The Amazing Shrine School for Children with Special Needs

The Amazing Shrine School for Children with Special Needs

The Amazing Shrine School for Children with Special Needs

The Shrine School in Memphis, Tennessee is one of a kind. I visited it in late September of 2017 and was blown away by the building, the teachers, the staff, the parents, and most of all, by the 150 students served there.

I knew this school was something special after spying this multiple child carrier in the preschool hallway.

The school, part of Shelby County Schools, has a unique history and collaboration with the Shriner Organization. The Shrine Board of Control provides funding for special services that benefit the students who attend the school. To be eligible to attend, students (who range from age 3 to 21) must have an IEP, and the need for nursing services must be written into their IEPs. The services offered are amazing. Here are pictures of a few.

Breakfast and lunch for all students. The little girl in the chair is eating breakfast. The cafeteria provides special meals for students who require pureed food, thickened liquids, gluten-free and the like.

Full time, on site physical, occupational, and speech therapists who do some work in the therapy room above or in the classroom.

Special changing tables in the locker rooms for students whose IEPs include water therapy in the pool shown at the top of the page.

Adaptive PE equipment for tots,

tweens,

teens, and young adults.

A fully stocked library run by Ms. Posey, which I think is the best possible name for a children’s librarian.

A life skills area where students learn cooking and housekeeping skills.

The Shrine School also has a full time RN who works with students and oversees numerous LPNs that serve each wing of the school (preschool, elementary, middle school, and high school). Class sizes range from 8–13 students. Each classroom has a full time teacher and at least 2 teaching assistants. The principal has been there 18 years and is passionate about the students. The full time guidance counselor, who first contacted me about speaking at their fall parent resource fair, knows every student by name and is constantly searching for resources for children and families.

Here are a few of the Shelby County resources at  the Resource Fair.

Meet Brittany, a Shrine School Alum, who now works for The Arc in the Memphis area and represented the organization at their booth.

Speaking of families, the Shrine School parents are dedicated and involved. Here are a few of the over 100 who attended the Fall Resource Fair.

The work being done by and with the students dropped my jaw more than once. In 1 classroom, a little boy operated the smart screen with his foot.

He knew exactly how to get to the channel he wanted.

At the end of the day, I visited a middle school classroom. The speech therapist wheeled one of the students into the room and announced that the young girl had “found her voice” that day. “Say hello to everyone,” she instructed a girl with dancing eyes and a radiant smile who was unable to use her limbs or speak because of cerebral palsy.

Then, for the first time in her life, the young girl used her gaze-activated communication board to say, “Hi, how are you?”

Gaze-activated communication board in use!

I watched the teachers and associates lovingly gather around her chair to chat with the student and listen to what she had to say. They kept their cool, but I was in tears.

“This school is amazing,” I told the guidance counselor later as I recounted the story.

“Miracles like that happen here all the time,” she said. “Children take their first steps, start talking, and learn to use the bathroom.”

At the end of the day, I went back to my hotel room grateful to the Shriners for their commitment to children with special needs. But my gratitude pales in comparison to that of the parents.

One after another said, “My child loves it here, and so do we. This is the best school ever.”

And do you know what I think?

They’re right.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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7 Inclusive Halloween Posts for Kids with Special Needs and Disabilities

7 Inclusive Halloween Posts for Kids with Special Needs and Disabilities

7 Inclusive Halloween Posts for Kids with Special Needs and Disabilities

Are you planning an inclusive Halloween for your child or students with special needs and disabilities? These 7 posts are full of ideas to ensure that every child can participate in the holiday fun and create lasting memories.

Post # 1: Creating a Successful and Purposeful Halloween

This Halloween series was written by Different Dream guest blogger Amy Stout way back in October of 2011. In Part 1, Amy shares oodles of strategies for creating a successful Halloween. In Part 2, she explains how to use the holiday purposefully, so children learn social skills while celebrating.

Post #2: Creating an Inclusive Halloween

The Connecting for Kids website, Creating an Inclusive Halloween, offers a gold mind of ideas. Tips are categorized in the following categories:

  • Sensory-Friendly Tips
  • Allergy/Food Issue-Friendly Tips
  • Anxiety-Friendly Tips
  • Other Disability-Friendly Tips

As an added bonus, the post offers links to 13 special needs-related resources to investigate.

Post #3: 4 Ways to Hunker Down for a Special Needs Holiday

Different Dream blogger, Barb Dittrich, penned this series. While the tips are not exclusive to Halloween, they provide a framework parents of kids with special needs can apply to all holiday celebrations. In Part 1, Barb encourages parents to determine the main purpose for celebrating each holiday. In Part 2, she offers 3 more tips that can be used to customize every holiday celebration to your family’s values and your children’s needs.

