A Special Hope Podcast, Part 1

A Special Hope Podcast, Part 1

A Special Hope Podcast, Part 1

A Special Hope Podcast is the brainchild of guest blogger, Sarah Broady. Today, Sarah explains how the podcast came to be. Tomorrow in Part 2, she’ll be back with the details on how to subscribe and share the podcast with your friends who are parents of kids with special needs and disabilities.

On the way home from the Wonderfully Made Conference in Kansas City in the fall of 2018, I was on the same flight as fellow speaker, John Felageller, so we had lots of time to chat. I asked if he listened to podcasts and what his favorites were. Then, a light went off. We had just come off our second conference of the year for special needs families and ministry leaders, and I had the idea for a podcast that accomplished what these conferences sought to do. My conference workshop focused on building better relationships between parents and ministry leaders, and I wondered, is there a way to take that presentation and put it in podcast form? Is there room in the podcasting world for me? Would anyone actually listen? What in the world would I even do?

I decided that I would work best by talking with someone else. I enjoy interview style podcasts and by focusing on interviewing other people, I would have a never-ending pool of future content. I was proud to kick off the show by interviewing the one that inspires me to do what I do as a writer, speaker and now podcaster – my son with autism, Samuel Broady. You can listen to Episode 1, “All About Hope and Autism: An Interview with Samuel Broady” on your favorite podcasting app or the website!

I knew the podcast needed a title to describe the podcast in a few words. It needed to be concise and catchy. My website is Hope in Autism, and I wanted hope to be a major aspect of the podcast. As a Christian, I wanted to point my listeners to the unique and special hope we have in Jesus Christ. One day, the title hit me – A Special Hope Podcast – a title that hit the nail on the head, It conveys the life of special needs and the special hope we have as believers. At the end of each podcast conversation, I ask the interviewee what their special hope is, especially related to their faith, in doing what they do. 

A main goals of the podcast is to bridge the gap between families and ministry leaders, whether church or community ministries, and foster understanding and compassion. My hope is that ministry leaders listen with the intent of understanding where families are coming from. I hope the stories of families who have been hurt by the church show them what not to do, or how to handle situations better. I hope they’ll learn from what other ministry leaders are doing as they serve disability families. I hope families are encouraged by the stories of fellow special needs families and know they’re not alone. I hope parents hear about resources – books, websites, and other podcasts. I hope parents will better understand the perspectives of ministry leaders so they will better navigate conflict. 

Many books, organizations, and ministries have been born out of lives different than originally planned because of the presence of disability. Romans talks about stair steps to hope, the first step being suffering, and  the pinnacle being hope. While disability does not equal suffering, we all know the grief and hardship and even loss that can come of it. A Special Hope Podcast is all about discovering special hope in the stories of those living with special needs, those who minister to special needs families, and the God who is making all things new in the midst of the trials and difficulties that can accompany disability, and how it affects both the individual and the family caring for them.

Part 2

 

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Sarah Broady and her husband have three boys. Their second son is autistic. Sarah is an autism advocate and has spoken to state capitol committees to secure better services on behalf of families living with autism. Her greatest joy comes in being an encouragement to other parents who are walking the same road she is walking. She blogs about their life raising a son with autism as they hope and delight in God at Hope in Autism. and interviews people involved with disabilities and special needs at A Special Hope Podcast. She is also writing a book that gives hope in Jesus on the special needs path. She speaks at Christian-related special needs events to reach parents on a more personal level. You can contact Sarah through her blog or by email at sarah@hopeinautism.com.

Author Jolene Philo

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Common Man, Extraordinary Call: Thriving as the Dad of a Child with Special Needs

Common Man, Extraordinary Call: Thriving as the Dad of a Child with Special Needs

Common Man, Extraordinary Call: Thriving as the Dad of a Child with Special Needs

Common Man, Extraordinary Call: Thriving as the Dad of a Child with Special Needs is a book worthy of a place on the shelf of every family raising children with disabilities. Today, guest blogger Becky Davidson tells the story of the vision of the man behind the book.

