New House, New Year, New Problems

New House, New Year, New Problems

New House, New Year, New Problems

It’s over.

After months of sorting and packing, planning and scheduling, painting and cleaning, we’re done moving. We’re in our new house, unpacking boxes, trying to remember which cupboards we put things in, and hoping the young parents who bought our old house enjoy raising their kids there as much as we did. Mostly, we’re just happy the move is done.

But not quite.

During the months leading up to our move, I fell into a certain pattern of thinking. “Oh,” I thought when driving along the bumpy gravel road that leads to our old house, “the road to the new house will be so much nicer.” Or when I had to carry groceries from our unattached garage into the house. “It’ll be so much easier to carry groceries into the new house from our attached garage.” Or while struggling in the old house with the linen closet door that always sticks, saying to myself, “Life will be so much better in the new house where the doors don’t stick.”

And so on.

But after a few days in the new house I discovered it’s hard to go from sitting to standing on the bathroom’s very low toilet. There’s an icy spot outside the front door that’s mighty treacherous. And the closets that looked so big when they were empty, don’t hold nearly as much as the ones in the old house did. Moving, I discovered, did not solve all of life’s problems. How was I lured into believing it would?

To read the rest of this post, go to Key Ministry’s Special Needs Parenting Blog.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Downsizing for Christmas

Downsizing for Christmas

Downsizing for Christmas

 

Downsizing for Christmas

When my husband and I bought the old farmhouse we’ve lived in for 25 years, we were charmed by its ample storage space. But now that we’re downsizing and moving, the treasures and mementos accumulated in the attic, the closets, the built-in bookshelves, and the basement storage rooms seem much less charming. We are now on a first name basis with landfill crew and the staff at Good Will. Our dinner conversations consist of the following: Do we need to keep this broken guitar strap your mom gave it to you in 1987? Hmmm, I thought I threw away my college textbooks years ago. Now that the kids are 34 and 28, it’s time to toss their Awana Grand Prix cars, their vests and uniforms, badges, books, and trophies.

Letting go of some things was easy. But saying good-bye to my kids’ baby things was hard. You haven’t looked at these things in years, I reminded myself as I struggled to throw away the moth-eaten Santa hat my son wore on his first Christmas and the bundle of yellowed cards sent by friends and family after our daughter’s birth.

The morning after a particularly brutal day of downsizing, packing, and unsuccessful attempts to toss the Santa hat and baby cards, I read the Christmas story in Matthew. The account of the Magi throwing a baby shower for the Christ Child unleashed a floodgate of questions. How long did Mary hang on to the gold and frankincense and myrrh? Where did she keep them? Did she and Joseph haul everything to Egypt and back? Did the gold cover their travel expenses? Did Mary struggle when she had to downsize?

Scripture doesn’t answer those questions. The gifts of the Magi are never mentioned again though Luke 2:19 says that Mary treasured and pondered in her heart the events surrounding her first child’s birth. And we can assume that Mary passed along the story of Jesus’ birth to Matthew, Mark, Luke, and John who recorded them in their gospels.

Mary’s memories are precious jewels to all who follow Christ. For over two thousand years, her story of the birth of the Son of God has been the centerpiece of Christmas. The gifts of the Magi are long gone. The earthly dwellings that once housed the Joseph, Mary, the shepherds, the Magi, and even Jesus are gone. But Mary’s story remains as clear as the stars and as fresh as the night air surrounding the angels who proclaimed about her Son’s birth. And His eternal Spirit dwells within all who call Him Savior.

I slipped my Bible into the place it has occupied on one of the built-in bookshelf for 25 years. Then I went to the attic and gently put the hat and the baby cards, broken toys and a stained Easter bonnet, and the moldering detritus of my children’s growing up years in a plastic bag. I tossed the bag on the pile where it waited for a ride to the landfill.

