Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today my arm muscles ache, my blood sugar is higher than it should be, my feet hurt, and my heart is overflowing with happiness. Why?

Because my dear niece got married on Saturday night. She is my daughter’s life long friend, so when she asked her aunties to make forty pies for the wedding reception, I responded the only way an auntie can. “Yes,” I said without hesitation, knowing full well that between rolling out pie crusts, sampling the wares, crying as she walked down the aisle, handing out pie at the reception, and boogieing at the dance, the Monday after would be a severe day of reckoning. Even so, I chose to say yes, grateful to be part of her day of celebration and happiness, and thankful for the tiredness of today.

Far too often, while caring for a baby with special needs, my husband and I felt like our ability to make choices for our child had been ripped away.

We didn’t choose to have a son who needed surgery at birth.
We had to choose to send our baby to a hospital 750 miles away or to let him die.
We were too far from the hospital to choose the surgeon who would operate on our newborn.
We were 2 decades too early to choose family-centered care for his many hospital stays.
We were often too sleep-deprived and despairing to choose hope over despair.

During the first few years of our baby’s life, we sometimes felt like the choices that should have been ours as parents had been hijacked by a distant God who couldn’t possibly love our son as much as we did.

Click here to read the rest of this post at the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Will We Cling to God?

Will We Cling to God?

Will We Cling to God?

It’s here again.

The anniversary of the day my world turned upside down.
The birthday of our firstborn.
The day my heart swelled with a fierce, intense, permanent love.
The day my heart broke.
The day the doctor said, “There’s something wrong with your baby.”

That day is here again.

The anniversary of the decision my husband and I made 34 years ago. Would we cling to God when our newborn was life-flighted 750 miles away for surgery? Would we reach out to Him in our sorrow and pain? Or would we let go? By the grace of God, we chose to hang on. By the grace of God, our son lived. He still lives.

For that I am truly grateful.

God has taught me so much about clinging Him in the 34 years since the day our beautiful baby was born. Above all, He’s shown me this.

We face this choice as parents every single day of our children’s lives.

When we learn the surgery didn’t fix everything and more surgery is needed. When we ride in the ambulance beside our children and wonder if we’ll get there in time. When we watch the gurney holding our children disappear down a long hallway.

Will we cling to God?

When our children don’t progress as they should. When diagnosis follows diagnosis. When the treatments don’t work. When our children cry out in pain. When they stop eating.

Visit the Not Alone website at specialneedsparenting.net to read the rest of this post.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

The True Cost of Special Needs Motherhood

The True Cost of Special Needs Motherhood

The True Cost of Special Needs Motherhood

Guest blogger Kimberly Drew and her family recently welcomed a new daughter into their family. Her arrival caused Kimberly to calculate the true cost of special needs motherhood. Read on to learn her answer.

The True Cost of Special Needs Motherhood

It’s late at night and I’m staring into the face of our newly adopted daughter…trying to memorize her features. The shape of her eyebrows, the curve of her teeny tiny lips, and the exact shade of brown of her eyes. I keep thinking about how I would, and will, do anything for this little 7 pounds of miracle. Our oldest daughter is about to turn 14, and her special needs have given us a bond I can’t explain. The hundreds of doctor’s appointments, lab-draws, therapy sessions, hours of car rides to and from has a way of welding hearts together.

I cannot make it go away, but I will always be there when it’s over…

There is a chance we are starting that process all over again with our new little girl. We’re watching and waiting to see the toll that her birth-mother’s addictions, the lack of oxygen at birth, and prematurity have taken on her body. Her Apgar scores were 0, 0, and 0. She was released from the neo-natal intensive care unit (NICU) into the care of her maternal grandmother and my parents. All in their 60s, they found themselves rocking and holding a newborn in drug withdrawal at all hours of the night. We visited almost every weekend while we waited to get custody and to bring her home, but my mom was one of the primary care givers to this helpless little angel. With glasses on the end of her nose, she kept putting the nasal tube in every time the baby pulled it out. She paced the floor with a screaming infant all day for over a month, put her retirement on hold, canceled a vacation to Florida, and meticulously kept track of feedings and medications.

Not only did she care for her adopted grandbaby in her fragile and premature state, but she cared for me as well. When we called to find out what my parents thought about us potentially having two children with special needs, she quickly became my biggest supporter and cheerleader. She always has been. As we raise our oldest daughter Abbey, she takes my teary phone calls. From miles across the country she listens to my heartaches and then reminds me of God’s faithfulness. She helps me to believe in myself, and to believe that God will give me all I need to be the best mom I can be. She watches beauty unfold out of the pain, and celebrates with us when it turns into joy. I know what it’s like to watch my daughter go through that physically, but she watches me go through it emotionally.