When a family receives a special needs diagnosis or finds out that their child will face life with a disability, there is often a deep internal struggle to process what this means for the family. Mothers typically respond like I did, as caregivers. We throw ourselves into research, sign up for  support groups, and search for the best doctors available to treat our children. Fathers, who are often the “fixers,” find themselves in a difficult place. Facing an “unfixable” diagnosis, many men are tempted to go AWOL or emotionally abandon their family. Some even physically walk away.

My husband, Jeff Davidson, was a special needs father for twenty years and a mentor to fathers like himself. He knew firsthand what it was like to face the temptation to hide, to pull into his work and to leave his family without the emotional support we really needed. In his book, Common Man, Extraordinary Call, Jeff reaches out to other fathers of children with special needs. He shares in an authentic and candid way how he struggled to adjust to having a son with profound disabilities. He tells the hard truth about his own struggles in hopes of helping other dads.

It took Jeff several years to find his own way to connect with our son Jon Alex, but when he did, he gave himself fully to the process. Leaving a successful business career, Jeff eventually gave his life to serving and supporting the special needs community. Jeff was the president and co-founder of Rising Above Ministries which we established in 2005. Together we developed a multi-dimensional outreach to families impacted by disability. Sadly, he passed away unexpectedly in 2017, but before his death he wrote a field guide for fathers facing the same challenges he had faced.

In Common Man, Extraordinary Call, Jeff addresses the grief parents face when adjusting to the knowledge that they will not enjoy the typical life they had hoped for. He shares how he was overwhelmed with a sense of loss when he realized he would never shoot hoops with our son or teach him how to drive. Jeff was tempted to go AWOL himself and he provides 25 signs that you might be vulnerable to doing the same. In the heart of the book, Jeff addresses the deeper issue of how a special needs father can lead his family in these areas: as a protector and defender, as a provider, as a father who strengthens his family, and one who equips his family. Jeff makes the analogy of the special needs father as a soldier and this theme carries throughout the book. He teaches dads about common emotional landmines. He also addresses how to deal with “civilian assault” or the attacks that can come from people outside the special needs world who do not understand this life or its challenges.

I have had the privilege of leading Rising Above Ministries since Jeff’s death. I know Jeff would be so proud to see his book helping so many men. I hope you will take time to read it and benefit from his hard won lessons. I don’t think you will regret it. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Becky Davidson is the co-founder and president of Rising Above Ministries, a multi-dimensional outreach to families impacted by special needs. She took on her role at Rising Above after the death of her husband, Jeff Davidson. She is passionate about supporting and encouraging special needs families and encouraging women. Becky and Jon Alex, her adult son with special needs, live and thrive in Cookeville, Tennessee. To get to know Jeff through more of his writings, visit Good Night Superman.

Author Jolene Philo

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Special Needs and Disability Conferences You’ll Want to Know About

Special Needs and Disability Conferences You’ll Want to Know About

Special Needs and Disability Conferences You’ll Want to Know About

Special needs and disability conferences are popping up around the country. They provide a wealth of information by bringing in workshop speakers from around the country and inviting local agencies to host exhibit tables. Conferences also create networking opportunities for parents, church leaders, disability and special needs ministry agencies, and authors in attendance.

This spring I presented workshops at three special needs and disability conferences and met fascinating people who shared their expertise and stories generously. I hope this peek at each one inspires you to find a conference near you to attend soon!

Engage Conference

The Engage Conference is held in early spring and hosted by 99 Balloons of Fayetteville, Arkansas. Engage is a 1 day conference, which features morning worship, a variety of workshop sessions and panel discussions during the day, lunch, exhibitors, and a special evening speaker–this year Heather Avis.

 

To my chagrin, I forgot to take pictures of the conference, though I remembered to photograph the boom truck outside the hotel and the de-icing truck at the airport. (My grandsons are really into trucks.)

 

 

Better than photos is the the All Access Pass to the Engage Conference digital recordings (some audio, some with audio and video) which can be purchased for $9.99. You can learn more about the All Access Pass here.

That All May Worship Conference

This special needs and disability conference is held in the Norfolk, Virginia area in the spring of odd numbered years in mid-March. It’s hosted by the Faith Inclusion Network (FIN) of Hampton Roads. This event gathers inclusive ministry leaders from around the country for a Thursday retreat day where they share resources, emerging issues, and dreams. The conference is held on Friday.  An exciting feature of this conference is its emphasis on doing ministry with people who have disabilities rather than doing ministry for them. Visit them at Faith Inclusion Network.

My camera came out a time or 2 to take pictures of a morning walk with my friend Shelly Christensen, the founder of the Jewish Disability Awareness Day and of the ocean outside the retreat center. The conference day was so busy I again forgot to snap photos. 

 

Inclusion Fusion Live!

Inclusion Fusion Live! was put on by Key Ministry and hosted by Bay Presbyterian Church near Cleveland, Ohio. Inclusion Fusion Live! addresses the disability and special needs community, with an emphasis on mental health. The conference runs for 2 days in early April and is packed with workshops, day-long intensive trainings, Quick Takes (think TED talk), keynotes, interviews, and more. Videos of all the main stage events can be accessed on the Inclusion Fusion Live! page of the Key Ministry website, including my Quick Take about Sharing Love Abundantly in Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities.

The adage “third time’s the charm” held true at the final special needs and disability conference I attended this spring. I snagged a number of photos, including the one above with Different Dream guest blogger Evana Sandusky and the one below with Sarah Broady of Hope In Autism, Beth Castile of Valley Church in West Des Moines, and Colleen Swindoll-Thompson of Reframing Ministries.

May the resources available through these special needs and disability conferences encourage you to find and attend a conference soon. Who knows, maybe we’ll see each other there, and you can kindly remind me to take more pictures!

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Hiya Moriah: An Interview with the Author

Hiya Moriah: An Interview with the Author

Hiya Moriah: An Interview with the Author

Hiya Moriah is a delightful new children’s book by my friend and fellow special needs parent, Victoria Nelson. She agreed to be interviewed by Different Dream and tell our audience about her book. Settle back and enjoy this peek into how Hiya Moriah came into being.

What is Hiya Moriah about?

It’s about a young girl born with a rare syndrome called CHARGE, who takes you along on her journey. She shows you that even though she looks different with all her medical equipment, she’s just like any other kid her age wanting to play and have fun. Moriah encourages you to practice inclusion with other kids by just saying “hiya.” We can hold so much power with one simple word, and it’s amazing what saying “hi” can do to make someone’s day, and make them feel included.

What inspired you to write this book?

So many times during my daughter Moriah’s life, I would take her out, and people would just stare at her, not knowing what to do or say. So when the staring was really awkward, I’d tell Moriah to start waving, and say “Hi.” This would usually allow people to engage with Moriah instead of just stare at her. Then, after she passed away, Hiya Moriah came to mind. My hope is that through this book, everyone will learn to say “hiya” when meeting someone like Moriah. I provide a lot of education around the medical equipment and have the illustrations detailed so that children can learn it, and recognize it in the world around them. I believe knowledge and empathy are powerful tools, and can help break down the social barriers we have when making friends who are different than us.

Why are you still telling Moriah’s story?

While we saw so much goodness that came from people during our time with Moriah, we saw that there was still so much room to grow as a society in the way we see and value people with special needs. I saw that not everyone saw Moriah for who she was, nor valued her the way she should have been. Because she didn’t speak, she was often ignored or written off. Because she looked different people would ask, What’s wrong with her?”  right in front of her. I was even asked, “Why didn’t you abort her?” as if her life was totally disposable. I want to send the message and stand on the truth that everyone matters and deserves to be seen, loved, and accepted. Through this inclusive children’s book, I can do so.

Who’s the audience for your book?

Families, schools, children’s hospitals–anyone who is wanting to learn about one child’s journey with special needs, and wanting to learn how to practice inclusion. I also hope that children like Moriah and all her friends can see themselves represented and identify with the different things that she had and her challenges. Sometimes, just seeing someone else do it and go through it serves as an encouragement and inspiration making you feel like you can do it, too!

What do you want future readers of Hiya Moriah to know?

