Can Churches Help Families Raising Children with Disabilities Stay Together?

Can Churches Help Families Raising Children with Disabilities Stay Together?

Can Churches Help Families Raising Children with Disabilities Stay Together?

Can churches help families raising children with disabilities stay together? Guest blogger Mark Arnold, who hails from the United Kingdom, answers that question by telling the story of how the church stepped in to support a family whose respite care ended during summer vacation when they needed it most.

Psychology Today reports that “the rate of divorce in families with a child with disabilities may be as high as 87%. The divorce rate in families with a child with autism is about 80%.” While these alarming figures are at the top end of those cited in the article, the general consensus seems to be that the rates are considerably higher for families of children with special needs than for the rest of the population.

The pressures of parenting a child with special needs of any age are very real. A significant decrease in government support offered to families in United Kingdom during the last few years, largely as a result of covid, means that families have to cope on their own without much help. Many couples have found it to be too much.

So is there hope? Is there a role for the church in filling some of the gaps that have been left as secular services have stopped? Can churches help families raising children with disabilities stay together? I believe the answer to these questions is yes.

A family I know found themselves beginning the summer holidays with no respite provision available. Their two children with conditions that require constant care and supervision so they asked their church if it could help. It stepped up magnificently. Here are some of the things they did.

  1. Food. Church members started doing what churches do in a crisis. They cooked! Lots of food was brought round to the family so that they didn’t have to think about preparing meals all the time.
  2. Childcare. A couple of people came at least once a week to look after the children. The parents used the break go out for a walk, get a coffee, watch a movie together.
  3. Respite breaks. The same team also occasionally took the children out to a theme park for the day. The parents were able to plan day long adventures out or to catch up on sleep—whatever they preferred.
  4. Home-improvement workday. The pressures of work, daily household chores, and caring for children meant the house and yard had been uncared for. The church arranged a workday, coinciding with the children’s trip to a theme park and the parents’ day out. During that day the church work crew decorated the house, completed a few outstanding repair jobs, tidied up the yard, and more.
  5. Small group fellowship. The parents were given support so they could attend their church small group and be spiritually nourished and to socialize, knowing their children were well cared for at home.

What the church did showed the family they were not forgotten, that they were loved and valued, that their church family cared about them and wanted to serve them. It made a huge difference to this family. Other churches can follow their example and respond in love to bless families that are struggling. By doing so, churches will play a part in reversing some of the divorce figures related to families caring for children with special needs.

So can churches help families raising children with disabilities stay together? My answer is yes!

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Image credit: Zoriana Stakhniv via Unsplash

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

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How Do I Teach my Kids to Interact with People Who Have Disabilities?

How Do I Teach my Kids to Interact with People Who Have Disabilities?

How Do I Teach my Kids to Interact with People Who Have Disabilities?

“How do I teach my kids to interact with people who have disabilities?”

The question came during an interview with the hosts of the Music for the Soul podcast. While I composed an answer in my head before speaking, I also thought to myself, “What a great topic for a blog post.”

Once the interview was over, I jotted down what I’d said and added more tips as they came to mind. The tips below are geared for kids, but they can be adapted for adults who act uncomfortable around anyone with disabilities and special needs—kids, adults, and senior citizens.

  1. Model disability etiquette to your children and others. In addition to watching how you employ the tips listed below as you interact with people who have disabilities and special needs, they hear how you speak. They notice your inflection and tone of voice. They can see if you are at ease or uncomfortable, patronizing or respectful, so try to be a good role model.
  2. Talk to the person with the disability rather than to their caretaker or interpreter even if they give the answer. Doing so shows the person that you value them and want to hear from them.
  3. Start by having your child introduce herself. Once again, this conveys respect for your child’s voice and helps the person she’s talking to know who to speak with.
  4. Allow your child to ask the person about his disability. Kids are curious and uninhibited. They will bring up the disability elephant in the room that adults are too “polite” to mention.

To read the rest of How Do I Teach my Kids to Interact with People Who Have Disabilities?, go to the Key Ministry website.

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Photo by Ability Ministry on Disability Is Beautiful

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Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

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Disability Ministry Goes After the One

Disability Ministry Goes After the One

Disability Ministry Goes After the One

Disability ministry goes after the one according to guest blogger Mark Arnold. In this post he explains how we can be like Jesus and do it too.

Sometimes I get asked why churches should make an effort to reach those with special or additional needs, when it means balancing their needs against those of the rest of the group. I always say the same thing.

Jesus told us to go after the one.

