) The holidays are a time for happiness, togetherness, and love. And guess what, our children can do all of these things! I pray we all can have a special holiday season and make many happy memories… a different season… maybe, and that is okay with me.

Special or Sad Holidays for You?

Are the holidays special or sad for you? How do you deal with that sadness? What do you do to stay positive? Leave a comment in the box below. And check out more of Brittany’s special needs journey at her blog, www.brookiethebrave.com.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Brittany Miller is mom to three daughters: Audrey, Brooke, and Juliette. Brooke was diagnosed with Aicardi Syndrome when she was five weeks old.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Our son was six months old on his first Christmas. By then he’d racked up one ambulance ride, two surgeries, three hospital stays, three airplane trips (two of them life flights to the University of Nebraska Hospital and one airline flight to a scheduled doctor’s appointment at the same medical facility), and dozens of 240-mile round trips to Rapid City for doctor’s appointments and procedures.

Call it the special needs version of the Twelve Days of Christmas if you like.

By the time the holiday season rolled around, all my husband and I wanted for Christmas was a good night’s sleep and to stay put. My parents and our extended families accepted the news graciously. A few days before Christmas, circumstances seconded our decision when our guy came down with the chicken pox. A mild case to be sure—only one pox on his forehead, a fever, and a week’s worth of fussiness—but chicken pox none the less.

About two days into the fussiness, I was shouting “Ba-humbug” louder than Ebenezer Scrooge ever did.

Our house was enveloped in darkness. My husband and I were severely sleep-deprived. Our baby picked up every virus I brought home from my students at school, or my husband carried from the clients at the boys’ ranch where he worked. Our son was allergic to anything but breast milk, but he couldn’t nurse so I spent hours day and night hooked up to the people version of a milking machine. Even so, he was below zero on the weight and height charts for his age. We lived 70 miles away from our family doctor, 120 miles away from the pediatrician, and 750 miles from doctors who specialized in treating children with our son’s condition. My faith was waning. My anxiety level was waxing.

I was drowning in darkness.

To read the rest of this post, visit the Not Alone website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Top Ten Favorite Christmas Story Verses

Top Ten Favorite Christmas Story Verses

christmas verses

10.  Way back in Genesis 3:15, God promised the birth of Mary’s Son who would rule over the enemy:

And I will put enmity
Between you and the woman,
And between your seed and her seed;
He shall bruise you on the head,
And you shall bruise him on the heel.”

9 & 8. Isaiah prophesies the birth of Jesus in chapters 7 and 9…and centuries later his birth fulfilled every detail.

Therefore the Lord Himself will give you a sign:
Behold, a virgin will be with child and bear a son,
and she will call His nameImmanuel. (7:14)

For a child will be born to us, a son will be given to us;
And the government will rest on His shoulders;
And His name will be called Wonderful Counselor, Mighty God,
Eternal Father, Prince of Peace. (9:6)

7.  The small book of Micah the prophecy about the birth of Jesus in Bethlehem is found.

“But as for you, Bethlehem Ephrathah,
Too little to be among the clans of Judah,
From you One will go forth for Me to be ruler in Israel.
His goings forth are from long ago,
From the days of eternity.”
Therefore He will give them up until the time
When she who is in labor has borne a child.

6 & 5. Powerful angels and humble shepherds use similar language to praise the arrival of Christ in Luke 2: 14 & 20:

“Glory to God in the highest,
And on earth peace among menwith whom He is pleased.”

The shepherds went back,
glorifying and praising God for all that they had heard and seen,
just as had been told them.

4.  In Matthew 2: 10–11, three wise men from the east also bow down and worship Jesus. Quite a fuss over a poor, humble babe.

When they saw the star, they rejoiced exceedingly with great joy.
After coming into the house they saw the Child with Mary His mother;
and they fell to the ground and worshiped Him.
Then, opening their treasures,
they presented to Him gifts of gold, frankincense, and myrrh.

3. Then, in Luke 2: 29–30, Simeon responds as should all righteous believers waiting eagerly for Christ’s coming:

“Now Lord, You are releasing Your bond-servant to depart in peace,
According to Your word;
For my eyes have seen Your salvation,
Which You have prepared in the presence of all peoples,
A Light of revelation to the Gentiles,
And the glory of Your people Israel.”

2.  In John, God reveals the reason for the birth of His Son in human flesh.

“For God so loved the world,
that He gave His only begotten Son,
that whoever believes in Him shall not perish,
but have eternal life.

1.  My absolute favorite Christmas verse is a beautiful reminder of God’s propensity to partner with frail humans to accomplish his eternal purposes.

But Mary treasured all these things, pondering them in her heart.
Luke 2:19

Is there any mother’s heart that does not break to think of the joy and sorrow Mary’s baby will bring to her life? Is there any believing heart that doesn’t beat faster in anticipation of the coming of the King?

Photo Credit: www.freedigitalphotos.net

What’s On Your Weekend To Do List?

What’s On Your Weekend To Do List?

Santa To Do list

Today’s the day to share weekend-before-Christmas to do lists. Why? To reassure one another that we’re not the only ones with shopping to do, presents to wrap, and more baking projects than are humanly possible. Therefore, I’m posting my to do list for the world to see and hoping you’ll share yours, too.

Saturday:
✓ Get Christmas letters ready to mail.
✓ Make a birthday cake for a rellie’s party.
✓ Make biscotti for friends, neighbors, church family, and publishers.
✓ Make snacks for the Saturday night church service.
✓ Deliver and mail biscotti.
✓ Figure out how to wrap the man of steel’s Christmas present which is bigger than me.

Sunday:
✓ Go to church and think about the true meaning of Christmas.
✓ Shop for the man of steel’s stocking stuffers…Hello, Kitty duct tape, here I come!
✓ Finish up Mom’s Christmas shopping and gift wrapping.
✓ Attend rellie’s birthday supper and party.

Tag…now you’re it. Leave your weekend-before-Christmas to do list in the comment box!

Photo Credit: www.freedigitalphotos.net