Autism Journey: One Dad’s Reflection

Autism Journey: One Dad’s Reflection

Autism Journey: One Dad’s Reflection

 Photo Credit: Sira Anamwong at freedigitalphotos.net

With Father’s Day arriving in a few days, I’m pleased to introduce today’s guest blogger, Tim Dahlin. We have known his family for more than two decades and watched their story unfold. Tim’s story is a touching reminder of how special needs changes and enriches the parenting journey.

Autism Journey: One Dad’s Reflection

I am a dad of a son with autism. Now no longer the baby we brought home from the hospital or the little child we could lead along, Jonathan is an 18-year-old and 6 feet tall! And it has been a journey. Recalling that journey brings back many happy memories: memories of hiking together in the Grand Tetons, scaling Harney Peak in the Black Hills, and canoeing down the St. Croix River. I remember being called into the back yard by my son where the telescope was focused on the Orion nebula and the binoculars on the Andromeda galaxy. I remember listening when Jonathan identified the pitch of the bell that went off in our car and realizing that it was not a crazy idea to try him with piano lessons after all.

Autism Journey: Not Without Pain

Our autism journey has not been without pain. I remember together with my wife packing suitcases and crates as we prepared to move back from South America to the States and realizing that the course of our lives was being irreversibly altered.

I remember sitting in church on a Sunday morning and, as we were singing “[God] gives and He takes away” and being so moved that I went running out of the auditorium.

I remember standing by my wife and being unable to fix her pain as our dreams were shattered and the future became an unknown.

But I also remember when life seemed to come unglued and a few brothers and sisters in Christ came alongside us and ministered to us.

I remember those individuals who have reached out to Jonathan and who have become his friends.

I remember coming to the realization that, far from being a source of shame, being Jonathan’s dad is a high honor and privilege indeed.

And I remember God pouring joy into my life by the bucketful.

Autism Journey: Lessons Learned Along the Way

What have I learned on this autism journey? I have learned that clouds come in dozens of forms and I have observed myriad ways that water swirls around in a creek. I have together wondered with Jonathan whether King Hezekiah was tall or short.   I have learned that behind a puzzling exterior, that at times seems impenetrable, is a world to be discovered.

I have learned that love has many languages. I have learned that God sometimes remarkably answers prayer and that when our strength runs out, God’s grace takes over. I have learned that parenting a special needs child can make a marriage deeper and sweeter. I have learned that we need those with disabilities among us in the body of Christ, the church, and that welcoming an individual with challenges has the potential for opening up fresh channels through which God’s grace may flow.

Autism Journey: No One Is Indispensable

There are times when I am tempted to leave Jonathan home from church. Well, you know, he might say or do something embarrassing. But I try not to do so for not to include him would somehow make a statement that his presence is dispensable. Dispensable, that is a horrid word, isn’t it, when we are referring to one who is made in God’s image? Embracing and welcoming any human life may very well bring pain and inconvenience along the way. That may be especially true when we are dealing with a person with a disability. But not to welcome that person or to keep that person at a safe distance will rob us of joys we might not otherwise know. How much I would have missed were it not for Jonathan!

Your Autism Journey Reflections?

Okay, Dads, now that we heard from Tim, it’s your turn to reflect upon your autism journey or whatever special needs parenting journey you’re on. You can share your story in the comment box. Happy Father’s Day!

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Tim Dahlin and his wife Carolyn are missionaries with ReachGlobal. Tim works with an online school based in Costa Rica training leaders for churches in nineteen Spanish-speaking countries. Tim and Carolyn are currently living in Fairmont, Minnesota, where they work with a Hispanic congregation. They lived and served for a number of years in Venezuela, where their three children, Joel, Karin, and Jonathan were born. Jonathan is an avid reader and loves music. He played tuba in the band and the piano. He recently graduated from high school, and his senior piano recital was incorporated into his graduation party.

Author Jolene Philo

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Happy Mother’s Day, Special Needs Moms!

Happy Mother’s Day, Special Needs Moms!

Happy Mother’s Day, Special Needs Moms!

Mother’s Day will be here soon. It’s a day of joy and celebration, but for moms of kids with special needs, it is often bittersweet. Our joy in our children’s progress is often tinged with lost dreams and small worries. Guest blogger Stephanie Ballard puts our feelings into words into a poem about memories of time spent with her young son conquering obstacles at the playground and how raising a child with special needs can draw mothers closer to God.

