Jo Ashline on Raising Special Needs Awareness

Jo Ashline on Raising Special Needs Awareness

Jo Ashline on Raising Special Needs Awareness

What do you do when someone stares at your child with special needs? What do you say when someone asks, “What’s wrong?” For most of us, those encounters have AWKWARD written all over them. But Jo Ashline, mom of a son with special needs and a blogger worth following, has a different take on the situation. She considers them an opportunity to raise special needs awareness.

Awkward Questions=Opportunity to Raise Special Needs Awareness

In a blog post, she relays the story of a mom who apologized after her child went up to Ashline’s son and asked “What’s wrong with you?” Here’s how she responded:

I don’t want you to apologize. I want your child to ask about my son Andrew; about what autism is and what having special needs means. I want your child to want to understand my child better. I want your child to be aware that someone with special needs is in their presence, and I want them to seek out information from a reliable source, such as Andrew’s brother, or myself, rather than relying on assumptions and misinformation.

I want your child to feel comfortable asking questions and know they will get a straight-forward answer. I want your child to know it’s okay to be curious and, more importantly, that it’s okay be confused about why Andrew acts differently from the other kids.”

Pretty amazing response, isn’t it? One every parent can adopt on behalf of their kids with special needs.

Squelching Questions=Special Needs Misinformation

Ashline comments about allowing kids to ask questions and seek information are spot on. During my teaching days, I saw kids without reliable, true information about special needs make up their own false information. Quickly, I learned that the best defense was a good offense. With the help of the parents of my students with special needs, we educated peers about their classmates’ special needs. And do you know what happened? Those informed peers became fierce champions of their classmates.

For more ideas about how to respond with grace in awkward situations and how doing so benefits our kids, read the complete article by Ashline. The title, “What’s Wrong with Him?” is Better Than “He Doesn’t Exist.”, hints at one of the benefits, but Ashline offers many more.

How Have You Turned Awkward into Special Needs Awareness?

How about you? Have you used an awkward moment to raise special needs awareness? What did you do? Leave a comment

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

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EA/TEF Awareness Month, 2014

EA/TEF Awareness Month, 2014

EA/TEF Awareness Month, 2014

January.

A month for blustery weather, New Year’s resolutions (watch for our guest blogger resolution series beginning on Monday, January 6), and EA/TEF Awareness Month. Different Dream is all about raising awareness about EA/TEF because my son was born with the anomaly way back in 1982. His repair was successful, and he’s now living his own life.

Why to Raise Awareness of EA/TEF

But EA/TEF occurs in every 3,000–5,000 births, and the families of those babies need informed support groups surrounding them. They also need the support of other families who’ve experienced what they’re going through, places to go to ask questions and read about what’s being done for kids with EA/TEF. Those kinds of groups weren’t available when our son was born, and I remember sitting in the hospital, overwhelmed by aloneness and ignorance.

Where to Find EA/TEF Support

Thanks to the internet, parents no longer have to experience that kind of loneliness and ignorance. Support groups abound on websites and Facebook. This list is a good place to start learning and connecting.

EA/TEF Awareness Month Posts from the Past

Now, to make it easier for you to find posts from previous EA/TEF Awareness Month, here’s a second list of readers’ faves:

You can find more posts about EA/TEF Awareness Month by typing that phrase into the search box.

Now It’s Your Turn to Raise EA/TEF Awareness

The best way to raise EA/TEF Awareness is to tell our stories. So if you’re a survivor of EA/TEF or the parent of a child with the condition, tell your story in the comment box. We’d all love to hear them and celebrate each life.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

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Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Our son was six months old on his first Christmas. By then he’d racked up one ambulance ride, two surgeries, three hospital stays, three airplane trips (two of them life flights to the University of Nebraska Hospital and one airline flight to a scheduled doctor’s appointment at the same medical facility), and dozens of 240-mile round trips to Rapid City for doctor’s appointments and procedures.

Call it the special needs version of the Twelve Days of Christmas if you like.

By the time the holiday season rolled around, all my husband and I wanted for Christmas was a good night’s sleep and to stay put. My parents and our extended families accepted the news graciously. A few days before Christmas, circumstances seconded our decision when our guy came down with the chicken pox. A mild case to be sure—only one pox on his forehead, a fever, and a week’s worth of fussiness—but chicken pox none the less.

About two days into the fussiness, I was shouting “Ba-humbug” louder than Ebenezer Scrooge ever did.

Our house was enveloped in darkness. My husband and I were severely sleep-deprived. Our baby picked up every virus I brought home from my students at school, or my husband carried from the clients at the boys’ ranch where he worked. Our son was allergic to anything but breast milk, but he couldn’t nurse so I spent hours day and night hooked up to the people version of a milking machine. Even so, he was below zero on the weight and height charts for his age. We lived 70 miles away from our family doctor, 120 miles away from the pediatrician, and 750 miles from doctors who specialized in treating children with our son’s condition. My faith was waning. My anxiety level was waxing.