Post #4: 41 Best Halloween Costumes for Kids with Disabilities

Halloween’s not complete with out a costume. But finding a costume appropriate to a child’s specific needs isn’t always easy. This Pinterest board provides a creative jump start for stymied parents. Prepare to smile!

Post #5: 10 Halloween Safety Tips

Keeping our kids safe and secure is paramount at all times. This Special Needs Magazine article is packed with safety tips tailored for kids with special needs and disabilities for every Halloween.

Post #6: Costumes for Kids with Disabilities

Easter Seals has a great post about how to choose a costume that reflects your child’s personalities and interests and incorporates their disability with creativity and style. You’ll want to read it after you’ve checked the above Pinterest article and are completely overwhelmed.

Post #7: Halloween for Kids with Special Needs

Nancy Flanders, who has guest blogged at Different Dream in the past, has an excellent Halloween post at families.com. In it, she offers Halloween tips for kids with autism, auto-immune conditions, asthma, allergies, and speech and language delays. her posts are always practical and doable, so be sure to stop by families.com and give it a read.

Your Favorite Inclusive Halloween Tips?

What’s your favorite inclusive Halloween tip or post? Share them in the comment box if you like.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

 

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Gtube Baby Basics, Part 1

Gtube Baby Basics, Part 1

Gtube Baby Basics, Part 1

Guest blogger Maheen Tarvers, mom to a baby born with EA/TEF, is here to kick off her series about gtube baby basics. In part 1, she reviews accessories that make life easier for both parents and their babies with gtubes.

Gtube Baby Basics, Part 1

Before my son was born, I didn’t know gtubes existed! After he was born, I couldn’t find one article or internet site with the knowledge I needed. I spent hours (I still do) learning and relearning things I wish someone told me beforehand. This series is my attempt to simplify things for new parents. This part of gtube baby basics will cover gtube accessories.

Necessity is the mother of all inventions, especially for parents of a tubie child. I want to personally thank that person who came up with the brilliant idea of making gtube covers, feeding bag holders, connector covers, syringe holders, and adaptive clothing. There maybe more accessories, but I found these to be the most helpful.

#1: Gtube Cover Pads

These are cute, artsy and handy. They keep the site super dry. They are also pain free because there’s no need for pesky split gauze and tapes to shut them, and there is no risk of skin irritation. Cover pads come in cartoon shapes, sizes and cute prints–from Super Mario to Cinderella. They are made to order, and some sellers allow you to choose the fabric, the size and sometimes shapes as well. You might be sad that your baby has gtube, but look at the bright side–you get to shop for something unique!

gtube-collage

#2: Feeding Bag Holder

Parents of children with overnight feeds, I know your pain. Having a baby on a feeding feeding-bag-collagetube is hard and can be exhausting. Even harder is when you are trying get up every other hour to juggle everything for overnight feedings. Feeding bag holders are a perfect solution. When our son had continuous overnight feeds, we used to make a full batch of formula for the night feeds, put it in, and added ice packs. I had peace of mind and sleep at the same time–Ah!!

#3: Connector Holders

I have yet to meet a gtube baby parent who has successfully avoided crib feedings. Luckily, someone came up with a solution, and voila, the problem was solved. With connector holders  placed on the connector, the fear of having a little one kick the connector out during crib feedings and lathering their skin with formula while sleeping is gone. If you use the AMT MiniONE gtube instead of MIC-KEY gtube, your medical supply company can supply night time connectors. They can be used with Mic-key as well, though they are a little snug for the Mic-key button.connector_collage

#4 Syringe Holders

Yes, syringe holders exist and are amazingly useful when traveling. They can be used to store travel syringes–and even an extra extension cord–in your emergency medical supply (EMS) backpack. They in handy when you are in a hurry and forget to grab different-sized syringes on your way out.

syringe_collage

#5: Adaptive Clothing

Adaptive clothing is cute, fashionable and yet very much accessible for gtube babies. The downside is that it can be a bit expensive. If you don’t want to spend a fortune, use snap button onesies, overalls, and wearable swaddle blankets. Or you can cut a hole in the onesie. It won’t last long unless you sew in the ridges of the hole. Also, when you buy a wearable swaddle blanket or onesie with a zipper, be sure to buy ones that close from neck to toe rather than  hip to neck.

Or, you can dress your child like this:

onesie-collage

I call it Superhero in Training, which always starts with wearing underwear on the outside!

Gtube baby basics, especially adaptive clothing, are a niche business. You can find them at Etsy and Facebook. To find other gtube baby basics accessories–from trach covers, adaptive clothing and even beds and inclines–go to the Feeding Tube Awareness Foundation.

