Special Needs Parenting and the Importance of Forgiveness

Special Needs Parenting and the Importance of Forgiveness

Special Needs Parenting and the Importance of Forgiveness

Special needs parenting is hard work, a fact guest blogger Amy Stout knows from experience. She also knows the part forgiveness plays in keeping a marriage strong. In today’s post she transparently shares how she learned how to ask for forgiveness.

The Sock Under My Nose

I am the proud and resilient mommy of a little girl who experiences special needs. She is my one and only child, so my introduction to mommyhood was and has been quite different than I had planned.

A Special Needs Mom’s To-Do List

My days are full of making doctor’s appointments, researching treatments, following up on test results, updating family and friends via our Caring Bridge page, coordinating procedures, filling out insurance paperwork, appealing insurance denials, applying for resources, setting up and attending therapy appointments and all the other day to day tasks.

They are also full of convincing my daughter to eat (something she hates to do), prying her fingers off the door frame so we can bathe her (also something she hates), working on her speech, occupational therapy, social and anxiety goals. We have also been teaching her sign language, appropriate manners, how to request things she wants, and how to answer, “Yes, I’d like that” or “No, thank you.”

Precious minutes are consumed explaining to cashiers in stores why our daughter does not respond when they greet her and why she does not make eye contact when spoken to. We also work to smooth over the hurt feelings of relatives and close friends who feel slighted when our daughter does not return their affection, behave excitedly over their gifts, or desire their hugs.

And yet, the general business of maintaining a life and home are still on the list to be addressed: laundry, dishes, preparing meals, vacuuming, paying bills, and filling the car with gas, grocery shopping, lawn maintenance, trash removal, and so many other necessary responsibilities. The priority list must also include quality time to build, maintain, and nurture my marriage, friendships, a spiritual life, personal health needs, investing in the community, and any private goals I might desire to achieve. My to-do list is endless.

Special Needs Parents’ Marriage Pact

At 6 months of age, my baby girl stopped sleeping. She would be up every two hours the entire night, and it didn’t take long for my husband and me to become completely exhausted. We functioned the best we could, but throw into the mix all of the administrative duties of raising a child who experiences special needs and, let’s face it… we were beyond tired.

My husband and I learned quickly that we needed to make some ground rules and agree to be extra-forgiving toward one another as when we were trying to function in the early morning hours on next to no sleep, we found we weren’t at our best emotionally nor were we high achievers on the patience and kindness meter. We made a pact that any impatience or grouchiness toward one another that occurred between midnight and 7am the next morning was never to be held against the offending party. Forgiveness and understanding poured forth in our marriage like never before.

Special Needs Parenting Frustration

On one particular night, when my daughter woke in the wee hours of the new day, I went to her room and began to attempt to rock her back to sleep. When I did, I noticed that she was missing one of her socks. My husband had stopped in to check on us and I sweetly asked him to please look for the sock. Fumbling in the darkness, my servant-hearted husband looked and returned a few minutes later telling me that he could not find her sock.*

During the daylight hours, this was a joke between the two of us and would elicit light-hearted teasing such as “If it were a snake, it would have bitten you” or “sometimes you might actually have to MOVE something to find it.” However, on this particular night, his inability to find her sock quite annoyed me and I was in no mood for jokes. I sarcastically informed him that socks don’t just get up and walk away.

So this time, using a flashlight, he picked up her mattress, looked under her blankets and behind her bed.

With every exchange, our voices were getting less sweet and more rigid and our (trying to be quiet yet insistent) verbal hissing became more determined.

Feeling quite irritated at his lack of being able to locate the sock, I requested, through gritted teeth, that he look again.

This time, he looked under her bed, by the changing table (she could have thrown it), and on the floor.

There was still no sock.

My daughter, who preferred to be rocked, facing out, was enjoying our nighttime communication dance immensely. (At least someone was having a good time)

When I had finally had it, I told my husband to come and rock our daughter so that I—finder of lost socks extraordinaire—could locate the sock.

Special Needs Parenting Forgiveness

My husband, still using the flashlight in a futile attempt to be discreet, approached the rocking chair. When he was about two feet away, he abruptly stopped. A purely mischievous grin traveled across his face and an incredibly EVIL laugh bubbled forth from within him.

By now, I was completely perturbed with my husband and I asked him what was so funny. He was laughing so hard he couldn’t even respond, and, instead, pointed to my daughter’s left side. I looked down and noticed my precious daughter was waving to her daddy. To my dismay, there, on her left arm, was the missing sock! Somehow, in the night, she had taken off her sock and put it on her arm like a sock puppet! The sock had been under my nose the entire time!

Needless to say, apologies were exchanged, a tiny dose of crow was consumed, and we have had many laughs over this very humbling story. My innocent daughter unknowingly played a very funny and timely joke on her very tired and overwhelmed mama.

Score one for her!!

*Note: This is the same husband who will stare directly at an object and insist he cannot see it. I am sure no one else experiences this in their home.

Score One for You

What lessons in forgiveness have you learned? How have those lessons improved your marriage? Leave your story in the comment box and make us smile.

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Photo Credit: www.freedigitalphotos.net

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Amy Stout is a wife, mother, and free-lance writer. You can visit her website at His Treasured Princess.

Author Jolene Philo

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Talking Books: An Overlooked Resource

Talking Books: An Overlooked Resource

Talking Books: An Overlooked Resource

Talking books have been around for a long time. My dad used them during the late 1960s and early 1970s after multiple sclerosis gave him double vision and made reading difficult. But with the rise in popularity of audiobooks among the general public and availability in a variety of formats, I forgot about the free resource Dad enjoyed so much.

The Talking Books Program

The Talking Books Program is a service of the National Library Service for the Blind and Physically Handicapped (NLS), a division of the Library of Congress. The talking books website says the service is available “through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail.”

Talking Books Kids’ Zone

The home page, which isn’t very pretty, has a link to the NLS Kids’ Zone. That page contains these categories (and a few teaser titles) for audio, braille, and print/braille book from the preschool to eighth grade levels:

Award winners

Bibliographies

Selected Series

The site also has links for kids’ magazines and state listings for the libraries in the talking books network.

Talking Books Kids’ Catalog

The main page also has links to a searchable kids’ catalog, and information about who’s eligible and how to sign up for the service. None of the links are pretty, but the products are free. So take a look and see if your child qualifies for the service.

If you already use the service, please leave a comment about your experience. Or share tips about how to maximize your child’s enjoyment of talking books. Thanks!

photo credit: www.freedigitalphoto.net

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

 

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

Author Jolene Philo

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10.  It’s a chance to finally sing bass. Then again, with a throat that feels like raw meat, who wants to sing?

9.    Those with stock in a tissue company can feather their own nests. But who takes out stock in a tissue company?

8.    Colds are easier to weather now that I’m not teaching school. Then again, I don’t get a lot of sympathy sitting around the house all day.

7.    Plugged ears are a good excuse for not listening to people. But they make it hard to keep up with the latest gossip.

6.    People are more respectful of personal space when someone has a cold. Either that or they’re too grossed out by hanging boogers to stand nearby.

5.    Colds create the perfect excuse for taking a nap in the middle of the day. Which means there will be more work than normal to do upon recovery.

4.    Colds provide a legitimate reason to say “no” when someone needs a volunteer. But colds turn potential volunteers into emotional weaklings who say “yes” when they should say “no.”

3.     A cold gives sufferers an opportunity to rest and recover while watching daytime TV. Then again, does anyone define daytime TV as restful?

2.    A cold makes a person appreciate good health. Except colds make most people are so miserable they think they’re gonna die and never be healthy again.

1.    A cold is one of those gifts that keeps on giving, the kind to share with anyone and everyone. Unfortunately, people sometimes give it back.

Fresh Summer Salsa

Fresh Summer Salsa

 

Our CSA is providing a bountiful supply of tomatoes, onions, and peppers. So many, in fact, that finding ways to use them has been a weekly challenge. Thankfully, shortly before Mom gave up housekeeping, she gave me this recipe for fresh summer salsa which uses oodles of the veggies taking over the kitchen.

It is a winner, as was proved at our recent Labor Day Family Reunion. The crowd chowed down a double batch of salsa and two bags of chips in less than an hour, and people begged for the recipe.

To keep you from begging, it’s posted here, along with a few tips. First, you can change the amounts of vegetables to suit your taste. (For example, I find 1 jalapeno per double batch is plenty.) Second, I chop the tomatoes first and put them in a strainer to drain out excess liquid while chopping everything else. Otherwise the salsa can be pretty runny. With those tips in mind, have at it!

Fresh Summer Salsa

2 cups peeled, chopped tomatoes        2 cloves garlic, minced
½ cup onion, chopped fine                    ¼ cup green pepper, chopped
1  jalapeno pepper, chopped                 1 banana pepper, chopped
¼ cup cilantro, chopped                        2 tablespoons lemon juice
1/4 teaspoon salt

Mix ingredients together in a bowl. Put 2/3 cup of the vegetable mixture in the blender until it reaches the consistency you like. Put the blended vegetables back into the bowl and stir well. Refrigerate at least two hours before serving to allow the flavors to meld.

What Do You Give a Woman Who’s 84?

What Do You Give a Woman Who’s 84?

Mom turns 84 today. This year, we didn’t think she had the stamina to make the trip to the Labor Day Reunion being held in northwest Iowa. So in honor of her birthday, the post written for the occasion last year has been reposted below. If you read to the very bottom, you’ll find out there is something new to give a woman who’s 84!

What Do You Give a Woman Who’s 83?

Mom’s birthday was Saturday, and as was mentioned in a previous post, we (meaning 20 people in her extended family, including her baby sister, Donna, pictured above) celebrated in style with the traditional family birthday cake. What wasn’t mentioned in the post was my personal quandary that has grown more perplexing as Mom grows older.

What do you give a woman who’s 83?

Mom doesn’t like to be given stuff because once it’s hers, she frets about it.
“What should I do with it?” she asks.
“Where should I put it?” she asks.
“Do you want it?” she asks.
Kinda defeats the purpose of giving a gift, when she wants the giver to take it back.

This year, I rationalized away the quandary this way.
“Baking the German chocolate cake is my present to her,” I thought.
“Sharing my bed with her for the reunion weekend is my present to her,” I thought.
“Hiram sleeping on the floor for the reunion weekend so she could sleep in our bed is our present to her,” I thought.
“Hosting 20 people at my house for the weekend is my present to her,” I thought.

But do you know what?

Throughout the weekend,
the more I watched her listen to the young adults describe their forays into grownupdom,
the more I saw her enjoy watching everyone play yard games,
the more engaged she became during several rousing games of Catch Phrase,
the more I realized my thoughts were not rationalization.
Instead, those thoughts were the answer to the quandary.

What do you give a woman who’s 83?
The gift of your time.
This year, the sibs and I came up with something to give Mom. We had the signed poster she received from Kairong Liu, the Chinese artist she tutored when he was college student, matted and framed. We’re taking her out to supper tomorrow evening and giving it then. So shhhh, don’t say a word!