Why I Won’t Be Afraid of the Dark

Why I Won’t Be Afraid of the Dark

Why I Won’t Be Afraid of the Dark

“Are you guys up there?” our almost three-year-old grandson called from the bottom of the basement stairs.

“I’m in the living room,” I replied from where I was doing my morning devotions.

“Is the baby gate open?” he hollered.

“Yes,” I hollered back.

He lowered his voice and gave himself a pep talk. “I can crawl up the stairs instead of holding the handrail. And I won’t be afraid of the dark.”

I heard him scramble up the steps, and a few seconds later, he walked through the door. “I’m here, Grammy,” he announced and climbed into my lap for a hug. “I’m here!”

Before I could ask if his parents had given him permission to visit, his father came through the door. Obviously, his daddy had known where he was going and had been with him in the whole time. We snuggled and talked about his day before he and his daddy went back down to their apartment.

After they left, I thought about my grandson’s slow conquering of his fear of the dark. My mind wandered to times when I couldn’t see a way through the darkness that infiltrated my workplace and touched my family through illness, death, and unexpected life changes in the past. I thought of my mother and my dear uncle and aunt who are in failing health. When they die, the people who walked me through childhood, who followed close behind as I braved the dark will be gone.

To read the rest of this post, visit the blog for parents of kids with special needs at the Key Ministry website.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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4 Special Needs Parenting Truths

4 Special Needs Parenting Truths

4 Special Needs Parenting Truths

Our newest grandchild arrived at the end of January. She’s 8 1/2 pounds and 20 1/2 inches of pure snuggle sprinkled with dark, curly hair. Because her parents and brother live in the apartment below us, we see and hold her almost every day. Her life thus far has been free of special needs or disabilities, other than tummy distress and a nasty diaper rash after her mommy ingests soy.

Even so, her tiny presence continually brings to mind 4 truths I wish someone had spoken into the whirlwind of our son’s special needs diagnosis in the hours after his birth.

  1. Parents must embrace the now. After our son was born, I traded the joy of his now for worries about his future. Instead of reveling in the opportunities we had to cuddle him, I resented the times we couldn’t hold him close. Instead of drinking in his presence, I only thought of how empty life would be if he died. I forgot that the life God had given him, though its early days weren’t what we expected, was still a valuable and precious life. If you are a new parent, I urge you to embrace the now that is your child’s life. Live every second, minute, hour, and day your child is with you to the fullest, and leave the future to the future.

To read the rest of this post visit Key Ministry’s  Special Needs Parenting blog.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Every Believer’s Loneliness Ministry

Every Believer’s Loneliness Ministry

Every Believer’s Loneliness Ministry

Loneliness. Every school day of my childhood I saw it written on Dad’s face when Mom, my siblings, and I hurried out the door. Even now, I close my eyes and can see him sitting in his wheelchair at the kitchen table, sipping coffee through a straw and waving good-bye. His grin couldn’t hide his dread of spending another day with only the television to keep him company.

In fact, Dad’s face came immediately to mind when I heard that Theresa May, Prime Minister of the United Kingdom, had appointed a Minister of Loneliness in response to the Cox Commission report which said the following about the pervasiveness isolation in society today:

“Young or old, loneliness doesn’t discriminate. Throughout 2017 we have heard from new parents, children, disabled people, carers, refugees and older people about their experience of loneliness.”

This report was already old news to Dad in the 1960s.

Had the report been issued in his day, he would have ridiculed the idea of a government appointing a minister of loneliness, the UK equivalent of a cabinet position in the US. Dad knew the government couldn’t cure his loneliness. He also knew that the people of God could.

And the people of God did.

Often, when my siblings and I came home from school, we found our pastor and Dad visiting in the living room. When a retired clergyman moved in down the street, he played cards with Dad several afternoons a week. Our uncle, who was married to Mom’s sister, often stopped on his way home from school to chat with Dad. Members of my parents’ Sunday school class dropped by, too. For years. For decades.

