11 Ways to Reduce Special Needs Parenting Stress

11 Ways to Reduce Special Needs Parenting Stress

11 Ways to Reduce Special Needs Parenting Stress

In mid-April, I was invited to speak to some parents of kids with special needs at McLean Bible Church after attending their wonderful Accessibility Summit (now Access Ministry). The topic of the talk was how to reduce special needs parenting stress. Since special needs parents live with extra stress, I thought you might appreciate these tips, too.

11 Ways to Reduce Special Needs Parenting Stress

  1. Admit that the stress is real. Do not try to be tough and deny the stress. Conversely, don’t wallow in the stress and take on the role of the martyr. Instead, admit you are living with stress and resolve to do something about it.
  2. Acknowledge that one source of your stress is grief. A parent of children with special needs lives with the loss of the children. This doesn’t lessen their love for the child. It’s just the way it is. Special needs parenting grief is real and ongoing. It is stirred every time your child misses an age-appropriate milestone or rite of passage. Therefore, give yourself permission and time to grieve.
  3. Deal with the guilt that stalks parents of kids with special needs. Many parents blame themselves for their child’s condition. Or they think they’re bad parents. Rather than wallow in guilt, determine whether your guilt is founded in truth or lies by following these 5 steps.
    • Ask God to reveal the truth about your sense of guilt.
    • See what His Word says about the matter.
    • Look for evidence of disobedience in your actions.
    • Look for evidence of a misconception in your understanding of Scripture.
    • Seek the counsel of someone you trust and talk about your feelings.
  4. Ask for practical help. Have a list ready when people ask what they can do. Items on the list could include the following: bring a meal, pick up the kids, housecleaning, grocery shopping, pet care, lawn care, laundry, or picking up the mail.
  5. Let go of the exclusive caregiving role. While it may be true that no one can care for your child as well as you can, with education and training other people can care for your child. After all, the day may come when you won’t be able to care for your child. How reassuring to know someone is ready for duty in your place. Besides, your child needs a wide circle of supportive friends, not just you.
  6. Develop a support network. Build a circle of prayer partners and send them monthly updates. Find groups online where you can get and offer advice, talk to people who know exactly what you’re talking about. Make sure the groups you join are positive and not negative in tone.
  7. Build margins into your day. For special needs parents, this means factoring a certain amount of time for chaos. So schedule quiet time and make it happen.
  8. Take care of your body. Get creative about this one and make a commitment to get enough sleep, eat well, exercise, and get outside in the fresh air when you can.
  9. Take advantage of respite. When is the right time to schedule respite? As soon as you begin to think you need a break. If you wait too long to find relief, you will be beyond the point of burnout which means it will take you even longer to return to your baseline level of functioning. Until you get to that point, everyone around you may suffer.
  10. Find ways to relax your body and rejuvenate your spirit. We tend to place a massage at the top of this list, but there are several simple, inexpensive things you can implement. Get rid of caffeine. Practice intentional relaxation by listening to music while sipping a cup of tea, listening to an audiobook, watching  a funny movie, or reading a book. Create a quiet, peaceful corner in your house where you can go to be alone. Putting a lock on the bathroom door and taking a bath counts. Use God’s word and prayer to rejuvenate your spirit. These prayers for the anxious based on the Psalms may help you. Different Dream Parenting also has several prayer calendars based on Scripture.
  11. Seek professional help. If you’ve tried to implement the ideas above and are still struggling, you should seek professional help. If your child is receiving mental health treatment, ask the therapist to include you in some of the sessions or to set up a separate appointment for you. If that won’t work, ask your child’s therapist, trusted friends, or your pastor for recommendations.

If you still aren’t convinced, perhaps these 4 reasons kids need mentally healthy parents can help you understand why it’s important to reduce special needs parenting stress.

Your Tips about How To Reduce Special Needs Parenting Stress?

What helps you reduce special needs parenting stress? Share your ideas in the comment box below. Thanks!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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When All I Want Is to Be Done with Special Needs

When All I Want Is to Be Done with Special Needs

When All I Want Is to Be Done with Special Needs

One of the first words out of our oldest grandchild’s mouth was, “DONE!” He used it emphatically at the end of meals…

DONE!

When having his face washed or his nose wiped…

DONE!

Or my personal favorite…approximately two seconds after his parents put him in his crib for a nap and then carefully and oh-so-quietly shut the door to his bedroom…

DONE!