I was drowning in darkness.

To read the rest of this post, visit the Not Alone website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

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Gift Ideas for Kids and Teens with Special Needs

Gift Ideas for Kids and Teens with Special Needs

Gift Ideas for Kids and Teens with Special Needs

Okay, everybody stand up. Now, sit down if you’re done Christmas shopping. Remain standing if you’re still looking for presents for you teens with special needs or are shopping with a limited budget. If you’re still on your feet, this post is for you! If you’re sitting down, scroll down to the end to leave your gift recommendations in the comment box.

Devotional Books for Teens with Special Needs

Last month my friend Katie Wetherbee, who blogs about special needs education and special needs ministry at Diving for Pearls, uploaded a piece about devotionals for teens with special needs. Katie brainstormed with her colleague Kelly Norville, and together they created this fantastic list:

  • Soul Surfer by Bethany Hamilton, written by a real life surfer when she wasn’t much beyond her teen years. There’s a movie, too, if your teen is into that.
  • 10 Minute Parables from Group Publishing. Katie says, “This series is designed specifically for teens, so those who have difficulty with comprehension, or who are functioning on a more concrete level.”
  • 10 Minute Moments: The Basics, also from Group. This book makes the foundational truths from the book of John attainable for kids who are concrete thinkers.
  • What’s In the Bible Series from Jelly Fish Labs. This series was created for kids, but Wetherbee says the quick pace of the humor and language appeals to older kids and adults.
  • The Thirteen Most Important Bible Lessons for Teenagers from Group. These lessons offer drama and hands on material, too.
  • Believe it Or Not Bible Studies by Group. This will appeal to kids fascinated with the interesting and obscure.
  • God, Our Father by Friendship Ministries is an long time, solid standard for those with special needs.

You’ll find Katie’s list at Solutions: Finding Devotional Materials for Teens with Special Needs.

Gifts around $10 for Kids with Special Needs

Sylvia Phillips, a Different Dream guest blogger, has also published a list of gifts for kids with special needs. Every gift is around ten dollars, extra appeal if you’re on a budget. Her list includes:

 What Are Your Best Special Needs Gift Recommendations?

Okay, if that helped you finish your Christmas shopping, sit down and put your feet up. For the rest of you, it’s now your turn. What gifts do you recommend for kids with special needs? Leave your ideas in the comment box. Merry Christmas!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

Photo Credit: www.freedigitalphotos.net

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Laura Nunez Shares Her Special Needs Different Dream

Laura Nunez Shares Her Special Needs Different Dream

Laura Nunez Shares Her Special Needs Different Dream

Today’s guest blog comes from Laura Nunez. She’s here to tell how she overcame obstacles related to her cerebral palsy, the misconceptions of others, and attaining her dream job. You’re in for a treat today, so sit back and enjoy what she has to say.

Pursuing My Different Dream

I have always been a dreamer. When I became a social worker, I wanted to make a difference. My goal was to impact the lives of differently-abled children. I wanted each child that I worked with to know that they are not defined by what they cannot do. You see, I was born with cerebral palsy, and I walk with crutches.

Life can be hard and there have been times I have literally been in tears. I know what it’s like to be judged by others and to have to overcome obstacles and stereotypes. I know that the world is not always fair. Even so, I’m going to admit something totally crazy, something that may not make sense to anyone at all. My disability, my crutches are a gift.

I have a new job. It’s my dream job. I work at Whitestone School for Child Development, a CPSE preschool in Queens, NY.  I have always dreamed of working in a preschool because I love children and want to positively impact their futures.

I attended a CPSE preschool and know that I am where I am today, in part due to the services I received there. I remember I loved it! My teacher and my therapists were great. I had many friends who were just like me and no one made fun of me or left me out.

In elementary school, I attended Henry Viscardi School; a school for the disabled founded by Dr. Henry Viscardi, who also had a disability. I remember seeing him in the hallway, hoping to one day be like him and help others. As I got older and truly understood how much he had done to advance and advocate for the rights of people with disabilities, the more convinced I became that I wanted to be like him and leave a mark.

There’s something that I was not prepared for: being denied opportunities because of my disability. I was raised in a family where I was no different than my siblings. My mother has always been my greatest ally and advocate but she also believed in being honest with me. “You have to work harder and do better because people will judge you,” she’d tell me, followed quickly by, “but you can do anything if you work hard enough.”

While the first half of her statement annoyed me, I always believed she was right, that I could do anything. I grew up assuming that my dreams would come true as long as worked to make them a reality. Reality isn’t that simple; people are not always nice. I’ve been on interviews where people made it quite obvious that my crutches made them uncomfortable. I quickly learned that my mother was right. It seemed to me that my dream of making a difference would never come true. Every time I thought I’d found the perfect job for me, I’d hit a brick wall. My crutches always seemed to get in the way. Because of my naiveté, I had never seen my crutches as an issue. I am as independent as I can be and I have never let crutches stop me.

