{"id":32163,"date":"2020-07-09T00:05:12","date_gmt":"2020-07-09T05:05:12","guid":{"rendered":"https:\/\/differentdream.com\/?p=32163"},"modified":"2020-07-09T00:05:12","modified_gmt":"2020-07-09T05:05:12","slug":"painting-my-daughter-in-color","status":"publish","type":"post","link":"https:\/\/jolenephilo.com\/staging\/painting-my-daughter-in-color\/","title":{"rendered":"Painting My Daughter in Color"},"content":{"rendered":"\n[et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_fullwidth_post_title featured_image=”off” _builder_version=”4.4.2″ title_font=”||||||||” title_text_color=”#42313A” title_font_size=”40px” meta_font_size=”14px” background_color=”#B4DBC0″ custom_padding=”50px||50px||false|false” global_colors_info=”{}”][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=”1″ specialty=”on” _builder_version=”4.4.2″ custom_padding=”0px||0px|||” global_colors_info=”{}”][et_pb_column type=”3_4″ specialty_columns=”3″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_image src=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9mZWF0dXJlZF9pbWFnZSIsInNldHRpbmdzIjp7fX0=@” align=”center” _builder_version=”4.4.3″ _dynamic_attributes=”src” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.4.3″ global_colors_info=”{}”]

Painting my daughter in color. This is a priority for guest blogger Laura Spiegel who wants people to see all the colors of her delightful daughter\u2019s personality rather than the black and white of the condition she\u2019s had since birth.<\/i><\/span><\/p>\n

Every day, my six-year-old daughter surprises me.\u00a0<\/span><\/span><\/p>\n

She wants to be a worm doctor when she grows up. You know the people who rescue crusty worms from the sidewalk after the rain? It\u2019s apparently a thing.<\/span><\/p>\n

She has named both her feet. Winston and Abby carry her everywhere, and they are feisty when their names are mixed up.<\/span><\/p>\n

She talks to the flowers and dresses like a witch. A witch in a swimsuit who jumps through the sprinkler with her hat perched atop her head, to be more specific.<\/span><\/p>\n

She invites the neighborhood pests to \u201cant parties\u201d on our front sidewalk. The invitations are simple. Hamburger buns soaked in water and smashed onto the pavement. Never tried it? Give it ten minutes, and the critters will come.<\/span><\/p>\n

\u201cClose the door! You\u2019re letting in flies!\u201d I complain. \u201cI like flies,\u201d she deadpans as she marches down the sidewalk, gray wig in hand.<\/span><\/p>\n

\u201cThis is my favorite book,\u201d she declares. \u201cI\u2019ve never read it, but I like how [the author] decorates the cover and uses proper words and puts page numbers everywhere.\u201d\u00a0<\/span><\/span><\/p>\n

When she grows up, she wants to \u201cchange the world, like Martha King Jr.\u201d She will start by \u201cmaking it illegal to be mean.\u201d<\/span><\/p>\n

Each holiday, she packs a bag of stuffed animals and treasures from her room and gifts it to her mom, her dad, or her big brother. Not just the ratty old stuff. The good stuff too.\u00a0<\/span><\/span><\/p>\n

She makes homemade books with stories, discussion questions, and a concluding word search. Her favorite involves the sun and the moon battling over who gets to be in the sky. Spoiler alert: they learn to share.\u00a0<\/span><\/span><\/p>\n

She is slowly completing her mastery of bad words courtesy her obsession with The Sandlot. <\/i>She just learned what\u2019s funny about the planet Uranus. I\u2019m sure it will make its way into a story soon.<\/span><\/p>\n

She is the only person I know who follows up \u201cI want to make God\u2019s heart full today\u201d with \u201cBy the way, Jesus hit me last Tuesday.\u201d<\/span><\/p>\n

Some days, it takes an act of God to get her to do her respiratory therapy for her cystic fibrosis. Other days, she\u2019s done her therapy and run five laps around the yard for good measure \u2013 all before I wake up.<\/span><\/p>\n

She likes to listen in on my board meetings with the Cystic Fibrosis Lifestyle Foundation<\/a>. She quietly asks whether the other members do mask and vest like she does. The more people who do it, the better.<\/span><\/p>\n

She names her medicines by taste. This makes medication reconciliation with the pharmacist a real treat. \u00a0<\/span><\/span><\/p>\n