In the parable of the Good Shepherd, Jesus told of a shepherd leaving 99 sheep to find the one that was lost. Here’s the version from Luke 15:4-7.

“If a man has a hundred sheep and one of them gets lost, what will he do? Won’t he leave the ninety-nine others in the wilderness and go to search for the one that is lost until he finds it? And when he has found it, he will joyfully carry it home on his shoulders. When he arrives, he will call together his friends and neighbors, saying, ‘Rejoice with me because I have found my lost sheep.’ ” (New Living Translation)

Jesus uses this parable to explain how heaven rejoices more over one person who repents and comes to faith than for ninety-nine people who have never strayed. I like to think it can represent some children and young people with special or additional needs too.

They can sometimes be marginalized, overlooked, and “lost” to the rest of the church. They are sometimes sent away and excluded by the very people who should love them and care for them. I’ve heard stories of children with special or additional needs being told not to come back next week, or their parents told “this is not a special needs church”. I’ve even heard of children being excluded because “they might be a health and safety risk.”

But Jesus said to go after the one.

Disability ministry goes after the one by valuing the one: Too often, children and young people with special or additional needs are looked down on as of little value in our churches. The Good Shepherd valued the one sheep that had wandered off. In a way he valued the one more than the ninety-nine because he left them to search for the one. We need to value them, prioritize them, love them as Jesus does.

Jesus said to go after the one.

Disability ministry goes after the one by investing time and effort: The Good Shepherd scoured the wilderness looking for the one. We need to invest the time and effort needed to reach the children and young people we are journeying with. We can’t expect them to adapt, to change, to find the way themselves. The lost sheep needed the Good Shepherd to find it where it was and bring it home. Children and young people with special or additional needs require their leaders to do that too.

Jesus said to go after the one.

Disability ministry goes after the one by rejoicing in and with them: The Good Shepherd brought the lost sheep home and rejoiced because it had been saved. All too frequently, we don’t think about the spiritual welfare of children with special or additional needs. Their time in our groups becomes babysitting. But heaven rejoices for each person who is saved. We should do all we can to bring children and young people into God’s presence to show them their spiritual home and rejoice with them when they make little steps of faith.

Jesus said to go after the one. Will you?

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.

Photo by Hiu Yan Chelsia Choi on Unsplash.

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Mark Arnold is the Additional Needs Ministry Director at Urban Saints, a leading national Christian children’s and youth organization. He is co-founder of the Additional Needs Alliance, a national and international advocate for children and young people with additional needs or disabilities. Mark is a Churches for All and Living Fully Network partner, a member of the Council for Disabled Children and the European Disability Network. He writes an additional needs column for Premier Youth and Children’s Work (YCW) magazine and blogs at The Additional Needs Blogfather. He is father to James, who has autism spectrum condition, associated learning disability, and epilepsy. To find out more about how Mark’s work can help you, contact him at: marnold@urbansaints.org or @Mark_J_Arnold

Author Jolene Philo

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In the Little Town Where I Once Lived

In the Little Town Where I Once Lived

In the Little Town Where I Once Lived

In the little town where I once lived, people with disabilities contributed to the community in significant ways. The woman who ran the switchboard, one of the two remaining in the United States in 1977, had been the first baby to receive a cleft lip and palate repair at Mayo Clinic. The repair was not elegant, she was hard to understand, yet she ran the switchboard day and night with skill and dedication. 

Her husband, with whom she owned the local phone company, repaired the lines. No small feat because the lines connected not only the homes of the 92 people in town, but also those of ranchers scattered throughout the short grass prairie in western South Dakota. He was highly skilled, climbing telephone poles to restore service without hesitation even though he had been blinded in a fireworks explosion when he was a boy.

My husband and I had been married 10 months when we moved there. We stayed several years before returning to Iowa in 1985. Visits to the little town where I once lived are few and far between because it takes so long to get there. But that tiny community comes to mind often. I think about why it valued people with disabilities. The town’s inclusivity extended beyond the owners of the phone company. It embraced a man with developmental delays who worked as a hired hand for ranchers, and many other citizens with mental and physical conditions.

To read the rest of In the Little Town Where I Once Lived, visit the Joni & Friends blog.

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Jolene Philo is the author of the Different Dream series for parents of kids with special needs. She speaks at parenting and special needs conferences around the country. She’s also the creator and host of the Different Dream websiteSharing Love Abundantly With Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and at Amazon.

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Caregivers Fear the Future: 3 Ways to Walk Alongside Them

Caregivers Fear the Future: 3 Ways to Walk Alongside Them

Caregivers Fear the Future: 3 Ways to Walk Alongside Them

Caregivers fear the future.

