More Than Worried

More Than Worried

More Than Worried

Join the Different Dream gang as we welcome new guest blogger, Stephanie McKeever today. She confesses she is often worried and more than worried about IEP meetings as a special needs mom. What she has to say may sound familiar to you, too.

More Than Worried

Have you ever let your mind wander and let worry take over your thoughts, your days, nights, your attitude?
No?
Me neither.

Ugh.

The number of times I have given something to God and then taken it back again, honestly, it’s ridiculous. The amount of worry–and more than worry–I allow things to have over my mind is, well, mind-boggling. I am nothing if not consistent. I can be a bit impatient when it comes to God’s time versus my time when handling life. And I have been proven wrong time and again.

I had an IEP for my child, recently. Yes, I am still hammering away at IEPs. If you follow me on my website, then you know I’ve had some major life changes lately. However, freedom from IEP meetings were not one of those changes. The meeting had me worried.

Is there a word for more than worried?

The more than worried that kept me talking to myself in the car, into the bathroom silence (the only room where there is mom-silence), and stewing in the night. I had already had one pre-meeting, and I did not handle it all that well. So this time, I needed to step up my IEP game. But what if the IEP team came with the same offerings that had already kept me awake at 2 in the morning? What if they wore at the same soft spots that had me so rattled at the last meeting?

I am not proud of letting this more than worried conversation with God go on until I pulled out of my driveway to go the meeting.

Lightbulb! 

“Stephanie, why don’t you hush at this meeting and let God do what God does? Or maybe admit God has been doing His thing all along?”

Ya’ think?

Remember, I am consistent when it comes to my hardheadedness. But fast forward and what do you think happened?

Yep. God showed up when I shut up.

I am not saying God changed every single IEP meeting exactly the way I prayed it into action right before each meeting. But this particular meeting a reminder that God has shown up every single time over time. Occasionally, it takes more time than my limited time table for His work to be done. God has His own time table, and His timing is always best.

Sometimes His time is now.
Other time, I have to watch and see what God’s gonna do.
He never fails us.

Wait for the Lord; be strong and take heart and wait for the Lord. 
Psalm 27:14

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My husband and I are parents of all boys, one of whom was a young adult with both physical and intellectual disabilities. I don’t always know what I’m doing as I parent these guys. But what I do know is God is teaching me big things through our trials that I probably would have never learned without them. You can find more from me at  www.stephaniemckeever.comon Facebook, and on Twitter @stefmckeever.

Author Jolene Philo

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When the Caregiving Hits Keep Coming

When the Caregiving Hits Keep Coming

When the Caregiving Hits Keep Coming

What’s a person to do when the caregiving hits keep coming? Though I have decades of caregiving experience under my belt, I  had to think hard to answer the question after my husband Hiram had hip replacement surgery in September of 2018.

The surgery was planned. My schedule had been cleared. My daughter and son-in-law, with whom we live multi-generationally to be ready for situations like these, volunteered to mow the lawn and make meals after we came home from the hospital. All systems were go, and I was certain juggling caregiving and work duties during Hiram’s 6 week recovery would be no problem.

The surgery went well, and the next day I brought Hiram home after supper. I went downstairs to talk to the rest of the caregiving team.

“He’s home,” I said.

“Don’t come in,” my daughter said, pointing to their 3-year-old son. “Tad’s sick. We’ll stay down here so Dad doesn’t catch this.”

The next day, everyone in their family was sick. Not just a little sick. They were sick sick.

Fevers.
Headaches.
Coughs.
Vomiting.

I was on my own. I was cooking for everyone, taking meals to the downstairs family and keeping my distance for over a week. By the grace of God and constant hand washing, my husband and I didn’t catch the creeping crud. But once everyone was back on their feet again, I was a mess.

To read the rest of this post, visit Key Ministry’s blog for parents of kids with special needs.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Called to Serve Others the Way Jesus Did

Called to Serve Others the Way Jesus Did

Called to Serve Others the Way Jesus Did

Guest blogger Kimberly Drew rediscovered the heart of what it means to be the parent of kids with special needs through a chance encounter at the store. It’s all about serving others the way Jesus did.

Yesterday I stopped at the store to pick up something quickly. On my way out I ended up holding the door for a couple who had to have been in their 80’s. It took them a little while to get out the door because they were assisting their son who was in his mid 50’s and disabled. His mom apologized when he stopped at the door to put both his hands on my cheeks and try to kiss me.

I told her I had a daughter who loves the same way he does, and that I didn’t mind at all. I watched her help him get in the van and buckle his seatbelt. She did it all with a smile.

I couldn’t help but think about our life… I had no idea that I would spend so many days and hours in silence. For a woman who loves nothing more than a deep and heartfelt conversation with a friend, the one-way chit-chat I make with my girls on a daily basis can be very difficult.

I didn’t expect to change diapers on my teenage daughter while she is menstruating.
I had no idea that teaching someone how to eat could take so long.
There is no manual for how to bond with your adopted daughter when all she does is cry from drug withdrawal for four months straight.

But when I graduated Taylor University, I was given a towel to remind me to serve others the way Jesus did.

I’m so humbled by the mom in her 80’s who was taking care of her disabled son with a smile.
I’m challenged to make sure that the towel on my dresser is a way of life and not just a piece of decor.

The towel itself implies that my hands have to get a little dirty. I’m not there yet and so I have to just pray…

Lord, Give Me a heart and hands ready to serve, and a soul that finds joy in doing so.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kimberly graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have three amazing kids on earth (Abigail, Jayden, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

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Caregiving Is Hard Work

Caregiving Is Hard Work

Caregiving Is Hard Work

My formerly feisty, stubborn, and determined mother turned 90 during Labor Day weekend of 2018. The weekend was also the 10th anniversary of when we realized Mom was having memory problems. When she decided to move in with my brother and his family. When I took over her finances. When my sister from out of town began monthly treks to visit her. The weekend was also the tenth anniversary of when we learned caregiving is hard work.

The 10 years between 2008 and 2018 were not kind to Mom. Her world began shrinking. Her keen intelligence slowly failed. She moved into a memory care unit in 2015. She no longer cares about her appearance. She’s demanding and increasingly snippy and grumpy with the staff and with her 3 children. She pouts if she doesn’t win every game of cards. She whines. A lot. Caregiving is hard and getting harder.

Even so, my brother and I schedule visits so she has company most week days. We bring her to our homes for meals on alternate weekends. My brother takes her to church most Sundays. I spend several hours a month dealing with her finances. My sister makes monthly visits, does Mom’s clothes shopping, and organized the 90th birthday party.

To read the rest of Caregiving Is Hard Work, visit the Special Needs Parenting blog at Key Ministry’s website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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When Autism Gives Courage to Stand

When Autism Gives Courage to Stand

When Autism Gives Courage to Stand

Guest blogger Amy Felix says that when autism gives courage to stand, something beautiful happens. You may well agree after reading this post, which comes with a tissue warning.

When Autism Gives Courage to Stand

Growing up, my faith was weak. God used it, what little there was, but I always wished I could be more bold. Even now, I struggle with speaking up or standing out when I need to. My heart is on fire for Jesus, but putting myself out there is still hard; mostly because I feel unworthy and I worry about others’ opinions of me.

But, through God’s grace, my daughter is changing all of that.

I’ve learned, through having a sibling with severe epilepsy and parenting children with autism, that many look down on those with special needs. Some expect them to fail or see them as less than. Others pity them or try to justify treating them differently. I admit I used to do the same things when I was young, before the special needs community became such a huge part of my world. Before I understood a powerful truth.

A truth that my daughter has taught me and many others, just by being who she is.

In church towards the beginning of worship, when most people wait to be told to stand, I used to wait right along with them. Inside, I wanted to stand up and raise my hands and throw myself into worship with abandon. Outside, I was scared to be different. I didn’t want to stand out. It was a time for worshipping the very God who holds my heart, and I hesitated. All because I was focused on the opinions of those around me.

Not on my love for the One I was there to praise.

