Small Things and Special Needs Joy

Small Things and Special Needs Joy

Small Things and Special Needs Joy

 Photo Source

Special needs joy pops up in the small things. That’s what guest blogger Kimberly Drew discovered recently. She felt great joy as she observed her daughter with multiple disabilities make very real progress in a series of small things.

Small Things and Special Needs Joy

Sometimes the greatest joy can come from the smallest accomplishment. Not that long ago, Abbey came home from school and went right to the kitchen. She pulled out a yogurt from the fridge, went to the drawer and got a spoon, and then sat down and started hitting the table to get my attention.

Small Things as Parents

I thought I was going to pass out….she’d never done anything like that before. I was completely amazed that she not only recognized hunger, but knew where to get food, what food she wanted, that she needed a utensil, where to get it, that we eat at the table, and that she needed my help. Hey, that’s a lot going on in the brain if you ask me.

When your child doesn’t speak or communicate, you sometimes have no idea what’s going on inside of them. Abigail continues to surprise us in so many ways. The first time she laid down in the tub to play and knew to keep her mouth out of the water, the first time she asked for her hearing aids by pulling on my shirt and touching her ears, the first time she tried to jump off of a curb, and so many other moments that could easily be forgotten if they hadn’t meant so much to us.

It’s those small things that keep us going when we’re struggling through the list of milestones still not met. Those moments give us strength to keep trying and fighting. No small victory is unnoticed or uncelebrated.

Small Things as Children of God

It isn’t any different with the Lord. Recalling God’s goodness and faithfulness over the small things can sometimes give us the strength needed to wait on God through the more difficult trials we face. It’s so important to recognize his hand at work in our lives, and if we don’t pay attention, we can miss so many ways he reaches out to us, answers us, and loves us. Having eyes to see and ears to hear is a spiritual analogy. If your child lacks either of those senses as mine does, then you understand at an even deeper level how important they are and what this really means.

For this people’s heart has become calloused; they hardly hear with their ears, and they have closed their eyes. Otherwise they might see with their eyes, hear with their ears, understand with their hearts and turn, and I would heal them. But blessed are your eyes because they see, and your ears because they hear. Matthew 13:15-16

Opening our eyes, mind, and heart to seeing God’s faithfulness, goodness, and love toward us keeps our hearts in a place of gratitude. No matter how small things may seem, each time we experience God’s hand in our lives, they must be noticed and celebrated. Recounting it to him will help us to hang on in our difficulty and also bring glory to God as we praise him and acknowledge all he’s done for us. Psalm 77 shows a man crying out to see God’s hand at work and then it comes to the psalmist.

I will remember the deeds of the LORD; yes, I will remember your miracles of long ago. I will meditate on all your works and consider all your mighty deeds.

This moment of recounting God’s ways caused a shift in his whole demeanor. It can cause one in ours too!

What Small Things Are Bringing You Joy?

How are you finding special needs joy in the small things at your house lately? Use the comment box to give them a shout out if you like.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have four amazing kids on earth (Abigail, Jayden, Ellie, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Autism Overload and Elephants in the Room, Pt 2

Autism Overload and Elephants in the Room, Pt 2

Autism Overload and Elephants in the Room, Pt 2

 Photo Credit: vectorolie at www.freedigitalphotos.net

Yesterday, in Part One of her series, guest blogger Sarah Broady mentioned how autism overload is part of every day life for her family. She writes about it on Facebook, thinks about it on dates with her husband, and talks about it on the phone with friends. Today, she explains how she’s come to terms with autism–the elephant in the room–over the past few years.

Autism Overload and Elephants in the Room, Pt 2

Autism Overload and Grief

I am happy to say autism doesn’t bother me nearly as much as it did a year ago. Before coming to what I think was true acceptance of my son having autism, I grieved over every one of these thoughts. Sometimes I was in autopilot mode and did what I needed to do or made the necessary decisions in the moment without falling apart. But for all the internal thoughts, for every post I read or wrote about autism, for every déjà vu realization that this autism thing was really real, I grieved. It came in various ways, which would require a whole different post, but it came.

