{"id":7056,"date":"2012-10-08T07:00:49","date_gmt":"2012-10-08T12:00:49","guid":{"rendered":"http:\/\/f06.70c.myftpupload.com\/?p=7056"},"modified":"2012-10-08T07:00:49","modified_gmt":"2012-10-08T12:00:49","slug":"special-needs-church-support-advice-from-a-parent","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/special-needs-church-support-advice-from-a-parent\/","title":{"rendered":"Special Needs Church Support: Advice from a Parent"},"content":{"rendered":"\n[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title featured_image=&#8221;off&#8221; _builder_version=&#8221;4.16&#8243; title_font=&#8221;||||||||&#8221; title_text_color=&#8221;#42313A&#8221; title_font_size=&#8221;40px&#8221; meta_font_size=&#8221;14px&#8221; background_color=&#8221;#B4DBC0&#8243; custom_padding=&#8221;50px||50px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px||0px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.16&#8243; _dynamic_attributes=&#8221;src&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.22.2&#8243; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<p>Special needs and Sue Badeau are a great pair, as the August 2012 interview series about <a href=\"http:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\"><span style=\"text-decoration: underline;\">adopting children with terminal special needs<\/span><\/a> shows. Today, she&#8217;s back to answer one more question I asked during the interview: What can churches do to support families with children who have terminal special needs? She answered with three pieces of practical advice.<\/p>\n<h3>Special Needs Church Support: Tip 1<\/h3>\n<p>I would like to see churches play a stronger role in supporting families caring for children with special needs and those who are terminally ill.\u00a0 While our church has \u201cbeen there\u201d for us, they often did not know how to best support us.\u00a0 For example, there were long periods of years when some of our children simply could not come to church due to their medical conditions.\u00a0 This meant that Hector and I had to take turns attending church so that one of us could stay home.\u00a0 Wouldn\u2019t it have been great if the church had offered to set up a schedule of volunteers to come to our home on Sunday mornings and stay with our sons on a rotating basis so we could attend church together?<\/p>\n<h3>Special Needs Church Support: Tip 2<\/h3>\n<p>Another example\u2014we have many children with significant mental health diagnoses and behavioral health challenges.\u00a0 These children are the ones who sometimes stray into drug addictions and behaviors that are very challenging, such as stealing or running away.\u00a0 Wouldn\u2019t it be great if a small group of caring adults from church made a covenant to pray every day for your child and checked in with you from time to time to ask how to best pray?<\/p>\n<h3>Special Needs Church Support: Tip 3<\/h3>\n<p>A final example\u2014often the child with the most severe challenges or terminal illness is not the only child in the family and yet requires an inordinate amount of the parents\u2019 time and attention.\u00a0 Perhaps the needs of this child also stretch the family budget to the breaking point.\u00a0 Wouldn\u2019t it be great if the church found ways to support the other child or children in the family by taking them to the movies or providing a scholarship so they can attend a week of summer camp or take ballet lessons?<\/p>\n<p>These are just a few examples of ways that churches could take initiative and provide supportive pastoral care and fellowship for families going through difficult challenges while raising children with special needs or who are terminally ill.\u00a0 While it is true that these parents could be more pro-active and ask for this help, they are often too exhausted and overwhelmed to do so.\u00a0 If the church could stand in the gap for these parents and take the initiative to pro-actively support them, it would be a ministry worthy of a King!<\/p>\n<h3>More Special Needs Church Support Advice<\/h3>\n<p>Thank you, Sue, for those examples of practical ways for churches to support our kids. For more ideas of what your church or you can do, check out these posts:<\/p>\n<ul>\n<li><span style=\"text-decoration: underline;\"><a href=\"http:\/\/differentdream.com\/2011\/03\/10-tips-for-working-with-families-of-kids-with-special-needs\/\">10 Tips for Working with Families of Kids with Special Needs<\/a><\/span><\/li>\n<li><span style=\"text-decoration: underline;\"><a href=\"https:\/\/differentdream.com\/2012\/06\/how-to-help-the-parent-of-a-child-with-special-needs\/\">How to Help the Parent of a Child with Special Needs<\/a><\/span><span style=\"text-decoration: underline;\"><\/span><\/li>\n<\/ul>\n<p>You can read more of the Badeau&#8217;s story in this article: <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.newyorker.com\/magazine\/2015\/08\/03\/the-children-of-strangers\">The Children of Strangers<\/a><\/span><\/p>\n<p>As always, your tips are appreciated, too. So chime in below with your ideas about how churches can support special needs families.