When Life Is Not as It Should Be
When life is not as it should be, whether the cause is a global pandemic or a child’s diagnosis, we have a choice to make. As our hearts break and our faith is tested, we have to decide to respond from either a short term or long term perspective.
In 1959 my parents were in that “when life is not as it should be” place.
They were not yet 30 when Dad was diagnosed with multiple sclerosis. People gave them plenty of support, from a woman advising Mom to go on welfare to co-workers taking out a life insurance policy for Dad. Somehow, in the midst of conflicting advice and mounting fear as Dad’s health deteriorated rapidly, my parents chose a long term perspective. To that end, they set two goals they felt were best for the long term well-being of their children.
First, they decided to keep Dad in our home as long as possible so their kids could grow up around their father.
Second, they would provide the support their kids would need to graduate from high school and go to college.
The goals they set drove every short term decision they made for two decades. To this day my siblings and I, as well as our children and their children, are benefiting from those long term goals.
In 1982 my husband and I landed in that “when life is not as it should be” place.
Our newborn was diagnosed with a birth defect. My husband was taking a shower at a friend’s house when the doctor relayed the diagnosis to me at the hospital. Our baby needed to get to a major medical center for immediate surgery to save his life. When my husband returned and had time to absorb all that had changed in his short absence, we set long term, eternal goals for our son and for us.
To read the rest of When Life Is Not as It Should Be click on over to the Key Ministry blog.
Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.
By jphilo
Jolene Philo is both parent and daughter of loved ones with special needs and disabilities, as well as a former educator who worked with children for 25 years. She’s written several books about caregiving, special needs parenting, and childhood PTSD, including the recently released Sharing Love Abundantly in Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilties, which she co-authored with Dr. Gary Chapman. She speaks internationally about caregiving and parenting children with special needs and blogs at www.DifferentDream.com. Jolene and her husband live in central Iowa.
Related Posts
Small Things Are Saving Me This Winter
Jolene explains how small things are saving her during the season of covid, just as they did during her season of special needs parenting
The Importance of Self-Care for Caregivers, Part 1
Don’t underestimate the importance of self-care for caregivers. Heather Johnson shares her insights in the first of a two-part series.
A Visit to a Special Needs Dentist Proves the Tooth Fairy Is Real
A visit to the special needs dentist can cause anxiety. Guest blogger Mark Arnold relates his son’s experience and gives tips for parents.




0 Comments