She can’t make it go away, but I know she will always be there when it’s over…

The truth is, all good mothers try to help carry their child’s burdens in one way or another. It is the cost of special needs motherhood. But every sacrificed moment, every heartfelt prayer, every sleepless night has a way of making us into better human beings. We hope we will change our children’s lives for the better.

But the truth is, they are changing ours.

What Is the Cost of Special Needs Motherhood for You?

What do you think of what Kimberly calculated as the true cost of special needs motherhood? Have your calculations led to a different answer? Feel free to write it in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

God Has a Purpose for this New Life

God Has a Purpose for this New Life

God Has a Purpose for this New Life

My baby brother turns 57 today.
He is my parents’ third child.
Mom was shocked, rather than thrilled, to hear she was pregnant in the fall of 1958.

And for several good reasons.

Her husband had been diagnosed with multiple sclerosis only a few months earlier.
The progress of the disease meant he would soon give up his job.
She had just signed a teaching contract to support her family.

Then she found out she was pregnant.

In the late 1950s, most teachers had to resign once they were showing.
Mom was 5’1″ and thin.
She would be showing by Christmas.

For some reason, the school superintendent didn’t ask her to resign.

But Mom still worried.
She had only a 2 year teaching degree and needed to finish her 4 year degree.
It was already nearly impossible while caring for the 2 kids they already had.

How would she do it with a baby, too?

She would have to drive to the hospital because her husband’s vision was poor.
The hospital was 30 miles away.
Plus the baby needed blood transfusions at another hospital to combat Rh factor.

She wished this baby wasn’t coming.

Until an older woman offered Mom some life-affirming advice. “This baby will be a blessing to you,” the woman told her. “You may not believe that now, but God has a reason for this new life. One day, you will look back and understand. And you won’t be able to imagine a world without this child.”

This woman, whose name no one in our family remembers, was a prophet.

To read the rest of this post, visit the Not Alone website at specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Why You Must Say Yes to Special Needs Inclusion {Even When You’re Afraid}

Why You Must Say Yes to Special Needs Inclusion {Even When You’re Afraid}

Why You Must Say Yes to Special Needs Inclusion {Even When You’re Afraid}

Guest blogger Sheri Dacon has a message for anyone who is afraid of special needs inclusion. If her call to action doesn’t rouse you, perhaps nothing will. So take courage and read on.

Why You Must Say Yes to Inclusion
{Even When You’re Afraid}

If you’ve ever parented a toddler, you know the drill. Your days are filled with the word “no.”

Parenting experts say toddlers are learning independence. They’re discovering their ability to separate from their parents and make their own choices. Toddlers say “no” a lot. So do their parents.

And the days end up sounding like a broken record of negativity.

Sometimes our churches are too much like a strong-willed toddler. Because far too many of us have become a broken record of negativity when it comes to special needs.

It’s time we quit saying “no” to inclusion.

Let me tell you what it’s like when a church looks at a disabled child and his family — with all their strengths and challenges — and says no.

  • It is devastating and soul-shattering.
  • It’s traumatic and intensely painful.
  • It’s like having the faith rug pulled completely out from under you.
  • It knocks you down and leaves you breathless.

It’s not an exaggeration. This is how too many families experience church.

They are told no.

And they are left shell-shocked.

Many are shaken so turbulently by their experience that they never return.

Others want to try, but are timid and riddled with anxiety about the possibilities of being rejected again.

Some become embittered and turn from faith entirely. Why trust in the Lord of the church when the church can dish out more meanness and apathy than the secular world?

There are plenty of reasons congregations say “no” to special needs families.

  • It costs too much.
  • We don’t know how.
  • We’re just volunteers.
  • We don’t have room.
  • There aren’t any special needs families in our congregation.

But these reasons are simply excuses.

They are shallow copouts that ignore truth and choose the easier path of exclusion instead because. . . well, it’s easier.

It’s easier to close doors and hearts than it is to open them wide and not only accommodate, but welcome, anyone who walks in.

It’s easier to stay complacent and “do church” the way it’s always been done.

It’s easier to ignore people who make us feel uncomfortable.

But is it the gospel way?

Is this the kind of ministry we see played out in the Bible, in the ways of Jesus himself?

Not at all.

Why We Must Say Yes

What we see in the gospel message is an overarching message of yes.

Yes to the broken, yes to the poor, yes to the marginalized, yes to any and all who are willing to come. All are welcome at the Lord’s table.

And so it’s imperative that we — as communities of faith — learn to say yes. We simply must say yes first, then trust that God will show us the way.

