PTSD in Parents of Kids with Special Needs Wrap Up, Pt. 11

PTSD in Parents of Kids with Special Needs Wrap Up, Pt. 11

PTSD in Parents of Kids with Special Needs Wrap Up, Pt. 11

Thank you for stopping by for the final post in Different Dream’s series about stress, trauma, and PTSD in parents of kids with special needs. Rather tackling a new question, this post takes a look back at what was asked each week and provides links to all the posts.

Post One

Series Introduction

Post Two

Question: What’s the dividing line between trauma and PTSD?
Answer: The Difference between Trauma and PTSD

Post Three

Question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD?
Answer: Can the Stress of Raising a Child with PTSD Result in a Parent with PTSD?

Post Four

Question: Does the state of hypervigilance that special needs parents experience lead to PTSD or is it a symptom?
Answer: Hypervigilance as a Cause and Symptom of PTSD

Post Five

Question: What are some tools or coping mechanisms when I feel anxiety building? What should I do when I find myself remembering the traumatic events that led to my PTSD?
Answer: Coping Mechanisms for Anxiety and Traumatic Memories

Post Six

Question: What is an easy way to explain secondary PTSD to family and friends who think that it’s something that only people in the military suffer from?
Answer: How to Explain Secondary PTSD to Friends and Family

Post Seven

Question: How can I find balance in while raising a special needs child? It’s as if the special needs issues are screaming constantly but others are whispering at the same time. How can I deal with the whispers so I’m not just focused on the screaming special needs issues?
Answer: Finding Balance while Raising a Child with Special Needs

Part Eight

Question: How can I allow my child to move on without trauma, but remain aware of the physical issue is part of her DNA and continues to influence her life?
Answer:  PTSD, Stress, and Moving On as Special Needs Parents

Part Nine

Question: What advice can you give single parents who have PTSD and do everything themselves with little outside help?
Answer: Single Parents, Special Needs, and PTSD

Part Ten

Question: When is it time for parents to find respite for kids with special needs?
Answer: Respite for Kids with Special Needs

Thank you so much for your interest in this series! If you have comments or questions, please leave them in the box below.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Respite for Kids with Special Needs and Stressed Parents, Pt. 10

Respite for Kids with Special Needs and Stressed Parents, Pt. 10

Respite for Kids with Special Needs and Stressed Parents, Pt. 10

Welcome back to another post in the series about stress, trauma, and PTSD in parents of kids with special needs. This week, Dr. Liz Matheis will answer a question submitted by a parent. She wants to know when it’s time for parents to find respite for kids with special needs. Here’s a brief look at what the series has covered so far.

Post One: Series Introduction
Post Two: The Difference between Trauma and PTSD.
Post Three: Can the Stress of Raising a Child with PTSD Result in a Parent with PTSD?
Post Four: Hypervigilance as a Cause and Symptom of PTSD
Post Five: Coping Mechanisms for Anxiety and Traumatic Memories
Post Six: How to Explain Secondary PTSD to Friends and Family
Post Seven: Finding Balance while Raising a Child with Special Needs
Part Eight: PTSD, Stress, and Moving On as Special Needs Parents
Part Nine: Single Parents, Special Needs, and PTSD

Now, let’s take a look at Liz’s answer to a very important question. When is it time for parents to find respite for kids with special needs?

Respite is a good idea right when you begin to think you need a break. It’s okay to access and use respite care. It doesn’t mean that you are a bad or incompetent parent. It means that you need a break and you know you do. If you wait too long to find relief, you will be beyond the point of burnout which means it will take you even longer to return to your baseline level of functioning. In the meantime, everyone may suffer.

Many parents feel that they are the only people who understand how to meet their children’s needs. Those parents are right. But, they don’t have to be the sole caretaker for your child everyday, all day, 365 days a year. Neither do you. Allowing someone else to care for your children builds resilience because your kids will have the opportunity to communicate their needs with another person, and build trust and a sense of safety with others. This allows your child to learn flexibility, which allows you to get a break without feeling like your kids’ needs aren’t being met.

Another thing to remember is that though we are familiar our children’s capabilities and limits, we also tend to lose sight of where to push and challenge our kids. Stuck in the muck of special needs parenting, we don’t always see that our children can do things like emptying the dishwasher or tying their shoes because we don’t want them to feel badly if they can’t. We don’t want to point out what they can’t do. We also don’t want to trigger a meltdown. But sometimes new people who don’t know our children and aren’t as emotionally connected, can ask them to do something outside of their scope of capabilities. And they may be able to do it! Think about the sense of self-efficacy children can build with experiences that show parents and kids that they can!

So, to go back to the original question – if you think you need respite care, take it.

What Do You Know about Respite for Kids with Special Needs?

