What Did Mary Worry About?

What Did Mary Worry About?

What Did Mary Worry About?

What did Mary worry about after her baby was born? 

Gasp and sacrilege! How dare I entertain the idea of the mother of God worrying about the divine child entrusted to her care. Until I remember that though this baby boy was fully divine and fully human, his mother was not.  

The divinity of Jesus came from the Holy Spirit who is God. The humanity of Jesus came from Mary, who was wholly human. 

The Father, Son, and Holy Spirit didn’t have to worry–it’s a perk of being the triune God. 

But Mary–she’s a different story. Especially in light of her story.

She was a first time mom. An unwed teenager.
She endured a grueling donkey ride late in her pregnancy.
She went through labor and delivery in a stable without electricity or running water.
Her baby slept in the manger where hungry animals bellied up for breakfast.

Other than those immediate, trifling matters, what did Mary worry about when they took their baby home?

Infanticide. The Magi had told Herod the Great that they were going to worship a great king born in Bethlehem in Judea. To stomp out the competition Herod the Great, ruler of Judea, ordered the slaughter of all baby boys in Bethlehem ages 2 and younger (Matthew 2:16). 

Illegal immigration. God warned Joseph of what Herod was about to before it happened, so Joseph and his family fled to Egypt. (Matthew 2:13-14). The same Egypt where the Israelites had been enslaved before God appointed Moses lead them to freedom. Perhaps not a country that welcomed Jewish illegal aliens.

To read the rest of What Did Mary Worry About?, visit Key Ministry’s blog for special needs parents.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream websiteSharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Ten Moments in a Caregiving Life Well-Lived

Ten Moments in a Caregiving Life Well-Lived

Ten Moments in a Caregiving Life Well-Lived

Ten moments in a life caregiving well-lived is a practice today’s guest blogger, Laura Spiegel is implementing this holiday season. May her ideas cause you to hunt for your own ten moments throughout December and beyond. 

As the holiday season nears, I’m finding myself in moments of reflection. This year has highlighted the fragility of life. The impermanence of it all. It’s also reminded me that a life well-lived isn’t always momentous. It’s a smattering of small moments that together weave a tapestry of love, laughter, joy, struggle, and yes, even loss. 

For parents of children with special health care needs, it can be especially important–and especially difficult–to nurture the blessings that come alongside the battles. As a mother of a young child who lives with cystic fibrosis, I know that my mind spins more readily toward what’s not going well–or what could one day not go well–rather than focusing on the here and now.

To combat that, I’m working on savoring the small things that bring joy to my family and to me. In that spirit, here are ten simple moments from last week that have infused our lives with, well, life. 

  1. My daughter stuffs the Christmas cards, her face a picture of glee. She reads each name with care and is bewildered when her stamps stick sideways. It’s not a hassle for her; it’s a delight.
  2. We read my mom’s advent book as we light the purple candles before dinner. It’s covered in grease stains, and my kids pride themselves on the little they’ve memorized. Each night, this reminds me of home.
  3. We look at a photo album from my mom’s childhood. There she is with her brothers, on the roof of the house like there’s no tomorrow. (And no helicopter parents). Her grin is as wide as the sky. 
  4. Our potted plants are inside for the winter. Maude, the hibiscus, and Doris, the canna lily, are doing well. Every morning, my husband marvels at the pink blooms. They last but a day before falling to the ground. But their hint of life helps keep the Indiana gray at bay.
  5. Speaking of Maude and Doris, did I tell you that my appliances have names? Or rather, the best ones do. There’s Ophelia the oil lamp, Olive the vacuum, and my personal favorite: Mildred, the cell phone cleaner. I find that a simple “Thank you, Mildred!” knocks the cleanliness up a notch.
  6. A package of treats arrives from the children’s hospital. They want to thank their volunteers for their service. We have caramel/cheesy corn for breakfast, lunch, and dinner.
  7. I meet old friends on the back porch. We wear Golden Girls masks as a tribute to our favorite teenage pastime. We trade memories and drink wine through straws. Finding a way to sip while masked? What could be better than that?
  8. My daughter’s best friend drops off a note to thank her for being a friend. These seven-year-olds have bigger hearts than most anyone I know. Their unabashed love and appreciation for each other is a gift. 
  9. A new family member arrives. Leo the kitty reminds me of my favorite girlhood feline. He likes to sit on my son’s lap and lick his arm. They are in love.
  10. The tree twinkles with shiny lights, but my eye is drawn to the homemade ornaments. The handprints of my kids at five months and three. The painted reindeer from preschool. The crocheted dog and cat from my grandma. Our tree reminds me of love, warmth, and life. And if my husband has his way, it will stay up well into 2021. 