Autism Overload and Acceptance

There are probably definitely parents out there who might read this and be angry at me or maybe just angry in general. Angry that I’m okay with something that isn’t okay, even though they understand the continuous onslaught of autism questions and musings. Frustrated that they are not there yet. Not that I have reached some pinnacle of acceptance that negates any grief of future challenges. I’m not trying to brag that I don’t struggle like everyone else. I do. It’s just that things are different now. My struggles are the same, but the way I handle them takes on a different form. Usually. I’ve just come to accept that this is part of my life, so it doesn’t always bother me to see so much autism stuff in my email and Facebook news feed.

Autism Overload and Faith

I think that this is one area of my life that is proof positive of the hope that I have always clung to that is real and true: Jesus is King and is making all things new–now. I can’t wait for the day when autism is no longer a struggle because all struggles will be ultimately and finally conquered forever. But for now, He has given me grace more than sufficient for my need to be okay in a not okay world.

Invitation to Talk

If you’re not okay right now, bogged down in the autism world, that’s okay. We don’t have to be okay all the time. I just want you to know that Jesus is your “hope in autism” with immeasurable grace for your every need. Please feel free to contact me at sarah@spacelots.com if you need someone to talk with. Sometimes you just need another person who can honestly say, “I understand.”

You can also read more about Sarah and her family at her blog Hope in Autism.

Autism Overload and Elephants in the Room: Part 1

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Sarah Broady and her husband have three boys. Their second son is autistic. Sarah is an autism advocate and has spoken to state capitol committees to secure better services on behalf of families living with autism. Her greatest joy comes in being an encouragement to other parents who are walking the same road she is walking. She blogs about their life raising a son with autism as they hope and delight in God at Hope in Autism. and interviews people involved with disabilities and special needs at A Special Hope Podcast. She is also writing a book that gives hope in Jesus on the special needs path. She speaks at Christian-related special needs events to reach parents on a more personal level. You can contact Sarah through her blog or by email at sarah@hopeinautism.com.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Autism Overload and Elephants in the Room, Pt 1

Autism Overload and Elephants in the Room, Pt 1

Autism Overload and Elephants in the Room, Pt 1

 Photo Credit: Jerome von Oostrom at www.freedigitalphotos.net

Autism is part of life for guest blogger Sarah Broady and her family. But sometimes her concern for her son with autism oozes into every facet of her life. In the first post in her series about autism overload, she describes how autism is always on her mind.

Autism Overload and Elephants in the Room, Part 1

Autism Overload on Facebook

I had my Facebook page open on the computer recently and my husband needed to use it. He scrolled through and noticed the autism pages that I like and follow. Some are small groups I’m a part of made up of only parents of autistic kids, some are faith/autism centered, and some are pages just like mine that are personal pages about families living with autism. “Wow. You have a lot of autism ‘stuff’ on here.”  His next comment hit me in a funny way. He said, “You just can’t get away from it, can you? You can’t do something without autism being involved?”

My response? No. Not really.

I bet that whatever is most important to a person is most talked about and represented on their Facebook news feed. Mine does include lots of autism posts and memes. Wanna know why? Because autism is kind of a major deal in my life. My son is autistic. That is not something I can ever get away from.

Autism Overload on Dates

My husband and I have been on at least one long getaway together, several overnighters, and many dates alone while parents and friends have blessed us with babysitting. While my mind might off the kids while watching a movie or spending time with my sweetheart wherever we are, autism is still there. I wonder how Sam is doing. Autism moves to the forefront when I get a phone call asking how to handle a meltdown when they’re in Target and he wants a toy that was over the budget I had set for him. (The answer, by the way, is to just give him the toy. It makes everything so much smoother for everyone involved, so long as he shows appropriate behavior and calms down before being obliged.)

Autism Overload Every Stinkin’ Day

The point is, I am usually thinking of autism for a good portion of my day. Every day. 

Every. 

Stinkin’. 

Day.