There you have it! In coming posts, we will talk more about caring for your tubie, granulation tissue, to emergency medical supply bags, and traveling with your tubie. Until next time, enjoy those cute gtube baby basics accessories for your little one.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Maheen Tarver is a Bengali Muslim born and raised in Bangladesh.  Before she was a full time, messy bun, no makeup, super-busy mom, she was a project coordinator in Bangladesh educating underprivileged, young garment workers about health, safety and environment. She lives with her husband William and son Waqeed Dean (WD) in Massachusetts. Maheen now spends her researching EA/TEF and encouraging other EA/TEF moms to become advocates for their children.

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Still Life: A Memoir of Living Fully with Depression

Still Life: A Memoir of Living Fully with Depression

Still Life: A Memoir of Living Fully with Depression

Different Dream welcomes the author of Still Life: A Memoir of Living Fully with Depression as today’s guest blogger. Gillian Marchenko is mom to 4 daughters, two of whom live with special needs. She’s here for a Q & A that tells readers more about her new memoir about living well with depression.

Question: Would you provide a short summary of Still Life for Different Dream readers?

Answer: Still Life is a memoir about one family’s experience with depression. Mine. As one reviewer said:

“I absolutely love Gillian Marchenko’s poignant memoir on depression. As someone who has been there (I found hope and healing over several years, through a combination of therapy, scripture, medicine, and family support), the book rang true to my own experience. I especially appreciate how Marchenko didn’t gloss over the difficulties her illness created with her marriage, children, faith, finances, and friends. Her healing was and is ongoing, and that’s an important truth. Often, we think that if we pray hard enough or have enough faith, God will heal us instantly. However, though He CAN work that way, and does, He also works mysteriously and gradually at times. If you or a family member struggles with this cruel disease, you’ll find hope in its pages. Not a shallow, pie-in-the-sky-hope, but the hope that Jesus is with us, whatever we go through, and that (as Gillian says so eloquently) life with depression is STILL LIFE.”

Question: What motivated you to write such a personal story?

Answer: I’ve spent about a decade struggling daily with major depressive disorder. Throughout the years, I have asked God countless times how in the world my experience and time can glorify him instead of feeling like my life is a waste. He gave me Still Life.

I also knew that if I wrote the story, I had to be honest. In memoir, I’ve learned that a reader stops trusting the narrator once they come across sentences like ‘I won’t go into that,’ or ‘I won’t bore you with details.’ They stop reading if they even sense that aspects and events are omitted. True memoir is a look into a slice of life and (in my opinion) in order for it to ring true, one has to include the whole story. There are parts that I did not want to include in the book. But I knew that if I didn’t, I would be doing a disservice to my readers, myself, and to the Lord who is the true author of my story.

Question: What red flags and symptoms of depression should readers be watching for in themselves and others?

Answer:

  • Withdrawal from life
  • Feeling hopeless
  • Cloudy thinking and inability to process or even pinpoint what is going on inside
  • Suicidal thoughts
  • Aches and pains
  • Exhaustion
  • Symptoms reoccur and/or last longer than four weeks.
  • Of course, this list isn’t exhaustive. For more information about symptoms, people can access The National Alliance of Mental Illness (NAMI).

Question: What steps should someone with depression take to get help?

Answer: Some that come to mind are:

  • Stop thinking it is your fault. It is an illness (1 out of 4 people have some type of mental illness).
  • Tell one person.
  • See your primary care physician to make sure it isn’t another health issue (thyroid, hormonal, vitamin deficiency, etc.).
  • After that, make appointments with a therapist and/or psychiatrist who specializes in depression.

Question: How can friends and family support and encourage someone they love who’s dealing with depression?

Answer:

  • Stick around. Even if your loved one withdraws from you, send texts, emails, maybe a card in the mail. Let them know they are not forgotten.
  • Pray for them.
  • If it is a close relationship, encourage them to seek out help.
  • Validate the illness.
  • Get educated and help break the stigma.

Question: How have you been coping with depression and growing in your faith since writing Still Life?

Answer: I praise God that my depressive episodes are fewer and don’t last as long. But it is still a battle. It is an active illness and I work at it. I take antidepressants, see a therapist and a psychiatrist, and seek out prayer and support from family, friends, and my church family when able. I try not to hide my struggles.

God has shown me that the darkness within loses it’s power when brought to light. My theology teaches me that He is sovereign and has a plan for me that will bring him the most glory. I cling to him more, when able, because I know I cannot survive without his love. A few verses he has given me to help me cling to him include:

  • Isaiah 50:10 “Who among you fears the Lord and obeys the word of his servant? Let the one who walks in the dark, who has no light trust in the name of the Lord and relay on their God.”
  • John 1:5 “The light shines in the darkness and the darkness has not overcome it.”
  • Matthew 10:27 “What I tell you in the dark, speak in the daylight, what is whispered in your ear, proclaim from the roofs. My faith is growing in the midst of my illness.

Life with depression can be difficult, but it is STILL LIFE.

Do you like what you see at jolenephilo.com/? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.

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Gillian Marchenko is an author, speaker, wife, mother of four daughters and advocate for individuals with special needs. Still Life, A Memoir of Living Fully with Depression was published with InterVarsity Press in 2016. Her first book, Sun Shine Down (T. S. Poetry Press), chronicles her experience having a baby with Down syndrome while serving as a missionary in Ukraine. Gillian writes and speaks about parenting kids with Down syndrome, faith, depression, imperfection and adoption. She and her husband Sergei spent four years as church planters with the Evangelical Free Church of America in Kiev, Ukraine, and they now live with their four daughters in St. Louis, Missouri.

Author Jolene Philo

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Top 10 Signs Your Family Is Full of Tolkien Fans

Top 10 Signs Your Family Is Full of Tolkien Fans

How do you know your family contains generations of Tolkien fans? Here's how I figured it out.The Man of Steel and I are proud of our kids for many reasons. One of our faves is that we turned them into J.R.R. Tolkien fans before the movies came out and remain so to this day. 10. Our family food fave analogies always follow the same formula: I like _______________ as much as hobbits like mushrooms. 9.  Entirely too many family dinner discussions cite Silmarillion references. In great detail. 8.  Family members look for ways to sneak words like “clad” and “strode” and “smite” or “smote” into every day conversation. 7.  We each can describe the cover art on the first Lord of the Ring trilogy we ever read. 6.  Some of our kids’ favorite childhood memories are of reading Tolkien (not only The Hobbit, but also the trilogy and The Tolkien Reader) out loud as a family. 5.  When a family member swallows loudly at any meal, everyone else at the table calls him or her “Gollum.” 4.  We have a family tradition of watching the entire trilogy at some point during Christmas break to commemorate the original releases and our first viewings of the movies in December of 2001, 2002, and 2003. 3.  The under-the-stairs closet with it’s 3 foot high door was immediately dubbed “the hobbit closet” when we moved here in 1991. 2. We agree that Spock and all other Vulcans are Middle Earth elves in disguise. 1. In this family, the word “precious” is uttered in a reedy voice with long, drawn out hisses. Is your family comprised of Middle Earth fans? Leave a comment to describe how you know.
Summer Recipes on Our Gravel Road

Summer Recipes on Our Gravel Road

In August, most of our meals revolve around what comes in our weekly CSA share and what’s in season at the grocery store. Since many fruits and veggies are available for a very short time, I’ve been cooking family favorite recipes rather than trying new ones. That’s why today’s post is a parade of the previously published recipes that have been prepared in our kitchen lately.

1. Today's post is a parade of the previously published recipes that have been prepared in our kitchen lately using seasonal produce.To use up tomatoes, sweet peppers, and jalapenos we’ve been making double batches of this delicious summer salsa. This summer’s new twist has been to cut the corn off two ears of sweet corn, microwave it for a minute, and add it to the salsa. How can something good for a person be so sinfully good?

2.  Today's post is a parade of the previously published recipes that have been prepared in our kitchen lately using seasonal produce.

Summer heat’s been great for the basil in my herb garden. I’ve lost count of how many batches of pesto we’ve made. We make non-dairy basil pesto, which is as tasty as the regular version.

3.  Today's post is a parade of the previously published recipes that have been prepared in our kitchen lately using seasonal produce.Most of the pesto goes in the freezer to be used throughout the winter. But some of it gets added to pesto pasta, to which we add summer vegetables that need to be used: zucchini and grape tomatoes are two faves.

4. Today's post is a parade of the previously published recipes that have been prepared in our kitchen lately using seasonal produce.Peanut chicken stir fry is another summer favorite at our house because we can add whatever veggies are available. Our favorite is Joni’s Cashew Chicken, garnished with peanuts instead of cashews. You can find other stir fry recipes by typing “chicken stir fry” in the Gravel Road search box.

5. Today's post is a parade of the previously published recipes that have been prepared in our kitchen lately using seasonal produce.With peach season going strong, we’ve been eating a lot of peach pie for dessert. This morning I made two for supper with friends tonight. This fresh peach pie recipe can’t be beat.

So what’s cooking in your late summer kitchen? Leave a link to your favorite recipe in the comment box if you like.