Stress and How Parents of Kids with Special Needs Handle It

Stress and How Parents of Kids with Special Needs Handle It

Stress and How Parents of Kids with Special Needs Handle It

Stress is a component of the parenting process. The stress is often compounded for parents of children with special needs. A featured post at Julia Robert’s blog Support for Special Needs recently addressed the subject.

Overwhelming Stress

The post was written by Robert Rummel-Hudson, father of a daughter with special needs. (He also blogs at Fighting Monsters with Rubber Swords—a great title for a special needs parenting blog.) In the post, he talks about Veronica Galbraith, “a single mother of a teenaged boy with Autism in the UK  who committed suicide after she was compelled to put her son into care when she found herself unable to cope with his behavioral issues.”

External Stress of Caring for a Child with Special Needs

He goes on to analyze the external and internal stresses Veronica and every parent caring for a child with special needs faces. He says, “These external stressors aren’t mitigating circumstances. They aren’t beside the point. They ARE the point…We don’t spend every minute of every day dealing with disability challenges, but because those challenges are omnipresent, we are always special needs parents, regardless of whether the monster is driving at that particular moment or not.”

Stress You Can’t Handle

He conclude the article with this observation:

When I read the story of someone like Veronica Galbraith, I don’t wonder if she got it wrong more than she got it right, but rather if she BELIEVED she got it wrong too much. And I realize, and remind myself when necessary, that the secret to successful parenting isn’t just about educating yourself, or listening closely to what your kids are trying to tell you, or fighting the good fight like a steely-eyed warrior. Those are vital points, to be sure. But none of that happens if you lose heart, or if you convince yourself that you really can’t show up for work the next morning.

There’s a saying that every special needs parent has heard at some point, rivaling the Holland Thing for frequency of appearance in our inbox. “God never gives you more than you can handle.” But we know better. Sometimes he does.

The article is thought-provoking and worth a thorough read. So buzz on over to Support for Special Needs for a closer look.

How Do You Handle the Stress You Can’t Handle?

The post made me thankful for the support system around us when our son was very sick, and it makes me thankful for my faith, too. Because I agree with Rummel-Hudson. God does give people more than they can handle. But my faith says he doesn’t want them to commit suicide. He wants them to see their need for him and trust him to handle it.

That’s how I got through the dark days and years with our son. How about you? How do you handle the stress you can’t handle? What support do you need? Leave a comment.

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Photo by Jeremy Bishop on Unsplash

By

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages® for Parents Raising Children with Disabilities, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.

Author Jolene Philo

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NICU Parents and PTSD: Could This Be You?

NICU Parents and PTSD: Could This Be You?

NICU parents and PTSD are a combination no one wants to acknowledge. But as this post shows, the duo is alive and kicking in many, many parents.

Neonatal Intensive Care Unit (NICU) doctors and nurses know that a stay in NICU can lead to post-traumatic stress disorder (PTSD) in preemies. But a recent study shows that a NICU parents are at risk of developing PTSD, too.

NICU Babies and PTSD

Post-traumatic stress disorder (PTSD) can occur after someone sees or experiences a traumatic event involving the threat of injury or death. With that definition in mind, it’s not hard to understand why small children who have undergone serious medical treatment develop PTSD. This response in young children is well-documented. Most large hospitals have rained therapists, known as child life specialists, who help kids overcome and avoid PTSD.

NICU Parents and PTSD

But, according to Laurie Tarken’s recent article in the New York Times, parents of NICU preemies also are prone to developing PTSD. According to the article, “parents of NICU infants experience multiple traumas, beginning with the early delivery, which is often unexpected.”

The author of one study, Dr. Richard J. Shaw, an associate professor of child psychiatry at Stanford and the Lucile Packard Children’s Hospital says, “The second trauma is seeing their own infant having traumatic medical procedures and life-threatening events, and also witnessing other infants going through similar experiences.”

“And third, they often are given serial bad news,” he continued. “The bad news keeps coming. It’s different from a car accident or an assault or rape, where you get a single trauma and it’s over and you have to deal with it. With a preemie every time you see your baby the experience comes up again.”

What About You?

If you want to know more about PTSD in NICU parents, lick on this link, For Parents on NICU, Trauma May Last, to access the entire article. You have to register to become an online New York Times subscriber, but it’s free and the piece is well worth the read.

For me, the article explained a comment made by the therapist who recently treated our son’s PTSD, which was caused by early medical trauma. (Child life specialists weren’t readily available way back in 1982 when he was born and spent three weeks in NICU.)  On the last day of Allen’s successful treatment, the kindly therapist looked at me and asked, “What about you, Mom?”

I didn’t understand why he asked the question at the time, but now I do. He realized that I had suffered trauma, too. His simple, caring question validated emotions I’d hidden for years. His words were healing balm to my soul.

Now I want to pass the balm on to you in case you need healing, too: Moms and Dads of NICU kids, what about you?

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