I want all the Hiya Moriah readers to know that this is just one story, Moriah’s journey – but that there are so many beautiful people, so many beautiful stories out there. I encourage everyone to go out into your schools or community, and take the time to meet people who have different abilities, and get to know them. All you have to do is wave and say, “Hiya.” I promise you your lives will be forever changed.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Victoria lives in the greater Los Angeles area, married to her high school sweetheart, Justin, and is mama to Moriah (in heaven), Jadon, Olivia, and Shane. While she’s not busy chasing a toddler, kissing boo boos, and learning Fortnite dances from her kids, Victoria enjoys traveling to Southeast Asia to see her family, watching reruns of The Office, eating healthy foods to offset her love for cake, and takes time for herself by reading, running, and writing. She blogs at www.momentswithmoriah.com.

Author Jolene Philo

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Wisdom Shared by EA/TEF Parents: 9 Years of Stories and Strategies

Wisdom Shared by EA/TEF Parents: 9 Years of Stories and Strategies

Wisdom Shared by EA/TEF Parents: 9 Years of Stories and Strategies

Wisdom shared by EA/TEF parents is a cornerstone at Different Dream since 2011 when it first dedicated most of every January to EA/TEF Awareness Month. Each year, moms and dads volunteer to share their stories and strategies to raise awareness and to encourage young parents caring for EA/TEF babies. Today’s post is a round up of several articles from the recent past, along with a reminder of how to easily access all posts from past EA/TEF awareness months. May these stories from families around the country and the world increase your understanding of EA/TEF, inspire you to raise awareness in others, and bring hope to those just beginning to navigate the unexpected and precious world of parenting a child with EA/TEF.

  • Last year, musician and mom Janae Copeland compared raising her daughter with EA/TEF to a bittersweet symphony. She describes the melody that arises from the chaos and the beauty of raising her daughter.
  • Also in 2017, Jill Seaney shared her 4 greatest mom fears as a parent. Her post resonated with readers then, and it will now. Ironically, Jill was planning to write a 2018 post, but her son is in the hospital with one of the respiratory illnesses so common to kids with EA/TEF.
  • A year ago, Kristen Horten’s son was a few months old when she wrote about their family’s unexpected but blessed EA/TEF journey. She’ll be back in a week or 2 with an update about how her little boy is doing, so now is a good time to catch up on his early days.
  • Lori McGahan founded EA/TEF Awareness Month and also the Bridging the Gap Facebook page. She’s contributed updates about her son Brandon in the past, and last year she did it again. Her story about how a kid with EA/TEF finds courage will have you cheering Brandon on from the sidelines.
  • Different Dream founder, Jolene Philo, has been an EA/TEF parent for over 30 years. In 2017, she wrote a post about how treatment for the condition has changed since her son was born and how it’s stayed the same. If you believe history contains lessons not to be forgotten, give it a read.
  • When kids are born with EA/TEF, their parents are faced with a steep learning curve.2 years ago, Nanette Lerner contributed a cheat sheet of warning signs so new parents could be slightly more prepared.
  • In case you want more, this 2015 post about everything you want to know about EA/TEF but are afraid to ask has plenty of links to wet your whistle.
  • Last but not least, you can access all of Different Dream’s EA/TEF Awareness Month posts from the past in a couple ways. First, type EA/TEF in the search bar and see what pops up. Second, find the Archives button in the right sidebar and select any January from 2011 through 2017. Not every January post is about EA/TEF, but you can scroll through and find posts that are.

There you have it–a look at wisdom shared in past years. If you have more wisdom to share, please leave it in the comment box!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Confessions of an Autism Dad

Confessions of an Autism Dad

Confessions of an Autism Dad

Kevin O’Brien shares his confessions as an autism dad in today’s post…something he was reticent to do until he became a contributor to a new book, Life on the Spectrum, and discovered the importance and worth of the work he’s been given to do.

Confessions of an Autism Dad

Can I be honest for a moment? For over a decade, I have resisted being an autism dad. I have written a few pieces about having a son with autism, but I have done so reluctantly. Really reluctantly.

