Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing Faith Struggles and Doubts as Special Needs Parents

Addressing faith struggles and doubts as special needs parents is normal says guest blogger Kristen Faith Evans. In today’s post she describes her journey and ways she found to draw closer to God when she doubted his goodness.

When my disabled daughter was younger, I didn’t understand how common it is for special needs parents to experience faith struggles. Gut-wrenching questions and chronic grief can create spiritual angst. I now realize that during this time of pain and confusion, we can deepen our intimacy with God and receive His comfort and help. But instead of drawing closer to God in my heartache, I pulled away in hurt and anger. I felt guilty for my thoughts toward God, so I stopped praying. As a result, I grew disillusioned with God, and my depression and anxiety worsened.

Consider these ways of drawing closer to God:

  1. Honestly cry out to God.

It can be easy to distance ourselves from God when shame-provoking thoughts arise. We may experience intense emotions and serious questions such as these:

  • Confusion: ā€œWhy is God allowing my child and family to suffer?ā€
  • Guilt: ā€œIs God punishing me?ā€
  • Bitterness and anger: ā€œWhy did I not have a healthy/typically developing child? or ā€œWhy did God allow the accident/illness to happen?ā€
  • Doubt: ā€œHow could God be good?ā€

Many parents believe they shouldn’t be wrestling with these feelings or that they would be sinning if they admitted their questions. However, in Scripture we have the example of Job crying out to God, ā€œTherefore I will not keep silent; I will speak out in the anguish of my spirit, I will complain in the bitterness of my soulā€ (JobĀ 7:11). Job expressed his honest emotions and questions without cursing God or sinning (JobĀ 1:22).

Distancing ourselves from God can cause us greater mental, emotional, and spiritual suffering. We learn in PsalmĀ 139:1-4 God already knows what we are thinking and feeling. So, I encourage you to not delay in having an honest conversation with God.

  1. Find comfort in the promises of Scripture.
  • For guilt and shame: ā€œEven if we feel guilty, God is greater than our feelings, and he knows everything.ā€ (1Ā JohnĀ 3:20, NLT)
  • For sadness: ā€œThe Lord is close to the brokenhearted and saves those who are crushed in spirit.ā€ (PsalmĀ 34:18)
  • For confusion: ā€œThe Holy Spirit prays for us with groanings that cannot be expressed in words.ā€ (RomansĀ 8:26b, NLT)
  • For doubts: ā€œThe Lord is good to all; he has compassion on all he has made.ā€ (PsalmĀ 145:9)
  • For hopelessness: ā€œAnd we know that in all things God works for the good of those who love him, who have been called according to his purpose.ā€ (RomansĀ 8:28)
  1. Seek support in Christian community.

It can be tempting to isolate and hide our true thoughts from others. Yet, other parents who have walked through similar spiritual struggles can support and encourage us with their faith and wisdom. They can pray and intercede for us. We also can uplift others. God ā€œcomforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.ā€ (IIĀ CorinthiansĀ 1:4, NLT)

I hope these practices bring you strength and healing while addressing your faith struggles and doubts as special needs parents.

All Scripture references are from the New International Version unless otherwise noted.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo byĀ Aaron BurdenĀ onĀ Unsplash

By

Kristin Faith Evans, MA, MS, LMSWĀ is an award-winning author, national speaker, Licensed Master Social Worker, and a special needs mom. She is passionate about empowering caregiving parents with the skills to thrive, as well as equipping the professionals and ministry leaders who support them. Kristin and her husband recently released their new book,Ā How to Build a Thriving Marriage as You Care for Children with Disabilities. She has served in ministry for over a decade and is experienced in couples, child and family, substance abuse, and crisis interventions. Connect with Kristin and find lots of free resources at DisabilityParenting.com.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Fear versus Faith

Fear versus Faith

Fear versus Faith

Fear versus faith is a distinction guest blogger Valeria Conshafter discovered while raising a daughter with a life-threatening birth condition. In this post she explains how parents raising kids with disabilities can tell the difference between fear and faith.

When you look at my daughter, you see her beauty and her youth, the healthy teenager she is. When I see my daughter, it’s from a perspective that encompasses blessings with trauma, gratitude with hurt.

I go right back to the times when we almost lost her.

People who know us may have already forgotten what it was like for her years ago. For me, the memories remain.

Years have passed and I am still healing.

I remember months at a time when parenting was all about life and death. That was also the time I started to learn about the dynamic between faith and fear.

Fear came unexpectedly.

We did not know our daughter, Sofia, would be born with a rare defect. After a decade of infertility treatments, the expectation for her arrival was a dream come true. Fear took over fast. The anticipation of the most special day of our lives turned into a nightmare.