Do you have advice for parents looking for respite care? Leave a comment!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Single Parents, Special Needs and PTSD, Pt. 9

Single Parents, Special Needs and PTSD, Pt. 9

Single Parents, Special Needs and PTSD, Pt. 9

Single parents are the focus of this post in the Different Dream series about PTSD, stress, and special needs parenting. Before moving on to what child psychologist Dr. Matheis has to say to dads and moms raising kids without a second parent in the house, here’s a look at what the series has covered so far:

Post One:  Series Introduction
Post Two: Three Difference between Trauma and PTSD.
Post Three: Can the Stress of Raising a Child with PTSD Result in a Parent with PTSD?
Post Four: Hypervigilance as a Cause and Symptom of PTSD
Post Five: Coping Mechanisms for Anxiety and Traumatic Memories
Post Six: How to Explain Secondary PTSD to Friends and Family
Post Seven: Finding Balance while Raising a Child with Special Needs
Post Eight: PTSD, Stress, and Moving On as Special Needs Parents

Now, let’s take a look at what Dr. Matheis has to say to single parents who ask this question every single day: What advice can you give single parents who have PTSD and do everything themselves with little outside help?

Raising a child or children as a single parent is hard. When you have a child with special needs, your resources and stamina will be depleted even quicker. Here are some easy and inexpensive ways to find some relief:

  • Trade child care with other parents. Find other moms with children with special needs and set up a rotating schedule so that each you can take a break while knowing that your child is with another person who is not afraid of special needs
  • Involve the extended family. Get your child’s grandparents, aunt, uncles, and other willing adults to take your child one time per month for a few hours so that you can take a break and re-invest in to yourself
  • Create a schedule for your child. Then, stick to it. That is, adhere to a set bed time so that you know you have down time at the end of the day for you to catch up on emails, paying bills, or reading a book
  • Tap into your school. If your child is at a school for children with special needs, ask them to schedule a parent’s night where you can drop off your child for 2-3 hours for a nominal fee.
  • Find respite. Look into respite care and use it as often as is available. (More on this in the next post in this series.)

Your Suggestions for Single Parents?

Are you a single parent living with trauma while raising a child with special needs? What can you add to Liz’s answer? Leave your advice in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

PTSD, Stress and Moving On as Special Needs Parents, Pt 8

PTSD, Stress and Moving On as Special Needs Parents, Pt 8

PTSD, Stress and Moving On as Special Needs Parents, Pt 8

The Different Dream series about PTSD, stress, and special needs parenting is ready to address a conundrum common to many parents. Simultaneously dealing with stress and moving on as special needs parents and as children growing up with special needs.

Before taking a look at child psychologist Dr. Matheis’ answer to the question, here’s a run down of what the series has covered so far:

With those topics under her belt, Dr. Liz is more than prepared for this week’s question: How can I allow my child to move on without trauma, but remain aware of the physical issue is part of her DNA and continues to influence her life?

The good news is that even though your child (and maybe you) have been traumatized, you will both heal enough to move on. You won’t ever forget your experiences, but you don’t want to keep them vividly alive either. Rather, you and your child want learn to incorporate your experiences into your lives, and use them as a way to understand other people’s struggles and sensitivities.

You can have a conversation with your child about strengths and weaknesses. Identify the strengths, what makes your child unique, first. List your child’s trauma as strengths as badges of courage and bravery.

Although your child’s physical issues will be dealt with often and may be considered weaknesses, remind your child that all of us have special needs of some sort. Some of us are nearsighted, some of us have nut allergies, some of us have food allergies. The list goes on. The important thing for you and your child to remember is that though each person has an ailment (physical or emotional) of some sort, those ailments do not define us as people. They are part of us, but not all of us.

A helpful exercise to help your child visualize this truth, write the physical ailment on a piece of paper. Have your child fold it as small as possible and then hold it in his hand. Next, have a conversation about how a physical condition is a part of a person, a small or big part that won’t be forgotten, but there is much more to a person. This visual can be helpful if you and your child sometimes feel the physical issue is bigger than everything.

Your experiences also give you and your child incredible perspectives. Never again will your child smirk at or avoid children with visible disabilities. You will both become more embracing and accepting–a wonderful gift to give to another person. Giving is a great way to heal. It will build strength, compassion, and perspective. You and your child will understand that a person can have a disability but still be artistic, competitive, passionate, and just plain old AWESOME!

How Do You Handle Stress and Moving on as Special Needs Parents?

Have you been able to handle stress and moving on as special needs parents? How do you help your children with special needs do the same? Leave a comment so we can learn from you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Finding Balance in Special Needs Parenting and Stress, Pt. 7

Finding Balance in Special Needs Parenting and Stress, Pt. 7

Finding Balance in Special Needs Parenting and Stress, Pt. 7

Thanks for stopping by Different Dream for another post in our series about special needs parenting stress, trauma, and PTSD. Today we’re discussing the importance of finding balance in special needs parenting and the stress that often accompanies it.

Here’s a quick recap of what’s been covered so far. 