As winter’s hand faded away from the landscape, I found myself relishing the fresh afternoon sunshine while watching my son climb up the play structure at our local park. He is nearly 10, and he often struggles to find the strength in his weak hands to climb the ladder successfully. I watch other kids half his size climb the same ladder with ease, and for a moment, I am sad for him.

”Watch me, Mommy,” he yells when he reaches the top, and I smile in his direction with pride. I can appreciate these normal childhood moments, as his heart condition is a constant concern, and his energy level isn’t always that of a regular child. I remember when we brought him to this park for the first time. He was nearly 3, and I followed him around the play structure nervously, worrying that he might fall and get hurt. Since the time he was an infant, fragile, blue and weak…I have been a worried mother.

”Let him go,” my husband suggested that day so many years ago, “Let him be a kid.” And as the years passed by, I did grow more comfortable watching him venture out independently. But the worried mother will always remain. I find acceptance in this, while trying to retain a healthy balance.

I wonder sometimes if God watches us, as if we were  little children on a playground. We venture out into the world and strive to stand on our own 2 feet, while the trials of life attempt to vehemently knock us down. It is indeed these trials that strive to rob us of the essential things we need to move through life successfully. The virtues like faith, hope, and endurance can be difficult to maintain in times of uncertainty. I wonder if God is carefully keeping tabs from the sidelines, murmuring words of wisdom and encouragement. Perhaps he knows at some point we will fall, but he also knows that we will get back up with a renewed confidence and hope. I watched my son Braeden struggle and fall many times in the last nine and half years, not only on the playground, but in life. A new diagnosis, a surgery, an unexplained illness: these were all trials that made us stumble and falter. With time and reflection, (and a lot of prayer) we are still standing today. He is always there.

Playground

Running on the playground
My son took quite a fall.
He pulled himself up carefully
And then began to call…
Mommy…Mommy…Mommy
I’m hurt…I’m hurt…I’m hurt…
I run to him, he’s on the ground
His face covered in dirt.
I find him with his hands outstretched
His eyes are filled with tears,
I scoop him up and hug him as
I try to soothe his fears.

“It’s okay,” I tell him
(As mothers tend to do)
Now let’s go get you cleaned up
And get a Bandaid too.
I do not reprimand him
For leaving Mommy’s sight
I simply hold him in my arms
And whisper…”It’s all right.”

And then the thought occurred to me
That God must feel this way
When his own child is hurting
He whispers, “You okay”?
In a world where things do go wrong
In a world of struggle and hurt
I sometimes find…I’m on the ground
All covered up in dirt.
“But I can get up by myself,”
I say with just a sigh
“I’m strong enough to stand myself.”
I will not even cry.
And so I brush off all the dust
And stand, to my great boast
Why must we fall to realize
What really matters most?

And so I watch each step with care.
Can I avoid a fall?
But living life so carefully
Is not living at all.
I do not have the answers
(I may not understand)
But this I know for certain
He’s there to take my hand.
The playground of life lies before me
At times it’s hard to see
That open arms are waiting
To love and comfort me.
If I should fall tomorrow,
If I should fall today,
The one who holds eternity
He still says, “You okay”?

What Have You Learned?

Oops, I forgot to issue a tissue warning with Stephanie’s poem. Does it make you think of lessons you’ve learned while raising a child with special needs? Please share them in the comment box, or share your Mother’s Day plans. Happy Mother’s Day to all of you!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

Author Jolene Philo

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Valentine’s Day Thru Special Needs Thick & Thin

Valentine’s Day Thru Special Needs Thick & Thin

Valentine’s Day Thru Special Needs Thick & Thin

Valentines Day is here. My husband, Hiram, and I will give each other cards, but there will be no night out, no flowers, no chocolate, no bottle of wine. Just enjoying a quiet evening at home, a tradition that started in 1983.

Our First Valentine’s Day as Parents of a Child with Special Needs

That Valentine’s Day was our first as parents of a baby with medical special needs. It was also the year I understood what a loving person my husband is. Not because he purchased a beautiful card. Or a bottle of wine or flowers or chocolate. And not because he made reservations for a romantic dinner at a swanky restaurant. None of those things were possible that year. Our baby boy was fighting another bronchial infection. We were exhausted from nine months of life-saving surgeries, nine months of invasive medical procedures, nine months of trying persuade our little one to take enough nourishment to thrive, nine months of sleep deprivation, nine months of surrendering our dreams of parenthood to the reality of raising a baby born with EA/TEF.

How My Spouse Said “I Love You” that Valentine’s Day

Though we were tired and distracted, my husband said “I love you” in unforgettable ways:

  • Night after night, he slept in the recliner with our fussy baby so I could sleep.
  • Day and night, he diapered our baby and gave him bottles while I pumped breast milk, the only nourishment our little guy’s sensitive stomach tolerated.
  • Meal after meal, he shadow boxed in the kitchen to make our boy laugh so I could sneak a spoonful of baby food into his mouth.
  • Month by month, he attended emergency medical technician (EMT) training so one of us had a clue about how to handle our son’s complex medical needs.
  • Hour after hour, he patiently endured my frequent emotional rants fueled by an intense grief he didn’t understand.

This Valentine’s Day

That first Valentine’s Day is long past. Our baby is a grown man. He’s healthy and strong, and father of two of our adorable grandchildren. Even so, the acts of love performed by my husband 31 years ago are fresh and clear. When I look at my husband—a little grayer, a little balder, a little more wrinkled than he was 3 decades ago—I see a young father rocking a fussy baby and patting his tiny bottom. I see a young husband faithfully standing beside his hormonal, emotional wife. I see a quiet man who was tested by special needs parenting fire and proved true. I see the man I want to spend quiet Valentine’s Day evenings with as long as we both shall live.

Your Special Needs Valentine’s Day?

How has your spouse said “I love you” through special needs thick and thin? Give him or her a well-deserved shout out in the comment box. Happy Valentine’s Day!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

Photo Credit: www.freedigitalphotos.net

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities and will be released in June of 2022.

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Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Light in the Darkness of Special Needs

Our son was six months old on his first Christmas. By then he’d racked up one ambulance ride, two surgeries, three hospital stays, three airplane trips (two of them life flights to the University of Nebraska Hospital and one airline flight to a scheduled doctor’s appointment at the same medical facility), and dozens of 240-mile round trips to Rapid City for doctor’s appointments and procedures.

Call it the special needs version of the Twelve Days of Christmas if you like.

By the time the holiday season rolled around, all my husband and I wanted for Christmas was a good night’s sleep and to stay put. My parents and our extended families accepted the news graciously. A few days before Christmas, circumstances seconded our decision when our guy came down with the chicken pox. A mild case to be sure—only one pox on his forehead, a fever, and a week’s worth of fussiness—but chicken pox none the less.

About two days into the fussiness, I was shouting “Ba-humbug” louder than Ebenezer Scrooge ever did.

Our house was enveloped in darkness. My husband and I were severely sleep-deprived. Our baby picked up every virus I brought home from my students at school, or my husband carried from the clients at the boys’ ranch where he worked. Our son was allergic to anything but breast milk, but he couldn’t nurse so I spent hours day and night hooked up to the people version of a milking machine. Even so, he was below zero on the weight and height charts for his age. We lived 70 miles away from our family doctor, 120 miles away from the pediatrician, and 750 miles from doctors who specialized in treating children with our son’s condition. My faith was waning. My anxiety level was waxing.

I was drowning in darkness.

To read the rest of this post, visit the Not Alone website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon. The first book in her cozy mystery series, See Jane Run!, features people with disabilities.

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Gift Ideas for Kids and Teens with Special Needs

Gift Ideas for Kids and Teens with Special Needs

Gift Ideas for Kids and Teens with Special Needs

Okay, everybody stand up. Now, sit down if you’re done Christmas shopping. Remain standing if you’re still looking for presents for you teens with special needs or are shopping with a limited budget. If you’re still on your feet, this post is for you! If you’re sitting down, scroll down to the end to leave your gift recommendations in the comment box.

Devotional Books for Teens with Special Needs

Last month my friend Katie Wetherbee, who blogs about special needs education and special needs ministry at Diving for Pearls, uploaded a piece about devotionals for teens with special needs. Katie brainstormed with her colleague Kelly Norville, and together they created this fantastic list:

  • Soul Surfer by Bethany Hamilton, written by a real life surfer when she wasn’t much beyond her teen years. There’s a movie, too, if your teen is into that.
  • 10 Minute Parables from Group Publishing. Katie says, “This series is designed specifically for teens, so those who have difficulty with comprehension, or who are functioning on a more concrete level.”
  • 10 Minute Moments: The Basics, also from Group. This book makes the foundational truths from the book of John attainable for kids who are concrete thinkers.
  • What’s In the Bible Series from Jelly Fish Labs. This series was created for kids, but Wetherbee says the quick pace of the humor and language appeals to older kids and adults.
  • The Thirteen Most Important Bible Lessons for Teenagers from Group. These lessons offer drama and hands on material, too.
  • Believe it Or Not Bible Studies by Group. This will appeal to kids fascinated with the interesting and obscure.
  • God, Our Father by Friendship Ministries is an long time, solid standard for those with special needs.

You’ll find Katie’s list at Solutions: Finding Devotional Materials for Teens with Special Needs.

Gifts around $10 for Kids with Special Needs

Sylvia Phillips, a Different Dream guest blogger, has also published a list of gifts for kids with special needs. Every gift is around ten dollars, extra appeal if you’re on a budget. Her list includes:

 What Are Your Best Special Needs Gift Recommendations?

Okay, if that helped you finish your Christmas shopping, sit down and put your feet up. For the rest of you, it’s now your turn. What gifts do you recommend for kids with special needs? Leave your ideas in the comment box. Merry Christmas!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

Photo Credit: www.freedigitalphotos.net

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Just the Successes: Special Needs Christmas Advice

Just the Successes: Special Needs Christmas Advice

Just the Successes: Special Needs Christmas Advice

Guest blogger Becky Hallberg offers a welcome holiday suggestion to parents of kids with special needs. Her wise words are guaranteed to lower your stress, put a smile on your face, and encourage you to focus on the reason we celebrate Christmas. So read on…

Just the Successes

The holidays are a tricky time for our family. This time of year is full of traditions, the sparkle of lights, and the melody of Christmas music. But how do you cope when these exact things, which we all look forward to, when they are possible triggers for a family member? How do you deal with all of the “what-if’s” that the season brings?

We live near a major city and so the opportunities for enjoying the holidays, and all the glitz and glamor that go with them, are pretty much endless! It’s the perfect place for a Christmas-lover like me! I would love to take our kids to all of the light displays, musical productions, festively-decorated areas, and soak in the goodness of time spent together!

And then the big, glaring reminder of all the sensory issues sneaks in to smack me in the face. We have one who can’t always tolerate those things – but sometimes he can. What do you do, as a parent, when things may go exceedingly well, or they may fall apart horribly?  What’s the right choice to make?

I wish I had the answer, all perfectly-figured, decisively-calculated, and beautifully-packaged, to hand to you. That would be quite a gift, wouldn’t it? I’d love to receive that gift, and I’d love to pass it along to you!

I spend time each year, wondering—worrying, even—about our decisions as they pertain to our son and what he may or may not be able to tolerate.

Are we pushing too much?
Not pushing enough?
Will he survive waiting in the line?
Will he miss doing (whatever it may be) if we don’t try?
Are we doing something wrong?
Are we doing anything right?

That’s a lot to wrestle with, in just considering whether or not to go on an outing. I often find myself figuring that skipping something may be the easiest option—no lines, no hassle, no sensory overload. And then the mommy guilt sets in.

Can I attempt to encourage you? Our feelings, as parents—mine, yours, his, hers—they count. They matter. They are valid—every last one of them. If I feel this way around the holidays, I’m sure many of you do as well. I am so grateful to have my faith in a loving God, who I can share my feelings with, openly and honestly. Let’s face it—He is God, He already knows how I feel.

I’m learning that my child’s ability to cope does seem to get a little better as he gets older. However, his age is no guarantee for success in any situation.

And that one word—success—is such a key word in all of this.

What if you and I decided that we would only accept being defined by our successes this Christmas season? What if our yardstick for measuring our enjoyment of the holidays was only made up of the successful moments? We could do that, you know—just count the successes.

Chances are, we know there will be moments that aren’t successful—maybe even whole days. But what if we shook it up a little this year and decided in our hearts that we wanted to measure only the successes?

What if I shared my successes with you, and you shared yours with me, and together, we held those precious gifts as reminders that all that we do as parents matters. It’s vitally important. But we don’t need to carry the sting of things going wrong. Take the hurts, the shattered plans, the missed opportunities, the doubts, questions, and worries and leave them with Jesus. Let Him heal the hurts and mend the wounds.

Let’s sit with Jesus in the warmth, love, and delight of all that you are doing well. Let’s measure our enjoyment of this time of the year by the successes and thank Him for those times. I will cling to those as we move through the holidays and into the New Year. Will you join me?

Remember:
just the successes

Becky and I invite you to share your successes in the comment box. To read more from Becky visit her blog, Shar Sharing Redemption’s Stories.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Author Jolene Philo

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