I can still see Dad’s joy when the people of God revealed His presence through them.

To read the rest of this post visit Key Ministry’s blog for parents of children with special needs.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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When We Seek the Mind of Christ

When We Seek the Mind of Christ

When We Seek the Mind of Christ

Our thermometer read nine below zero this morning. The double doors that open onto our south-facing deck are frozen shut. A crust of frost along the bottom of the inside of each door led to a rolled blanket on the floor in front of them. I spent most of the day at my computer in front of a south-facing window where cold sunlight streamed in. I was tempted to bemoan the weather–I mean, really what could be worse than a barely respectable skiff of snow coupled with below zero temperatures.

But the picture a tiny baby in the manger, whose birth we celebrated only a few days ago, reminded me of a scandalous truth that stopped my grumbling before it could gain steam, and one holy thought derailed my discontent. On the worst weather day of the year, my circumstances are far more comfortable than those that greeted God who came to earth in the form of a baby.

Even after factoring in the warmer climate of Jesus’ birthplace and the likelihood that He was born in spring, the stable where He was born remains a less hospitable place than my cozy home in winter. Face to face with the sacrifice of Christ that began with His meager birth and ended with His death on the cross, my dissatisfaction transformed into gratitude and wonder, honor and praise. I found myself humming the melody of And Can It Be? and searching for the lyrics online. Once found, the words of the third verse mirrored my thoughts precisely.

He left His Father’s throne above,
So free, so infinite His grace;
Emptied Himself of all but love,
And bled for Adam’s helpless race;
‘Tis mercy all, immense and free;
For, O my God, it found out me.
Amazing love! how can it be
That Thou, my God, should die for me!

I can take no credit for the reversal in my train of thought. The turn from ingratitude to joy is not natural for me or for you. We can’t negotiate a mindset change by ourselves. It is only accomplished when we recognize and confess our weakness, when we ask the Holy Spirit to give us the mind of Christ as we seek to honor Him in the most mundane or uncomfortable situations.

This is a worthy endeavor for a new year, one we can pursue in complete confidence because it is in God’s will. Certainly we will fail at times, and certainly our best efforts will be imperfect. But just as certainly, God will be pleased by our desire to honor Him. And next year in the dead of winter, we will look back and rejoice to see how deeply His Spirit has changed our hearts in 365 days.

“But a natural man does not accept the things of the Spirit of God…
But we have the mind of Christ.
1 Corinthians 2: 14, 16

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Who Do You Say Jesus Is?

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Who do you say Jesus is? Seems like an easy question at first glance. Guest blogger Sandy Ramsey-Trayvick found assurance when Jesus showed her who He is while her son with special needs dealt with major medical challenges. In Mark 8:27- 29, we find Jesus questioning...

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The Gift of Disability

The Gift of Disability

The Gift of Disability

The gift of disability wasn’t on my Christmas list. But in early October, when I tripped and broke the fifth metatarsal on my right foot, I discovered God had moved temporary disability to the top of His list for me. The gift included 1 set of crutches, 1 wheelchair, 1 walker, 1 surgery, 1 pin, 2 boots, 4 x-rays, 6 doctor appointments, 8 weeks of bearing no weight on the injured foot followed by 4 weeks of partial weight-bearing, and 12 weeks of being unable to drive.

I reluctantly unwrapped this gift of disability during the 3 excruciatingly slow months it took for my 61-year-old bone to heal. Perhaps God orchestrated this slow march to wellness because He knew it would take that long to teach these ten hidden lessons He tucked in with the gift.

10.  Most handicapped bathrooms aren’t fully accessible. Doors are often too heavy to open and impossible to shut, stalls aren’t big enough, grab bars are too far away, sinks and soap can’t be reached, and hand dryers can only be accessed by wheeling to them wet-handed.

9.  Strangers can be surprisingly kind. I’ve lost count of the number of people who have held open doors, shut bathroom stalls, braked so I could cross the street, and asked what else they could do. The really good news is that many of the Good Samaritans were young people. As in teenagers or young kids.