The first post introduced the series, while the second post explained the difference between trauma and PTSD. The third post answered two questions: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs. Post number five offered excellent advice from Dr. Matheis about tools or coping mechanisms to use when anxiety build or when something triggers memories of traumatic events. The sixth post in the series asked for an easy way to explain secondary PTSD to friends and family who think it only happens to soldiers.

Dr. Liz tackles a series of questions every parent of a child with special needs has asked at one time or another: How can I find balance in while raising a special needs child? It’s as if the special needs issues are screaming constantly but others are whispering at the same time. How can I deal with the whispers so I’m not just focused on the screaming special needs issues?

Finding balance in your life is a journey and a pursuit as your needs and your child’s needs change over time. However, with special needs children, their needs precede yours almost constantly. Children are unique in their strengths and weaknesses. It’s very easy to stay focused on the need, the one that’s screaming out all the time. But ask yourself, “What are some of my child’s strengths? Where can I challenge my child so that he does not think that ‘he can’t?’ How do I respect my child’s special needs while still holding her to standards?”

Maintaining respect is hard no matter what kind of mother you are! Our natural instinct is to protect our children, and keep them happy and pain-free. We anticipate our children’s needs and act before they even arises. (How many of you pack a snack or Bandaids ahead of time?) We anticipate our children’s needs and plan ahead so that when the need arises, our kids are not too uncomfortable for too long.

However, part of our job is to allow our children to struggle a bit so they can build a sense of self-efficacy–a sense of “I can even though I thought I couldn’t.” To do this, assign your child a chore at home. Even though you know it may be difficult, don’t hesitate to assign the chore. Don’t take it back. Allow your children to surprise you or themselves. Let them have a victorious and amazing “I did it!” moment.

To further answer your question, try this exercise. On a piece of paper, write down what the screaming need(s) are. Next, write down the whispers. Then, think of ways to use your child’s strengths to build up the whispers to give your child and yourself the experience of success and self esteem.

How Do You Find Balance in Special Needs Parenting and Stress?

Do you have something to add to what Dr. Liz said about how to find balance in special needs parenting and stress? Share your thoughts in the comment box. We’d love to hear from you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Explaining Secondary PTSD and Stress to Others, Pt. 6

Hello, friend! It’s so nice to see you here at Different Dream. You’re just in time to  to check out the latest post in our ongoing question and answer series about special needs parenting stress, trauma, and PTSD. Here’s a quick recap of what’s been covered so far.  The first post introduced the series, while the second explained the difference between trauma and PTSD. The third post answered two question: Can the stress of raising a child with PTSD result in a parent with PTSD? What other kinds of parenting trauma can lead to PTSD? In the fourth post, child psychologist Liz Matheis explained how hypervigilance can be both a cause and a symptom of PTSD in stressed-out parents of kids with special needs. Post number five offered excellent advice from Dr. Matheis about tools or coping mechanisms to use when anxiety build or when something triggers memories of traumatic events.

Today’s question deals with an issue most parents of children with special needs wonder about at some time or another: What is an easy way to explain secondary PTSD to family and friends who think that it’s something that only people in the military suffer from? Here’s what Matheis suggests.

PTSD is not solely a condition for our soldiers and veterans. Trauma does not necessarily only involve war. This is a hard concept to explain to someone who does not understand the stress of raising a child with special needs. Remember that you are not obligated to convince others, so please don’t feel the burden of explaining with great detail or become discouraged if another person doesn’t fully get your experience. No one knows until they’re in that stressful and traumatized place.

If someone expresses that PTSD does not affect parents of children with special needs, but only those who are ‘truly’ traumatized, kindly explain that PTSD comes from an especially traumatizing experience that an individual has had. Due to the fact that we are all different and have different tolerances, what one person experiences as highly stressful, another person may experience at a medium level. PTSD also involves chronic stress, distress, and fear of the environment and how it may impact your child, your family, or you as the parent. The triggers often come unannounced and leave you feeling helpless.

The next step is to politely end the conversation and excuse yourself. Please don’t feel the need to share all of your experiences in an effort to ‘validate’ your diagnosis. This may actually cause re-traumatization in which you will now be left with a flood of emotions that you may not be able to manage by yourself.

I am going to take a moment to validate you now – you are working hard to take care of yourself and your family. Know that others will not always understand. They may sympathize, but they can’t empathize. You are doing great and you will be okay!

Your Questions about How to Explain Secondary PTSD

Do you have questions about what Dr. Matheis said? Or have you come up with a way to explain secondary PTSD that you’d be willing to share with us? If so, you’re invited to share questions and ideas in the comment box. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Dr. Liz Matheis is a clinical psychologist and school psychologist in Parsippany, NJ. She offers support, assessments, and advocacy for children who are managing Autism Spectrum Disorders, ADHD, learning disabilities, and behavioral difficulties, as well as their families. She is also a contributor to several popular magazines. Visit www.psychedconsult.com for more information.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts