November is Caregiver Awareness Month

November is Caregiver Awareness Month

November is Caregiver Awareness Month

November is Caregiver Awareness Month. As someone who became one of my dad’s caregivers before I started school, I grew up thinking everyone in the world was aware of caregivers and caregiving. As young adults, my husband and I cared for a son born with a life-threatening medical condition—and his typical sibling. As members of the sandwich generation, my brother, sister, and I cared for our mother for 15 years after she was diagnosed with dementia.

This explains why, when I first heard that November is Caregiver Awareness Month, I was incredulous, and I still am.

How can the general public be unaware of family caregivers? I think most people are aware that family caregivers exist. That said, I do believe that most people aren’t aware of what family caregiving is like.

They aren’t aware of the sacrifices made by members of a caregiving family.

They aren’t aware of the commitment family caregivers make.

They aren’t aware of the isolation family caregivers experience.

They aren’t aware of the joy caregivers find in actively living out their love for family.

They aren’t aware that caregiving is a holy calling.

They aren’t aware of how to support and encourage caregivers.

I could write an entire post about each item on that list, but for now I’d like to suggest 10 ways you support and encourage caregiving families you know and love.

  1. Be present. Mobility and toileting issues make it hard for caregiving families to come to your home, so visit them in theirs. Or in the hospital. Or at their residential facility. If face-to-face options don’t work, set up FaceTime, Zoom, or phone calls. Or text. Or email. Do whatever you can to show caregivers you value them and want to connect with them.

To read the rest of November Is Caregiver Awareness Month, visit the Key Ministry’s blog for parents of kids with special needs and disabilities.

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Photo by Luis Quintero on Unsplash

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.

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Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing faith struggles and doubts as special needs parents is normal says guest blogger Kristen Faith Evans. In today’s post she describes her journey and ways she found to draw closer to God when she doubted his goodness.

When my disabled daughter was younger, I didn’t understand how common it is for special needs parents to experience faith struggles. Gut-wrenching questions and chronic grief can create spiritual angst. I now realize that during this time of pain and confusion, we can deepen our intimacy with God and receive His comfort and help. But instead of drawing closer to God in my heartache, I pulled away in hurt and anger. I felt guilty for my thoughts toward God, so I stopped praying. As a result, I grew disillusioned with God, and my depression and anxiety worsened.

Consider these ways of drawing closer to God:

  1. Honestly cry out to God.

It can be easy to distance ourselves from God when shame-provoking thoughts arise. We may experience intense emotions and serious questions such as these:

  • Confusion: “Why is God allowing my child and family to suffer?”
  • Guilt: “Is God punishing me?”
  • Bitterness and anger: “Why did I not have a healthy/typically developing child? or “Why did God allow the accident/illness to happen?”
  • Doubt: “How could God be good?”

Many parents believe they shouldn’t be wrestling with these feelings or that they would be sinning if they admitted their questions. However, in Scripture we have the example of Job crying out to God, “Therefore I will not keep silent; I will speak out in the anguish of my spirit, I will complain in the bitterness of my soul” (Job 7:11). Job expressed his honest emotions and questions without cursing God or sinning (Job 1:22).

Distancing ourselves from God can cause us greater mental, emotional, and spiritual suffering. We learn in Psalm 139:1-4 God already knows what we are thinking and feeling. So, I encourage you to not delay in having an honest conversation with God.

  1. Find comfort in the promises of Scripture.
  • For guilt and shame: “Even if we feel guilty, God is greater than our feelings, and he knows everything.” (1 John 3:20, NLT)
  • For sadness: “The Lord is close to the brokenhearted and saves those who are crushed in spirit.” (Psalm 34:18)
  • For confusion: “The Holy Spirit prays for us with groanings that cannot be expressed in words.” (Romans 8:26b, NLT)
  • For doubts: “The Lord is good to all; he has compassion on all he has made.” (Psalm 145:9)
  • For hopelessness: “And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” (Romans 8:28)
  1. Seek support in Christian community.

It can be tempting to isolate and hide our true thoughts from others. Yet, other parents who have walked through similar spiritual struggles can support and encourage us with their faith and wisdom. They can pray and intercede for us. We also can uplift others. God “comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.” (II Corinthians 1:4, NLT)

I hope these practices bring you strength and healing while addressing your faith struggles and doubts as special needs parents.

All Scripture references are from the New International Version unless otherwise noted.

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Kristin Faith Evans, MA, MS, LMSW is an award-winning author, national speaker, Licensed Master Social Worker, and a special needs mom. She is passionate about empowering caregiving parents with the skills to thrive, as well as equipping the professionals and ministry leaders who support them. Kristin and her husband recently released their new book, How to Build a Thriving Marriage as You Care for Children with Disabilities. She has served in ministry for over a decade and is experienced in couples, child and family, substance abuse, and crisis interventions. Connect with Kristin and find lots of free resources at DisabilityParenting.com.

Author Jolene Philo

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God’s Plans for our Children are Like a Puzzle

God’s Plans for our Children are Like a Puzzle

God’s Plans for our Children are Like a Puzzle

God’s plans for our children are like a puzzle larger than any Sandy Ramsey-Trayvick has ever completed. In today’s post she describes how putting together jigsaw puzzles had shown her to trust in God’s plans for her kids.

I began doing jigsaw puzzles again while we were sheltering in place during the COVID pandemic. As I got back into my reactivated hobby, I remembered what I’d always enjoyed about putting them together. I loved watching the emergence of the picture or landscape as it was slowly revealed with the addition of each new piece. Of course, it was no surprise to see the picture revealed; I knew it was already there waiting to be displayed. However, knowing the picture was already there didn’t take away from the pleasure of its revelation.

God’s plan for our children—the potential he has placed uniquely in each of them to help move his kingdom forward—comes in pieces. Like a puzzle. And he provides our kids with opportunities and experiences for those pieces to come together—step-by-step, one piece at a time. The Lord already knows the picture he wants to reveal, yet he requires us to trust him with what it will look like. We don’t get to decide what his planned outcome for our kids will be; he does. However, we do get to participate in the picture’s emergence as we help our children step into the opportunities and experiences he provides.

The most challenging puzzles for me are the ones which include varieties of shapes and sizes in the puzzle pieces—no two exactly the same. Some of the pieces are so oddly shaped that it appears initially they’d fit nowhere. Yet, each piece of the puzzle, even those with the most convoluted shapes and unexpected sizes, is needed to complete the final picture. One of my greatest puzzling pleasures is discovering the spaces where those hard-to-fit pieces actually belong.

Though Scripture promises each of us that God has a good plan for our lives, it can be challenging to understand how a particularly difficult circumstance or a long, hard season could ever contribute to something good. These are the puzzle pieces that seem initially like they’d never fit anywhere in God’s good plan. And they may continue to look that way for a while, until more of the picture, the plan, emerges.

There is a process involved in putting jigsaw puzzles together that must be followed in order for the correct picture to be displayed. Each puzzle piece has to be added at the right time. Some pieces won’t fit into the puzzle until other pieces are in place first—to create the connection to the rest of the puzzle. If we try to circumvent the process by forcing pieces into places where they don’t actually fit or if we leave out pieces we don’t like, the finished puzzle will not reflect the intended outcome. In fact, the finished product will look wrong and confusing. Yet when we adhere to the process of adding each piece at the point when it can be connected to other pieces, the beauty and purpose of each piece becomes evident and clear.

God’s plans for our children are like a puzzle. He adheres to his process of revealing his plan for our children and so must we. When pieces of our child’s life don’t seem like they could ever fit into something good, we can trust God to provide the opportunities and experiences for every piece to come together at the right time for something beautiful to emerge.

We are confident that God is able to orchestrate everything
to work toward something good and beautiful
when we love Him and accept His invitation to live according to His plan.
Romans 8:28 (The Voice)

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Sandy and her husband of 34 years live in NJ and have 3 young adult children. She became a special needs mom, caregiver and advocate 24 years ago, after a childhood illness left her son multiply disabled.

Sandy works now as a Certified Professional Coach with a desire to help other special needs parents move forward into the powerful story that God wants to write through their family’s unique special needs journey.

Sandy is also a writer and speaker, a community group leader for other special needs moms, and a frequent podcast guest. She has just released her first book, When Dreams Are Disrupted – A Story of God’s Faithfulness.

You can learn more about Sandy, her work and her blog on her website: www.UNDisabledLIVES.org and on IG (@undisabled_lives).

Author Jolene Philo

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God’s Power Is More than Sufficient to Answer our Prayers

God’s Power Is More than Sufficient to Answer our Prayers

God’s Power Is More than Sufficient to Answer our Prayers

God’s power is more than sufficient to answer our prayers. As Christ-followers, we know that. What we don’t know is how he will do it. Guest blogger Mark Arnold is here with a story about how his prayer was answered on a very rainy day.

Each Thursday, we take our son James to his craft session at the community center. It is one of the few things that we can get him to attend. Even then, he does the craft activity in the car. To get him there, the weather needs to be “Goldilocks” weather… not too hot, not too windy, and not wet at all. Otherwise, James struggles to transition from home to the car, and massively struggles to transition back from the car to the house when we get home.

Today we took a massive risk. It was raining lightly when it was time to go to the craft class, but we went for it anyway. James only realized that it was raining when he got outside. I quickly shut the door so he had to dash for the car. He quickly settled in the back seat and was fine. I, however, was still worried.

It’s one thing hurrying James from the front door to the car, but it would be an entirely different one to get him to leave a dry, warm, car to dash through the rain to the house when we returned from the craft activity. It once took an hour and a half to get him out of the car and into school while I held an umbrella to shelter him from the rain while I got soaked. Today I had visions we might be having tea in the car, a sleepover in the car, Help!

Humanly, this day would be really hard, so I sought higher help.

“Lord, you know this is looking really difficult, please when we get home help James to transition quickly from the car to the house. In human terms, this is unlikely, but to you nothing is impossible.”

We drove on. My worries remained. What would happen? Had God heard my prayer? Would he answer in the way that I hoped?

