The Best Special Needs Family Camps Ever…At Least Until Next Year

The Best Special Needs Family Camps Ever…At Least Until Next Year

The Best Special Needs Family Camps Ever…At Least Until Next Year

This summer, I participated in two of the best special needs family camps ever…at least until next year rolls around. The first was held at Hidden Acres Christian Center in central Iowa.

The 2 special needs family camps I participated in this summer may have been half a world away from each other, but they were the best ever!

The second was held in Pelchi, Latvia on the grounds of their national school for children with special needs.

The 2 special needs family camps I participated in this summer may have been half a world away from each other, but they were the best ever!

While I could go on and on about both camps – the events provided, the families reached, and the volunteers who served them – mere words would be inadequate to describe the joy and fellowship of the days we spent together. Instead, you’re invited to take a few minutes to watch the videos created by co-worker and talented photographer, Naomi Norris.

First up is footage of the Iowa camp followed by the Latvian one. Both come with tissue warnings. Enjoy!

See what I mean? They were the best special needs family camps ever!

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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The True Cost of Special Needs Motherhood

The True Cost of Special Needs Motherhood

The True Cost of Special Needs Motherhood

Guest blogger Kimberly Drew and her family recently welcomed a new daughter into their family. Her arrival caused Kimberly to calculate the true cost of special needs motherhood. Read on to learn her answer.

The True Cost of Special Needs Motherhood

It’s late at night and I’m staring into the face of our newly adopted daughter…trying to memorize her features. The shape of her eyebrows, the curve of her teeny tiny lips, and the exact shade of brown of her eyes. I keep thinking about how I would, and will, do anything for this little 7 pounds of miracle. Our oldest daughter is about to turn 14, and her special needs have given us a bond I can’t explain. The hundreds of doctor’s appointments, lab-draws, therapy sessions, hours of car rides to and from has a way of welding hearts together.

I cannot make it go away, but I will always be there when it’s over…

There is a chance we are starting that process all over again with our new little girl. We’re watching and waiting to see the toll that her birth-mother’s addictions, the lack of oxygen at birth, and prematurity have taken on her body. Her Apgar scores were 0, 0, and 0. She was released from the neo-natal intensive care unit (NICU) into the care of her maternal grandmother and my parents. All in their 60s, they found themselves rocking and holding a newborn in drug withdrawal at all hours of the night. We visited almost every weekend while we waited to get custody and to bring her home, but my mom was one of the primary care givers to this helpless little angel. With glasses on the end of her nose, she kept putting the nasal tube in every time the baby pulled it out. She paced the floor with a screaming infant all day for over a month, put her retirement on hold, canceled a vacation to Florida, and meticulously kept track of feedings and medications.

Not only did she care for her adopted grandbaby in her fragile and premature state, but she cared for me as well. When we called to find out what my parents thought about us potentially having two children with special needs, she quickly became my biggest supporter and cheerleader. She always has been. As we raise our oldest daughter Abbey, she takes my teary phone calls. From miles across the country she listens to my heartaches and then reminds me of God’s faithfulness. She helps me to believe in myself, and to believe that God will give me all I need to be the best mom I can be. She watches beauty unfold out of the pain, and celebrates with us when it turns into joy. I know what it’s like to watch my daughter go through that physically, but she watches me go through it emotionally.

She can’t make it go away, but I know she will always be there when it’s over…

The truth is, all good mothers try to help carry their child’s burdens in one way or another. It is the cost of special needs motherhood. But every sacrificed moment, every heartfelt prayer, every sleepless night has a way of making us into better human beings. We hope we will change our children’s lives for the better.

But the truth is, they are changing ours.

What Is the Cost of Special Needs Motherhood for You?

What do you think of what Kimberly calculated as the true cost of special needs motherhood? Have your calculations led to a different answer? Feel free to write it in the comment box.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

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God Has a Purpose for this New Life

God Has a Purpose for this New Life

God Has a Purpose for this New Life

My baby brother turns 57 today.
He is my parents’ third child.
Mom was shocked, rather than thrilled, to hear she was pregnant in the fall of 1958.

And for several good reasons.

Her husband had been diagnosed with multiple sclerosis only a few months earlier.
The progress of the disease meant he would soon give up his job.
She had just signed a teaching contract to support her family.

Then she found out she was pregnant.

In the late 1950s, most teachers had to resign once they were showing.
Mom was 5’1″ and thin.
She would be showing by Christmas.

For some reason, the school superintendent didn’t ask her to resign.

But Mom still worried.
She had only a 2 year teaching degree and needed to finish her 4 year degree.
It was already nearly impossible while caring for the 2 kids they already had.

How would she do it with a baby, too?

She would have to drive to the hospital because her husband’s vision was poor.
The hospital was 30 miles away.
Plus the baby needed blood transfusions at another hospital to combat Rh factor.