The months following were like carrying around a heavy dark cloud above my head. The multitude of specialists and the waiting of surgeries became our daily routine rooted in an excruciating fear of the unknown.

I learned then that fear takes over like a storm from a hurricane.

You don’t know how bad it is until it hits you. You lose your focus, your peace, and yourself. Living in fear is a constant state of alertness telling you that the worst is yet to come. It is like being paralyzed in a story that is not yours. It’s a vortex of emotions where you can easily get out of control. It’s not a safe place because you can’t see past the struggle.

Fear seems like the end.

You see, during the most difficult times, when I watched the doctors call Code Blue again on my daughter, this deep and desperate cry inside my soul urged me to kneel on that cold hospital floor and give up.

Sofia’s first surgery 24 hours after her birth was also a time I started my faith journey.

During the despair of my daughter undergoing extremely long and difficult surgeries, faith showed up despite the fear in my heart. My mother pleaded with me to pray in gratitude for Sofia’s life when her diagnosis first reached our ears.

How was I supposed to pray, I thought, when my world is crumbling?

Throughout the months following that first surgery and the dozen surgeries after, I became acquainted with fear versus faith.

I learned that faith takes practice.

Faith is the practice of letting go and letting God in. It’s an intentional act of releasing all my burdens to God, trusting He has this. Even when I cannot see past the battles I am facing.

Fear gets out of control because I am not in control at all.

In certain circumstances while dealing with Sofia’s health, I believed that fear had a deadline. I dwelt with fear until I reached the end of its rope. Then I had nothing to hold on to. I had to release it and let go. In other words, I had to hope that something greater than fear would take over because I could not handle it anymore. Nothing else to do, no more crying, no more medicine. Faith in God was all that I had left.

So, I turned to faith, and as I waited, fear subsided.

Faith reigns. Fear doesn’t. Fear takes your breath away. Faith gives you an opportunity to breathe and rest. In every unknown medical situation my daughter goes through, I can be certain that fear will be there to greet me. But I also know that faith will carry me through whatever we may have to endure.

Faith overcomes fear.

When you see my daughter, I hope you see the miracle her life is, a proven example of fear versus faith. When I see her, I remember everything and smile in gratitude for God’s faithfulness.

I can now see past the trauma and the hurt because my faith is greater than my fear ever was.

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Ā Image courtesy of Valeria Conshafter

By

Valeria Conshafter is a native of Brazil. She has a background in Counseling Psychology and currently works for a women’s organization providing emotional and spiritual support to women all over the country. She loves writing, cooking, and praying for her family and friends. Valeria lives in Houston, Texas, with her husband Todd, their 15-year-old daughter, Sofia, and their two Standard Poodles, Chocolate and Oreo. You can find Valeria onĀ Instagram,Ā Twitter, andĀ Facebook.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

It’s Going to Be a Different Kind of Mother’s Day

It’s Going to Be a Different Kind of Mother’s Day

It’s Going to Be a Different Kind of Mother’s Day

It’s going to be a different kind of Mother’s Day for you this year.

God whispered those words to me as I waddled into the doctor’s office in early May of 1982. Never mind that my husband and I wouldn’t see our first child until May 23. My husband and I had felt our baby’s kicks for months. God’s whisper assured me that I was already a mother.

What I didn’t realize when God spoke to me was that He was preparing me for what only He knew was coming. Our baby would be born with a serious birth condition. It would make every Mother’s Day for several more years very different from what I expected.

Some would be spent in the hospital with our medically fragile baby.

Some would be spent debating whether or not we should rush him to the hospital.

Some would be spent rejoicing that our miracle baby had become a healthy adult.

All would be spent realizing that had our boy been born in a different day and age, we would have had him with us for only a few days.

As the second Sunday in May approaches this year, I hear God whispering to me once again.

It’s going to be a different kind of Mother’s Day for you this year, Jolene.

This time, God’s not referring to our son. He’s doing well. This time God is talking about my mother.

To read the rest of It’s Going to Be a Different Kind of Mother’s Day, visit the Hope Anew website.

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image byĀ Jill WellingtonĀ fromĀ PixabayĀ 

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

I Press On

I Press On

I Press On

I press on is all a special needs parent can do sometimes. Guest blogger Kelly Simpson returns to talk about what she’s learned about pressing on while raising a child with special needs. She ends with some great ideas to help you press on during hard times, too.

During my husband’s deployment, our newborn was in the Neonatal Intensive Care Unit (NICU) for 19 days. That stay was short compared to other families, but long enough and overwhelming for a first-time mother who was also walking through her husband’s first deployment. Our son’s first year was also long and hard—nine plus surgeries and procedures. I pushed through this season while working full time. Sulking and rolling around in my circumstances would have been easy to do, but it would not have been a healthy choice.

