Are You Too Tired to Heal?

Are You Too Tired to Heal?

Are You Too Tired to Heal?

Do special needs care giving demands leave you exhausted? Are you numb with grief? Guest blogger Rebekah Benimoff knows how you feel—too tired to heal, too tired to hope.

To Tired to Heal

Sometimes it feels as if I am too tired to heal. I just want to get away for a bit, to have a much-needed respite from the madness. When life is spinning out of control, it’s hard to work through the losses that have come before. Often there seem to be many stops and starts along the way. Sometimes the best case scenario is simply staying connected to the One who carries me through. Survival is important, yes, but connection is imperative.

A Cloak of Weariness

Weariness settles over me, like a cloak of dust, penetrating into the inner recesses of my being. When bent low by burdens, I wonder if the weariness will cling to me for life. I want to shrug out from under the careworn mantle, but I know that this time, the only way to find release is through rest.

Fatigue is a part of the healing process. There comes a time when our bodies simply need rest. When dealing with multiple life changes all piling up at once, sorting through seems complicated. I often liken the process to searching through a bowl of tangled spaghetti strands with sauce poured over, obscuring what lies under the surface. I’ve learned to ask, “Why am I feeling what I am feeling?” and “What, exactly am I really feeling?” Most of the time anger is a mask, hiding more vulnerable feelings beneath. I feel more in control when I am angry than when I feel lost or abandoned. Anger is easier to admit to, for who wants to admit to being broken? Yet “broken” is often a better descriptor of where I am, and what exactly I am feeling.

 Loss Mingled with Hope

My story is one of loss mingled with hope. In my mind’s eye, I travel back to that moment when my world first stopped. When my son’s life, and mine, changed forever. One word, meant to diagnose, alters everything. I did not grieve the first diagnosis for a very long time. I made it my mission to defeat the disease. To conquer the diabetes. To control the boy’s blood sugar. To control everything. Nothing was gonna hurt my baby again. Or me.

Three years later, when my husband was deployed to Iraq (for the second time), I was at the end of my rope. I signed up for an inner healing study, and the work began. Slowly, the layers were removed until we came to that tender place—the wound… the diagnosis that changed everything I do daily. It was during this time that God drew my heart to a familiar story in a fresh way.  I read how Abraham and Isaac journeyed up a sacred mountain to make a sacrifice that would break body and soul. Isaac carried the wood, and Abraham carried HOPE. He tells the servants,  “We will go up the mountain and we will return.”

My First Step Toward Healing

And then I felt the urging to place my own beloved son on the altar before Jehovah-Jireh, my provider.  I envisioned laying my precious child on the altar before a loving father God, and in my mind’s eye, he took my son and cradled him. Surrender was my first step towards healing. And still is. In those times when one diagnosis (or several at once) are causing upheaval in my daily life, it’s time to search out that well worn path to the altar. When I release my hold on the illusion of control, I am set free. Set free to find hope, set free to do the good work of healing. Through prayer, introspection, good counsel, and times of rest, I move forward to that place of greater wholeness. Sometimes it is hard work. But, at the end of the day I find that healing is worth the work, and rest is the vehicle that allows the work of healing to carry on.

What about You?

Do you feel too tired to heal today? Or have you taken that first step on your journey toward healing? Leave a comment about your journey, and I will pray for you.

photo credit: www.freedigitalphotos.net

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Rebekah Benimoff is the wife of a husband with PTSD and the mother of two young men, both of whom grew up with medical and special needs. She blogs at In the Chaos…. and In the Calm (justmemama.blogspot.com).

Author Jolene Philo

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Safe Harbor for Special Needs Parents

Safe Harbor for Special Needs Parents

Safe Harbor for Special Needs Parents

Safe harbor can be a hard place to find for parents raising kids with special needs. In the poem below, guest blogger Stephanie Ballard describes her search for safety and her gratitude for what she learned along the way.

In Need of Safe Harbor

I sat on a hill looking out at the endless blue waves on a recent trip to Lake Michigan. I wondered where the water met its end. “I cannot remember the last time I had quiet time to myself to simply think,” I told my friend while rubbing my hands over the silky white sand. I feel at peace here, watching the waves roll in with a steady assurance. Life has changed since my son Braeden was born with multiple health issues. Sometimes I am so tired that I wonder where I will continue to get strength for the battles that lie ahead. I can only hope that my source of comfort and hope is as endless as the water that helped to ease my fears and uncertainties that day. Either way…I am forever changed since he came into my life. I am also surprisingly grateful.

Safe Harbor

What happened to that woman,
Carefree and naïve?
Who said good things will always come,
To those that just believe.
Her quiet…calm assurance,
Left no room for defeat,
With faith that was unwavering,
Endless and complete.
Providence had given her,
The strength to face a trial,
She faced each day with courage,
Taking time to stop and smile.

And then the storm clouds hovered,
The thunder rolled her way,
Adversity had found her,
The billowing clouds turned to grey.
A few brief words would bring the news,
No one should have to hear,
Something was wrong with her child,
Can there be a greater fear?

The lightning flashed,
The storm grew strong,
The walls began to shake,
“Oh Lord,” she said, “this storm’s too strong;
I believe my heart might break.”
The rain poured down on window sills,
Branches swayed like a sailor at sea,
The woman held her child close,
Saying, “Please do not take him from me.”
Some wondered if her faith was weak,
While some said, “keep believing.”
But people don’t always have answers,
And some words aren’t worth receiving.
And then she heard a whisper,
As the whipping winds seemed to demand,
The faith that she barely clutched onto,
This was NOT the life she had planned!
“My child I know of your heartache,
For this storm has been fierce and demanding,
You wonder if you have any strength left at all,
But do you not see…you’re still standing?
I didn’t expect your unwavering strength,
For I know that you don’t understand,
I just ask for an arm held high;
Please reach out for my hand!”
People will say many things,
(As people are so prone)
But any storm you face in life,
“You’ll never face alone”.

What happened to that woman?
Who stood against the storm?
While wind, and rain, raged harsh and long,
Against her fragile form,
What happened to that woman?
With little left to give?
God opened up her heart one day,
And taught her how to live.

~Stephanie Ballard

What’s Your Safe Harbor?

Have you found your way to safe harbor? Are you still looking? Leave a comment about your search.

If you enjoyed Steph’s poem, you might like some of her other guest posts: Teachers in Room 16, Thank You! and How I’d Like to Write Your Story.

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Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

Author Jolene Philo

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Celebrate Special Needs Victories

Celebrate Special Needs Victories

Celebrate Special Needs Victories

Celebrate! New guest blogger Becky Hallberg has learned to celebrate special needs victories–even the small ones–as she homeschools her three children, one of whom experiences sensory deficits. Today she introduces DifferentDream.com readers to her family and talks about what they’re celebrating.

Celebrate Special Needs Victories!

“Autumn is a second spring when every leaf is a flower.”
-Albert Camus

This is my favorite time of the year. The long days of summer have passed; the cold, East coast winter has not set in yet. It’s still warm enough to get outside to enjoy the sunshine on our faces.  And the deep, warm colors are appearing everywhere we look—pumpkins, trees, shrubs, plants. Beautiful!

Celebrate Autumn

In our home, autumn brings with it a natural slowing down of life. We have settled into the new school year after a few bumpy weeks. The days begin to get shorter and we start to note, sometimes daily, how soon the evening comes. We seem to buy more hot cocoa at this time of year, preparing for cool, crisp nights and brisk mornings. I can’t bear to turn the heat on, not yet. Soon enough it will go on and warm our home, but for now you’ll find us snuggled under blankets, putting on a pair of socks and enjoying the last few days of keeping the windows open.

Celebrate the Past Year

This is the time of year when people begin to reflect back on the year. For some it’s been long, for others it seems to have passed too quickly. Yet it seems that we all take some time, during autumn, to reflect and remember. With each leaf that changes color, with each vibrant color of fall plant, we pause and realize that we are one moment closer to finishing another year.

