The Gift of Perfect Imperfection

The Gift of Perfect Imperfection

The Gift of Perfect Imperfection

As Christmas draws near, guest blogger Steph Ballard shares a gift treasured dearly by every parent of a child with special needs–the gift of perfect imperfection.

The Gift of Perfect Imperfection

I thought I knew what perfect was.
I’d flip through magazines
Dazzled by each page I saw–
Models and beauty queens.

Surely, they must have it all
Not one trait to despise
And then came you to show me
The world through new eyes.

As Christmas Day draws closer
With every red and green hue
I see things even more clearly–
My best gift has always been you.

The gift was in my first glimpse
Into your isolette
Learning to love–with words alone–
I could not hold you yet.

The gift was in your tiny heart
We prayed could be repaired,
Asking for so many prayers
And knowing people cared.

The gift was when your surgeon came
And told us you would live.
Knowing if we got this chance
There’s nothing we wouldn’t give.

The gift was in that feeding tube
And tape marks on your cheek,
And even in your careful steps
With muscles labeled “weak.”

The gift was when you tried to talk.
I prayed you’d grow and thrive.
The gift is in that long thin scar
Because you are alive.

The gift is watching your chest rise and fall–
You’re sleeping peacefully–
It’s also in the lives that you’ve touched
And how much you’ve changed me.

The gift is in the friends I’ve made–
I never would have guessed–
And every single day we have
Reminding me I’m blessed.

The gift is that I need no words
To help me understand
That my child has a purpose.
His life’s divinely planned.

The world sees the best gifts
In many ways unspoken,
But in my heart I know God sees
The gift in what’s broken.

Not the perfect body
Or words, or job, or face.
The gift is when we lean on Him
And learn to see His grace.

We still do not know
What our future brings
But I now see the the best gifts
In the everyday things.

The best and most beautiful things in the world
cannot be seen or even touched –
they must be felt with the heart.
~Helen Keller

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Stephanie Ballard is the mother of two sons, her youngest son, Braeden, was born with Kabuki Syndrome and congenital heart defects. Her oldest son, Colin is in the military. She enjoys writing poetry and life lessons about her journey in life.

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What I Love About Special Needs Parenting

What I Love About Special Needs Parenting

What I Love About Special Needs Parenting

Special needs parenting often gets a bad rap on social media. Posts about the complexity and stress associated with raising kids who have special needs are everywhere and can crowd out what’s good about parenting our kids. So in honor of Valentine’s Day, this post is dedicated to what I’ve learned to love about special needs parenting since our son was born in 1982.

Top Ten Things I Love about Special Needs Parenting

10. Special needs parenting changed my husband’s career path and mine too. We lived 70 miles from the closest hospital when our son was born with a medical condition. So my husband became an EMT. That training motivated him to become a nurse. When I launched my writing and speaking career after 25 years as a teacher, anything I wrote about special needs parenting resonated with readers and led to 5 books about raising kids with special needs. We love the way special needs parenting has changed our careers for the better.

9.  Special needs parenting shows that we are not in ultimate control of our children. Parents of typical kids usually learn this during the teen years. They struggle to let go of their children. My husband and I learned we weren’t in control the day our son was born. The lesson stood us in good stead during his trying teen years.

8. Special needs parenting teaches us to be grateful.  Grateful for the privilege of raising children-even when our days with them are few, grateful to the medical community, grateful for the kindness of friends and family and strangers, grateful for crazy family fun, grateful for difficult times, grateful for every the grace God pours into our lives.

7.  Special needs parenting increases empathy and humility. We know the heartache of lost dreams and of watching our children struggle. We know the joy of new dreams and watching our children make progress. We know how to come alongside new parents with practical help and physical hugs. And we are humbled by our ability to hurt and rejoice with them.

6.  Special needs parenting changes our priorities. We learn very early on to cherish the small things–rocking our babies, playing games with toddlers, picking our kids up from school, listening while our teens vent–and to view them as the important and eternal things that deserve the majority of our time and energy.

5.  Special needs parenting strengthens our relationships. It can bond husbands and wives who survive the fire together. It can strengthen families and church families whose members learn to prop one another up when weary. It can deepen friendships with those committed to being true, rather than fair weather, friends.