8.  Online retailers make shopping accessible to people with many disabilities. Christmas shopping would have been a bust without online shopping. During our 2 forays into stores, husband and I discovered that Christmas displays and extra merchandise make many aisles inaccessible for people in wheelchairs. Thanks to free shipping at many online sites, our loved ones found our gifts under their Christmas trees on December 25.

7. My father exhibited astounding grace and dignity during his 38 years in a wheelchair. Each time an obstacle made my temporary disability difficult, I thought of how my father handled his nearly 4 decade battle with multiple sclerosis. When tempted to self-pity or complaint, I chose–with occasional lapses–to honor his example by focusing on what I could do instead of what I couldn’t. Thank you, Dad.

6. Children have worries, too. We have 3 grandchildren who voiced their worries during my weeks of healing. “Why didn’t the doctor kiss your foot and make it all better?” one asked. “Will you ever walk again?” asked another. “Does your foot hurt inside the boot?” wondered the third. Remembering how I concealed my young worries about Dad’s illness and grateful that these children voiced their fears, I answered their questions completely, invited them to assist in putting on my boot, and took them for wheelchair rides.

5. God provides assurance when we need it most. The few days after learning that my foot wasn’t healing and surgery would be required, news came that a new contract 8 months in the making was a go. Not just any book contract, but the opportunity to co-author a book with Dr. Gary Chapman about how families of kids with special needs can use the 5 love language to strengthen their relationships. Though God could have sealed the deal any time during the past 8 months, He chose to do it the week when I needed assurance of His plans for me to write again.

4. Other people don’t see the world as those with disabilities do. God knows exactly what people with disabilities need at any given time, but other people don’t. They don’t know what we can do on our own and how important it is to preserve our independence by allowing us to do those so. And they don’t know what our world is like–that a chair pushed back from the table and toys left on the floor create obstacles, that carrying an uncapped hot drink is impossible, where a person needs to stand to help negotiate stairs, and so on. Therefore, we have to ask for help only when its needed, and we must explain the simple things they can do to make life less complicated.

3. Slow down. I love planners, to do lists, efficiency, and multi-tasking. But the gift of disability forced me to shelve the planner for several days after surgery, shorten my to do lists, accept inefficiency, and redefine multi-tasking into things like wheeling a chair to the kitchen with a grandchild on my lap. In the process, Slowing down eventually led to redefined priorities and gratitude for even the smallest accomplishments.

2. Let go. As I slowed down and redefined priorities, I learned to let go of certain habits and desires. Counter clutter, a prettily set table, Christmas presents, neatly wrapped and under the tree early, control of the calendar, and much more went by the wayside this fall. And yet, as I discovered, life is still good.

1. God waits to heal the body until He’s healed our hearts. The bone in my foot is healing more slowly than the doctors expected. As one discouraging x-ray followed another, I sensed the Great Physician had more in His prescription for healing than filling the gaps in my foot with new bone. He wanted to fill the gaps in my heart with greater knowledge of Him, greater love for His Son, and greater trust in His plans.

This gift of disability, which was not on my Christmas list, becomes more precious as 1 set of crutches, 1 wheelchair, 1 walker, 1 surgery, 1 pin, 2 boots, 4 x-rays, 6 doctor appointments, 8 weeks of bearing no weight on the injured foot followed by 4 weeks of partial weight-bearing, and 12 weeks of being unable to drive later, this 1 woman is eternally grateful for 10 lessons that showed how high and complete are God’s ways compared to the ways of men.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Special Needs Parenting WILL Get Better

Special Needs Parenting WILL Get Better

Special Needs Parenting WILL Get Better

Special needs parenting WILL get better says guest blogger Kimberly Drew. And since she’s going through a rough patch as a parent and still says that, struggling Different Dream readers can trust the reassurance she offers below.

Special Needs Parenting Will Get Better

I can’t quite figure out what I can say at this particular time in our journey raising two children with special needs, so I have decided to go with utter honesty.