She wished this baby wasn’t coming.

Until an older woman offered Mom some life-affirming advice. “This baby will be a blessing to you,” the woman told her. “You may not believe that now, but God has a reason for this new life. One day, you will look back and understand. And you won’t be able to imagine a world without this child.”

This woman, whose name no one in our family remembers, was a prophet.

To read the rest of this post, visit the Not Alone website at specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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I Failed Again, but There Is Always Hope

I Failed Again, but There Is Always Hope

I Failed Again, but There Is Always Hope

Guest blogger, Sharon Cargin, shares a story of how she failed again in today’s post. She writes about her son Tim’s last hospital stay and how she kept silent instead of talking about depression with Tim’s respiratory therapist when the opportunity arose. Maybe you will see yourself in her story and find hope in God’s grace as Sharon did.

I Failed Again

I can’t believe I didn’t say anything. I just sat there listening politely. How could I do that? I have a passion to shatter the wrong ideas about depression that our culture embraces. I do not want people to go through the stigma and misunderstandings that are out there. I have collected articles and books about depression that have helped me and that I think would help others.

Yet I just sat there and listened as an old friend told of her coffee ladies.

They all had money and husbands. But my friend has been divorced for years, struggles with numerous physical health issues, and worries about money as she is of retirement age. Several of her friends said they are on “happy pills” as they referred to them. All but 2 in her group of 6 or 7 friends are on anti-depressants.

She was incredulous.

She said things like “What we do they have to be depressed about? Why, their lives are so good!” She continued to talk about how baffled she was about why so many of her friends were depressed. She said, “Sure I get sad sometimes but not depressed.”

Oh, so many opening to share my story and explain what depression really is like.

But, no, I just sat there smiling and nodding. What was wrong with me? I had failed again.
My failure reminds me of Peter, one of Jesus’ disciples. Peter was a passionate follower of Jesus. He is the only one that dared to trust Him enough to walk on water at Jesus’ invitation. He sank after a few steps when he took his eyes off Jesus.

His spirit was willing, but his flesh was weak.

Jesus said to Peter at the last supper, “You are going to fail big time, but I will pray for you. You can use that experience to strengthen others.”

Peter said, “No way, Jesus. I will go to prison and to death for you!”

Jesus replied, “Nope, you will fail.”

And yep, Peter denied he even knew Jesus a few hours later. (Paraphrase by Sharon.) He had 3 opportunities to speak up, but didn’t do it. In fact, he denied he even knew Him. What was wrong with Peter?

He failed again.

Interestingly, after the crucifixion, the angel at the empty tomb told the women who came to prepare Jesus body, “Jesus is alive. Go tell the disciples and Peter he has risen.” A special message to Peter who may have been thinking, “What is wrong with me? I failed again”. A message to Peter that communicated grace.

Jesus did not write him off as a failure.

The Bible tells us this astounding truth: “My grace is sufficient for you, for my power is made perfect in weakness.” (2 Corinthians 12:9) I find that so hopeful. God can use us even when we are weak. In fact, he specializes using our failures. He uses those weaknesses and failures to help others through us.

We always get another chance.

Lord, I surrender to you to use my weaknesses and failures to make your power perfect. Help me to be your tool to strengthen others using what you teach me when I mess up.
Amen

Where Is Your Hope When You Say, “I Failed Again?”

We all fail, which means we all are in need of God’s grace. How do you experience God’s grace in those moments? Leave a comment.

family 7 2015

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Sharon (wearing white shirt above) is a wife, mother, mother-in-law, and grandmother. She has taught elementary school and homeschooled. Teaching and mentoring children and teens has been a joy in her life. Life was fairly normal for Sharon but pretty much blew up at the birth of her third son who was born 3 ½ months premature with quadriplegic cerebral palsy. Sharon has a passion to encourage others and share some of the lessons she has learned over the years.

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The Chaos of Special Needs Parenting

The Chaos of Special Needs Parenting

The Chaos of Special Needs Parenting

Today, I am pleased to introduce you to guest blogger Sharon Cargin. Sharon and I have been acquaintances since high school when she sat in front of me in Senior Comp. But we became forever friends when we became mothers of kids with special needs. In this post she tells how the chaos of special needs parenting drew her to God.

The Chaos of Special Needs Parenting

 

When my oldest son moved out into his own apartment before he got married, he told us it was very strange because he was used to controlled chaos. He grew up with a home schooling, stay-at-home mom and a hard-working carpenter for a dad, and three siblings, one of whom is severely disabled. It took the whole family working together to keep the household going. Tim, our disabled son, required complete care. He was either very sick, a little sick or just plain sick much of his life. We also were super involved at church. We did not have much money. It was often stressful. Life was often chaos.

Busy! Busy! Busy!