She pumps herself up before taking the \u201cyucky, disgusting one\u201d or taking on the monkey bars. \u201cYou can do this,\u201d she\u2019ll whisper. \u201cYou can do hard things.\u201d<\/span><\/p>\n

My daughter\u2019s cystic fibrosis<\/a> is an important part of her, but it doesn\u2019t define her any more than her witch hat or her left foot Abby. To define her by her health alone would be to paint her life \u2013 her world \u2013 in black and white.\u00a0<\/span><\/span><\/p>\n

My daughter is a warrior, a dreamer, and a lover and protector of all things big and small. She also lives with cystic fibrosis<\/a>.\u00a0<\/span><\/span><\/p>\n

And me? Like so many other parents of children with special medical, developmental, or behavioral health care needs, I\u2019m painting my daughter in color.<\/span><\/p>\n

Do you like what you see at DifferentDream.com? You can receive more great content by subscribing to the monthly Different Dream newsletter and signing up for the daily RSS feed delivered to your email inbox. You can sign up for the first in the pop up box and the second at the bottom of this page.<\/i><\/span><\/p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ background_color=”#b4dbc0″ custom_padding=”20px|20px|20px|20px|false|false” global_colors_info=”{}”][et_pb_blurb title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJCeSAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@” image=”http:\/\/differentdream.com\/wp-content\/uploads\/2020\/05\/Headshot.jpg” icon_placement=”left” image_max_width=”100px” content_max_width=”800px” _builder_version=”4.4.3″ _dynamic_attributes=”title” header_font=”Rubik|500|||||||” header_text_color=”#44465f” header_font_size=”14px” header_line_height=”32px” body_font=”Rubik||||||||” body_text_color=”rgba(0,6,69,0.6)” body_link_text_color=”#ffffff” custom_css_main_element=”font-weight: 400;” border_radii_image=”on|100px|100px|100px|100px” border_color_all_image=”#ffffff” box_shadow_style_image=”preset1″ box_shadow_vertical_image=”20px” box_shadow_blur_image=”40px” box_shadow_color_image=”rgba(68,70,95,0.27)” locked=”off” global_colors_info=”{}”]

Laura Spiegel spent 12 years at the world\u2019s largest biotech company, partnering with professionals and care teams to help people with special needs and disabilities lead full and happy lives. In 2013 her daughter was diagnosed with cystic fibrosis. Laura now hosts\u00a0<\/span>Paint Her in Color<\/strong><\/a>, a website that offers emotional support to parents of children with special medical, developmental, or behavioral health care needs. When she isn\u2019t reading, writing, or soaking up time with her husband and kids, Laura can be reached at <\/span>Paint Her in Color<\/strong><\/a>, by email at\u00a0<\/span>laura@paintherincolor.com<\/a><\/strong>, and on <\/span>Facebook<\/strong><\/a> and <\/span>Twitter<\/strong><\/a>.<\/span><\/p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column_inner saved_specialty_column_type=”3_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_comments _builder_version=”4.4.2″ custom_button=”on” button_text_color=”#42313A” button_bg_color=”#EBDCB2″ global_colors_info=”{}”][\/et_pb_comments][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_sidebar _builder_version=”4.4.2″ global_colors_info=”{}”][\/et_pb_sidebar][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.4.2″ custom_padding=”0px|||||” global_colors_info=”{}”][et_pb_row _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.4.2″ global_colors_info=”{}”][et_pb_text _builder_version=”4.4.2″ header_font=”EB Garamond|600|||||||” header_text_color=”#B6452C” header_font_size=”50px” header_text_shadow_style=”preset1″ global_colors_info=”{}”]

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Guest blogger Laura Spiegel says, “Painting my daughter in color helps you see who she is.” Enjoy this a lovely portrait of Laura’s colorful child.<\/p>\n","protected":false},"author":1,"featured_media":32173,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[3560,3559],"tags":[4157,4181],"class_list":["post-32163","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-different-dream","tag-cystic-fibrosis","tag-cystic-fibrosis-lifestyle-foundation"],"yoast_head":"\nPainting My Daughter in Color - Jolene Philo Staging<\/title>\n<meta name=\"description\" content=\"Guest blogger Laura Spiegel says, "Painting my daughter in color helps you see who she is." 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