I prayed for my children and their children as I walked back to the house. May the memories we created and the love we’ve shared be clear and fresh in their hearts long after we are gone. May they ponder and embrace Mary’s stories of her Son this and every Christmas. May the living Spirit of Jesus fill their hearts with joy and truth and purpose forever more. Amen.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today my arm muscles ache, my blood sugar is higher than it should be, my feet hurt, and my heart is overflowing with happiness. Why?

Because my dear niece got married on Saturday night. She is my daughter’s life long friend, so when she asked her aunties to make forty pies for the wedding reception, I responded the only way an auntie can. “Yes,” I said without hesitation, knowing full well that between rolling out pie crusts, sampling the wares, crying as she walked down the aisle, handing out pie at the reception, and boogieing at the dance, the Monday after would be a severe day of reckoning. Even so, I chose to say yes, grateful to be part of her day of celebration and happiness, and thankful for the tiredness of today.

Far too often, while caring for a baby with special needs, my husband and I felt like our ability to make choices for our child had been ripped away.

We didn’t choose to have a son who needed surgery at birth.
We had to choose to send our baby to a hospital 750 miles away or to let him die.
We were too far from the hospital to choose the surgeon who would operate on our newborn.
We were 2 decades too early to choose family-centered care for his many hospital stays.
We were often too sleep-deprived and despairing to choose hope over despair.

During the first few years of our baby’s life, we sometimes felt like the choices that should have been ours as parents had been hijacked by a distant God who couldn’t possibly love our son as much as we did.

Click here to read the rest of this post at the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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The Pressure Cooker Effect of Special Needs Parenting

The Pressure Cooker Effect of Special Needs Parenting

The Pressure Cooker Effect of Special Needs Parenting

In May our daughter, her husband, and their fourteen-month-old moved into the upstairs of the roomy, old farmhouse where my husband and I live. With their arrival our quiet, empty nester lives were dramatically altered. I couldn’t be happier.

Over the summer I observed how parenthood has changed my daughter and her husband. They are no longer young adults in single-minded pursuit of their own dreams. They are now parents willingly sacrificing their dreams, at least for the time being, and building a future for themselves and their son. I couldn’t be prouder.

I can’t help but reflect upon how different our parenting journey was from theirs. Our first child was born in 1982. Hours after our son’s birth when he was diagnosed with a life-threatening birth anomaly, every expectation we had for him and for ourselves as parents crumbled.

Other parents were choosing which kind of diapers to use: cloth or paper.
We were choosing where to lifeflight our newborn for surgery: Omaha or Denver.

Other mothers agonized about breastfeeding or bottles.
I agonized about whether or not our baby would survive surgery and recovery.

Other parents suffered sleep deprivation, rocking infants in the wee hours of the night.
My arms ached and my body longed to hold my baby who spent 3 weeks in NICU.

We had expected parenthood to get almost too hot to handle at times. But we weren’t prepared for the pressure cooker of life and death decisions we faced day after day for several years. Elizabeth Stone once said that the decision to become a parent is to “have your heart go walking around outside your body.”

To read the rest of The Pressure Cooker Effect, go to Key Ministry’s Special Needs Parenting blog.

Do you like what you see at jolenephilo.com/? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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When You Know Too Much

When You Know Too Much

When You Know Too Much

This summer our family embarked upon the grand adventure of multi-generational living. It began in May when our daughter, her husband, and their then 13-month-old son moved into our upstairs as they transition from starving graduate student status to starving artists status. The adventure is going well, everyone is adjusting, and my husband and I love sharing every day life with our grandson.

But sometimes, my joy is dimmed because I know too much.

What I know about special needs, disabilities, and childhood trauma gets in the way. When my grandson, now a robust 16 months old, running around on his tiptoes, a little voice inside me whispers, “That can be a symptom of autism.” When life gets very exciting and he flaps his chubby arms in delight, I think, “There’s another symptom.” When I compare his limited vocabulary to what my son and daughter, his mama, were saying at his age the voice whispers, “Perhaps he’ll be non-verbal.”