\u00a0<\/p>\n<p><em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; background_color=&#8221;#b4dbc0&#8243; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&#8221; image=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;100px&#8221; content_max_width=&#8221;800px&#8221; _builder_version=&#8221;4.16&#8243; _dynamic_attributes=&#8221;image,title&#8221; header_font=&#8221;Rubik|500|||||||&#8221; header_text_color=&#8221;#44465f&#8221; header_font_size=&#8221;14px&#8221; header_line_height=&#8221;32px&#8221; body_font=&#8221;Rubik||||||||&#8221; body_text_color=&#8221;rgba(0,6,69,0.6)&#8221; body_link_text_color=&#8221;#ffffff&#8221; custom_css_main_element=&#8221;font-weight: 400;&#8221; border_radii_image=&#8221;on|100px|100px|100px|100px&#8221; border_color_all_image=&#8221;#ffffff&#8221; box_shadow_style_image=&#8221;preset1&#8243; box_shadow_vertical_image=&#8221;20px&#8221; box_shadow_blur_image=&#8221;40px&#8221; box_shadow_color_image=&#8221;rgba(68,70,95,0.27)&#8221; image_max_width=&#8221;100px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<p>Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. <a href=\"https:\/\/www.amazon.com\/Sharing-Abundantly-Special-Needs-Families\/dp\/0802418627\">Sharing Love Abundantly with Special Needs Families: The 5 Love Languages\u00ae for Parents Raising Children with Disabilities<\/a>, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. <a href=\"https:\/\/www.amazon.com\/See-Jane-Dance-Mystery-Mysteries\/dp\/B0CJKY826X\/\">See Jane Dance!<\/a>, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_comments _builder_version=&#8221;4.16&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#EBDCB2&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_sidebar _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;159deg&#8221; background_color_gradient_stops=&#8221;#42313A 0%|#EBDCB2 100%&#8221; background_color_gradient_start=&#8221;#42313A&#8221; background_color_gradient_end=&#8221;#EBDCB2&#8243; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; border_width_all=&#8221;3px&#8221; border_color_all=&#8221;#1c1259&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_padding=&#8221;25px|0px|5px|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; module_class=&#8221;horizontal_optin_column_1&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; header_text_align=&#8221;right&#8221; header_text_color=&#8221;#45107a&#8221; header_3_font=&#8221;Dancing Script|700|||||||&#8221; header_3_text_align=&#8221;center&#8221; header_3_text_color=&#8221;#B4DBC0&#8243; header_3_font_size=&#8221;45px&#8221; custom_margin=&#8221;10px||||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<h3>Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_signup mailchimp_list=&#8221;JolenePhilo|89f719a52b&#8221; layout=&#8221;bottom_top&#8221; first_name_fullwidth=&#8221;off&#8221; last_name_field=&#8221;off&#8221; email_fullwidth=&#8221;off&#8221; module_class=&#8221;custom_emailoptin&#8221; _builder_version=&#8221;4.16&#8243; form_field_focus_background_color=&#8221;#42313A&#8221; background_enable_color=&#8221;off&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;16px&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#B4DBC0&#8243; button_border_width=&#8221;2px&#8221; button_border_radius=&#8221;0px&#8221; button_font=&#8221;|||on|||||&#8221; button_use_icon=&#8221;off&#8221; button_custom_margin=&#8221;5px||||false|false&#8221; button_custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; custom_padding=&#8221;0px|0px|0px|0px|false|false&#8221; border_width_all_fields=&#8221;2px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; header_font=&#8221;EB Garamond|600|||||||&#8221; header_text_color=&#8221;#B6452C&#8221; header_font_size=&#8221;50px&#8221; header_text_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221;]<h1 style=\"text-align: center;\">Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;current&#8221; show_more=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; header_text_color=&#8221;#42313A&#8221; meta_font=&#8221;||on||||||&#8221; read_more_font=&#8221;|||on|||||&#8221; read_more_text_color=&#8221;#B6452C&#8221; read_more_font_size=&#8221;12px&#8221; pagination_text_color=&#8221;#B6452C&#8221; pagination_font_size=&#8221;20px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"<p>Parent Sue Badeau is here to answer the question: What special needs church support do families of kids with terminal diagnoses need?<\/p>\n","protected":false},"author":1,"featured_media":43935,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<a href=\"http:\/\/differentdream.com\/2012\/10\/special-needs-church-support-advice-from-a-parent\/id-10020771\/\" rel=\"attachment wp-att-7057\"><img class=\"aligncenter wp-image-7057 size-full\" title=\"Special Needs Ministry inclusion Advice\" src=\"http:\/\/differentdream.com\/wp-content\/uploads\/2012\/09\/ID-10020771.jpg\" alt=\"Parent Sue Badeau is here to answer the question: What special needs church support do families of kids with terminal diagnoses need?