 I have this blog so I can get those thoughts out of my head. I’m writing a book, so various themes and ideas run through my mind and out into one of the many journals I keep for brilliant idea-writing. As I scroll through my news feed, I read the struggles of other parents–mostly moms like me.  Of the fifty+ autism articles, I typically read a few. The articles jump start my thinking on that particular topic, or reminds me of something else about autism. That leads me to talking things out in my blog, or in a few sentences on Facebook to get a conversation going.

Autism Overload When I’ve Had Enough of It

Despite all of this, I (sometimes) don’t mind all that much. Don’t get me wrong here. It doesn’t mean I like it. I still have my moments when I have just had ENOUGH of autism. Then I call one of my good autism mom friends, and we talk about how we’ve had enough of autism. Even in doing so, we’re still talking about autism. Because it’s part of our lives, and it will not just disappear. All we can do is try to cope the best way we can. We try to talk about other things, but we can only ignore the elephant in the room for so long. We can’t chat long before one of us whips out Applied Behavior Analysis (ABA) therapy for our son in the middle of the conversation. We don’t even say, “Hold on.” There’s no time. We just start talking to our kid while the other person realizes they are no longer being listened to and waits patiently. Because we get it. And then we laugh, and we sigh. . . or cry. . .

Do You Understand Autism Overload?

Can you relate to Sarah’s situation? If so, leave a comment about when autism overload invades your life. And come back tomorrow for the rest of her post about autism overload and the elephant in the room.

Autism Overload and Elephants in the Room: Part 2

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Sarah Broady and her husband have three boys. Their second son is autistic. Sarah is an autism advocate and has spoken to state capitol committees to secure better services on behalf of families living with autism. Her greatest joy comes in being an encouragement to other parents who are walking the same road she is walking. She blogs about their life raising a son with autism as they hope and delight in God at Hope in Autism. and interviews people involved with disabilities and special needs at A Special Hope Podcast. She is also writing a book that gives hope in Jesus on the special needs path. She speaks at Christian-related special needs events to reach parents on a more personal level. You can contact Sarah through her blog or by email at sarah@hopeinautism.com.

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Special Needs Ministry: Meet Michael’s Village

Special Needs Ministry: Meet Michael’s Village

Special Needs Ministry: Meet Michael’s Village

Our post for the day comes from guest blogger Susie Stefonowich. After reading Karen Jackson’s post about her daughter’s confirmation, Stefonowich submitted this piece about a young man in the parish where she and her husband lead an ecumenical special needs ministry.

Special Needs Ministry: Meet Michael’s Village

I truly began to appreciate the saying “It takes a village” when Michael, a man who experiences cognitive disabilities and attends our church, asked to become Catholic. His roommate, Max, a man who experiences Down Syndrome is a Fourth degree Knight in the Knights of Columbus. Therefore Michael knew what being a Knight meant and wanted to join. However, he was told he needed to be Catholic to do this.

Special Needs Ministry and Kits from Loyola Press

After contacting Michael’s family in North Carolina, we found that he had never been baptized. So, baptism is where we began. There is not a written curriculum for an adult with cognitive disabilities to become Catholic, so we needed to develop one for Michael. We decided to use kits produced by Loyola Press as our guide. These kits were developed for children who experience autism, but are helpful with anyone with cognitive disabilities.

Michael’s Special Needs Ministry Village

My husband and I assumed we would sponsor Michael, but then 2 people volunteered to sponsor him. Amazing, as sometimes its difficult finding sponsors for persons who do not experience disabilities. Michael had two without even asking! So began Michael’s Village.

Since Michael was not raised in the Catholic Church, we began teaching him how to bless himself with the sign of the cross. This was difficult for him as some of his motor skills are limited. Also, he had difficulty remembering exactly how it should be done. Immediately after we met on Sunday mornings and before mass started, he walked up to everyone and said, “Look!” and then attempted to do the sign of the cross. We tried to be there and explain, “Michael is learning the sign of the cross.”  They began to help him….so more villagers.

From January until Mother’s Day, we and Michael’s sponsors worked with him on Sunday mornings. Once we set the date for his baptism, he invited everyone. Every Sunday, after class, he walked up to anyone and everyone and told them he was going to be baptized. Then he called one of us to give the specific details. He would say, “I want you to come!” More villagers, as many said they would be there.

Michael was baptized on Mother’s Day 2014 with many of his friends and his family from North Carolina in attendance. He was so excited and so spontaneous, he affected everyone who was there. Michael’s innocence and sincerity showed our entire parish of over 1200 families how wonderful and simple God’s love truly is.

Michael’s Special Needs Ministry Village Continues to Grow

Michael’s village grows weekly. We will continue helping to prepare him to receive his other sacraments (Eucharist and Confirmation), and in the near future he will accomplish his dream of becoming a Knight of Columbus.  My husband and I, along with his other sponsors all agree, that Michael has taught us much more than we could ever teach him about God’s love.

Your Special Needs Ministry Success Story?

Do you have questions or comments for Susie? Leave them in the comment box. Or leave a shout out about the good things happening in the special needs ministry at your church.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page. 

By

Susie Stefonowich worked as a pediatric nurse at the Children’s Hospital in Norfolk, VA for 38 years. She is also the parish advocate at Church of the Holy Family in Virginia Beach, Virginia. She and her husband coordinate The Chosen Ministry, an ecumenical special needs ministry. They are the parents of Colleen, who 29 years ago was born 12 weeks prematurely. Colleen has some cognitive disabilities which led to the Stefonowichs’ involvement in the special needs community. God works in mysterious ways!

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Special Needs Parents Need Lavish Rest

Special Needs Parents Need Lavish Rest

Special Needs Parents Need Lavish Rest

 Photo Credit: papaija2008 at www.freedigitalphotos.net

Special needs parents need rest. But where to find it? That’s the problem guest blogger Rebekah Benimoff asks and answers in today’s guest post. So put your feet up and rest while you read her post.

Special Needs Parents Need Lavish Rest

In this moment, I need the simplicity of quiet and rest. I live just far away from family to not be at every event, and often, phone calls bridge the gap between celebrations and attending. My special needs family requires living differently, in many ways.

This creates an overwhelming need in me to draw apart and simply seek peace in the inmost places.

Daily, weekly…even on special celebration days. Years ago I would have made the trip, two weekends in a row. I would have pushed through managing multiple medical issues, until I was spent, filled only by fatigue and utter exhaustion. I learned the hard way what works, and what, in the end, only depletes wellness.

Sometimes I feel confined by diabetes, post-traumatic stress disorder, and sensory processing disorder. Yet, most days I recognize the intentional hemming in. Not despite the boundaries, but because of them I have learned what it is to continually press in. I understand that I can not deal with all this on my own.

To move forward, I have to seek strength beyond what I can muster.

Still, it is easy to become engrossed in the day to day managing of so many special needsand when I am engulfed in a mess of medical mayhem, I often press on without pressing in. In these times, I tend to carry an awful lot of baggage and not even know it. Life tumbles on, and I deal in bursts–bursts of hormones and blood glucose levels, eruptions of emotions, and battles of will. Balancing diabetes symptoms with hormonal surges in these last months has been exhausting.  After a long season of addressing diabetes complications due to puberty, this first week of summer has lit up an urgency in me, an essential letting go and an intentional filling up.

My son’s endocrinologist asked him this week what he was doing over the summer. His answer? Resting. Simple and to the point. We need recovery time. While other families traipse to camps and theme parks and family vacations, what my family needs most right now is rest.

We need a different kind of recreation in this season.

A quiet refreshing, a time to recover, to be enfolded in tranquility, allowing serenity to nestle deep into the places that are filled only by seeking stillness, quietude. It’s all good. Relaxation is a needed resource, a necessary life gift. A way to unwind before I unravel, a conduit of connection with my Source. So today, I will call those I love, connecting over the miles, and then, I will engage in purposeful refueling. I will close my eyes, breathe deep, give thanks for the many gifts in my life, and I will revel in…

…lavish rest.

Your Needs As a Special Needs Parent?

What’s your greatest need as a special needs parent? Is is lavish rest, like Rebekah, or does something else restore you? Share your insight in the comment box. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Rebekah Benimoff is the wife of a husband with PTSD and the mother of two young men, both of whom grew up with medical and special needs. She blogs at In the Chaos…. and In the Calm (justmemama.blogspot.com).

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts

Rest for the Rest-Less Special Needs Parents

Rest for the Rest-Less Special Needs Parents

Rest for the Rest-Less Special Needs Parents

 Photo Credit: Serge Bertasius at www.freedigitalphotos.net

Guest blogger Rebekah Benimoff and her son, who lives with diabetes, continue to travel through a rough patch. The long wait for his blood glucose levels to even out is making Rebekah feel rest-less. Today she talks about how she is learning to take time to find rest for the rest-less.

Rest for the Rest-Less

Some days I run until I’m breathless. I run in the park, straining forward, pushing beyond my own strength, praying–and reaching through the wind to the One who is my help. 

I run home–more of a brisk walk–up the hill, around the corner, feet pounding in time with every exhale. I fill my belly with fuel for the day and press on, managing medical needs. Calls to doctors and medical supply companies, organizing finances and our home. Not a rushing, no, more of a steady pace to get through the list of priorities.  Asked to take breaks along the way to listen to needs and respond. Then, time for more fuel, and I begin to wilt, realizing my need to STOP and press in.

This season stretches on, nights broken by multiple blood glucose checks, days punctuated by calls from the school nurse–daily, hourly. Every moment seems to hold difficult decisions to be made: should my man-child push through diabetes symptoms to be at school one class period longer, or should he come home and rest–and later have to make up what he’s missed? Sometimes ketones make the decision for us.

The weeks fly by and while I take in the beauty of spring, I wonder where time has gone…praying I spent it well, managing the days, rather than using them up. For when I rush through and forget where to find sustenance in the One who IS my strength and wisdom…well, then I find I am all out of breath again.

So I am learning to create moments of connection throughout the day, often around meals. As I nourish my body, I seek to refuel in soul and spirit, too.

Today’s release was an exercise in soaking…lingering. Leaning back, truly resting. A sweet voice lilted through iTunes:

You dwell in the songs that we are singing
Rising to the heavens,
Rising to your heart, your heart

Our praises, filling up the spaces
In between our frailties and everything you are.

You are the keeper of my heart

Truth sings out…

And I’m rest-less, 
I’m rest-less, ’til I rest in you 
’til I rest in you 

I’m rest-less, 
I’m rest-less, ’til I rest in you 
’til I rest in you, Oh God. 

I want to rest in You

~Audrey Assad

I sat up tall and straight, like I was taught, working to sing along. But the song would not ring out until I leaned back, resting fully in the One who is my Peace. I did everything I had been trained to do–yet I couldn’t support the notes until I truly knew the rest and filling of his Presence.

What is it that connects you to God’s presence? What fills you up with love for him, and grants true rest for you?

For me, it can be quietness and prayer, or pouring out as I walk and run in nature. It can be worshipful music swelling, my arms lifted high in praise, or sweet moments granted in the midst of chaos.

Connection can take many forms, but almost always, it requires a purposeful drawing apart. A time to exit the ambient noise of this life and be still so I can be filled. 

My heart’s cry as I care for my special needs family is that I would focus on relationships–with my husband and children, and my God, too. It is God who “arms me with strength and keeps my way secure.” (Psalm 18:32, NIV). He “aims my way” (The Message), brings focus and wellness. Every moment is an opportunity to connect, and when I respond to His invitation, my whole life becomes a prayer:

I will always be rest-less, until I rest in You. Be my Lord, order my steps. I commit to rest in God my Rock, for you are my Peace in every moment.

Do You Need Rest for the Rest-Less Times?

Is it sometimes hard for you to find time to rest for the rest-less when the demands of special needs parenting press in? What do you do? Leave your advice about rest for the rest-less in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

By

Rebekah Benimoff is the wife of a husband with PTSD and the mother of two young men, both of whom grew up with medical and special needs. She blogs at In the Chaos…. and In the Calm (justmemama.blogspot.com).

Author Jolene Philo

Archives

Categories

Subscribe for Updates from Jolene

Related Posts