This season can be tough, especially for those of us who have lost loved ones or are separated from those we love. From my family to yours, I wish you health and safety this holiday season. And I wish you ten moments in a caregiving life that bring a smile to your face and remind you, in the end, of a life well-lived. 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Laura Spiegel spent 12 years at the world’s largest biotech company, partnering with professionals and care teams to help people with special needs and disabilities lead full and happy lives. In 2013 her daughter was diagnosed with cystic fibrosis. Laura now hosts Paint Her in Color, a website that offers emotional support to parents of children with special medical, developmental, or behavioral health care needs. When she isn’t reading, writing, or soaking up time with her husband and kids, Laura can be reached at Paint Her in Color, by email at laura@paintherincolor.com, and on Facebook and Twitter.

Author Jolene Philo

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Country School Christmas Programs and Santa Suits

Country School Christmas Programs and Santa Suits

Country school Christmas programs were a big deal and still are where country schools still exist. That’s why preparing for the Christmas program plays a major role in See Jane Sing! In fact, the progress of the program is a device I use to drive the story’s sense of urgency. Jane wants to solve mystery before the Christmas program as the morning after the big show she will go to her parents’ home in Iowa for Christmas break.

But enough about that.

The purpose of this post is to focus on the Mr. and Mrs. Santa costumes in the above picture. But first, a word about the amazingly adorable models, Shawn Burghduff and Mary Philippe, who were third graders when they nabbed their starring roles in that year’s program. The picture evokes equal parts joy and sorrow when I see it. Joy to have been their teacher for three years and sorrow over Shawn’s death due to a freak illness when he was not yet thirty. When See Jane Run! is released, it will be dedicated to him.

Give me a minute to stop crying.

Okay, I’m back with some fun facts about the Mr. and Mrs. Santa costumes.

  1. I made the costumes. Except for Mrs. Claus’s striped apron and Mr. Claus’s black belt. Their parents supplied those.
  2. When we moved to Iowa, the music teacher borrowed the costumes every year for the third grade Christmas program.
  3. Before the first borrow, I made a white, ruffled apron and matching mob cap for Mrs. Santa.
  4. My daughter wanted to be Mrs. Santa Claus for Halloween when she was in second grade. I bought granny glasses, washed and ironed the costume, and boom, it was ready. She was adorable, and my propensity to save costumes was vindicated.
  5. I still have the costumes. They’re too big for my grandkids, ages 2 and 4, but that doesn’t stop them from playing dress up in them.
  6. Every time the costumes come out, I think of Shawn and cry happy tears.

Give me another minute to find a tissue.

Okay, I’m back with one last observation related to fictionalized scenes about country school Christmas programs. They take me a long time to write and use a lot of tissues.

Go figure.

Sign up to receive website updates and See Jane Run! book news on Gravel Road’s home page right under the picture of–you guessed it–the gravel road.

Special Needs Gift Exchange: A Unique Perspective

Special Needs Gift Exchange: A Unique Perspective

Special Needs Gift Exchange: A Unique Perspective

Special needs gift exchange has meant something unusual to Lillian Flake since her daughter Catherine was born. In her guest post, Lillian describes the beauty and joy Catherine brings to the season and to her family.

One of the delights of the Christmas season is the tradition and social custom of the gift exchange. Some view the gift exchange as a cycle to give, to receive and to return. In our home we believe Christmas gifts are presents given to Jesus by the Wise Men.

I am particularly grateful this year as I reflect on the special needs gift exchange that transformed my home. Our daughter with special needs was born during the Christmas season just 14 years ago. Her early years were marked by medical challenges and later years discerned additional encounters with behavior and developmental delays.