\" width=\"400\" height=\"300\" \/><\/a>\n\nSpecial needs and Sue Badeau are a great pair as the August 2012 interview series about <a href=\"http:\/\/differentdream.com\/2012\/08\/adopting-terminally-ill-children-one-familys-story-pt-1\/\">adopting children with terminal special needs<\/a> shows. Today, she's back to answer one more question I asked during the interview: What can churches do to support families with children who have terminal special needs? She answered with three pieces of practical advice.\n<h3>Special Needs Church Support: Tip 1<\/h3>\nI would like to see churches play a stronger role in supporting families caring for children with special needs and those who are terminally ill.\u00a0 While our church has \u201cbeen there\u201d for us, they often did not know how to best support us.\u00a0 For example, there were long periods of years when some of our children simply could not come to church due to their medical conditions.\u00a0 This meant that Hector and I had to take turns attending church so that one of us could stay home.\u00a0 Wouldn\u2019t it have been great if the church had offered to set up a schedule of volunteers to come to our home on Sunday mornings and stay with our sons on a rotating basis so we could attend church together?\n<h3>Special Needs Church Support: Tip 2<\/h3>\nAnother example \u2013 we have many children with significant mental health diagnoses and behavioral health challenges.\u00a0 These children are the ones who sometimes stray into drug addictions, and behaviors that are very challenging such as stealing or running away.\u00a0 Wouldn\u2019t it be great if a small group of caring adults from church made a covenant to pray every day for your child and checked in with you from time to time to ask how to best pray?\n<h3>Special Needs Church Support: Tip 3<\/h3>\nA final example \u2013 often the child with the most severe challenges or terminal illness is not the only child in the family and yet requires an inordinate amount of the parents\u2019 time and attention.\u00a0 Perhaps the needs of this child also stretch the family budget to the breaking point.\u00a0 Wouldn\u2019t it be great if the church found ways to support the other child or children in the family by taking them to the movies or providing a scholarship so they can attend a week of summer camp or take ballet lessons?\n\nThese are just a few examples of ways that churches could take initiative and provide supportive pastoral care and fellowship for families going through difficult challenges while raising children with special needs or who are terminally ill.\u00a0 While it is true that these parents could be more pro-active and ask for this help, they are often too exhausted and overwhelmed to do so.\u00a0 If the church could stand in the gap for these parents and take the initiative to pro-actively support them, it would be a ministry worthy of a King!\n<h3>More Special Needs Church Support Advice<\/h3>\nThank you, Sue, for those examples of practical ways for churches to support our kids. For more ideas of what your church or you can do, check out these posts:\n<ul>\n \t<li><a href=\"http:\/\/differentdream.com\/2011\/06\/7-things-you-can-do-to-help\/\">7 Things You Can Do to Help<\/a><\/li>\n \t<li><a href=\"http:\/\/differentdream.com\/2011\/03\/10-tips-for-working-with-families-of-kids-with-special-needs\/\">10 Tips for Working with Families of Kids with Special Needs<\/a><\/li>\n \t<li><a href=\"http:\/\/differentdream.com\/2010\/10\/how-to-support-the-parents-of-a-child-with-special-needs\/\">How to Support the Parents of a Child with Special Needs<\/a><\/li>\n<\/ul>\nAs always, your tips are appreciated, too. So chime in below with your ideas about how churches can support special needs families. And be sure to stop by Sue's blog, <a href=\"http:\/\/www.badeaufamily.com\/\" target=\"_blank\" rel=\"noopener\">www.thebadeaufamily.com<\/a> to keep up with their latest adventures.\n\n<em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3753,3583],"tags":[37,3711,3713,3752,3714],"class_list":["post-7056","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-special-needs-ministry","category-spiritual-support","tag-adoption","tag-hector-and-sue-badeau","tag-special-needs-adoption","tag-special-needs-church-support","tag-terminally-ill-children"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Special Needs Church Support: Advice from a Parent<\/title>\n<meta name=\"description\" content=\"Parent Sue Badeau is here to answer the question: What special needs church support do families of kids with terminal diagnoses need?\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, 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