I was beginning to question if I was ever going to be able to make a difference. I was ready to give up on my dream when I got the phone call to come in for an interview. I was excited but hesitant. I was shocked when I was offered the job!

I have finally come full circle working at Whitestone School for Child Development. I’m finally in a place where people don’t stare at me or refer to me as the girl with the crutches. I walk into a classroom and all the children shout, “Hi, Laura!”

I may never know if I’m making difference in their lives but I hope that they understand that they are amazing and capable of achieving their dreams. I hope that in a way, I am giving back to those who helped me get to where I am today.

Now do you understand why I say my crutches are a gift? They don’t define me. They are not who I am. I hope that when people see me, they see the person I am; someone who is truly happy and grateful for the opportunity to impact others and just maybe, leave a mark…yes, I still dream big!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

Laura Nunez grew up with special needs caused by cerebral palsy. Today she talks about her big dream and how she achieved it.

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Laura Nunez has always had a passion for working with children. She is a social worker at Whitestone School for Child Development. She has also volunteered at an orphanage in Romania several times and hopes to return to Romania next year. She also hopes to one day adopt differently-abled children. If you enjoyed Laura’s story, leave a comment in the box below. She’d love to hear from you!

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Just the Successes: Special Needs Christmas Advice

Just the Successes: Special Needs Christmas Advice

Just the Successes: Special Needs Christmas Advice

Guest blogger Becky Hallberg offers a welcome holiday suggestion to parents of kids with special needs. Her wise words are guaranteed to lower your stress, put a smile on your face, and encourage you to focus on the reason we celebrate Christmas. So read on…

Just the Successes

The holidays are a tricky time for our family. This time of year is full of traditions, the sparkle of lights, and the melody of Christmas music. But how do you cope when these exact things, which we all look forward to, when they are possible triggers for a family member? How do you deal with all of the “what-if’s” that the season brings?

We live near a major city and so the opportunities for enjoying the holidays, and all the glitz and glamor that go with them, are pretty much endless! It’s the perfect place for a Christmas-lover like me! I would love to take our kids to all of the light displays, musical productions, festively-decorated areas, and soak in the goodness of time spent together!

And then the big, glaring reminder of all the sensory issues sneaks in to smack me in the face. We have one who can’t always tolerate those things – but sometimes he can. What do you do, as a parent, when things may go exceedingly well, or they may fall apart horribly?  What’s the right choice to make?

I wish I had the answer, all perfectly-figured, decisively-calculated, and beautifully-packaged, to hand to you. That would be quite a gift, wouldn’t it? I’d love to receive that gift, and I’d love to pass it along to you!

I spend time each year, wondering—worrying, even—about our decisions as they pertain to our son and what he may or may not be able to tolerate.

Are we pushing too much?
Not pushing enough?
Will he survive waiting in the line?
Will he miss doing (whatever it may be) if we don’t try?
Are we doing something wrong?
Are we doing anything right?

That’s a lot to wrestle with, in just considering whether or not to go on an outing. I often find myself figuring that skipping something may be the easiest option—no lines, no hassle, no sensory overload. And then the mommy guilt sets in.

Can I attempt to encourage you? Our feelings, as parents—mine, yours, his, hers—they count. They matter. They are valid—every last one of them. If I feel this way around the holidays, I’m sure many of you do as well. I am so grateful to have my faith in a loving God, who I can share my feelings with, openly and honestly. Let’s face it—He is God, He already knows how I feel.

I’m learning that my child’s ability to cope does seem to get a little better as he gets older. However, his age is no guarantee for success in any situation.

And that one word—success—is such a key word in all of this.

What if you and I decided that we would only accept being defined by our successes this Christmas season? What if our yardstick for measuring our enjoyment of the holidays was only made up of the successful moments? We could do that, you know—just count the successes.

Chances are, we know there will be moments that aren’t successful—maybe even whole days. But what if we shook it up a little this year and decided in our hearts that we wanted to measure only the successes?

What if I shared my successes with you, and you shared yours with me, and together, we held those precious gifts as reminders that all that we do as parents matters. It’s vitally important. But we don’t need to carry the sting of things going wrong. Take the hurts, the shattered plans, the missed opportunities, the doubts, questions, and worries and leave them with Jesus. Let Him heal the hurts and mend the wounds.

Let’s sit with Jesus in the warmth, love, and delight of all that you are doing well. Let’s measure our enjoyment of this time of the year by the successes and thank Him for those times. I will cling to those as we move through the holidays and into the New Year. Will you join me?

Remember:
just the successes

Becky and I invite you to share your successes in the comment box. To read more from Becky visit her blog, Shar Sharing Redemption’s Stories.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Author Jolene Philo

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