There are lots of reasons. Privacy–mine and my son’s. Concern that I have no idea what I’m talking about. But to be honest–brass tacks, bottom line, no more obfuscating–the resistance is about me. Because as soon as I take that step my identity changes. My goals, my interests, and yes, my dreams change. To name a thing is to make it real.

I have a master’s degree in theology and wrote my master’s thesis on Generation X and Truth. Won an award for it. I dream of being a writer when I grow up. But I want to write about faith and culture. About theology and the Church. About things that matter.

My dream. How many time did I say “I” in the previous paragraphs? 12? (not including “mine”, “me” and “my”) That’s the problem. Too much I, me, my, mine. Not enough recognition of the fact that “I” am not the center. God is. Everything I claim to believe says so. It is he who calls me to himself, who crafts me to his use and his purpose. Who seeks my ultimate good even when I cannot see it.

This is the story of Scripture. It practically drips off of every page. God pursues his people. Relentlessly. He seeks their good at all times in all places and all situations, even when–especially when–they resist him.

Pick a person, pick a time, pick a place.
Adam, Moses, David, Jeremiah, John.
Eve and Tamar and Rahab and Ruth and Abigail and Gomer and Mary.

So many others whose names we forget and the details of whose stories are fuzzy. God pursues. God shapes and molds and takes the good and the bad, the victories and the defeats, the moments of righteousness and yes even the sins to bring us to himself. There is absolutely nothing that God cannot redeem. For his glory and our good.

Even my son’s autism.
Even my own arrogant dreams.

A few years ago, I was invited to be a part of a book by the parents of autistic kids. It took far longer to complete than we expected. Bumps along the road and unanticipated detours but Life on the Spectrum is now a real  book. It speaks to the messy realities of parenting a child with autism through the eyes of faith. It’s also about expectations and asking why. It’s about parties and comparisons and family and church and . . . life. But mostly, it’s about seeing God at work in and through those things.

Because there is nothing that God cannot redeem. There is nothing that God cannot redeem. Over and over again in Scripture we see that God is a god who cares for those who cannot care for themselves.

The widow and the orphan.
The alien and the exile.
The poor and the disabled.

“Then the King will say to those on his right, ‘Come, you who are blessed by my Father, inherit the Kingdom prepared for you from the creation of the world. For I was hungry, and you fed me. I was thirsty, and you gave me a drink. I was a stranger, and you invited me into your home. I was naked, and you gave me clothing. I was sick, and you cared for me. I was in prison, and you visited me.’
“Then these righteous ones will reply, ‘Lord, when did we ever see you hungry and feed you? Or thirsty and give you something to drink? Or a stranger and show you hospitality? Or naked and give you clothing? When did we ever see you sick or in prison and visit you?’
“And the King will say, ‘I tell you the truth, when you did it to one of the least of these my brothers and sisters, you were doing it to me!’ Matthew 25:34-40, NLT

God cares and so should we. My son has shown me firsthand how God cares for those who cannot care for themselves. How God uses us to do so. How in so doing we become more and more like him and he surprises us in astounding ways. I have delayed and hemmed and hawed, not using my gift because I wanted to write something more important, because I second guessed myself and what I had been given. Yet in the middle of that ,something became increasingly clear. In and through my son’s autism I have the opportunity to speak to serious issues of faith and culture and theology and the church. My dream looks decidedly different than what I expected or planned, but it turned out not to be so different.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page

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Kevin O’Brien is a husband, father, ordained minister, writer and volunteer theologian. He holds a Master of Divinity and Master of Theology from Liberty Baptist Theological Seminary and has done graduate work at the Institute for Christian Studies in Toronto. He is currently the study Bible and reference brand manager at Tyndale House Publishers where he has helped to develop several Bibles and has written articles which have appeared in The Way, the iShine Bible, and the Illustrated Study Bible. He is one of the authors of the recently released Life on the Spectrum. Kevin lives in the far western suburbs of Chicago with his wife, three children, a dog, and a cat. He would prefer to spend his time reading, writing, woodworking and watching the Chicago Blackhawks.

Author Jolene Philo

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