My daughter has always had a passion for worship. Her whole being is wrapped up in it. It’s her primary way to connect with a God who created her uniquely and perfectly. She worships without a care in the world. It doesn’t matter who’s watching or what others may think. The world around her seems to disappear; one of the many gifts given to her through autism. She’s intensely invested; all else melts away. The moment the music starts, regardless of what anyone else in church is doing, she is the first to stand. She is the first to raise her hands in worship. She stands and praises Him, even if no one else joins her.

In her love for worshipping her Savior, she is courageous.

She’s given me the courage to stand as well. She’s inspired me to push past hesitation and lose sight of the world and seek His face. To see nothing but His glory. To feel nothing but love for my Father, who has been so kind to me. The One who gave me a child who leads. A child who is different. A child who doesn’t need pity. A child who rises above. A child fashioned after the One who made her.

Not all of autism is beautiful and poetic.

It’s hard and it’s painful. But I am convinced God is working in and through it. There are incredible gifts woven throughout. One gift is inspiration to take a stand, both inside the walls of the church, and outside in my daily life. To fight the good fight. To be courageous.

To be more than I ever thought I could be.

 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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My name is Amy Felix. I’ve been married for 10 years to a guy who’s totally out of my league. I’m a homeschooling mom to 4 kids, ranging in age from 9 to 2 years. That’s really enough work on it’s own but, because I love it, I’m a photographer as well. And, in my spare time, I write. My faith is the driving force behind my special needs blog: Appointed To Hope. I’m a firm believer in being real, transparent, and using the gifts of this journey as a way to relate to others in their joy as well as their sorrow. To read more about my adventures in special needs parenting, visit my website at www.appointedtohope.com.

Author Jolene Philo

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Measuring Milestones in Micros

Measuring Milestones in Micros

Measuring Milestones in Micros

Measuring milestones in micros sounds strange to parents of typical children. But guest blogger Kimberly Drew believes doing so is a crucial way for parents of children with special needs and disabilities to remain emotionally healthy. Measuring milestones in micros is crucial for parents’ spiritual growth, too.

Recently, our daughter Ellie had a playdate with a friend who is a month or two younger than she is. I was reminded of how hard it is to look at children who are on target developmentally in comparison to a child with special needs. It’s hard to stare at the milestones in front of you and not to feel discouraged. Ellie is going on 3 and still doesn’t sit up or stand. I have learned from raising Abbey, our older daughter with special needs, is that an age peer group is not the best standard to measure against. Once we accept where our children are, we can learn to measure them best against themselves.

For example, Abbey has a Bitty Baby she loves to play with. The doll is wearing the outfit that Ellie wore in the NICU. While Ellie is still unbelievably tiny (she wears 18 month clothes and a size 3 diaper), she is huge compared to the size she was when she came home. Also, when we adopted Ellie she came home from the NICU with a feeding tube.  She still can’t eat regular food, but this morning she ate an entire carton of yogurt, which is a pretty big deal.

The reality is that our children’s successes and triumphs over their physical and cognitive limitations are best measured in micro-milestones. After many years, the micros really add up. Abbey started using the toilet at school last year, something we tried many times. She’s 16 now, and it finally clicked.  While she is not reached 100% on the toilet, she goes several times a day successfully. Each time I want to cheer.

Our faith can be measured in micros as well. We can look back to when something big happened and we made huge growth in our spiritual lives. But in truth, real change happens in our daily walk with the Lord. Moment by moment, challenge by challenge, prayer by prayer we begin to slowly change. Sometimes, it takes 16 years for things to finally click. Without the micros, we would never reach milestones. I have always appreciated Galatians 6:9.

Let us not become weary in doing good,
for at the proper time we will reap a harvest if we do not give up. 

As I type, Ellie’s in occupational therapy. I’m watching her work hard to pull little building blocks apart and hand them to the therapist. After several times she gets it and tries to say, “I got it!”

It’s a small building block, but put together they can build quite a structure. A lifetime of daily pursuing Christ and seeking his heart leads to a life defined by character and faithfulness.

Measuring in micros matters, so don’t give up!

 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

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