Caring for a Family Member in the Hospital

Caring for a Family Member in the Hospital

Caring for a Family Member in the Hospital

Caring for a family member in the hospital became my reality once more when the nurse at my mother’s long term care facility called.

“Your mom is being sent to the ER by ambulance.”

“I’ll be there in ten minutes. Don’t send her until I get there.” Thus, my 93-year-old Mom’s recent hospital stay was launched. Mine and my brother’s, too.

Caregivers, you know what I’m talking about, right?

My brother and I took turns staying with Mom each day. She napped a lot, and I had plenty of time to compare this stint caring for a family member in the hospital to the one that introduced me to the job. Two revelations hit me like a ton of bricks.

  1. Forty years ago this spring my son’s arrival was a crash course in caring for someone in the hospital.
  2. Forty years later, the basics of caring for a family member, whether a child or adult, in the hospital remain the same.

The former of the two revelations has been over and done with for a long time. Forty years done as of this writing. A fact that astonishes me every time I do the math.

The latter of the two revelations, however, led to present day actions that made Mom’s hospital stay smoother and easier. Maybe what worked for Mom can help you do the same when the loved ones in your care are hospitalized.

#1: Make Yourself Useful

Show the doctors, nurses, and personal care workers that you are a valuable member of the care team by making yourself useful. Interpret what your loved one is trying to communicate. Be a calming influence when a painful procedure is in the works. When Mom’s care team saw me ease her anxiety by stroking her hair and coaching her to breathe deeply, they welcomed my presence during blood draws and dressing changes.

To read the rest of Caring for a Family Member in the Hospital, visit the Key Ministry website for special needs parents.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities and will be released in June of 2022.

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How Happy Haircuts Happen

How Happy Haircuts Happen

How Happy Haircuts Happen

How happy haircuts happen for kids with sensory processing disorder (SPD) is the subject of today’s guest post. Mark Arnold describes how understanding SPD leads to happy haircuts at for his son James.

We are all sensory creatures who explore, understand, and engage with the world through all our senses. This is true for those with additional (special) needs, too.

Before the Haircut

Haircuts can be a difficult experience for children and young people with additional needs. The feeling of the hair being cut, the bits of hair going down the neck or landing on the face, the noise of clippers, or seeing their hair on the floor can be too much.

Our son James only tolerates haircuts under very specific conditions.

First, he must have his hair cut on his sofa, his favorite, safe, place. Next, I must be the barber, and his mum must assist by collecting all the hair up as it falls. Third, he must have something he likes on his iPad as a distraction during the haircut.

I use clippers all over his head. It’s the only style I can do. I start at the back, out of sight, so he gets used to the clippers. Then I do the front, leaving the part around the ears until last. When only the bits of hair around the ears are left, I am nervous that James will refuse to go on and will have the weirdest hair style in town! With the soundtrack of Top Gun in my head, I take the clippers into the Danger Zone around the ears!

When the worst is over, it’s just a matter of tidying up. I check that the two sides are level, that the back looks neat, and no wispy bits have been missed. With some encouragement, and the reassurance that I’m done with the danger zone, we finish off.

A bath to remove scratchy clippings is helpful and then we are done. We offer James lots of positive praise for coping so well and a reward of his choice. Then we show him how much smarter he looks, which usually gets a smile!

After the Haircut

Routines are important. When they are followed, even difficult experiences like haircuts can be endured and completed well. That’s how happy haircuts happen at our house. Also, we only cut James’ hair every three to four months. That allows plenty of time for imperfections to grow out and for him to accept the clippers once again!

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

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10 Ways Families Impacted by Disabilities and Special Needs Can Enjoy Spring

10 Ways Families Impacted by Disabilities and Special Needs Can Enjoy Spring

10 Ways Families Impacted by Disabilities and Special Needs Can Enjoy Spring

These 10 ways families impacted by disabilities and special needs can enjoy spring was compiled by guest blogger Mark Arnold. His family, like yours, is ready for better weather whenever it comes.

If you find yourself being stuck indoors in the winter, then you might be as excited as I am to see spring coming. Little by little the days are getting longer, maybe even warmer. Snowdrops and crocuses are dazzling us with their beauty. After a couple hard years, we need a bit of cheering up and hope that life can return to normal in many ways.