We deal with special needs in our home, and this has taught us so many things. One of the most important, though, is that each moment is special, and each victory is worth celebrating, not just for this son, but for all of our children! As I reflect on the year our kids have had, I’m always amazed—so many noteworthy remembrances. They are learning and growing remarkably well, they are all healthy, all have their special interests and are pursuing those, all are showing spiritual growth and depth. I cannot ask for more!

Celebrate Small Victories

As I consider, particularly, our son with special needs, a wonderful thought occurs to me. We have intentionally focused on celebrating every small victory for him and for our other two children. Every one of them. Because of that, my heart is full.  As I pause and look around at each warm, vibrant shade of autumn, I am overwhelmed—each changing leaf, each lovely shade of autumn, represents a warm memory of our year. Maybe it was a pronouncement of physical health by our favorite pediatrician; maybe it was a new skill learned and mastered; maybe it was a kindness extended to another. We’ve come a long way and every autumn gives me a chance to reflect in that and to enjoy the warm remembrances that fill my heart!

Celebrate Your Family

Thank you, Becky, for reminding us to celebrate special needs victories, even the small ones. How about you? Did you think of something to celebrate? Please leave a comment so we can celebrate with you.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Author Jolene Philo

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Special Needs Diagnosis: 4 Tips to Stay Positive

Special Needs Diagnosis: 4 Tips to Stay Positive

Special Needs Diagnosis: 4 Tips to Stay Positive

A special needs diagnosis often throws parents off kilter. No wonder so many DifferentDream.com posts deal with the issue. Here are just a few:

Special Needs Diagnosis Advice

Today, I’m pleased to point you to another article. This one, written by Carrie McLaren, made its debut at www.5minutesformom.com. Carrie is mom to Molly, her daughter who has Down syndrome. The initial news threw Carrie for a loop at first, but she says, “Not long after Molly came home from the hospital, I decided I could either live in fear of the unknown or provide a positive, loving environment for her. I chose to celebrate milestones instead of fear them.” Wise advice, don’t you think?

Special Needs Tips

McLaren offers parents these four tips to help them stay positive after receiving their child’s diagnosis:

  1. Talk, Talk, and Talk Some More: McLaren suggests you find someone you trust and let all your feelings out.
  2. Cry: “Don’t be afraid to cry…There are days when the only thing that makes me feel better is a good crying session,” McLaren says.
  3. Be Honest: She also says, “Down syndrome and the special needs world were so new to me in the beginning months…I’ve never been ashamed or afraid to admit when I don’t know something.”
  4. Write It Down: Carrie suggests writing things down and then looking back in a few years to see how far you’ve come.

To read the rest of McLaren’s post and see some adorable pictures of Molly, read the entire post at Staying Positive after a Special Needs Diagnosis.

How Did You Stay Positive?

Carrie’s tips are right on target. But my guess is that you have some tips, too. And since parents need plenty of positive reinforcement, leave your tips in the comment box for so others don’t have to beg, borrow, and steal ideas from strangers!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Julie Keon’s Advice for Parents, Part 2

Julie Keon’s Advice for Parents, Part 2

Julie Keon’s Advice for Parents, Part 2

Julie Keon, author of the essay, What I Would Tell You, is back today. In yesterday’s post you learned Tim and Julie Keon’s special needs parenting story. Today, she explains how life changed after the essay went viral and she started her blog, www.whatiwouldtellyou.com.

Julie, what’s the history of your What I Would Tell You essay? When it went viral, how did your life change?

The essay What I Would Tell You felt like some sort of divine intervention. I saw the mother in the waiting lounge at our children’s hospital in late June of 2011 and I was so profoundly touched when our eyes met that the moment I was out of the building, I started to weep. The words of the essay started flowing into my mind. I could not wait to get home to write it all down. Hours later, I ran upstairs and opened a journal and scribbled the entire essay out in a matter of 30 minutes. I then posted it as a “Note” on Facebook. Within 24 hours, I was receiving messages from all over the world. My friend, who is also the father of a child with special needs, urged me to allow him to create a website as a home base for the essay so that more people could access it. The website was born and I started the blog portion of it in September of 2011.

