{"id":6973,"date":"2012-09-20T07:00:41","date_gmt":"2012-09-20T12:00:41","guid":{"rendered":"http:\/\/f06.70c.myftpupload.com\/?p=6973"},"modified":"2012-09-20T07:00:41","modified_gmt":"2012-09-20T12:00:41","slug":"julie-keons-advice-for-parents-part-2","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/julie-keons-advice-for-parents-part-2\/","title":{"rendered":"Julie Keon’s Advice for Parents, Part 2"},"content":{"rendered":"\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.16″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false” global_colors_info=”{}”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.16″ custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.16″ _dynamic_attributes=”src” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.22.2″ hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]

Julie Keon, author of the essay, What I Would Tell You<\/em><\/a><\/span>, is back today. In yesterday’s post you learned Tim and Julie Keon’s special needs parenting story<\/a><\/span>. Today, she explains how life changed after the essay went viral and she started her blog, www.whatiwouldtellyou.com<\/a><\/span>.<\/p>\n

Julie, what\u2019s the history of your What I Would Tell You<\/em> essay? When it went viral, how did your life change?<\/strong><\/p>\n

The essay What I Would Tell You<\/em> felt like some sort of divine intervention. I saw the mother in the waiting lounge at our children\u2019s hospital in late June of 2011 and I was so profoundly touched when our eyes met that the moment I was out of the building, I started to weep. The words of the essay started flowing into my mind. I could not wait to get home to write it all down. Hours later, I ran upstairs and opened a journal and scribbled the entire essay out in a matter of 30 minutes. I then posted it as a \u201cNote\u201d on Facebook. Within 24 hours, I was receiving messages from all over the world. My friend, who is also the father of a child with special needs, urged me to allow him to create a website as a home base for the essay so that more people could access it. The website was born and I started the blog portion of it in September of 2011.<\/p>\n

What encouragement do you have for parents raising kids with a special needs diagnoses…other than your wise words in What I Would Tell You<\/em>?<\/strong><\/p>\n

That\u2019s a tough question, as I think the essay covers everything. Perhaps, I would encourage them to have faith whether that be through their religious, spiritual, or universal beliefs. I hate to admit it, but I am starting to really surrender to the possibility that there really are no mistakes and that we all have a journey and purpose to live out even if that journey or experience makes absolutely no sense to our limited human mind. Having faith in something greater can be very comforting when things start to get really overwhelming.<\/p>\n

What can churches, schools, friends, family, and the medical community do to better support parents of kids with special needs?<\/strong><\/p>\n

I think that there needs to be a genuine understanding that the parents really DO KNOW BEST when it comes to their children. There is a whole lot of talk about this, but I am not certain how many professionals really believe it. I think that when any individual or group makes an effort to ask questions and attempt to understand the real day-to-day experience of the family, then naturally they will offer support that is both effective and useful. Support must be given under the terms of the recipient as opposed to the giver assuming what the recipient needs\u2026..if that makes sense.<\/p>\n

What do you want to say that\u2019s not been asked?<\/strong><\/p>\n

I would just like to say thank you for interviewing me, Jolene, and for the wonderful work that you do! I would also add that I am working hard on a book that I hope will be helpful to those who read it eventually. Thank you to everyone who has read and supported What I Would Tell You.<\/em><\/p>\n

What Would You Like to Tell Julie?<\/strong><\/p>\n

Julie, you are most welcome. The pleasure was all mine! And when your book comes out, please send an update. I’d love to post a review and help publicize it.<\/p>\n

How about the rest of you? What would you like to say to Julie? Leave a comment with your own thoughts and experiences or just to say thank you. And if haven’t yet ready Julie<\/span> Keon’s essay, What I Would Tell You<\/em><\/span>,<\/a> please stop by her website to read it!<\/p>\n

Julie Keon’s Advice for Parents, Part 1<\/a><\/span><\/strong><\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false” global_colors_info=”{}”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@” icon_placement=”left” image_icon_width=”100px” content_max_width=”800px” _builder_version=”4.16″ _dynamic_attributes=”image,title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” image_max_width=”100px” locked=”off” global_colors_info=”{}”]

Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages\u00ae for Parents Raising Children with Disabilities<\/a>, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dance!<\/a>, the third book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2023.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_comments _builder_version=”4.16″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″ global_colors_info=”{}”][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ use_background_color_gradient=”on” background_color_gradient_direction=”159deg” background_color_gradient_stops=”#42313A 0%|#EBDCB2 100%” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.16″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”]

Subscribe for Updates from Jolene<\/h3>[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_signup mailchimp_list=”JolenePhilo|89f719a52b” layout=”bottom_top” first_name_fullwidth=”off” last_name_field=”off” email_fullwidth=”off” module_class=”custom_emailoptin” _builder_version=”4.16″ form_field_focus_background_color=”#42313A” background_enable_color=”off” custom_button=”on” button_text_size=”16px” button_text_color=”#42313A” button_bg_color=”#B4DBC0″ button_border_width=”2px” button_border_radius=”0px” button_font=”|||on|||||” button_use_icon=”off” button_custom_margin=”5px||||false|false” button_custom_padding=”0px|0px|0px|0px|false|false” custom_padding=”0px|0px|0px|0px|false|false” border_width_all_fields=”2px” global_colors_info=”{}”][\/et_pb_signup][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ header_font=”EB Garamond|600|||||||” header_text_color=”#B6452C” header_font_size=”50px” header_text_shadow_style=”preset1″ global_colors_info=”{}”]

Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_blog fullwidth=”off” posts_number=”3″ include_categories=”current” show_more=”on” _builder_version=”4.16″ header_text_color=”#42313A” meta_font=”||on||||||” read_more_font=”|||on|||||” read_more_text_color=”#B6452C” read_more_font_size=”12px” pagination_text_color=”#B6452C” pagination_font_size=”20px” global_colors_info=”{}”][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"

Julie Keon, author of the essay, What I Would Tell You, is back. Today, she explains how life changed after the essay went viral.<\/p>\n","protected":false},"author":1,"featured_media":43626,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"Julie<\/a>\n\nJulie Keon author of the essay,\u00a0 What I Would Tell You<\/em><\/a>, is back today. In yesterday's post you learned Tim and Julie Keon's special needs parenting story<\/a>. Today, she explains how life changed after the essay went viral and she started her blog, www.whatiwouldtellyou.com<\/a>.\n

Julie, what\u2019s the history of your What I Would Tell You<\/em> essay? When it went viral, how did your life change?<\/h4>\nThe essay What I Would Tell You<\/em> felt like some sort of divine intervention. I saw the mother in the waiting lounge at our children\u2019s hospital in late June of 2011 and I was so profoundly touched when our eyes met that the moment I was out of the building, I started to weep. The words of the essay started flowing into my mind. I could not wait to get home to write it all down. Hours later, I ran upstairs and opened a journal and scribbled the entire essay out in a matter of 30 minutes. I then posted it as a \u201cNote\u201d on Facebook. Within 24 hours, I was receiving messages from all over the world. My friend, who is also the father of a child with special needs, urged me to allow him to create a website as a home base for the essay so that more people could access it. The website was born and I started the blog portion of it in September of 2011.\n

What encouragement do you have for parents raising kids with a special needs diagnoses...other than your wise words in What I Would Tell You<\/em>?<\/h4>\nThat\u2019s a tough question as I think the essay covers everything. Perhaps, I would encourage them to have faith whether that be through their religious\/ spiritual or universal beliefs. I hate to admit it, but I am starting to really surrender to the possibility that there really are no mistakes and that we all have a journey and purpose to live out even if that journey or experience makes absolutely no sense to our limited human mind. Having faith in something greater can be very comforting when things start to get really overwhelming.\n

What can churches, schools, friends, family, medical community do to better support parents of kids with special needs?<\/h4>\nI think that there needs to be a genuine understanding that the parents really DO KNOW BEST when it comes to their children. There is a whole lot of talk about this, but I am not certain how many professionals really believe it. I think that when any individual or group makes an effort to ask questions and attempt to understand the real day-to-day experience of the family, then naturally they will offer support that is both effective and useful. Support must be given under the terms of the recipient as opposed to the giver assuming what the recipient needs\u2026..if that makes sense.\n

What do you want to say that\u2019s not been asked?<\/h4>\nI would just like to say thank you for interviewing me, Jolene, and for the wonderful work that you do! I would also add that I am working hard on a book that I hope will be helpful to those who read it eventually. Thank you to everyone who has read and supported What I Would Tell You.<\/em>\n

What Would You Like to Tell Julie?<\/h3>\nJulie, you are most welcome. The pleasure was all mine! And when your book comes out, please send an update. I'd love to post a review and help publicize it.\n\nHow about the rest of you? What would you like to say to Julie? Leave a comment with your own thoughts and experiences or just to say thank you. And if haven't het ready Julie Keon's essay, What I Would Tell You<\/em>,<\/a> please stop by her website to read it!\n\nPart 1<\/a>\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3574,3561],"tags":[3735,3736,3737,3738],"class_list":["post-6973","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-self-care-and-stress","category-special-needs-parenting","tag-birth-injury","tag-julie-keon","tag-oxygen-deprivation","tag-what-i-would-tell-you"],"yoast_head":"\nJulie Keon's Advice for Parents, Part 2<\/title>\n<meta name=\"description\" content=\"Julie Keon author of the essay, What I Would Tell You, is back. 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