Lately, I’ve found myself silently echoing my grandson’s sentiments. When I’m asked to talk about my childhood spent caring for a father slowly being diminished by the ravages of multiple sclerosis. When someone wants to hear about the many surgeries our son’s endured during his early years. When I’m asked to recount our son’s diagnosis and treatment for PTSD. What I really want to say, instead of responding politely and patiently, is…

DONE!

Some days, all I want is to be done with special needs. I don’t want to talk about them I don’t want to think about them. After all, my dad died in 1997. My son’s surgeries and treatment for PTSD are distant memories. But, the truth is that I will never be done with those memories. They shaped and are still shaping the course of my life. They are part of who I am.

On days when I think I want to be done with special needs, what I really want is a way to create some distance, to carve out time to rejuvenate and gain perspective so I can continue the work God has given me to do. I’ve discovered some ways to make that happen. Maybe these tips can help you on those days when you want to be done with special needs, too.

To read the rest of this post, visit the Not Alone website at specialneedsparenting.net.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Special Needs Sharing: Caring or Complaining?

Special Needs Sharing: Caring or Complaining?

Special Needs Sharing: Caring or Complaining?

How do you respond when a good friend who knows about your caregiving duties asks, “How are you doing?” Do you tell the truth, or do you hold back for fear of being branded a complainer?  In today’s post, guest blogger Kathy Guzzo relates what she’s learned about special needs sharing as the parent of an adult child with special needs and as she manages her own chronic health issues.

Special Needs Sharing: Caring or Complaining?

Recently a close friend shared the struggles she was going through while finding services for her special needs adult son. I listened intently, trying to empathize with the emotional and physical toll she was experiencing due to phone calls, appointments, paperwork, and others not following through. I was grateful she felt comfortable opening up to me, so I was quite surprised when a few hours later I received an email from her apologizing for complaining about her life when she knows I’m in the midst of my own major issues.

I thought about her email, realizing I had done the exact same thing to others–shared what’s happening in my life, only to later apologize for burdening them. After that I began thinking about special needs sharing versus complaining and just how different the two are.

Special Needs Sharing isn’t Complaining

Special needs sharing is heartfelt reality without envy; it allows us to divide and distribute our burdens. Sharing stems from an attitude of humility that says life is tough at times, but God is good all the time. Sharing, even in the midst of pain, helps with the process of accepting the struggles in our lives, while touching the hearts of others.

In contrast, complaining causes or is a direct result of jealousy, envy, comparing, or finding fault. Complaining stems from an attitude of pride that says life isn’t fair…I don’t deserve this. Complaining, even in awful situations, turns others away.

The saying “A joy shared is a joy doubled; A sorrow shared is a sorrow halved” is very true. We can’t truly rejoice with one another when the positive happens if we haven’t shared struggles along the way.

It’s Not My Problems versus Your Problems

For those of us who suffer from a chronic illness or are caretakers for a loved one, our lives aren’t a competition. It’s not my struggles versus your struggles. We each have mountains we’re climbing, battles to fight, and hurdles to jump over in this race. But neither race is more important. Because whether it’s emotional or physical, pain is pain. My pain won’t be the same as yours, but that doesn’t make your pain any less real for you.

Sharing our lives is an opportunity for blessings that God allows us in order climb, fight and jump together. Many times one of us slips on a rock, gets shot down, or trips on a hurdle and needs help getting back in the race. That type of support doesn’t come from complaining. It comes from sharing. We aren’t keeping track of who has more bad things happen, or who seems to be coasting along because God’s told us that in this life we will have troubles (John 16:33). But God also said two are better than one (Ecclesiastes 4:8-12).

Special Needs Sharing Allows Blessings

Sharing is not a pity party. It’s a release of burdens, allowing someone else to support, encourage, and pray with us so we can rejoice when we take a couple steps up the mountain, win a small battle, or jump a high hurdle. Listening to someone share his or her ups and downs is an honor, something we shouldn’t take for granted or abuse. It’s our responsibility to handle it with care, respect, and grace, just as we expect them to handle anything we share. So go ahead and share with one another without guilt because as my granddaughter learned in preschool, sharing is caring.

How Do You Handle Special Needs Sharing?

What’s your take on special needs sharing? How do you determine the difference between caring and complaining? Leave a comment.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Kathy Guzzo and her husband live in Northern Illinois and have 4 adult children. One of her daughters was diagnosed with lupus and Epstein Barr Replication as a young adult. Another began struggling with depression and OCD in her mid-twenties. She understands the need for her daughters to be able to make their own decisions regarding their health, but the nurturer in her sometimes has a hard time letting go. She desires to direct others to the peace and hope that God has abundantly available for them.

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5 Ways to Regain Special Needs Parenting Focus

5 Ways to Regain Special Needs Parenting Focus

5 Ways to Regain Special Needs Parenting Focus

Parenting is the ultimate in multi-tasking jobs. We have so much to attend to at the same time. Kids. Housework. Kids. Meals. Kids. Self-care. Kids. Getting to work. Kids. Errands. Kids. Communicating. Kids. Add a child with special needs to the mix, and the list of jobs grows exponentially. Kids. Therapy. Kids. Appointments. Kids. Medical procedures. Kids. Meltdowns. Kids.

And yet.

With so much swirling around us, we sometimes talk ourselves into believing we can multi-task without negative consequences. But, new research is showing that multi-tasking is not that good for us because it trains the brain to hop back and forth. This constant hopping keeps us from concentrating on either cognitive task so nothing gets done well.

Sound familiar?

Recently I read a magazine article with several tips for getting rid of distractions and maintaining focus. The piece was written for business people, but to me the tips had “special needs parenting focus” written all over them.

5 Ways to Regain Special Needs Parenting Focus

These 5 suggestions were written for grown-ups working with grown-ups, so the transfer to grown-ups raising children isn’t 100%. But with a little tweaking, they can make regaining a special needs parenting focus easier to do:

  1. Stop hopping. When a new idea or activity comes to mind, resist the temptation to hop from one thing to another. Of course, with kids have a way of forcing you to hop sometimes–like when they string the cat from the ceiling fan or have a malfunctioning g-tube–but it’s also really easy to use their hopping to justify ours.
  2. Write it down. Stop and write down your thoughts instead moving on to the task-that-has-to-be-done-right-now-or-I’ll-forget-it. Once it’s written down, it’s harder to forget…unless you lose the piece of paper or the dog eats it. Maybe stick it on the fridge with a magnet, up high where the kids can’t reach. Yet.
  3. Go back and address the items on the list. Take care of them one by one and check them off as they get finished. Such a good feeling!
  4. Avoid screen sucking. You know how you sit down “just to check email quick” and an hour later you’re still at it? Try setting a timer when you sit down at the computer or check your phone. When the timer goes off, you’re done. No cheating allowed!
  5. Set aside 30 minutes a day for uninterrupted thinking. That may feel impossible with young kids and children with special needs at home, but time to sit, think, and plan for tomorrow can make tomorrow go so much easier. If 30 minutes is out of the question, start with 15. Or even 10. Doing so trains the brain to focus on the same thing for longer periods of time.

There was a time when, as a young parent, the suggestions above would have seemed intimidating or frustrating. Why? Because I tend to be a perfectionist. But over the years, I’ve learned that special needs parenting isn’t about doing things perfectly. It’s about inching forward in tiny increments, one small step at a time, for the good of our kids.

So instead of being intimidated or frustrated because you can’t address every suggestion immediately and perfectly, try just one. And when you’re ready or circumstances allow, try another. And another. And another. Take baby steps every day to regain your special needs parenting focus. After all, we cheer like crazy when our kids make baby steps in their progress. It’s about time we start cheering for and cherishing our own baby steps, too.

How Do You Maintain Your Focus

How do you keep daily distractions from disrupting your special needs parenting focus? Share you ideas in the comment box. Thanks!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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10 Special Needs Survival Skills

10 Special Needs Survival Skills

10 Special Needs Survival Skills

Do your caregiving duties ever make you feel like you’re drowning? I remember feeling like that so often when our son was young, in and out of the hospital for four years. And because I know many of you feel that way often, I attended an Accessibility Summit workshop entitled Survival Skills for Mothers on the Journey. It was presented by Emily Colson, mom to a son with autism and author of Dancing with Max. What she shared was so encouraging and so practical, I had to pass these 10 special needs survival skills to you.

10 Special Needs Survival Skills

1. Go Out and Live Big. Instead of choosing isolation, go out and live big, even if your child may have a meltdown. But before you leave home, decide what you will do if you need to leave early. Check for easy exits when you get where you’re going. And pair something hard with something your child loves. Do the hard thing first during the outing so the fun one is a reward.

2. Laugh. Laughter really is good medicine. So make time for fun and silliness at home and while out living big. Go so far as to plan funniness!

3. Keep a Right Perspective. While dealing with challenges, look for gifts and beauty. Show gratitude. Think about how your child sees life. And finally, look at things with eternal eyes. This world is not the end.

4. Let Others In. We think accepting help imposes on others. But people need our kids. And a good support system and sense of community has been proven to lengthen life spans 8–10 years. Other studies show being part of a faith-based community adds 4–14 years to a person’s life.