4.  Special needs parenting forges new friendships and a new community. We are members of a club we never wanted to join. But once initiated into it, we develop unique and valuable friendships with amazing people we would not have known otherwise. We become part of a community we love to call “home.”

3.  Special needs parenting increases our ability to value life. We know that every life, no matter how short or compromised, can change the people touched by it. We know this because we have been changed because of our children’s lives.

2.  Special needs parenting changes our perspective on death. Many of us have watch a beloved child struggle with pain every day of life, struggle to breathe, struggle to find energy to smile when they see us. Those who’ve seen these things no longer fear death. We know death released our children from pain as God walked them from this life into the next. Parents who are followers of Christ rest in His promise of a new, pain-free life for our children, in His presence.

1.  Special needs parenting can grow our faith. While raising our kids, we can do 1 of 2 things. We can either reject a God who allows our children to be born with special needs and shoulder our burdens alone. Or we can hold fast to His promises, trust that He is active in our circumstances even when we can’t see Him, and cling to His hand. My husband and I made the second choice and after 3 decades of seeing God work in amazing, unexpected ways, our faith continues to grow.

What Do You Love about Special Needs Parenting?

What would you add to the list? Leave a comment!

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today I Choose to Be Grateful

Today my arm muscles ache, my blood sugar is higher than it should be, my feet hurt, and my heart is overflowing with happiness. Why?

Because my dear niece got married on Saturday night. She is my daughter’s life long friend, so when she asked her aunties to make forty pies for the wedding reception, I responded the only way an auntie can. “Yes,” I said without hesitation, knowing full well that between rolling out pie crusts, sampling the wares, crying as she walked down the aisle, handing out pie at the reception, and boogieing at the dance, the Monday after would be a severe day of reckoning. Even so, I chose to say yes, grateful to be part of her day of celebration and happiness, and thankful for the tiredness of today.

Far too often, while caring for a baby with special needs, my husband and I felt like our ability to make choices for our child had been ripped away.

We didn’t choose to have a son who needed surgery at birth.
We had to choose to send our baby to a hospital 750 miles away or to let him die.
We were too far from the hospital to choose the surgeon who would operate on our newborn.
We were 2 decades too early to choose family-centered care for his many hospital stays.
We were often too sleep-deprived and despairing to choose hope over despair.

During the first few years of our baby’s life, we sometimes felt like the choices that should have been ours as parents had been hijacked by a distant God who couldn’t possibly love our son as much as we did.

Click here to read the rest of this post at the Key Ministry website.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream website. Sharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

Author Jolene Philo

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Top Ten Reasons I Don’t Mind Turning 60

Top Ten Reasons I Don’t Mind Turning 60

What's to love about turning 60? In my opinion, a whole lot of things.Tomorrow’s my 60th birthday, and I’m looking forward to it. Really I am, and for these 10 good reasons.

10. Ordering off the 55+ menu at IHOP will be easier. Five years ago, doing so made me feel like an imposter. Now I feel like I’ve earned it.

9.  The AARP has lowered their annual membership price to $12 in honor of my birthday. Thoughtful as the gesture is, I’m not taking them up on it.

8.  Tomorrow morning, I will be grateful for the ability to walk 6 miles pain free…even at my age.

7.  German Chocolate Birthday Cake! Need I say more?

6.  When people inquire about my age, and I tell them, with suitable self-effacement that I am 60, they will have all the more reason to respond, “You certainly don’t look your age.” (And this would be your cue to type something similar in the comment box.)

5.  Being 60 makes the fact that my mystery novel, set in the decade when I was in my 20s, is considered historical fiction a little easier to swallow. Mainly because I can wash it down with birthday cake. (See #7)

4.  On my official birthday, all those early Facebook birthday wishes will no longer feel like being pushed into old age.

3.  Once I’m 60, the Man of Steel, who hit the same milestone waaaay back in March, will no longer feel as though he robbed the cradle.

2.  The day will remind me of Mom’s 60th in 1988. Our son was 6, and our daughter was a newborn when the sibs and I hosted a gigantic surprise birthday shindig at her church in Le Mars. She was clueless, and the many friends and family members who gathered to honor her, was a glorious tribute.

1.  I’ll be celebrating my birthday with my family. What could be better?

I’d love to hear bout your 60th birthday memories in the comment box. If you don’t have any, see #6.