Let Our Children with Special Needs In

Let Our Children with Special Needs In

Let Our Children with Special Needs In

Let our children with special needs in. Has that question come from your lips while trying to persuade your church to be more welcoming to your child with disabilties? Guest blogger Kimberly Drew is here to explain how often she’s had to ask and advocate for her kids at the church.

“Then Jesus said to his host,
‘When you give a luncheon or dinner, do not invite your friends, your brothers or sisters, your relatives, or your rich neighbors;
if you do, they may invite you back and so you will be repaid.
But when you give a banquet, invite the poor, the crippled, the lame, the blind, and you will be blessed.
Although they cannot repay you, you will be repaid at the resurrection of the righteous.’”
Luke14:12-14

Ryan and I have been in ministry almost twenty years together now. We started out as volunteers for a junior high youth group in my home church and have spent the last ten serving full time in his home church. We’ve had a couple stops in between but one thing has been consistent: churches are not always prepared for the disabled. They have handicap doors and ramps because building codes require them. But once you enter the doors, often times the church has no plan in place for how to assimilate the disabled into the lifeblood of the church. If you’re parents of children with special needs, like we are, you know how frustrating this can be.

I want you to know that churches aren’t perfect and neither are the people running them!

I know this for a fact because, well, I’m married to a pastor! It takes intentionality to get a church to place where people with disabilities can come in and find a place that not only meets their physical limitations, but also meets their spiritual needs while taking into consideration their mental capabilities, personalities, and gifts. Think of it this way. As parents we spend every day with our children. We spend hours in doctor’s offices and at IEP meetings just trying to get inclusion right. We have lots of practice.  

Our churches only have about an hour and a half once a week. 

Taking care of our daughters has looked very different at every church we’ve attended. We have had awkward conversations, begged for different equipment in Sunday school rooms, asked a lot of people to be a buddy to our daughters, sent e-mails begging for a sensory friendly room, and more. We are on staff. My husband is one of the pastors. If we have had to be this voice, then please know that you will probably have to be that voice as well.

Don’t be discouraged by this situation.

Remember that disability comes naturally to those who are living it, but not so much to those who aren’t. The church is full of people waiting for a calling to serve your family and your child. They just don’t know it yet. We have to give our churches the time and space to grow and change. We have to give the Holy Spirit room to move and change hearts. If you haven’t been attending church because it is difficult for your child, I encourage you to pray about whether or not the Holy Spirit wants to change your heart about this. The Lord tells us that our kids are the exact target audience for his big banquet. Perhaps God has placed your family in your church to transform it into a Luke 14 kind of place.

Perhaps He is calling you to advocate for your church to let our children with special needs in.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have three amazing kids on earth (Abigail, Jayden, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

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When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 2

When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 2

When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 2

When a teen is in crisis, parents need to be ready to respond to their children in wise and godly ways. In this two part series, guest blogger Catherine Boyle offers four strategies she learned the hard way. Because of the rapid changes experienced through the teen years, what she has to say is of value to parents raising children with special needs, disabilities, mental health issues, and their typical siblings. Yesterday in Part 1, Catherine shares the first two tips. Today she shares two more.

#3: Prepare ahead of time.

This may sound like a ridiculous concept, but for Christ-followers, it’s not. Being in God’s Word regularly, praying regularly, seeking His will and direction for your life fills your spiritual tank. Such activity may seem like wasted time, but when  a crisis comes, you’ll find that God has made you ready in some important way.

I’m not sugar-coating how hard a crisis can be. No one can be prepared for everything. Years ago, I spent a season in prayer for my extended family. I was impressed to pray for several months that we would all be ready.

Ready for what? I had no idea.

The day that my father had a seizure and doctors discovered he had glioblastoma brain cancer, I got my answer. My dad lived seven months to the day from diagnosis until he died, and it wasn’t an easy season in any way. But in my spirit, I knew God had prepared me. 

In the same way, I had been praying certain prayers the spring and summer before the crisis with our teen. Make no mistake, that was a hard season as a parent. The first time my husband and I ventured out of the house, leaving our teen at home, I had a full-blown panic attack. Struggling to contain my tears––and my fears––we returned home early before I was a total blubbering mess. Had my spiritual tank been empty, I would have been in even worse shape.