5. Live with Purpose. Ephesians 2:10 says this: For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do. If that’s true, our kids with special needs are part of God’s plan for us. So ask yourself: What am I going to do with this experience? What is God’s purpose for us? Are there gifts in this?

6. Take Your Thoughts Captive. Thinking negative thoughts affects brain function and physical health. Therefore when our thoughts go into a  negative spiral, take them captive as we’re commanded in 2 Corinthians 10:5. It’s hard work and it takes practice, but doing so makes a huge difference.

7. Take a 5 Minute Rx. Self-care is an essential survival skill for moms raising kids with special needs. Many moms can’t get away for an hour or a day or a weekend devoted to self-care. But they can find 5 minutes, enough to create a sense of caring for self. The 5 minute Rx could be stepping outside to breathe some fresh air, making a healthy snack, reading for 5 minutes, or writing in a gratitude journal.

8. Do Better, Not More. Rather than automatically saying yes (and wishing you hadn’t), or saying no (and feeling guilty), stop and ask a few questions before answering: Will doing this help me focus on what I need to focus on? Will this activity restore or drain me? When Emily explained this skill, it reminded me of something our pastor says quite often. It’s not a matter of basing our choices about where to spend our time on whether something is good, because the world is full of good things. We can’t do them all. So we have to choose what is best, because God wants his best for us.

9. Live with Hope. Give up perfection and choose hope in a God who uses imperfect people instead. Colson said, “Don’t aim for perfect, but shoot for joy.” And my favorite quote of the workshop is this one. “Give yourself permission to flounder.”

10. Remember Who You Are. At this point in the workshop, I had to leave to man my book table, so I can’t expound on this one. But you can imagine that it is vital to retain a sense of yourself in the midst of the chaos.

Your Special Needs Survival Skills?

What special needs survival skills would you add to the list…other than wine and chocolate? Please share them in the comment box! Then, stop by Emily Colson’s website to check out her blog and read more about her.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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4 Tips to Creating a Special Needs Mom S.E.A.L. Team

4 Tips to Creating a Special Needs Mom S.E.A.L. Team

4 Tips to Creating a Special Needs Mom S.E.A.L. Team

Wouldn’t it be great if every special needs mama was surrounded by her own team of special needs S.E.A.L.s? Imagine how a well-trained, cohesive team of people determined to achieve the impossible and dedicated to the well-being of a special needs family, could make life easier for special needs Mama S.E.A.L.s. But how can a mom up to her eyeballs in caregiving duties create a successful special needs mama S.E.A.L. team. An article in Southwest Airline’s inflight magazine (April, 2015) shared four team-building tips that come straight from Navy S.E.A.L.s. When I read the article, my reaction was I have to share these with Different Dream readers. They could use them to build a S.E.A.L. team spirit amongst the people that work with their kids.

4 Tips for Creating a Special Needs Mama S.E.A.L. Team

#1: Special needs mama S.E.A.L. team members are confident about contributing to the team. They care more about contributing to the team than to themselves. Mama S.E.A.L.s need to preach and teach message to the people who care for their children. It’s not about any individual adult working with a child. It’s about everyone doing whatever the child needs. Special needs S.E.A.L. mamas constantly focus team members’ on their purpose: the child.

#2: Special needs mama S.E.A.L. team members trust one another to do what’s best for the child. Therefore Mama S.E.A.L.s, as the director of their kids’ care, have to create trust, too. They need to encourage and praise supportive work among team members. They need create a “got your back” culture with the ultimate goal of having the child’s back at all times.

#3: Special needs mama S.E.A.L. team members need to be trained. Mama S.E.A.L.s observe the people working with their kids to assess their strengths and their weaknesses. Then they build upon those strengths and offer education and training to address the weaknesses. So if an in-home caregiver seems hesitant about feeding tube feedings, feed your child together a few times. If someone else is a whiz at handling your child’s behavior, ask him to share his techniques with the rest of the team.

#4: Special needs mama S.E.A.L. team members need to know what other members of the team do. Mama S.E.A.L.s should make sure every member of the team knows something about what the other members do. Enough to temporarily carry on if someone is sick or injured or moves away. Which is why Mama S.E.A.L.s make cross training part of the training mentioned in tip #3.

What Tips Would You Add to the List?

If you’re a special needs mama S.E.A.L. you may have a few more tips for readers about creating a cohesive, well-trained team to work with your child. If so, please feel free to share them in the comment box.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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