That brings me to a teaching I heard at church about Jesus’ birth from the perspective of Joseph. I had never thought about how Mary’s announcement of her pregnancy blew up Joseph’s whole world. All his dreams and plans were no more. In addition he had a whole set of new problems. Talk about chaos. Why did God plan this type of start for his son? What a complete mess! We do not hear much about Joseph after Jesus is born. He was a faithful simple carpenter obeying God.

I see the parallel in my life.

The birth of my handicapped son blew up my world. All my dreams and plans were no more. In addition I had a whole set of new problems. Chaos!

But Joseph’s son saved the world from their sins.

Is there hope when life blows up? Is there hope when your finite mind can see no way this event will ever be good and may never end? What if we look at Joseph’s life as an example when we are in the midst of chaos? He listened, believed God and obeyed.

His chaos changed the world.

When I look at the life of my handicapped son I can either see chaos and hopelessness, or I can see the wonder of his life. Tim’s chaos was the straw that broke the camel’s back. Chaos pushed me to turn to God and throw my arms up in surrender. From there, our whole family came to God.

How like God to show us he understands chaos.

He can take anything, anybody and any chaos and turn it into something beautiful. Our job is to be faithful, listen and obey God…like Joseph.

Chaos is often God’s pathway to himself.

The Chaos of Special Needs Parenting at Your House?

How did the chaos of special needs parenting change you? Share your story in the comment box below.

The chaos of special needs parenting can draw people to Christ or send them into a tailspin. Sharon Cargin describes which direction she chose.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Sharon (wearing white shirt above) is a wife, mother, mother-in-law, and grandmother. She has taught elementary school and homeschooled. Teaching and mentoring children and teens has been a joy in her life. Life was fairly normal for Sharon but pretty much blew up at the birth of her third son who was born 3 ½ months premature with quadriplegic cerebral palsy. Sharon has a passion to encourage others and share some of the lessons she has learned over the years.

Author Jolene Philo

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How To Make It Through a Special Needs Storm

How To Make It Through a Special Needs Storm

How To Make It Through a Special Needs Storm

Different Dream welcomes Candice Wilkinson as today’s guest blogger. Lately, she’s been experiencing some special needs storms as she cares for her child with special needs. In the process, she’s discovered some ways to calm the waters of her soul.

One of my favorite worship songs is Oceans by Hillsong United. It seems that every time we go through a rough week, Oceans appears during worship. A worship leader, who is also a friend, puts her personal touch on it that brings me to my knees. This song has a way of comforting and uplifting me. It gives me strength when I need it the most.

There is this one part of the song really stands out to me while I am going through a special needs storm:

So I will call upon Your name
And keep my eyes above the waves
When oceans rise My soul will rest in Your embrace
For I am Yours and You are mine.

Whether the special needs storm is an illness, a new surgery or a new diagnosis, this verse reminds me that I need to call upon God’s name and keep my eyes on Him. It brings me such hope.

A Psalm for Special Needs Storms

When the water get murky and cloudy Psalm 121:1-3 often comes to mind, too.

I lift up my eyes to the mountains—where does my help come from?
My help comes from the Lord, the Maker of heaven and earth.
He will not let your foot slip—He who watches over you will not slumber.

It is not a coincidence that Psalm 121:1-3 and Oceans both talk about lifting our eyes up to God for help. Sometimes with all the medical jargon, the day-to day-care of being a caregiver, and just life in general, we need to make time to carve out time with God.

Three Tips for Navigating a Special Needs Storm

Sometimes the water is calm; but when the water gets rocky and choppy, it can be easy to drown. Today I am sharing my three tips that help me carve out time with God during a special needs storm.

Prayer and Bible Time. Talking to God and laying down your worries can ease anxiety. It doesn’t matter if you are a person who goes for a five kilometer prayer walk, or someone who writes love letters to God; as long as you spend that time communicating with Him.

Journaling. Putting your thoughts on paper can help get them out and relieve stress. To help you get into the mood for journaling, try lighting candles and having your favorite drink on hand. Also, adding some colored pens or stickers into the mix to help express your moods.

Worship Music. There is nothing like cranking up the volume of your favorite worship music and singing at top of your lungs when your going through rough waters. When the waves feel like they are crashing in on you, start your days with worship music. Have it on in the car, too. Surround yourself with it.

I’ve found that write these on my daily to do list help me make sure to get that time in with God.

How Do You Make It Through Special Needs Storms?

What are your tips for making it through special needs storms? What songs and verses soothe your soul when the waters get rocky? Share you thoughts in the comment box if you like.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Candice hails from Alberta, Canada where she lives with The Hubby, and their two children. She is the social media manager for Courtland’s Hope Foundation. After the traumatic birth of her oldest child, Candice became passionate about advocating for children with disabilities and their families. When she isn’t busy juggling social media tasks, meetings, and therapies she loves to read and crochet.

Author Jolene Philo

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