With each surgery or procedure, I had faith that it was going to get better. It had to get better.

It was going to be okay. We were going to be okay.

Eventually I ran dry on my own determination and drive. I could only be sustained from endurance given to me through Christ Jesus, so with His help, I pressed on.

Seasons of life take me high and leave me low. Jesus has to be my cornerstone—He is who I have to build my life on. 2Ā PeterĀ 2:6 it says, ā€œI lay a stone in Zion, a chosen and precious cornerstone, and the one who trusts in him will never be put to shame.ā€ My walk in life must bring God glory—the surgeries, the tears, the mess, the mountains, and the valleys. I am his and chosen. He will walk with me each step of the way on my journey. He is with me, and he will be with you too.

But I press on to make it my own, because Christ Jesus has made me his own.
PhilippiansĀ 3:12.

Doesn’t the Lord know His plan for me? Doesn’t he know every hair on my head? Hasn’t he stood before time and seen every second of my life? Because he is God, there’s not a place where I’ll go that he has not already stood.

So I press on.

Rolling around in self-pity, asking why, and running conversations over and over in my mind only leaves me dry. I have to go past that. When worry, fear, and doubt are heavy in my mind, I lift it up and I press on! I ask for His presence and strength, then I press on! It’s not the easiest to do, but each time it gets a little easier.

I’m writing this article from a valley and that is no surprise to God. I know when I am in my deepest pain, at my darkest point, my brokenness can be used when I surrender it to Him.

I want to leave you with encouragement and steps so that you can press on!

I press on toward the goal for the prize of the upward call of God in Christ Jesus.
PhilippiansĀ 3:14

5 Steps for Pressing On:

  1. Prepare to move on. It’s natural to question and to be upset, confused, and hurt. Accept and realize you cannot stay in that place.
  2. Completely give your situation over to God. If you find your mind wandering, give it back to Him again, and again.
  3. Surround yourself with people who will encourage you and point you back to Christ.
  4. Try one or more of the following ideas. Listen to uplifting music, read and hold on to God’s promises and His word, read a book about a helpful topic, journal.
  5. Keep going in your life. Take each day as it comes. Take steps forward. Times get hard, but life does not stop, and neither can you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image byĀ wal_172619Ā fromĀ Pixabay

By

Kelly has lived her whole life in Kentucky. She and her husband, Jeremy, have an almost-four-year-old son, who, born during a deployment, was diagnosed withĀ tracheoesophageal fistula (EA/TEF). She has always felt a calling to serve others and is living the dream as an Army wife, middle school teacher, and now, as an encourager to those who are living a dream different than they had planned.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

The Days Are Long, but the Years Are Short

The Days Are Long, but the Years Are Short

The Days Are Long, but the Years Are Short

ā€œThe days are long, but the years are short.ā€

I repeat this phrase while I sit on the couch listening to my 7-year-old grandson read for a half hour every evening.

Each time he turns a page, he says something like, ā€œWow, Grammy! What do you think that is?ā€ or ā€œI wonder what will happen next?ā€ He ignores the words on the page and launches into several winding, imaginative explanations.

My grandson really, really likes to talk. And use his imagination. As for the reading part? Not so much.

Which is why I eventually have to suggest, ā€œRead the page and find out.ā€

He follows my suggestion—he can read more fluently than he believes—and finds out. Then he turns the page and begins the same process all over again.

To contain my impatience, I whisper to myself, ā€œThe days are long, but the years are short.ā€

One evening as we read, my mind wandered back to when our son was young and medically fragile. When complications arose—maybe he had a fever, refused to eat because of an oral aversion, or vomited his food because of an esophageal blockage—our days were very, very long.

Should we wait to see if he got better? Or worse?

Could we wait until morning to go to the doctor? Or call him right now?

Should we race to the emergency room in our car? Or should we call the ambulance?

Not only were the days long, but also the nights.

When our son turned four, I told my mother, ā€œThe years since he was born feel like a lifetime. Maybe it’s because we haven’t gotten a complete night of sleep since he was born.ā€

Mom smiled and said, ā€œThe days are long, but the years are short.ā€

To read the rest of The Days Are Long, but the Years Are Short, visit the Hope Anew website.

Do you like what you see atĀ DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Image byĀ Donnie0102Ā fromĀ PixabayĀ 

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly With Special Needs Families: The 5 Love LanguagesĀ® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Sing!, the second book in the West River cozy mystery series, which features characters affected by disability, was released in November of 2022.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts