{"id":44275,"date":"2025-01-08T09:38:41","date_gmt":"2025-01-08T15:38:41","guid":{"rendered":"https:\/\/differentdream.com\/?p=44275"},"modified":"2025-01-08T09:38:41","modified_gmt":"2025-01-08T15:38:41","slug":"ea-tef-and-starting-preschool","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/ea-tef-and-starting-preschool\/","title":{"rendered":"How Can an EA\/TEF Parent\u2019s Anxiety Be Held in Check Before their Child Starts School?"},"content":{"rendered":"\n[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_fullwidth_post_title featured_image=&#8221;off&#8221; _builder_version=&#8221;4.16&#8243; title_font=&#8221;||||||||&#8221; title_text_color=&#8221;#42313A&#8221; title_font_size=&#8221;40px&#8221; meta_font_size=&#8221;14px&#8221; background_color=&#8221;#B4DBC0&#8243; custom_padding=&#8221;50px||50px||false|false&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; specialty=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px||0px|||&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column type=&#8221;3_4&#8243; specialty_columns=&#8221;3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_image src=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.16&#8243; _dynamic_attributes=&#8221;src&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.27.0&#8243; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221; sticky_enabled=&#8221;0&#8243;]<p><em>How can an <\/em><span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\"><em>EA\/TEF<\/em><\/a><\/span><em> parent\u2019s anxiety be held in check before their child starts school? Karena Skibinski began asking herself that question several months before her son started preschool. In today\u2019s post, which is part of Different Dream\u2019s ongoing series for <\/em><span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\"><em>EA\/TEF<\/em><\/a><\/span><em> Awareness Month, Karena writes about six actions that helped her the most. She hopes they will help you too.<\/em><\/p>\n<p>Three years ago, we were still in the thick of our NICU stay with our son, Lincoln. Shortly after he was born, he was rushed to the nearest children\u2019s hospital (which, turns out, is one of the best in the nation) and was then diagnosed with Esophageal Atresia (EA), Type C. Two major surgeries, one <span style=\"text-decoration: underline;\"><a href=\"https:\/\/health.ucdavis.edu\/children\/patient-education\/Introduction-to-Gastrostomy-Tube\">G-tube<\/a><\/span>, and 87 days later, he was discharged. His first 18 months were a blur and were filled with various doctor appointments, dilations, scopes, and various therapies.<\/p>\n<p>Fast forward to now. He turned 3 this past October, and things have been going well. Instead of all of those appointments, our days are filled with nature walks, Lego, potty training, playing with his big brother, and trying new foods. Lincoln reached a big milestone in August. He started preschool. He attends the same preschool as his big brother, so he was somewhat familiar with the building, some of the teachers, and the general morning\/pickup\/drop off routine.<\/p>\n<p>I was a different story. Aside from when Lincoln was discharged from the NICU, his starting preschool was what I was most anxious about. This would be the first time he\u2019d be in the care of someone else, as we made it work for me to stay home with him those first few years. I had so many questions. How would he adjust? How could the teachers keep an eye on him with so many other kiddos in the classroom? What about the sickness that inevitably comes along with starting school? All of these questions\u2014and about 100 more\u2014were swirling around in my mind at least a few months before the first day.<\/p>\n<p>Here are 6 things that made the transition to preschool easier for our family.<\/p>\n<ol>\n<li><strong>Therapy for myself:<\/strong> I\u2019ve been in therapy for several years now, and it\u2019s been one of the best things for my overall well-being. I am a huge advocate for therapy! It\u2019s truly wonderful to have a scheduled space with a trusted therapist to continue processing the trauma related to Lincoln\u2019s birth and the fears that go along with raising a medically complex child.<\/li>\n<li><strong>Implementing a solid general routine:<\/strong> This is foundational for any kiddo, and there is lots of research supporting the efficacy of a good routine. It builds predictability, which in turn builds confidence and space to learn, explore, and grow.<\/li>\n<li><strong>Meeting with the teachers beforehand, and ongoing open communication:<\/strong> Our school gave us the opportunity to meet with Lincoln\u2019s teachers a couple weeks before school started. We also filled out paperwork related to general topics about Lincoln (e.g. what he likes, what he doesn\u2019t like, etc.) as well as about his medical background, and a general mealtime plan that we went over face-to-face. This gave me peace of mind!<\/li>\n<li><strong>Getting a copy of the breakfast\/lunch\/snack menu and being in touch with the school chef: <\/strong>We went through the menu and identified foods that Lincoln may need modified or substituted (e.g. carrots, grapes). This is kept in the kitchen.<\/li>\n<li><strong>Providing a copy of <\/strong><span style=\"text-decoration: underline;\"><a href=\"https:\/\/emerald-zaria-35.tiiny.site\/\"><strong>this informational handout<\/strong><\/a><\/span><strong> as well as a document that contained all of Lincoln\u2019s medical background\/medications: <\/strong>I found an outline similar to this in one of the <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\">EA\/TEF<\/a><\/span> Facebook groups that I am in. I emailed the completed document to the school about 4 months prior to Lincoln starting school. It was a way to get communication started about his condition. I\u2019ve provided a short, one-page document with Lincoln\u2019s medical background and medications. It is kept in his file at school. Should EMS ever need to be involved, the document provides them with quick information related to his medical needs.<\/li>\n<li><strong>Providing \u201cjust-in-case\u201d items:<\/strong> I\u2019ve heard some families provide yogurt for their <a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\"><span style=\"text-decoration: underline;\">EA\/TEF<\/span><\/a> kiddo to have during lunch time, but we\u2019ve only provided a small can of Coke for the teachers in case of a \u201cstuckie.\u201d Coca Cola has been most beneficial for Lincoln in that situation.<\/li>\n<\/ol>\n<p>Lincoln\u2019s been in half-day preschool 4 days a week for one whole semester now, and things have been better than I could\u2019ve imagined. Luckily we have had no issues, and going to school has had a positive impact on his overall development and our family dynamics as well!<\/p>\n<p><em>Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email.<\/em><\/p>\n<p><span style=\"font-size: x-small;\">Photo by\u00a0<a href=\"https:\/\/unsplash.com\/@mourimoto?utm_content=creditCopyText&amp;utm_medium=referral&amp;utm_source=unsplash\">Mourizal Zativa<\/a>\u00a0on\u00a0<a href=\"https:\/\/unsplash.com\/photos\/blue-red-and-yellow-lego-blocks-OSvN1fBcXYE?utm_content=creditCopyText&amp;utm_medium=referral&amp;utm_source=unsplash\">Unsplash<\/a><\/span><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; background_color=&#8221;#b4dbc0&#8243; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_blurb title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&#8221; image=&#8221;https:\/\/differentdream.com\/wp-content\/uploads\/2025\/01\/karena-skibinski-2025.jpg&#8221; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;100px&#8221; content_max_width=&#8221;800px&#8221; _builder_version=&#8221;4.27.0&#8243; _dynamic_attributes=&#8221;title&#8221; header_font=&#8221;Rubik|500|||||||&#8221; header_text_color=&#8221;#44465f&#8221; header_font_size=&#8221;14px&#8221; header_line_height=&#8221;32px&#8221; body_font=&#8221;Rubik||||||||&#8221; body_text_color=&#8221;rgba(0,6,69,0.6)&#8221; body_link_text_color=&#8221;#ffffff&#8221; hover_enabled=&#8221;0&#8243; custom_css_main_element=&#8221;font-weight: 400;&#8221; border_radii_image=&#8221;on|100px|100px|100px|100px&#8221; border_color_all_image=&#8221;#ffffff&#8221; box_shadow_style_image=&#8221;preset1&#8243; box_shadow_vertical_image=&#8221;20px&#8221; box_shadow_blur_image=&#8221;40px&#8221; box_shadow_color_image=&#8221;rgba(68,70,95,0.27)&#8221; image_max_width=&#8221;100px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221; title_text=&#8221;karena-skibinski-2025&#8243; sticky_enabled=&#8221;0&#8243;]<p>Karena Skibinski is a mother and occupational therapist. After taking a few years off to be home with her children, she recently returned to working weekends in a hospital setting. It\u2019s been such a blessing to her and her family. When she&#8217;s not busy running around with her two boys (Lennox is 5 and Lincoln is 3) or working, you can find her in the kitchen trying new recipes, going on long walks with her two pups, or taking an afternoon nap. Through her work, her mission is to bring more awareness to <a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\">EA\/TEF<\/a> and to provide reassurance to <a href=\"https:\/\/www.childrenshospital.org\/conditions\/tracheoesophageal-fistula\">EA\/TEF<\/a> families that they aren&#8217;t alone.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column_inner saved_specialty_column_type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_comments _builder_version=&#8221;4.16&#8243; custom_button=&#8221;on&#8221; button_text_color=&#8221;#42313A&#8221; button_bg_color=&#8221;#EBDCB2&#8243; global_colors_info=&#8221;{}&#8221; 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read_more_font=&#8221;|||on|||||&#8221; read_more_text_color=&#8221;#B6452C&#8221; read_more_font_size=&#8221;12px&#8221; pagination_text_color=&#8221;#B6452C&#8221; pagination_font_size=&#8221;20px&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"<p>Karena Skibinski shares her answers to the question: How can an EA\/TEF parent&#8217;s anxiety be held in check before their child starts school?<\/p>\n","protected":false},"author":1,"featured_media":44467,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3567,3606,3561],"tags":[4010,4257,4259],"class_list":["post-44275","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-how-tos","category-schooleducation","category-special-needs-parenting","tag-anxiety","tag-karena-skibinski","tag-preschool"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.8 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>How Can an EA\/TEF Parent\u2019s Anxiety Be Held in Check Before their Child Starts School? - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Karena Skibinski shares her answers to the question: How can an EA\/TEF parent&#039;s anxiety be 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