I am in a familiar place emotionally and spiritually.
I’ve been here before, and had hoped to never re-visit.

I find that there are days where I don’t want to get out of bed and others where I am championing our daughter’s needs with passion and fervor. At times the simplest idea can take root in my mind and draw me back to a Scripture or a lesson that I have previously learned and fill me with comfort and the motivation to press on. At other times, I feel a dark and empty void hovering in and around my soul. I don’t have the energy to pray, or truthfully to even care, about the deeper things because I’m just trying to get through the day.

There is no formula to the ebb and flow of emotions that come with raising children with special needs. If there were, I would jot down the changes and prepare for them accordingly. I know I’m not the only one who struggles with these feelings of sadness, exhaustion, and doubt. I have talked to too many other parents to think I was the only one who felt these things.

You should know that you are not alone.
I know from past experience that it will get better.

Appointments will calm down, new meds and specialists will feel more like routine than hassle. Milestones will come in their own sweet time and in their own special way. Someone will drop off a meal when it’s needed most. A card will come in the mail to encouragement. The hand of a friend will rest on my shoulder and prayers will be whispered over us, inspiring my faith to move forward. Mom will show up for a surprise visit and do a laundry blitz, or my best friend will drag me out to shop the endcaps at Target. I will open up the Bible and it will come alive in my heart and fill me so full of wonder that it practically bursts out of me.

Special needs parenting will get better for our family and for yours.
But until it does, I will read passages from the Bible like Psalm 143.

My Soul Thirsts for You
A Psalm of David.

“Hear my prayer, O Lord;
give ear to my pleas for mercy!
In your faithfulness answer me, in your righteousness!
Enter not into judgment with your servant,
for no one living is righteous before you.

For the enemy has pursued my soul;
he has crushed my life to the ground;
he has made me sit in darkness like those long dead.
Therefore my spirit faints within me;
my heart within me is appalled.

I remember the days of old;
I meditate on all that you have done;
I ponder the work of your hands.
I stretch out my hands to you;
my soul thirsts for you like a parched land. Selah

Answer me quickly, O Lord!
My spirit fails!
Hide not your face from me,
lest I be like those who go down to the pit.
Let me hear in the morning of your steadfast love,
 for in you I trust.
Make me know the way I should go,
for to you I lift up my soul.

Deliver me from my enemies, O Lord!
I have fled to you for refuge.
Teach me to do your will,
for you are my God!
Let your good Spirit lead me
 on level ground!

For your name’s sake, O Lord, preserve my life!
In your righteousness bring my soul out of trouble!
And in your steadfast love you will cut off my enemies,
and you will destroy all the adversaries of my soul,
for I am your servant.”

What do you do when you don’t think special needs parenting will get better? Leave your thoughts in the comment box.

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Kimberly grew up and went to college in the small town of Upland, IN. She graduated from Taylor University with a degree in Elementary Education in 2002. While at TU, she married her college sweetheart and so began their adventure! Ryan and Kimberly have three amazing kids on earth (Abigail, Jayden, and Cooper), and a baby boy waiting for them in heaven. Their daughter Abigail (Abbey) has multiple disabilities including cerebral palsy, a seizure disorder, hearing loss, microcephaly, and oral dysphagia. She is the inspiration behind Kimberly’s  desire to write. In addition to being a stay at home mom, Kimberly has been serving alongside her husband in full time youth ministry for almost fourteen years. She enjoys working with the senior high girls, scrapbooking, reading, and music. You can visit Kimberly at her website, Promises and Perspective.

Author Jolene Philo

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Who Do You Say Jesus Is?

Who Do You Say Jesus Is?

Who do you say Jesus is? Seems like an easy question at first glance. Guest blogger Sandy Ramsey-Trayvick found assurance when Jesus showed her who He is while her son with special needs dealt with major medical challenges. In Mark 8:27- 29, we find Jesus questioning...

read more