Our children feel the same way too, and we know that a bit of sunshine, fresh air, and natural beauty can lift all of our spirits. These 10 ways families impacted by disabilities and special needs can enjoy spring can get your children out into nature again!

  1. Find nature everywhere.

You don’t have to live in the country to get close to nature. Look for your local park. Visit someone with a garden. Even a window box can be packed with beauty and life.

  1. What can you see?

Keep track of the different flowers and birds you can see. What else can you count? Insects? Clouds? Take photos of what you see.

  1. Embrace the mud!

Accept that it’s going to be messy when kids are in nature. Dress them in boots and old clothes so getting mucky doesn’t matter. Give them the freedom to explore without worrying about them getting filthy. Encourage them to splash in the puddles.

  1. Exercise you all can.

Depending on your child’s abilities, get some exercise outside. Go the play area in your local park. Kick or throw a ball. Walk or roll around the paths.

  1. Breathe!

While your children are exploring, stop to take in a lungful of fresh air and slowly let it out. The stresses and strains of the winter will diminish as you focus on your breathing.

  1. Look forward.

What are you looking forward to this spring? While you are enjoying the fresh air and your mood is lifted, think about what you might change this year? As you see the flowers opening up, let opportunities open inside of you too. Commit to making this a great year for you and your family.

  1. Bring a little spring indoors.

If you have snowdrops, crocuses, or other flowers in the garden, pick some with your kids. Bring them indoors to brighten up your living space. Picking the flowers may encourage the plant to produce more!

  1. Create a natural fiddles box

Collect items from nature to make a spring fiddles or fidget box. Try adapting ideas from this article, How To Make an Autumn Fidget Box, for spring.

  1. Make Memories

Take photos of what you do and see. On a showery day when you’re stuck indoors again, look at the pictures. Then get paints or coloring pens out. Have your children paint or draw what they did when you went out. It may get them excited about going out again.

  1. Have adventures outdoors with friends.

If you had fun exploring outdoors as a family, why not meet up with some friends next time? Go somewhere new that you haven’t explored yet and find new adventures together.

I hope these 10 ways families impacted by disabilities and special needs can enjoy spring puts a spring in your step!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

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Empathy and Autism

Empathy and Autism

Empathy and Autism

Empathy and autism are not mutually exclusive. Guest blogger Lisa Pelissier explains how she discovered how to unlock her autistic son’s capacity to be empathetic and shares tips with other parents.

When my son was a toddler, I distinctly remember asking the pediatrician whether he was a sociopath. He was violent with other children with absolutely no provocation. None. They would be minding their own business and he would go over and hit them over the head with a toy or kick them. He would rake his fingernails down his newborn brother’s face, drawing blood. Something was wrong. The pediatrician laughed and told me all mothers of toddlers felt that way, that my son was perfectly normal, and that he would be fine.

I believed him for a little while.

It was the coldblooded aspect of the whole thing that bothered me. If my son were angry with another child and reached out to slap or kick him, I could understand it. I could explain to him how to deal with his anger in a better way. But without understanding his motives, it was hard to figure out how to prevent the attacks. It seemed to me that he was motivated by pure scientific curiosity. What happens when I hit someone? he seemed to be asking himself. How about a scratch? Kick? Somewhere in his mind he was recording the answers methodically, perhaps.

We didn’t have a diagnosis of high-functioning autism until he was nine, although I suspected autism was the answer much earlier than that. In the meantime, I had learned that he couldn’t perceive other people’s feelings unless the other person was projecting them at full force. Blazing outrage he could feel. Sorrow accompanied by sobbing was hit and miss, depending on the volume. Joy rarely got through, nor did the love I had for him. When he was about six I remember him telling me over and over again, “Mommy, I can’t feel your love.”

Want some Mommy-guilt? There it is on a silver platter.

I found I could make him understand other people’s feelings, but only with a lot of drama on my part. Once he understood that he had made someone else sad, he was genuinely remorseful. It was like he had this huge capacity for empathy inside him, but there was almost no way to get the information through to him so that he could use it.

In my mind I think of the disconnect between empathy and autism as a learning disability. Having a learning disability does not mean a person is unintelligent, just that they need different ways to get the information into their head. Being deaf doesn’t mean a person can’t understand words. Being blind doesn’t mean a person can’t read. Having autism doesn’t mean a person can’t empathize.

My son is 21 now and he has discovered a network of autistic people online who help him understand his autism better. Not only that, he has a close friend with a similar diagnosis. They understand each other perfectly. He says that for autistic people it’s not a matter of having no empathy, but in the cues that lead to empathy being different. It is easier for him to read the body language of another autistic person than it is for him to read the body language of a neurotypical person.

You may find these tips for handling your child’s learning disability for perceiving empathy helpful:

1) Emote loudly. If you’re feeling something, your autistic child may not pick up on it like a neurotypical child would. Let your child see the full force of your joy or sadness (but not so much that it is distressing for them).

2) Use words. Explain to your child how their behavior makes the other person feel, even if it feels like it should be obvious. To a great extent, they truly don’t understand that when they perpetuate various forms of torture, it’s not as much fun for the victim as it is for them.

3) Study faces. There are resources to help autistic children read facial expressions. While we never used any particular resource, my son had a great interest in cartooning as a child, and he worked hard to get each facial expression just right. It was an activity that I believe helped him to interpret expressions.

4) Engage with animals. My son’s ability to sense the needs of our pets is much better than his ability to do the same for the humans in our family. Help your child learn to associate the empathy they have for animals with the empathy they might be able to have for other humans.

What other tips have you found that work regarding empathy and autism? Share them in the comment box below.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Lisa Pelissier lives in Oregon where she is a homeschooling mother of four (three with disabilities) and author of three middle-grade fiction novels. Lisa owns SneakerBlossom Books, offering Christian, classical homeschool Study Guides and curriculum. She also works as a freelance copy editor, an artist, and a tutor. In her spare time Lisa enjoys playing the piano and fretting about things over which she has no control. Email Lisa at sneakerblossom@yahoo.com or connect on Facebook.

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Tips for Families Traveling with Disabilities and Special Needs

Tips for Families Traveling with Disabilities and Special Needs

Tips for Families Traveling with Disabilities and Special Needs

Tips for families traveling with disabilities and special needs proliferate online as spring break and good weather draw near. Guest blogger Kristin Faith Evans and her family actually experience this type of travel whenever they go on vacation. Today she shares her best tips with Different Dream readers.

Our family enjoys vacationing together. But traveling with our daughter’s disabilities and medical needs can create a lot of stress for everyone. Over the years, we’ve discovered ways to make our trips go more smoothly. We hope these tips for families traveling with disabilities and special needs help make your vacation the best ever.

  1. Research Disability Accommodations

Request assistance in advance when making reservations. Ask for a room on the ground level to avoid the extra challenges of elevators and stairs. When flying, request disability assistance and pre-boarding when you book your flight.

Study destinations before you go and stop at guest services when you first arrive. Most theme parks offer special services including shortened wait times and sensory calm down areas. Ask if your stroller needs a special tag so you can take it in the lines.

Bring documentation of your child’s developmental and medical diagnoses including required accommodations, medications, and emergency instructions. You may need this letter at the airport, amusement parks, and customs.

  1. Plan in Extra Time

Approach the trip with realistic expectations and flexibility. Plan out your schedule, then cut out some of the activities to allow for some down time. Build in extra time so you don’t feel rushed. This will lower your stress level and your child’s.

  1. Type Up a Packing List

Gather special items, medications, and medical supplies. Forgetting the toy could equal meltdowns. Use a list to make packing less stressful and to ensure that you don’t forget anything. And begin packing early. Take extra of everything, especially medications.

If you’re flying, divide the list into sections—carry-on suitcases, personal bags, and checked bags. Split up important supplies between suitcases. Organize for going through security by packing all liquid medications, formula, and special drinks together in the same bag to easily pull out. Take noise reduction headphones and lollipops to prevent earaches.

  1. Create Visual Supports

Social stories, a picture schedule, a first-then board, and/or a token board can help your child’s emotional regulation and behavior. Use a timer to prepare everyone for transitions. If flying, check to see if a mock flight program is available in your area.

  1. Bring a Surprise Bag

Little treats and activities can go a long way in entertaining and improving your child’s mood and behavior. Pull out new sensory toys, chewy toys, movies or apps, and fidgets. If appropriate, use a token board for your child to earn small prizes.

  1. Plan for the Beach

Choose a beach with ramps and free beach wheelchair rentals. There are also usually stores that rent wheelchairs for a daily fee. Consider investing in a beach wagon as well.

Make applying sunscreen fun by allowing your child to:

    • Draw in the lotion
    • Dab with a makeup sponge
    • Sing a silly song
    • Get a massage
    • Earn a reward
    • Play on their tablet

Create a Safe Zone for your family. Mark off an area with cones, rope, or by drawing lines in the sand. This visual will help your child know the boundaries and allow everyone to relax more.

What tips for families traveling with disabilities and special needs have you discovered? Please share them in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Kristin lives with her husband, Todd, and their two children in the Nashville, TN area. As an author and mental health therapist, her greatest passion is walking with others on their journey to deeper emotional, psychological, and spiritual wholeness. As both her children have rare genetic disorders, Kristin especially loves supporting other parents of children with special needs. She hopes that you may find encouragement and support through her two websites and blogs, www.KristinFaithEvans.com and www.SpecialNeedsMomsBlog.com.

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A Visit to a Special Needs Dentist Proves the Tooth Fairy Is Real

A Visit to a Special Needs Dentist Proves the Tooth Fairy Is Real

A Visit to a Special Needs Dentist Proves the Tooth Fairy Is Real

A visit to a special needs dentist for adults was another change for Mark Arnold’s son James following his nineteenth birthday. This visit showed James and his family that the tooth fairy is real, and her name is Sarah.

A lot of things have changed for James over the past six months. His nineteenth birthday was in June. Since then he has been transitioning from children’s services to adult services. Different teams, different styles, different locations, lots of changes.

On Tuesday the ch-ch-changes train pulled in at the dentist station. Armed with visuals of the dentist, James’ toothbrush, his sensory chew, and much prayer, we told James it was time to go the new dentist. James needed time to process the new information and gather courage to go somewhere new. We reassured him that we were with him and that he would be okay.

When we got to the dentist, much was new for James. He was very unsure about it. We tried to encourage him to go into the building, but it was a step too far. Too much change to cope with in one go.

My wife Clare stayed with James, and I trotted off to the reception desk. I wasn’t sure what to expect. Would I be told to book another appointment? Would there be a cancellation fee for missing this one?

I needn’t have worried. The team was magnificent. They started planning how to see James in the car park. A few minutes later, one of the dentists, Sarah, and her assistant Jay-Jay accompanied me to the car to meet James.

They provided wonderful, gentle care. They crouched down at James’ level, so that they didn’t look intimidating. They spoke softly. They used his own toothbrush to explore his mouth. Also, using a plastic-coated dentist’s mirror that didn’t ‘chink’ on his teeth, Sarah managed a good look around, assessing almost all of James’ teeth and confirming that they were okay.

They suggested seeing him again in three-months’ time to build his confidence and familiarity with the location and team. They suggested driving by in the meantime and popping in with James so he could look around, sit in the dentist’s chair, and say hello to Sarah and her colleagues.

The visit exceeded my expectations. The team at The Browning Centre deserves high praise.

They provided lessons that can be easily transferred to school, church, clubs, and other medical or social care appointments.

  • Prepare in advance. We helped James understand a little about the visit before we got there.
  • Go at the child, young person, or adults pace. James showed us how much he could manage and when he had reached his limit for the visit.
  • Be flexible. The team at the dentist met James’ needs where he was.
  • Go gently. Sarah positioned herself at James’ level. She spoke softly, took things one step at a time, used the tools James brought, and let him tell her when he’d had enough.
  • Build confidence. This visit is a starting point. A pop in visit will help grow James’ confidence. Planning another appointment in three-month’s time will do the same.
  • Add a nice surprise. James didn’t know we were taking him to the McDonald’s drive-thru and to the New Forest afterwards. The surprise added to the good memories of this visit to the dentist.
  • Believe that there are kind and caring people out there. Our visit to a special needs dentist proves that the Tooth Fairy is real. For our family, her name is Sarah!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

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