{"id":43917,"date":"2012-10-16T07:00:33","date_gmt":"2012-10-16T12:00:33","guid":{"rendered":"http:\/\/f06.70c.myftpupload.com\/?p=7095"},"modified":"2012-10-16T07:00:33","modified_gmt":"2012-10-16T12:00:33","slug":"communication-with-my-daughter-who-has-down-syndrome","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/communication-with-my-daughter-who-has-down-syndrome\/","title":{"rendered":"Communication with My Daughter Who Has Down Syndrome"},"content":{"rendered":"\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.16″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false” global_colors_info=”{}”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.16″ custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.16″ _dynamic_attributes=”src” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.22.2″ hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]

Communication with children who have special needs often requires creativity and flexibility. Today, guest blogger Ellen Stumbo describes the struggles and hopes she has with her daughter Nichole who lives with Down syndrome<\/a><\/span>.<\/em><\/p>\n

Just for a Day:
Communication with My Daughter Who Has Down Syndrome<\/h3>\n

by Ellen Stumbo<\/em><\/p>\n

Just for a day, I wish my daughter with Down syndrome did not struggle with her speech. I know she gets frustrated when we don\u2019t understand her, she tries as hard as she can to enunciate her words right, but sometimes, we still don\u2019t understand what she is saying. She gets irritated, swings her little arms in desperation and yells at us. I don\u2019t blame her, I would feel angry too.<\/p>\n

Just for a day, I wish I could have a conversation with Nichole like I do with my other two daughters. I want to hear about her day at school, about what she likes and doesn\u2019t like. I would ask her all about her favorite things, and I would spend the day talking, chatting, singing with her.<\/p>\n

Just for a day, I wish Nichole\u2019s speech was clear so that people would actually take the time to notice her, to enjoy her, and to listen to what she has to say.
Just for a day, I wish Nichole could speak her mind, all of it, good and bad. Non-stop chatter coming from her lips and straight into my ears.
Just for a day, I wish it was easy to communicate with my daughter.<\/p>\n

She Has a Lot to Say<\/h4>\n

Nevertheless, Nichole does talk. Sure, her words and phrases might be hard to understand, but she has stories to tell us and things to say. The older she gets, the better her speech becomes, and I am confident that we will get there, that someday she will be talking so much we might even ask her to stop.<\/p>\n

Things take Nichole a little bit longer, and it is easy to become impatient and take what we have now for granted. I love the fact that Nichole grabs my hand and shows me what she wants or needs. I love the fact that she is willing to repeat words after me. Her sweet voice is one of the loveliest sounds I have ever heard. I love her \u201cdaddy\u201d call, and her laughter that comes from such an overflow of joy. I love how she surprises and amazes me with new words or new statements. And I know we will get there.<\/p>\n

How Nicole Communicates<\/h4>\n

I love the way she signs<\/a><\/span>, or the way she makes up signs. I smile thinking about the way she grabs my face to get my undivided attention, and to make sure I am listening to what she has to say.<\/p>\n

I love the way she embraces people without caring what they look like or smell like. I have seen a grown man with tears in his eyes, as he expressed, \u201cShe makes me feel loved.\u201d And I realized that without words my daughter was able to communicate a love to this man he had never received. And suddenly I wish I could speak her language of unconditional love.<\/p>\n

And her speech will not always be an issue, I will have conversations with my daughter, and not just for a day.<\/p>\n

Your Communication Struggles and Hopes<\/h3>\n

Thank you, Ellen, for transparently sharing your dreams for Nicole.\u00a0You can also share dreams you have about communicating with your child in the comment box. Ellen and I would love to hear from you.<\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop-up box and the second at the bottom of this page.<\/em><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false” global_colors_info=”{}”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3JfcHJvZmlsZV9waWN0dXJlIiwic2V0dGluZ3MiOnt9fQ==@” icon_placement=”left” image_icon_width=”100px” content_max_width=”800px” _builder_version=”4.16″ _dynamic_attributes=”image,title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” image_max_width=”100px” locked=”off” global_colors_info=”{}”]

Ellen Stumbo is a writer and speaker and the mother of three girls, two with disabilities. To read more of Ellen\u2019s writing, visit her blog at\u00a0<\/span>www.EllenStumbo.com<\/a>.\u00a0 She can also be found on\u00a0<\/span>Twitter<\/a>\u00a0<\/span>and\u00a0<\/span>Facebook<\/a>.<\/i><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_comments _builder_version=”4.16″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″ global_colors_info=”{}”][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.16″ global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ use_background_color_gradient=”on” background_color_gradient_direction=”159deg” background_color_gradient_stops=”#42313A 0%|#EBDCB2 100%” background_color_gradient_start=”#42313A” background_color_gradient_end=”#EBDCB2″ custom_padding=”0px|0px|0px|0px|false|false” border_width_all=”3px” border_color_all=”#1c1259″ saved_tabs=”all” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.16″ width=”100%” max_width=”100%” custom_margin=”||0px||false|false” custom_padding=”25px|0px|5px|0px|false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ module_class=”horizontal_optin_column_1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text _builder_version=”4.16″ header_text_align=”right” header_text_color=”#45107a” header_3_font=”Dancing Script|700|||||||” header_3_text_align=”center” header_3_text_color=”#B4DBC0″ header_3_font_size=”45px” custom_margin=”10px||||false|false” custom_padding=”||||false|false” global_colors_info=”{}”]