Home got nearer, and my anxiety increased. As we were pulling onto the drive, the rain got stronger. It was time to get James out of the car. I prayed again.

James noticed the rain when it dripped on his leg as the car door was opened. He shrank back into the car. He noticed some rain on the inside of the open car door and wiped it away too. He showed no sign of being willing to come out of the car.

Where was God? Had he heard my prayer and ignored it?

I got an umbrella. I did everything in my power to coax James out. Nothing worked. My power was not enough.

I noticed that the rain had stopped. James noticed it too. One leg emerged from the car followed by another. He shuffled forward.

I wanted to rush in and encourage him, but felt a sense of “Stop. Wait.” I stopped. I waited. James hesitantly stood up and headed for the house.

My power had not been enough. In this case, it was not needed. God’s power was more than sufficient.

He had answered my prayer and used it to teach me something. It’s not all about me and what I can do. Sometimes it’s about standing back, watching, and seeing that God’s power is more than sufficient to answer our prayers in ways we don’t expect.

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

Author Jolene Philo

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We’re Proud of our Kids with Special Needs!

We’re Proud of our Kids with Special Needs!

We’re Proud of our Kids with Special Needs!

We’re proud of our kids with special needs, right? Guest blogger Steve Harris is proud of his two sons with disabilities. In today’s post he explains why he believes parents of kids with special needs and disabilities often struggle to express that pride in today’s culture.

At the Democratic National Convention last month in Chicago, TV viewers got a glimpse of something special. That moment got noticed, talked about, analyzed, even criticized. (Let’s not get into politics.) What people witnessed was a flash of spontaneous interaction between a parent and child. But not just any child. A child with special needs.

What I’m talking about happened during the acceptance speech of Minnesota Governor Tim Walz. As the cheering crowd welcomed Walz to the podium, there was suddenly a TV screen shot of his 17-year-old son Gus, who we later learned has a nonverbal learning disorder. The young man was laughing, beaming, clapping, and pointing.

“That’s my dad!” Gus exclaimed in a moment of over-the-top, joyous pride.

Walz was asked later what he had felt in that moment. “I am so proud of my son,” he said.

All parents feel pride for their kids or certainly want to. In my book Dads Like Us, I included a chapter about this because families with children who are disabled actually struggle with this. We’re proud of our kids with special needs, but our pride doesn’t fit in normal boxes like academic or athletic achievement. We don’t quite know what to do with the pride we feel or how to express it. We keep it hidden pretty deep.

I am proud of my two sons, both disabled.

They won’t get good grades or attend prestigious colleges. They won’t win football trophies or make big money in successful careers. But, wow, the things they can do! Both have smiles that melt hearts, they show kindness to others, they’ve lived through pain without bitterness or complaint. They aren’t perfect. I’m even proud of their humanness.

Big picture, I am one proud dad.

Maybe this pride thing works best when we look at life through the new glasses of 1 Samuel 16:7.

“…The Lord does not look at the things people look at.
People look at the outward appearance,
but the Lord looks at the heart.” (NIV)

Tim Walz also encouraged parents to hug their kids. We do that with love. We can also say that we’re proud of our kids with special needs and disabilities. They deserve it!

Thanks, Gus, for showing your pride in your dad and for helping us celebrate how proud we are of you and our kids with special needs.

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Photo on the right courtesy of Steve Harris, “My son, Andrew, feeling pretty proud about the fish he just caught!”
Fish Photo by Sebastian Pena Lambarri on Unsplash

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Steve Harris—www.steveharrisauthor.com—recently published “Dads Like Us: A Survival Guide for Fathers Raising a Child with Disabilities.” He lives with his wife, Sue, in Lanesboro, Minnesota. Reach him at steveharrisDLU@gmail.com.

Author Jolene Philo

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A Song for Encouragement

A Song for Encouragement

A Song for Encouragement

 

Encouraging families impacted by disabilities is one reason this blog exists. Since 2008, Different Dream has published hundreds of articles to encourage and equip parents caring for children with special needs.

Today’s post provides encouragement in the form of a music video created by Steve Siler, an award-winning songwriter. You may have read his Different Dream post, Whole in the Sight of God, which he contributed a few months ago.

When asked why he wrote the song and then produced this video, he said, “I wrote this song after learning my son would be born with spina bifida. The recording engineer and string arranger who worked on this song with me also have families touched by disability. I pray this new video will encourage and bless all those who are loving a child with a disability.”

I hope the music video “Whole in the Sight of God” touches your heart as it did mine.

Thank you, Steve, for once again encouraging families impacted by disabilities.

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Three Photos by Ryan Wolfe, One Photo by Jason Morrison—on Disability Is Beautiful

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Steve Siler is founder and director of Music for the Soul a multi-award-winning not-for-profit ministry using songs and stories to bring the healing and hope of Jesus to people in deep pain. Siler is a Dove Award winning songwriter, music producer, author, and speaker. He is co-host of the Music for the Soul Podcast: Where Music, Hope, and Healing Come Together! He and his wife Meredith have two children and three grandchildren.

Author Jolene Philo

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