#4: Protect you child—and yourself—from those who are not helpful.

Maybe it’s the friend who loves to share juicy tidbits of gossip with the world, maybe it’s a family member who drains the life out of you. Your mission in such a time is to work with God and those He puts in your life to help your teen repair and rebuild his or her heart, and create a new direction. 

You won’t be able to be diligent in this way if you lose focus from the mission of the moment. Your teen’s actual life may depend on you not giving way to anger, despair, fear or losing faith in God. If there are people in your life who contribute to these negative emotions, gently but firmly tell them that you will not be able to talk with them until things are sorted out. During this season and in others, I chose to update certain family and friends by email, rather than attempt to talk to them.

Just like you would do all that is necessary to protect yourself from infection when you or your child has a physical wound, protection during the healing of spiritual wounds is also necessary.

No one can prepare for everything that happens as you raise your children. But if you live in Florida, you prepare as best you can for hurricanes. If you live in Oklahoma, you prepare for the day when a tornado is coming. If you live with teens, you prepare for a teen crisis. Staying prayed up, connected to your teens and to God will gird you for the unexpected day.

Part 1

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Catherine Boyle is Mental Health Ministry Director, Blog Editor and Social Media Manager for Key Ministry. Catherine has been impacted by mental health issues her entire life, including her own struggles with anorexia, bulimia, anxiety and depression. Prior to joining Key Ministry in 2018, Catherine authored Hungry Souls: What the Bible Says About Eating Disorder, and helped launch a ministry home for women with eating disorders. In 2015, Catherine founded Outside In Ministries, focusing on how the church can minister to and with people with mental health issues. Follow Catherine’s work here and at www.catherineboyle.com, Facebook, Twitter, Instagram, Pinterest and Patreon.

Author Jolene Philo

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When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 1

When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 1

When a Teen Is in Crisis: 4 Godly Ways to Respond, Part 1

When a teen is in crisis, parents want to be prepared to respond in wise and godly ways. In this two part series, guest blogger Catherine Boyle offers four strategies she learned the hard way. Because of the rapid changes experienced through the teen years, what she has to say is of value to parents raising children with special needs, disabilities, mental health issues, and their typical siblings. In today’s post Catherine shares the first two tips. In Part 2, she’ll share two more.

The phone rang late at night. That’s never a good thing, especially when one of your teens is away from home.

The words from that night are seared in my memory.

marijuana
alcohol
police
arrested 

So are some of the words from the following week.

expelled
school board
conduct officer
suspension

That phone call came a week before an event organized and hosted by the ministry I had launched a year earlier, the first time I met Key Ministry’s Dr. Grcevich in person. Let’s just say there was some significant spiritual warfare around that particular mental health ministry conference.

For me, the rest of that year and most of the next were spent in the most important ministry of all–family ministry. After all, man plans his steps, but God directs our path. I promise you there were things that I did not do right during that time. But there definitely were some things that my husband and I did well, principles that may help you and help your child when––not if––you find yourself in a crisis.

#1: Respond to your child with more grace than truth.

When you’re in a situation where you know you’ve made a bad mistake, the last thing you want is someone rubbing your face in it. Your kids are no different.

Romans 2:4 says ‘the kindness of God leads to repentance.” Therefore, the day after the late night phone call was actually pretty quiet. We did a lot of hugging without speaking. When we did have to talk about something difficult, we kept it to the point, speaking gently but firmly, conveying love above all else. Like it or not, parents represent God to their children, even teens, and a thoughtful response to teenaged mistakes is important for ongoing openness to matters of faith.

#2: Think about the possibilities, and let your teen make as many decisions as possible.

Kids have limited life experience, so a decision that upends a teen’s world can feel like the end to them. As a parent, especially in a culture where suicide is widely viewed as a way out of pain, you must do what you can in a time of crisis to show your child love and a direction beyond the pain of the moment. Beyond the immediate crisis, as a parent you must anticipate depression, isolation, and possibly anger at God as a result of unwanted changes. If adults experience these things when we face broken relationships, job losses, unexpected deaths, or even long seasons of seemingly unanswered prayer, then teens are going to respond in the same way. The only difference is that due to limited life experience, teens will feel the pain more intensely.