  • It’s what Abraham did when God called him to leave his home and go to a new place. He said yes, and became a sojourner.
  • It’s what Noah did when God told him to build an ark. He said yes, and waited for instructions.
  • It’s what David did when God anointed him king. He said yes, then fought for his life, years before receiving the crown.
  • It’s what Mary did when an angel told her she would bear the son of God. She said yes, though she didn’t understand and she faced certain scorn.
  • It’s what Jesus did in the garden as he prayed for another way, and yet chose obedience even unto death. He said yes.

Time and again in scripture, we encounter people who had every reason to say no. Saying no would’ve been the more practical, economic, and logical choice.

And yet, each of these–and so many more–chose to say yes instead. And it made all the difference.

I challenge you today to examine your place of worship, and examine yourself as well. Where do you need to say yes?

Because saying yes might just change everything.

Will You Say Yes to Special Needs Inclusion?

Are you ready to say yes to special needs inclusion? If so, Every Child Welcome: A Ministry Handbook for Including Kids with Special Needs at Church can help you. Whether you’re in a big church with many resources or a small one with only a few volunteers, Every Child Welcome can equip you and other volunteers to say yes with confidence.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

You can learn more about Sheri by visiting her website at sheridacon.com.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

I Failed Again, but There Is Always Hope

I Failed Again, but There Is Always Hope

I Failed Again, but There Is Always Hope

Guest blogger, Sharon Cargin, shares a story of how she failed again in today’s post. She writes about her son Tim’s last hospital stay and how she kept silent instead of talking about depression with Tim’s respiratory therapist when the opportunity arose. Maybe you will see yourself in her story and find hope in God’s grace as Sharon did.

I Failed Again

I can’t believe I didn’t say anything. I just sat there listening politely. How could I do that? I have a passion to shatter the wrong ideas about depression that our culture embraces. I do not want people to go through the stigma and misunderstandings that are out there. I have collected articles and books about depression that have helped me and that I think would help others.

Yet I just sat there and listened as an old friend told of her coffee ladies.

They all had money and husbands. But my friend has been divorced for years, struggles with numerous physical health issues, and worries about money as she is of retirement age. Several of her friends said they are on “happy pills” as they referred to them. All but 2 in her group of 6 or 7 friends are on anti-depressants.

She was incredulous.

She said things like “What we do they have to be depressed about? Why, their lives are so good!” She continued to talk about how baffled she was about why so many of her friends were depressed. She said, “Sure I get sad sometimes but not depressed.”

Oh, so many opening to share my story and explain what depression really is like.

But, no, I just sat there smiling and nodding. What was wrong with me? I had failed again.
My failure reminds me of Peter, one of Jesus’ disciples. Peter was a passionate follower of Jesus. He is the only one that dared to trust Him enough to walk on water at Jesus’ invitation. He sank after a few steps when he took his eyes off Jesus.

His spirit was willing, but his flesh was weak.

Jesus said to Peter at the last supper, “You are going to fail big time, but I will pray for you. You can use that experience to strengthen others.”

Peter said, “No way, Jesus. I will go to prison and to death for you!”

Jesus replied, “Nope, you will fail.”

And yep, Peter denied he even knew Jesus a few hours later. (Paraphrase by Sharon.) He had 3 opportunities to speak up, but didn’t do it. In fact, he denied he even knew Him. What was wrong with Peter?

He failed again.

Interestingly, after the crucifixion, the angel at the empty tomb told the women who came to prepare Jesus body, “Jesus is alive. Go tell the disciples and Peter he has risen.” A special message to Peter who may have been thinking, “What is wrong with me? I failed again”. A message to Peter that communicated grace.

Jesus did not write him off as a failure.

The Bible tells us this astounding truth: “My grace is sufficient for you, for my power is made perfect in weakness.” (2 Corinthians 12:9) I find that so hopeful. God can use us even when we are weak. In fact, he specializes using our failures. He uses those weaknesses and failures to help others through us.

We always get another chance.

Lord, I surrender to you to use my weaknesses and failures to make your power perfect. Help me to be your tool to strengthen others using what you teach me when I mess up.
Amen

Where Is Your Hope When You Say, “I Failed Again?”

We all fail, which means we all are in need of God’s grace. How do you experience God’s grace in those moments? Leave a comment.

family 7 2015

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Sharon (wearing white shirt above) is a wife, mother, mother-in-law, and grandmother. She has taught elementary school and homeschooled. Teaching and mentoring children and teens has been a joy in her life. Life was fairly normal for Sharon but pretty much blew up at the birth of her third son who was born 3 ½ months premature with quadriplegic cerebral palsy. Sharon has a passion to encourage others and share some of the lessons she has learned over the years.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts