{"id":44108,"date":"2025-01-27T09:11:03","date_gmt":"2025-01-27T15:11:03","guid":{"rendered":"https:\/\/differentdream.com\/?p=44108"},"modified":"2025-01-27T09:11:03","modified_gmt":"2025-01-27T15:11:03","slug":"lessons-learned-while-raising-a-child-with-eatef","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/lessons-learned-while-raising-a-child-with-eatef\/","title":{"rendered":"The Lessons I Learned while Raising a Child with EA\/TEF"},"content":{"rendered":"\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.16″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false” global_colors_info=”{}”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.16″ custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.16″ _dynamic_attributes=”src” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.0″ custom_padding=”||3px|||” global_colors_info=”{}”]

The lessons I learned while raising a child with EA\/TEF<\/a><\/span> have been many and varied. That\u2019s to be expected since our son was born in 1982 with esophageal atresia (EA)<\/a><\/span> and a tracheoesophageal fistula (TEF)<\/span><\/a>, two conditions that left him unable to swallow and required immediate surgery.<\/p>\n

Many of the lessons came about as a result of the surgeries and invasive procedures he endured between birth and age 5. Other lessons came later as he became more independent in adolescence and adulthood. I encourage you to use these ten lessons as a springboard for considering what you\u2019ve learned as well.<\/p>\n

    \n
  1. I\u2019m not in control, but God is and I can trust him.<\/em> When the doctor diagnosed our son\u2019s condition, I instantly realized God was in control and I wasn\u2019t. Accepting that truth and trusting God with our baby\u2019s life\u2014or death\u2014took about eight months. When I accepted this truth, raging anxiety subsided so I could be the mother our son needed.<\/li>\n
  2. Our child was a gift from God.<\/em> He belongs to God, who gave him to us to steward for however long he lived. Realizing this truth allowed us to rejoice each day he was with us, to delight in him as he came into himself instead of molding him into what we wanted for him. I had to relearn that lesson often, especially when as an adolescent and young adult his decisions were not always wise or in line with my faith.<\/li>\n
  3. Write it all down. <\/em>Journal about your feelings, about where you\u2019ve seen God show up, and whatever else you want to record. You should also compile a written document containing your child\u2019s health history and your observations about their individual EA\/TEF<\/a><\/span> journey. Make a paper copy to update as needed. Because your child has no explicit memory of when surgeries took place or the reason for them, present a paper copy to keep in a safe place when they turn age eighteen. Who knows when they may need it.<\/li>\n<\/ol>\n

    To read the rest of The Lessons I Learned while Raising a Child with EA\/TEF visit the Key Ministry website.<\/strong><\/a><\/span><\/p>\n

    Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.<\/em><\/p>\n

    Road Image by\u00a0jodeng<\/a>\u00a0from\u00a0Pixabay; <\/a><\/span>Leaves Image by\u00a0Sabine Kroschel<\/a>\u00a0from\u00a0Pixabay<\/a><\/span><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false” global_colors_info=”{}”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@” icon_placement=”left” image_icon_width=”100px” content_max_width=”800px” _builder_version=”4.16″ _dynamic_attributes=”image,title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” image_max_width=”100px” locked=”off” global_colors_info=”{}”]

    Jolene Philo is the author of several books for the caregiving community. She speaks at parenting and special needs conferences around the country. Sharing Love Abundantly with Special Needs Families: The 5 Love Languages\u00ae for Parents Raising Children with Disabilities<\/a>, which she co-authored with Dr. Gary Chapman, was released in August of 2019 and is available at local bookstores, their bookstore website, and Amazon. See Jane Dig!<\/a>, the fourth book in the West River cozy mystery series, which features characters affected by disability, was released in October of 2024.<\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_comments _builder_version=”4.16″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″ global_colors_info=”{}”][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ use_background_color_gradient=”on” background_color_gradient_direction=”159deg” background_color_gradient_stops=”#42313A 0%|#EBDCB2 100%” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.16″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”]

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    Jolene Philo reflects on a lifetime of lessons learned while raising a child with EA\/TEF and shares the insights she’s won.<\/p>\n","protected":false},"author":1,"featured_media":44492,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"2880","footnotes":""},"categories":[3559,3615,3561,3583],"tags":[3826,969,4258],"class_list":["post-44108","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-different-dream","category-encouragement","category-special-needs-parenting","category-spiritual-support","tag-ea-tef","tag-ptsd","tag-reminisce"],"yoast_head":"\nThe Lessons I Learned while Raising a Child with EA\/TEF - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Jolene Philo reflects on a lifetime of lessons learned while raising a child with EA\/TEF and shares the insights she's won.\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Lessons I Learned while Raising a Child with EA\/TEF - 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