I’m good at research, so I began exploring all options with school, but also with counselors and other mental health professionals. There were some decisions my husband and I made that were non-negotiable––counseling and certain boundaries at home––but others were too personal and important to my teen for my husband and I to decide on our own. Adults routinely have to make difficult decisions, and part of growing up is learning how to sort through imperfect options. Encouraging a teen to make difficult decisions, even during a crisis, prepares them for a future and gives them a sense of agency.

Part 2

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Catherine Boyle is Mental Health Ministry Director, Blog Editor and Social Media Manager for Key Ministry. Catherine has been impacted by mental health issues her entire life, including her own struggles with anorexia, bulimia, anxiety and depression. Prior to joining Key Ministry in 2018, Catherine authored Hungry Souls: What the Bible Says About Eating Disorder, and helped launch a ministry home for women with eating disorders. In 2015, Catherine founded Outside In Ministries, focusing on how the church can minister to and with people with mental health issues. Follow Catherine’s work here and at www.catherineboyle.com, Facebook, Twitter, Instagram, Pinterest and Patreon.

Author Jolene Philo

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Caregiving Parents Need Friends Who Do These 3 Things

Caregiving Parents Need Friends Who Do These 3 Things

Caregiving Parents Need Friends Who Do These 3 Things

Caregiving parents need friends. As guest blogger and caregiving mom Shelly Roberts knows, parents raising children affected by disability need friends willing to foster those friendships in unique ways. See if you agree with what Shelly has to say.

Caregiving parents need friends willing to reach out to us. Sometimes we struggle to reach out, not because we don’t want to, but  because we’re just not sure how to communicate what would be helpful. I’ve been on the disability journey for several years and have found there are three main things that can make a world of difference to families.

#1: SHOW UP

A life affected by disability can feel really lonely. You can be a reminder that your friend isn’t alone. It’s okay if you don’t know what to say. Chances are you can’t really change your friend’s circumstances. Just reminding parents they aren’t facing circumstances alone will mean so much. Showing up might be a visit in person during a long hospital stay. Walking in with your friend’s favorite treat she can’t buy where she’s staying is a bonus. Showing up might also be a text about something funny (laughter is some of the very best medicine) or a scripture to cling to.

#2: SEND HELP

Your friend faces exhaustion daily. While there are things you probably can’t do for them, there are also many you can do. Sending a gift card for pizza will mean parents can focus on their family that evening instead of juggling one more thing. Buying a tank or two of gas for can be a huge load-lifter for parents who travel many miles for appointments. Offering to be taxi for a family member is a practical help for parents who can’t leave the house with a fragile child.

Hint: if you ask caregiving friends what they need, they will likely struggle to tell you. Offering specific ideas is more helpful. One of my favorites is when a friend calls from the grocery store and asks what items they can drop off to me on their way home.

#3: STAY CONNECTED

Connectedness might look a little different in various seasons. Your friend’s church attendance may be slim during flu season, but don’t forget them. Send a text and ask how their week is going. Ask to stop in for a quick visit over coffee and take some chocolate! Ask how you can pray for your friend. I guarantee you, the family will be deeply encouraged by your efforts. As children get older, connection might take creativity, especially if it’s difficult for your friend to visit your home with a child in a wheelchair. 

Don’t wait for the perfect opportunity for connecting to present itself. Keep things simple. Your friends don’t need your extravagance. They need your sincerity. Jesus modeled so beautifully how to be a friend and meet the needs of others.

“Greater love has no one than this; to lay down one’s life for one’s friends.”
John 15:13

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Shelly Roberts is a dedicated wife and mom to 8 kids from around the globe. Serving in foster care brought disabilities into her family, transforming their hearts to welcome these children as daughter and son and advocate for vulnerable children. Shelly understands the unique dynamics of families caring for complex-needs kids. She encourages and leads other families to the One who is bigger than our circumstances. She’s learned to find joy in the moment and to trust His grace for each season.

Author Jolene Philo

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When Life Doesn’t Go As Planned

When Life Doesn’t Go As Planned

When Life Doesn’t Go As Planned

When life doesn’t go as planned, I usually react in one of two ways. Either with equanimity and grace because I’m with people I want to impress. Or with grumbling and complaints because I’m with my family, and they love me no matter what. Neither response follows Paul’s call in Philippians 2:14-15 to do all things without complaining or grumbling so that I can be the light of Christ in a dark and twisted world.