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Related Posts<\/h1>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.16″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_blog fullwidth=”off” posts_number=”3″ include_categories=”current” show_more=”on” _builder_version=”4.16″ header_text_color=”#42313A” meta_font=”||on||||||” read_more_font=”|||on|||||” read_more_text_color=”#B6452C” read_more_font_size=”12px” pagination_text_color=”#B6452C” pagination_font_size=”20px” global_colors_info=”{}”][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"

Communication with children who have special needs requires creativity. Ellen Stumbo shares her dreams of talking with her daughter with Down syndrome.<\/p>\n","protected":false},"author":1,"featured_media":43385,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"Communication<\/a>\n\nCommunication with children who have special needs often requires creativity and flexibility. Today, guest blogger Ellen Stumbo<\/a> describes the struggles and hopes she has with her daughter Nichole who lives with Down syndrome<\/a>.\n

Just for a Day:\nCommunication with My Daughter Who Has Down Syndrome<\/h3>\n

by Ellen Stumbo<\/em><\/p>\nJust for a day, I wish my daughter with Down syndrome did not struggle with her speech. I know she gets frustrated when we don\u2019t understand her, she tries as hard as she can to enunciate her words right, but sometimes, we still don\u2019t understand what she is saying. She gets irritated, swings her little arms in desperation and yells at us. I don\u2019t blame her, I would feel angry too.\n\nJust for a day, I wish I could have a conversation with Nichole like I do with my other two daughters. I want to hear about her day at school, about what she likes and doesn\u2019t like. I would ask her all about her favorite things and I would spend the day talking, chatting, singing with her.\n\nJust for a day, I wish Nichole\u2019s speech was clear so that people would actually take the time to notice her, to enjoy her, and to listen to what she has to say.\nJust for a day, I wish Nichole could speak her mind, all of it, good and bad. Non-stop chatter coming from her lips and straight into my ears.\nJust for a day, I wish it was easy to communicate with my daughter.\n

She Has a Lot to Say<\/h4>\nNevertheless, Nichole does talk. Sure, her words and phrases might be hard to understand, but she has stories to tell us and things to say. The older she gets, the better her speech becomes, and I am confident that we will get there, that someday she will be talking so much we might even ask her to stop.\n\nThings take Nichole a little bit longer, and it is easy to become inpatient and take what we have now for granted. I love the fact that Nichole grabs my hand and shows me what she wants or needs. I love the fact that she is willing to repeat words after me and her sweet voice is one of the loveliest sounds I have ever heard. I love her \u201cdaddy\u201d call, and her laughter that comes from such an overflow of joy. I love how she surprises and amazes me with new words or new statements. And I know we will get there.\n

How Nicole Communicates<\/h4>\nI love the way she signs<\/a>, or the way she makes up signs. I smile thinking about the way she grabs my face to get my undivided attention, and to make sure I am listening to what she has to say.\n\nI love the way she embraces people without caring what they look like or smell like. I have seen a grown man with tears in his eyes, as he expressed, \u201cShe makes me feel loved.\u201d And I realized that without words my daughter was able to communicate a love to this man he had never received. And suddenly I wish I could speak her language of unconditional love.\n\nAnd her speech will not always be an issue, I will have conversations with my daughter, and not just for a day.\n

Your Communication Struggles and Hopes<\/h3>\nThank you, Ellen, for transparently sharing your dreams for Nicole. She shares more of them at www.ellenstumbo.com<\/a>.\u00a0 You can also share dreams you have about communicating with your child in the comment box. Ellen and I would love to hear from you.\n\nDo you like what you see at DifferentDream.com? You can receive more great content by subscribing to the quarterly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/em>","_et_gb_content_width":"2880","footnotes":""},"categories":[3560,3559,3561],"tags":[3563,348,3769,3705,3042],"class_list":["post-43917","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-different-dream","category-special-needs-parenting","tag-communication","tag-down-syndrome","tag-ellen-stumbo","tag-guest-blogger","tag-speech"],"yoast_head":"\nCommunication with My Daughter Who Has Down Syndrome<\/title>\n<meta name=\"description\" content=\"Communication with children who have special needs requires creativity. 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