I was 6 or 7 when I encountered this fear in the house where I grew up. If either my older sister or younger brother was sick, Mom would fold a white hankie into the shape of an old-fashioned nurse’s hat and pin it on my head. She would tie a white apron around my waist, hand me a tray with tea and juice, and instruct me to deliver to the sick room.

When I returned the tray to the kitchen, she would say, “Isn’t it fun to be a nurse, Jolene? Wouldn’t you like to be your dad’s nurse when you get older?”

It wasn’t. And I didn’t.

But something in her voice–the same tone she used when she was afraid there wouldn’t be enough money to pay the bills–kept me silent. I was only a little girl, but Mom’s anxiety about who would care for Dad as his multiple sclerosis progressed was palpable.

Mom’s fear of the future didn’t convince any of her children to enter a medical profession, though she made a number of wise financial decisions to ensure Dad had the care he needed until he died in 1997. More than 50 years after Mom sent me down the hall to play nurse, I realized that caregivers fear the future as much as she did.

Maybe more.

The realization came during interviews with caregiving parents about the stress they experience. Several parents said that one of their greatest stressors is anxiety about who will care for their children who outlive them and where the money they need to live on will come from.

To read the rest of this post visit the Joni & Friends blog.

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Jolene Philo is a published author, speaker, wife, and mother of a son with special needs.

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Belonging: The Heartbeat of Inclusion

Belonging: The Heartbeat of Inclusion

Belonging: The Heartbeat of Inclusion

Belonging is the heartbeat of inclusion. Those words from today’s guest blogger Shelly Christensen resonate with me, and I believe they may resonate with you, too. In this post she provides a biblical framework for inclusion and reminds us that inclusion is the soul of a community.

“For my house shall be called a house of prayer for all peoples.” Isaiah 56:7

Centuries ago, the Israelite people followed a shepherd from Egypt into the wilderness toward a new future. Little did they know that without God’s inclusion, Moses might never have been chosen because of his speech disability.

God made it possible for Moses to fulfill his destiny as the leader of the Israelites by providing Aaron to speak for him. This was the first recorded accommodation in history. Moses could do the work that God commanded him to do as he led the Israelites to freedom. 

God chose Moses because of the leadership qualities and strengths he possessed. His speech disability was insignificant in God’s plan.

In Numbers 12:10-15, Miriam was stricken with leprosy when she spoke out against Moses’ wife Zipporah. Moses beseeched God, “O God, pray heal her!” God demanded Miriam’s banishment from the camp for seven days. Following her solitary week, she was readmitted. When Miriam returned, all the people moved on together.

That is inclusion. We move on together as one people. As we learn from our ancestors, our community is not whole unless everyone is present. Inclusion means everyone has the opportunity to share his or her gifts and strengths, like Moses did. 

And when one person is left outside of our community, like Miriam, we are not complete. 

The prophet Isaiah laid before us a mighty opportunity to include all people in our own faith communities. Many faith communities use Isaiah’s teaching (56:7), “For my house shall be called a house of prayer for all peoples” to let people know that they are welcome.

This is a wonderful aspiration. It tells us what we can become. But it doesn’t describe why inclusion is a holy mandate in our congregations and faith-based organizations.

In the years I wrote From Longing to Belonging I continually searched the Hebrew bible to find a way to explain and understand the theology of belonging.

I returned to Isaiah 56:7. Whereas the last sentence of this verse is more well-known, it is the first part that tells us why belonging is the heartbeat of inclusion.

“I will bring them to My holy mount, and
I will cause them to rejoice in My house of prayer,
their burnt offerings and their sacrifices shall be acceptable upon My altar.”

In God’s eyes, each person contributes to this world. God doesn’t just bring us to God’s holy mount. God accepts the gifts we contribute, and we all rejoice in the holy connections we make with each other. In God’s eyes, everyone belongs. That is how our communities become houses of prayer for all people. This is God’s concept of inclusion. I knew it could become ours.

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for both at the bottom of this page.

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Shelly Christensen, MA, FAAIDD, is the co-founder of Jewish Disability Awareness, Acceptance and Inclusion Month, now in its 11th year. She is an international speaker, trainer, author and consultant to faith communities. Her new book is From Longing to Belonging—A Practical Guide to Including People with Disabilities and Mental Health Conditions in Your Faith Community.  Shelly sits on the board of the Faith Inclusion Network (FIN).  For more information about how to make your faith community more inclusive, visit the Faith Inclusion Network Facebook page.

Author Jolene Philo

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