Scripture reminds us in Psalm 127: 3-5a (AMP) to “Behold, children are a heritage and gift from the Lord, The fruit of the womb a reward. Like arrows in the hand of a warrior, so are the children of one’s youth. How blessed [happy and fortunate] is the man whose quiver is filled with them; “

Our Catherine validates this heritage through a special needs gift exchange in the following ways:

She gives us joy in the midst of sacrifice! Our time is often stretched with the extra care Catherine requires to complete certain tasks such as dressing herself and personal hygiene. She does not have the level of independence one would expect from a typical 14 year old. Yet the sacrifice comes through a window of joy because we have the peace of knowing she is progressing and drives through her trials like a warrior without complaining. She is not aware of the delay and finds joy in progress which gives us a peace to move alongside her.

We receive growth in life from the Fruits of Spirit! Our perspective on life has matured through a special window of patience and faith. During her periods of extreme challenge, we exercise a level of patience and really grateful for our faith. We often take things one day at time and try not to get ahead of her or ourselves. When the challenges are most difficult we take refuge and our reliance on Him has to sometimes come by the minute. This is a gift exchange that gives us time with our Savior.

We return our blessings and give to others! I know I am the happiest when I give of my time and talents to serve others. At the highlight of Catherine’s illness, we had constant support from friends, family and neighbors. There was always a helping hand. A few weeks ago, I had the opportunity to take a meal to a neighbor recovering from a serious illness and spent a couple of hours with their family. I wanted to bless them with a meal and in return I walked away with the blessing of precious time with individuals that warmed my heart in a special way.

As you close out this holiday period and relish the gifts of the season, remember to reflect in the coming year and try to find ways to give joy, receive growth and return blessings of happiness and fortune that are too great to measure!

 

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up at the bottom of this page.

 

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Lillian is a wife, mother, primary caregiver advocate, and scientist. She is the proud mom of two girls, the youngest with Down syndrome. Her youngest daughter had a heart defect and other health issues that required 92 days of hospitalization her first year of life. Lillian is a natural problem solver and understands the challenges every caregiver can face with the overwhelming tasks of managing hospitalizations, numerous doctor appointments, medications, insurance claims along with balancing the care of family. As a key component of her blog, Beyond the Waiting Room, she provides a peek into her personal challenges along with resources, tools, new technology and inspiration. In addition, she often speaks to groups in the medical field about CARE (Compassion, Action, Respect and Education) the cornerstone of treatment for all patients. 

Author Jolene Philo

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My First Christmas Away from Home

My First Christmas Away from Home

My First Christmas Away from Home

Our first Christmas away from home was also my first one as a parent.

My husband and I lived in a small, remote town. Our town was surrounded by ranches. Cattle and sheep outnumbered people by the thousands. Taking our sick and struggling baby to the doctor required a 240 mile round trip, and winter travel could be treacherous. Traveling hundreds of miles to be with my parents for Christmas was out of the question. I thought celebrating Jesus’ birthday away from my parents and extended family would be horrible. I was wrong.

Our first Christmas away from home was hard. But it wasn’t horrible.

It wasn’t horrible because the people in our small town made room and invited us into their homes that Christmas. It wasn’t horrible because friends oohed and aahed over our baby and declared him a fighter. It wasn’t horrible because the doctor released our baby from one therapy and removed a piece of nasty hardware the therapy had required. It wasn’t horrible because though we were walking a parenting path different from what we had anticipated, we were still parents of an adorable baby boy.

Our first Christmas away from home was hard. It was also wonderful.

After months filled with our son’s surgeries, hospital stays, and doctor visits, while working full time, Christmas vacation was our first chance to reflect since we became parents. As I changed our baby’s diapers, I pictured Joseph and Mary caring for their baby in a small, remote village. As our car bumped down snow-packed gravel roads on the way to the doctor, I imagined how uncomfortable Mary’s donkey ride to Bethlehem must have been. As we passed herds of cattle and sheep feeding on hay bales in winter pastures, my nose wrinkled and my eyes watered thinking of the stench in the stable where Jesus was born. As I met my baby’s bright-eyed gaze, I could hear the shepherds oohing and aahing over the precious new life in the manger.

Our first Christmas away from home was hard. It was also humbling.

As a new mom who had nearly lost her newborn son, I ached for Mary’s future sorrow when she would watch her Son die. Having watched my baby endure great pain, I cringed for what Christ would experience on the cross. For the first time I understood the magnitude of the sacrifice by which God set sinners free. My heart was pierced with new understanding, and I was humbled by the sacrifice wrought for me. That year, for the first time, I celebrated our Savior’s birth under the shadow of the cross.

To read the rest of this post, visit Key Ministry’s blog for parents raising kids with special needs.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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