What encouragement do you have for parents raising kids with a special needs diagnoses…other than your wise words in What I Would Tell You?

That’s a tough question, as I think the essay covers everything. Perhaps, I would encourage them to have faith whether that be through their religious, spiritual, or universal beliefs. I hate to admit it, but I am starting to really surrender to the possibility that there really are no mistakes and that we all have a journey and purpose to live out even if that journey or experience makes absolutely no sense to our limited human mind. Having faith in something greater can be very comforting when things start to get really overwhelming.

What can churches, schools, friends, family, and the medical community do to better support parents of kids with special needs?

I think that there needs to be a genuine understanding that the parents really DO KNOW BEST when it comes to their children. There is a whole lot of talk about this, but I am not certain how many professionals really believe it. I think that when any individual or group makes an effort to ask questions and attempt to understand the real day-to-day experience of the family, then naturally they will offer support that is both effective and useful. Support must be given under the terms of the recipient as opposed to the giver assuming what the recipient needs…..if that makes sense.

What do you want to say that’s not been asked?

I would just like to say thank you for interviewing me, Jolene, and for the wonderful work that you do! I would also add that I am working hard on a book that I hope will be helpful to those who read it eventually. Thank you to everyone who has read and supported What I Would Tell You.

What Would You Like to Tell Julie?

Julie, you are most welcome. The pleasure was all mine! And when your book comes out, please send an update. I’d love to post a review and help publicize it.

How about the rest of you? What would you like to say to Julie? Leave a comment with your own thoughts and experiences or just to say thank you. And if haven’t yet ready Julie Keon’s essay, What I Would Tell You, please stop by her website to read it!

Julie Keon’s Advice for Parents, Part 1

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Julie Keon’s Advice for Parents, Part 1

Julie Keon’s Advice for Parents, Part 1

Julie Keon’s Advice for Parents, Part 1

Julie Keon is the author of What I Would Tell You, an essay she wrote for parents new to the world of special needs. The essay went viral, so Julie created a blog, www.whatiwouldtellyou.com, to reach out those touched by her story. Today, she shares about her and her husband’s experience as parents of Meredith, age eight and a half. Tomorrow, she’ll be back with the story of how What I Would Tell You went viral.

Julie is one busy woman, as she’s a doula (birth and postpartum), prenatal educator, breastfeeding counselor, artist, newspaper columnist, blogger, and writer. She also creates and facilitates workshops and private sessions for women who have experienced a traumatic or difficult birth. Her husband Tim is a network specialist and works at an atomic energy plant.

Julie, would you share your special needs journey with DifferentDream.com readers?

Meredith was born on December 5, 2003, after a full-term pregnancy and a normal labor. Sadly, she aspirated at the time of birth resulting in an abrupt lack of oxygen and consequently a profound brain injury. We unexpectedly and suddenly became parents of a child with special needs and medical fragility. She is and will always be our only child.

How has parenting Meredith changed you and your husband?

Becoming parents of Meredith has enriched our lives and expanded our minds and spirits in ways that I am not sure we could have experienced otherwise. It has not been an easy journey, and dealing with the grief and joy and all of the trials and tribulations that have made up the last eight years has been the greatest experience of our lives. I have taken this as an opportunity to grow as a person as opposed to becoming bitter and burdened or crushed by life not going in the direction I had anticipated or planned.

How has your family been most encouraged and supported since Meredith’s birth?

We moved back to the small town where I was born and raised when Meredith was just nine months old. Being in this environment surrounded by people who know my extended family has been a blessing. Community support and, of course, the support we receive from local agencies and government funding has made it possible to continue to care for Meredith at home. We also learned (eventually!) how to ask for help and accept support from others.

What Would You Like to Tell Julie?

Well, that’s Julie’s story so far. As was mentioned before, she’ll be back tomorrow to tell about her original essay going viral and how that changed life for their family. Until then, you can read What I Would Tell You and leave a comment about how her advice resonates with you.

Julie Keon’s Advice for Parents, Part 2

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

Author Jolene Philo

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