For the past few weeks, my days were full to overflowingly busy, even before life didn’t go as I had planned. The beans were coming on in my daughter’s garden, which means we were canning beans a couple times a week. We finished the first batch right before I went to Chicago for a promotional book tour for Sharing Love Abundantly after it released. When I got home a few days later, there were more beans. I was fine with that, because I had planned time into my schedule for canning season.

My daughter and I were confident we could maintain the household and our job duties even though we were short a few adults. My husband was in Alaska, where he grew up, for a week. My son-in-law started a second job, so he was gone more than usual. Even so, we were handling things well until when-life-doesn’t-go-as-planned thing happened. I hurt my back.

The kind of hurt that takes days and weeks to heal.
The kind of hurt that means a person can stand or lie down, but not sit.
The kind of hurt that means a person needs 5 minutes to move from stand to lie down and visa versa.
The kind of hurt that means an ice pack for 10 minutes every hour.

To read the rest of this post, visit Key Ministry’s blog for parents.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Stepping Back Isn’t Stepping Away

Stepping Back Isn’t Stepping Away

Stepping Back Isn’t Stepping Away

Stepping back isn’t the same as stepping away. Guest blogger Kathy Guzzo, who cares for adult children with special medical needs, explains the difference between stepping back and stepping away in this post.

Our hope for loved ones with special needs is for them to be their best, which at times requires a choice for caretakers to take a step back while their loved one moves forward. However, at this point, it’s important to remember that stepping back doesn’t mean we’re stepping away.

The Preparation Process

When a child takes her first steps, she’s not set on the floor, and expected to walk. It’s a process from being held in a standing position to toddling across a room while holding a hand. But the preparation process toward walking begins in their tiny bodies at the moment of birth.

The same is true for anyone hoping to accomplish any goal, large or small. Whether it’s learning to eat with a utensil, read, throw a ball, swim, do household chores, shop, or use a walker. The preparation process is the key to success. For caretakers this is a natural progression, but at times the process must be deliberate, requiring a step back.

Stepping Back Isn’t Stepping Away

Loved ones observe daily the gradual progression of a toddler preparing to take that first steps. The caregiver knows that what comes next involves a risk. This is when the caregiver must choose to step back and allow the child to try. Not retreating far. Never turning their back to her. It’s an exciting moment, something both have worked towards. Close enough to protect her from harm while watching and encouraging.  If the child falls the caregiver is close enough to quickly scoop her up, give a hug and make the decision of when to try again. 

Stepping back to allow a loved one to try something new can be a difficult choice.

It requires confidence in both parties. Remaining close enough to observe, yet far enough away to let the other person know the end result is up to him. In contrast, stepping away is like turning a back on a toddler ready to take those first steps, hoping she figures it out and doesn’t get hurt.

Stepping away is expecting results without giving support.

Sometimes we’re hesitant to let our loved ones move forward on their own. We hope to protect them from being hurt or failing, which in our minds may mean we‘d failed in the preparation process. We need to take time to reflect on the journey to this point, including the obstacles overcome. This reflection may be the boost needed to help us change our roll from coach to cheerleader. 

Stepping back is an act of love.
Stepping away because we’re tired or frustrated is selfish.

Stepping back gives a sense of accomplishment, a chance of someone we love dearly to grow in confidence.
Stepping away may create guilt and resentment.

Stepping back requires commitment while paying attention in order not to miss the opportunities when they arise.
Stepping away is at times the easier thing to do.

When the opportunity to step back knocks, as caregivers we can share the moment from a distance, while our loved ones take the next steps to being the best they can be. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kathy Guzzo and her husband live in Northern Illinois and have 4 adult children. One of her daughters was diagnosed with lupus and Epstein Barr Replication as a young adult. Another began struggling with depression and OCD in her mid-twenties. She understands the need for her daughters to be able to make their own decisions regarding their health, but the nurturer in her sometimes has a hard time letting go. She desires to direct others to the peace and hope that God has abundantly available for them.

Author Jolene Philo

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