The whispers are a consequence of knowing too much.

Please understand. This little boy is extremely dexterous. His arm flapping doesn’t resemble the hand-flapping associated with autism. He speaks more clearly by the day, understands and follows verbal directions, loves interacting with people, and has a highly expressive face. He not only makes eye contact, but also craves it.

I worry anyway, because I know too much.

God has used what I have learned about and experience with special needs and disabilities to great good. He’s empowered me to write books to encourage and equip parents, to provide special needs ministry training, to facilitate support groups, and more. But sometimes that same knowledge and experience results in thought patterns that lead to excessive and obsessive worry that steals my joy. The kind of worrying that leads to doubt, to despair, and to sin. The kind of thinking familiar to far too many in the special needs and disabilities community. Maybe you’re familiar with it, too.

To read the rest of this post, visit Key Ministry’s Special Needs Parenting blog.

Do you like what you see at jolenephilo.com/? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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When Bad News Does a Number on Your Faith

When Bad News Does a Number on Your Faith

When Bad News Does a Number on Your Faith

After you have suffered for a little while,
the God of all grace, who called you to His eternal glory in Christ,
will Himself perfect, confirm, strengthen and establish you.
1 Peter 5:10–11

At her last visit to the dentist my 87-year-old mother learned that the aging process is doing a number on her teeth. After her hygienist suggested a deep cleaning was in order, Mom’s response was less than enthusiastic. “It was a terrible appointment,” Mom said when we met in the waiting room. “I could have gone my whole life without news like that.”

I made suitable, empathetic noises while we scheduled the extra cleaning. I practiced active listening techniques during lunch and tried to cheer her up. “Look at the bright side, Mom. You’re almost 88. You have all your teeth. You have dental insurance that makes the procedure affordable.”

She was inconsolable. “I just wasn’t expecting this kind of news,” she said. “It’s awful.”
“Mom,” I said as my supportive, loving daughter veneer peeled away, “you’re acting as if you’ve got cancer instead of early stage periodontal disease. Try to put this in perspective.” But she couldn’t. At least not until her son visited her and managed to coax her out of her funk by mentioning that he’d had the same procedure done a few years back.

Reflecting on Mom’s situation, I see similarities between the way she reacted at the dentist and how I responded when our son was young and the doctor delivered news so bad it did a number on my faith.  First, my reaction focused on what was wrong. Not only that, but I viewed past and present blessings as my right. I rarely expressed gratitude when our son’s health improved, but complained loudly when it went downhill.

Second, I often responded to my child’s situation from a purely temporal and earthly perspective. Instead of standing firm on the rock of God’s sovereignty, I grew despondent and fearful when our parenting experience unfold differently than expected. When another surgery was scheduled, when a virus laid my baby low, or when he refused to eat, I acted as though the possibility of death meant the end of all things–though as a Christian I claimed to stand on the promise of eternal life with Christ.

Christian parents of kids with special needs have little to offer our children or other parents when we respond with ingratitude, hopelessness, and fear. But how can you avoid those faithless responses when bad news about your child does a number on your faith? A clue to that question’s answer can be found in Mom’s recovery from her funk. It ended when a visit with her son changed her perspective.

Similarly, by spending time with God’s Son in His Word, your perspective and your future responses will change and your faith will grow. When you consider how Christ’s absolute confidence in God’s sovereignty and an eternal perspective influenced His responses to the violent death He suffered. When you cling to the promise of Jesus to never leave or forsake us. When your faith and your gaze stand upon the risen Christ and anticipate His future resurrection.

When your feet are firmly planted on those realities, you can trust Jesus and respond with hope and confidence. Because you will know, beyond a shadow of a doubt, that what He promises is absolutely certain. God’s eternal and unchanging best is yet to come.

Do you like what you see at jolenephilo.com/? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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